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THE POWER OF HABITS: EVALUATION OF A MOBILE HEALTH SOLUTION FOR THE MANAGEMENT OF NARCOLEPSY

Published online by Cambridge University Press:  27 July 2021

Wiktoria Staszak ,
Danielly de Paula  and
Falk Uebernickel
Wiktoria Staszak*
Affiliation:
Hasso Plattner Institute
Danielly de Paula
Affiliation:
Hasso Plattner Institute
Falk Uebernickel
Affiliation:
Hasso Plattner Institute
*
Staszak, Wiktoria, Hasso Plattner Institute, Chair of Design Thinking and Innovation Research, Switzerland, wiktoria.staszak@student.hpi.de

Abstract

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Mobile health, or mHealth, solutions offer great potential in the area of self-monitoring of chronic conditions, where most of the day-to-day management of the condition is done at home by the patient or their caregivers. Narcolepsy is a chronic sleep condition caused by an orexin deficiency in the brain resulting in its inability to regulate sleep cycles, causing poor quality sleep during the day and problems with wakefulness during the day. This paper set out to investigate whether Habitual, an app for tracking symptoms, daily habits and medication adherence for people with narcolepsy could increase their sense of empowerment. Ten participants were asked to test the app during a period of 30 days, after which they were asked to answer a survey to investigate whether their perception of their empowerment towards the management of narcolepsy had changed. Although using the app for only 30 days provides a very limited understanding of the impact of Habitual, this study shows positive indication for future mHealth solutions for the management of narcolepsy. Future studies should test the openness to using an app for the management of narcolepsy with a wider cohort.

Keywords

User centred designEarly design phasesEvaluation
Type
Article
Information
Proceedings of the Design Society , Volume 1: ICED21 , August 2021 , pp. 3081 - 3090
Creative Commons
Creative Common License - CCCreative Common License - BYCreative Common License - NCCreative Common License - ND
This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work.
Copyright
The Author(s), 2021. Published by Cambridge University Press

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