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Designing remote patient and family centred interventions: an exploratory approach

Published online by Cambridge University Press:  16 May 2024

Julian Houwen*
Affiliation:
Leiden University Medical Center, The Netherlands Delft University of Technology, The Netherlands
Ragini S. Karki
Affiliation:
Delft University of Technology, The Netherlands
Veronica R. Janssen
Affiliation:
Leiden University Medical Center, The Netherlands
Valeria Pannunzio
Affiliation:
Delft University of Technology, The Netherlands University of Cambridge, United Kingdom
Douwe E. Atsma
Affiliation:
Leiden University Medical Center, The Netherlands Delft University of Technology, The Netherlands
Maaike S. Kleinsmann
Affiliation:
Leiden University Medical Center, The Netherlands Delft University of Technology, The Netherlands

Abstract

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This research explores the dynamic nature of family involvement in remote patient management for cardiovascular disease and its impact on lifestyle behaviour changes. Through an interview study with patients and family members, we categorise family involvement into three types: Inform, Integrate, and Influence, highlighting the dynamic and heterogeneous nature of family involvement across different phases and activities. Overall, we emphasise the need for personalised and adaptable interventions to cater to the diversity of families and propose a modular approach to remote monitoring design.

Type
Design for Healthcare
Creative Commons
Creative Common License - CCCreative Common License - BYCreative Common License - NCCreative Common License - ND
This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work.
Copyright
The Author(s), 2024.

Footnotes

Julian Houwen and Ragini S. Karki contributed equally to the manuscript.

References

Akinosun, A. S., Polson, R., Diaz-Skeete, Y., De Kock, J. H., Carragher, L., et al. . (2021), "Digital technology interventions for risk factor modification in patients with cardiovascular disease: Systematic review and meta-analysis", Jmir Mhealth and Uhealth, Vol. 9 No. 3, e21061. https://doi.org/10.2196/21061CrossRefGoogle ScholarPubMed
Asbjornsen, R. A., Wentzel, J., Smedsrød, M. L., Hjelmesæth, J., Clark, M. M., et al. . (2020), "Identifying persuasive design principles and behavior change techniques supporting end user values and needs in eHealth interventions for Long-Term Weight Loss Maintenance: Qualitative study", Journal of Medical Internet Research, Vol. 22 No.11. https://doi.org/10.2196/22598CrossRefGoogle ScholarPubMed
Birks, M. and Mills, J. (2011), Grounded Theory: a Practical guide. Thousand Oaks, CA: Sage.Google Scholar
Birtwistle, S., Jones, I., Murphy, R., Gee, I., and Watson, P. M. (2021), “Do what you can with a happy heart”: a longitudinal study of patient and family members’ lived experiences of physical activity post-myocardial infarction", Disability and Rehabilitation, Vol. 44 No. 14, pp. 36613670. https://doi.org/10.1080/09638288.2021.1878560CrossRefGoogle Scholar
Buck, H. G., Hupcey, J. E., Juárez-Vela, R., Vellone, E., and Riegel, B. (2019), "Heart failure care dyadic typology", Journal of Cardiovascular Nursing, Vol. 34 No. 2, pp. 159165. https://doi.org/10.1097/jcn.0000000000000548CrossRefGoogle ScholarPubMed
Cross, N. (1982), "Designerly ways of knowing", Design Studies, Vol. 3 No. 4, pp. 221227. https://doi.org/10.1016/0142-694x(82)90040-0CrossRefGoogle Scholar
Deek, H., Hamilton, S. J., Brown, N., Inglis, S. C., DiGiacomo, M., et al. . (2016), "Family-centred approaches to healthcare interventions in chronic diseases in adults: a quantitative systematic review", Journal of Advanced Nursing, Vol. 72 No.5, pp. 968979. https://doi.org/10.1111/jan.12885CrossRefGoogle ScholarPubMed
Fleury, J. and Moore, S. M. (1999), "Family-centred care after acute myocardial infarction", Journal of Cardiovascular Nursing, Vol. 13 No. 3, 7382. https://doi.org/10.1097/00005082-199904000-00007CrossRefGoogle Scholar
Fricke, E. and Schulz, A. P. (2005), "Design for changeability (DfC): Principles to enable changes in systems throughout their entire lifecycle", Systems Engineering, Vol. 8 No. 4. https://doi.org/10.1002/sys.20039CrossRefGoogle Scholar
Grua, E. M., De Sanctis, M. and Lago, P. (2020), "A reference architecture for personalized and self-adaptive e-Health apps", In Communications in computer and information science, Springer, pp. 195209. https://doi.org/10.1007/978-3-030-59155-7_15CrossRefGoogle Scholar
Haase, L. M. and Laursen, L. N. (2019), “Meaning frames: The structure of problem frames and solution frames”, Design Issues, Vol. 35 No. 3, pp. 20-34. https://doi.org/10.1162/desi_a_00547CrossRefGoogle Scholar
Jansen, J. M., Niemantsverdriet, K., Burghoorn, A. W., Lovei, P., Neutelings, I., et al. . (2020), "Design for co-responsibility: connecting patients, partners, and professionals in bariatric lifestyle changes", In Proceedings of the 2020 ACM Designing Interactive Systems Conference, pp. 1537-1549. https://doi.org/10.1145/3357236.3395469Google Scholar
Jung, J., Kleinsmann, M. S. and Snelders, D. (2022), "A vision for design in the era of collective computing", Journal of Engineering Design, Vol. 33 No. 4, pp. 305342. https://doi.org/10.1080/09544828.2022.2050682CrossRefGoogle Scholar
Kokorelias, K. M., Gignac, M. A. M., Naglie, G. and Cameron, J. I. (2019), "Towards a universal model of family centered care: a scoping review", BMC Health Services Research, 19(1). https://doi.org/10.1186/s12913-019-4394-5CrossRefGoogle ScholarPubMed
Van Kollenburg, J. and Bogers, S. (2019), Data-enabled design: a situated design approach that uses data as creative material when designing for intelligent ecosystems [Ph.D. thesis], Eindhoven University of Technology.Google Scholar
Kotseva, K., De Backer, G., De Bacquer, D., Rydén, L., Hoes, A. W., et al. . (2019), "Lifestyle and impact on cardiovascular risk factor control in coronary patients across 27 countries: Results from the European Society of Cardiology ESC-EORP EUROASPIRE V registry", European Journal of Preventive Cardiology, Vol. 26 No. 8, pp. 824835. https://doi.org/10.1177/2047487318825350CrossRefGoogle Scholar
Lamprinos, I., Demski, H., Mantwill, S., Kabak, Y., Hildebrand, C. and Ploessnig, M. (2016), "Modular ICT-based patient empowerment framework for self-management of diabetes: Design perspectives and validation results. International Journal of Medical Informatics", International Journal of Medical Informatics, Vol. 91, pp. 3143. https://doi.org/10.1016/j.ijmedinf.2016.04.006CrossRefGoogle Scholar
Lee, D. (2019), "A model for designing healthcare service based on the patient experience", International Journal of Healthcare Management, Vol. 12 No. 3, pp. 180-188. https://doi.org/10.1080/20479700.2017.1359956CrossRefGoogle Scholar
Lee, S. M. and Lee, D. (2020). Healthcare wearable devices: an analysis of key factors for continuous use intention. Service Business, Vol. 14 No. 4, 503531. https://doi.org/10.1007/s11628-020-00428-3CrossRefGoogle Scholar
Lim, J. Y., Kim, J. K., Kim, Y., Ahn, S., Yu, J. and Hwang, J. H. (2021), "A modular mobile health app for personalized rehabilitation throughout the breast Cancer care Continuum: Development study", JMIR Formative Research, Vol. 5 No. 4, https://doi.org/10.2196/23304CrossRefGoogle ScholarPubMed
Lyons, K. S. and Lee, C. S. (2018), "The Theory of Dyadic Illness Management", Journal of Family Nursing, Vol. 24 No. 1, pp. 828. https://doi.org/10.1177/1074840717745669CrossRefGoogle ScholarPubMed
Middleton, K. R., Anton, S. D. and Perri, M. G. (2013), "Long-Term adherence to health behavior change", American Journal of Lifestyle Medicine, Vol. 7 No. 6, pp. 395404. https://doi.org/10.1177/1559827613488867CrossRefGoogle ScholarPubMed
Pannunzio, V., Lovei, P., Neutelings, I., Deckers, E., Jansen, J. M., and Burghoorn, A. W. (2020), "Exploring the service system perspective on designing intelligent health ecosystems: the co-responsibility study", 6th International Conference on Design4Health 2020, Vol. 3, pp. 469-477.Google Scholar
Patton, M. Q. (2015), Qualitative research & evaluation methods: Integrating theory and practice (4th ed.). Thousand Oaks, CA, Sage.Google Scholar
Rippe, J. M. (2018), "Lifestyle strategies for risk factor reduction, prevention, and treatment of cardiovascular disease", American Journal of Lifestyle Medicine, Vol. 13 No 2, pp. 204212. https://doi.org/10.1177/1559827618812395CrossRefGoogle ScholarPubMed
Sanders, E. B. N., & Stappers, P. J. (2012), Convivial toolbox: Generative research for the front end of design. Bis.Google Scholar
Sin, J., Henderson, C., Spain, D., Cornelius, V., Chen, T. and Gillard, S. (2018), "eHealth interventions for family carers of people with long term illness: A promising approach?", Clinical Psychology Review, Vol. 60, pp. 109125. https://doi.org/10.1016/j.cpr.2018.01.008CrossRefGoogle ScholarPubMed
Siopis, N., Alexiadis, A., Gerovasilis, G., Triantafyllidis, A., Votis, K. and Tzovaras, D. (2022), "HSmartBPM: A modular web platform for tailored management of hypertension", 2022 IEEE-EMBS International Conference on Biomedical and Health Informatics (BHI). https://doi.org/10.1109/bhi56158.2022.9926953CrossRefGoogle Scholar
Van Aken, Joan E. and , A. Romme, Georges L.. (2012), “A Design Science Approach to Evidence-Based Management” The Oxford Handbook of Evidence-Based Management, NY, Oxford University Press, pp. 4358. https://doi.org/10.1093/oxfordhb/9780199763986.013.0003Google Scholar
Van Gemert-Pijnen, J. E., Nijland, N., Van Limburg, M., Ossebaard, H. C., Kelders, S. M., et al. . (2011), "A holistic framework to improve the uptake and impact of eHealth technologies", Journal of Medical Internet Research, Vol. 13 No. 4, e111. https://doi.org/10.2196/jmir.1672CrossRefGoogle ScholarPubMed
Vegesna, A., Tran, M., Angelaccio, M. and Arcona, S. (2017), "Remote Patient Monitoring via Non-Invasive Digital Technologies: A Systematic review", Telemedicine Journal and E-health, Vol. 23 No. 1, pp. 317. https://doi.org/10.1089/tmj.2016.0051CrossRefGoogle ScholarPubMed
Versteegden, D. P. A., Van Himbeeck, M., Burghoorn, A. W., Lövei, P., Deckers, E., et al. . (2022), "The value of tracking data on the behavior of patients who have undergone bariatric surgery: Explorative study", JMIR Formative Research, Vol. 6 No. 5, e27389. https://doi.org/10.2196/27389CrossRefGoogle ScholarPubMed