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Contents

Published online by Cambridge University Press:  02 July 2022

Emily Postan
Emily Postan
Affiliation:
University of Edinburgh

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Information
Embodied Narratives
Protecting Identity Interests through Ethical Governance of Bioinformation
 , pp. v - viii
Publisher: Cambridge University Press
Print publication year: 2022
Creative Commons
Creative Common License - CCCreative Common License - BYCreative Common License - NCCreative Common License - ND
This content is Open Access and distributed under the terms of the Creative Commons Attribution licence CC-BY-NC-ND 4.0 https://creativecommons.org/cclicenses/

Contents

  1. Foreword

    Jackie Leach Scully

  2. Acknowledgements

  3. Table of Cases

  4. 1Attending to Identity

    1. 1.1Introduction

    2. 1.2Terminology

    3. 1.3Guide to the Following Chapters

  5. 2Mapping the Landscape

    1. 2.1Introduction

    2. 2.2Legal Entitlements to Bioinformation

    3. 2.3Seeking Conceptual and Normative Foundations

  6. 3Narrative Self-Constitution

    1. 3.1Introduction

    2. 3.2Identity Narratives

    3. 3.3Two Objections

    4. 3.4Limits on Identity-Constituting Narratives

    5. 3.5Practical and Evaluative Capacities

    6. 3.6The Trouble with Coherence

    7. 3.7Beyond Coherence

    8. 3.8A Practical, Normative Conception of Identity

  7. 4Bioinformation in Embodied Identity Narratives

    1. 4.1Introduction

    2. 4.2Embodied Lives, Embodied Selves

    3. 4.3Bodies in Narrative Identity Theory

    4. 4.4Personal Bioinformation as a Narrative Tool

    5. 4.5The Suitability of Bioinformation: Responding to Concerns

    6. 4.6Moving Beyond Theory

  8. 5Encounters with Bioinformation: Three Examples

    1. 5.1Introduction

    2. 5.2Illustrative Example I: Encounters with Donor Origins

    3. 5.3Illustrative Example II: Encounters with Genetic Risk

    4. 5.4Illustrative Example III: Encounters with Psychiatric Neuroimaging

    5. 5.5Narrativity across the Three Examples

  9. 6Locating Identity Interests

    1. 6.1Introduction

    2. 6.2Our Identity Interests

    3. 6.3Sources of Identity Significance

    4. 6.4Filling a Conceptual and Normative Gap

    5. 6.5Relationships between Structure and Contents

    6. 6.6Distinguishing Identity from Other Interests

    7. 6.7A Fresh Ethical Dimension

  10. 7Responsibilities for Disclosure

    1. 7.1Introduction

    2. 7.2Responsibilities of Potential Disclosers

    3. 7.3Ethical Foundations

    4. 7.4Limiting Considerations

    5. 7.5Ascertaining Where Interests Lie

    6. 7.6Identity-Supporting Communication

    7. 7.7Shared Social Responsibilities

  11. 8Protecting Identity in Practice

    1. 8.1Introduction

    2. 8.2What Would Change?

    3. 8.3Five Disclosure Contexts

    4. 8.4Future Challenges

  12. Bibliography

  13. Index

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  • Contents
  • Emily Postan, University of Edinburgh
  • Book: Embodied Narratives
  • Online publication: 02 July 2022
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  • Contents
  • Emily Postan, University of Edinburgh
  • Book: Embodied Narratives
  • Online publication: 02 July 2022
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  • Contents
  • Emily Postan, University of Edinburgh
  • Book: Embodied Narratives
  • Online publication: 02 July 2022
Available formats
×