Hostname: page-component-848d4c4894-8bljj Total loading time: 0 Render date: 2024-06-18T15:43:45.858Z Has data issue: false hasContentIssue false
  • English
  • Français

Validation of the Mexican version of the Schedule of Attitudes Toward Hastened Death in patients undergoing palliative care in Mexico

Published online by Cambridge University Press:  18 May 2023

Oscar Rodríguez-Mayoral ,
Oscar Galindo-Vázquez ,
Marcos Espinoza-Bello ,
Silvia Allende-Pérez ,
Virginia Pascual-Ramos  and
Cristina Monforte-Royo
Oscar Rodríguez-Mayoral*
Affiliation:
Palliative Care Service, Instituto Nacional de Cancerología, Mexico City, Mexico Interdisciplinary Center for Bioethics, Universidad Panamericana, Mexico City, Mexico
Oscar Galindo-Vázquez
Affiliation:
Psycho-Oncology Service, Instituto Nacional de Cancerología, Mexico City, Mexico
Marcos Espinoza-Bello
Affiliation:
Psycho-Oncology Service, Instituto Nacional de Cancerología, Mexico City, Mexico Faculty of Psychology, Universidad Nacional Autónoma de México, Mexico City, Mexico
Silvia Allende-Pérez
Affiliation:
Palliative Care Service, Instituto Nacional de Cancerología, Mexico City, Mexico Interdisciplinary Center for Bioethics, Universidad Panamericana, Mexico City, Mexico
Virginia Pascual-Ramos
Affiliation:
Interdisciplinary Center for Bioethics, Universidad Panamericana, Mexico City, Mexico Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición “Salvador Zubirán”, Mexico City, México
Cristina Monforte-Royo
Affiliation:
Department of Nursing, School of Medicine and Health Science, Universitat Internacional de Catalunya, Barcelona, Spain
*
Corresponding author: Oscar Rodríguez-Mayoral; Email: orodriguezm@incan.edu.mx
Get access Rights & Permissions [Opens in a new window]

Abstract

Objectives

The Schedule of Attitudes Toward Hastened Death (SAHD) has emerged as a valid and reliable tool to assess the wish to hasten death (WTHD) among patients diagnosed with advanced cancer; however, the instrument has never been culturally adapted and validated for patients in Mexico. This study sought to validate and abbreviate the SAHD tool for use among patients attending the Palliative Care Service of the Instituto Nacional de Cancerología in Mexico.

Methods

The SAHD was culturally adapted from a previously published validation in patients from Spain. Eligible patients included Spanish literate subjects treated as outpatients in the Palliative Care Service, with an Eastern Cooperative Oncology Group (ECOG) performance status of 0–3. Patients were asked to answer the Mexican version of SAHD (SAHD-Mx) instrument and the Brief Edinburgh Depression Scale (BEDS).

Results

A total of 225 patients were included in the study. Median positive response in the SAHD-Mx was 2 (range 0–18). Positive correlation was identified between the SAHD-Mx scale and ECOG performance status (r = 0.188, p = 0.005), as well as BEDS (r = 0.567, p < 0.001). SAHD-Mx displayed strong internal consistency (alpha = 0.85) and adequate reliability from test–retest phone interviews (r = 0.567, p < 0.001). Using the confirmatory factor analysis model, a factor was identified and the number of items was reduced to 6, including items 4, 5, 9, 10, 13, and 18.

Significance of results

The SAHD-Mx emerges as an adequate tool, with appropriate psychometric characteristics, for assessing WTHD among patients diagnosed with cancer undergoing palliative care in Mexico. .

Keywords

Wish to hasten deathPalliative careEnd-of-life careCancerValidation
Type
Original Article
Information
Palliative & Supportive Care , Volume 21 , Issue 5 , October 2023 , pp. 850 - 855
Check for updates
Copyright
© The Author(s), 2023. Published by Cambridge University Press.

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Allende-López, A and Fajardo-Gutiérrez, A (2011) Historia del registro de cáncer en México. Revista Médica Del Instituto Mexicano Del Seguro Social 49, S27–S32.Google Scholar
Allende-Pérez, S, Verástegui-Avilés, E, Chavira-Estefan, S, et al. (2013) ¿Cuándo referir a un paciente con cáncer a cuidados paliativos? Gaceta Mexicana de Oncología 12(4), 280–285.Google Scholar
Andrés-Hyman, RC, Ortiz, J, Añez, LM, et al. (2006) Culture and clinical practice: Recommendations for working with Puerto Ricans and other Latinas(os) in the United States. Professional Psychology, Research and Practice 37(6), 694–701. doi:10.1037/0735-7028.37.6.694CrossRefGoogle Scholar
Arrieta, O, Zatarain-Barron, ZL, Aldaco, F, et al. (2019) Lung cancer in Mexico. Journal of Thoracic Oncology 14(10), 1695–1700. doi:10.1016/j.jtho.2019.05.018CrossRefGoogle ScholarPubMed
Balaguer, A, Monforte-Royo, C, Porta-Sales, J, et al. (2016) An international consensus definition of the wish to hasten death and its related factors. PLoS One 11(1), . doi:10.1371/journal.pone.0146184CrossRefGoogle ScholarPubMed
Batista-Foguet, JM, Coenders, G and Alonso, J (2004) Confirmatory factor analysis. Its role on the validation of health related questionnaires. Medicina Clinica 122 Suppl 1, 21–27.Google ScholarPubMed
Belar, A, Martinez, M, Centeno, C, et al. (2021) Wish to die and hasten death in palliative care: A cross-sectional study factor analysis. BMJ Supportive & Palliative Care. doi:10.1136/bmjspcare-2021-003080CrossRefGoogle ScholarPubMed
Bellido-Perez, M, Crespo, I, Wilson, KG, et al. (2018) Assessment of the wish to hasten death in patients with advanced cancer: A comparison of 2 different approaches. Psycho-Oncology 27(6), 1538–1544. doi:10.1002/pon.4689CrossRefGoogle Scholar
Breitbart, W, Rosenfeld, B, Pessin, H, et al. (2000) Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA 284(22), 2907–2911. doi:10.1001/jama.284.22.2907CrossRefGoogle ScholarPubMed
Byrne, BM (2016) Structural Equation Modeling with Amos: Basic Concepts, Applications, and Programming. New York: Taylor & Francis Group.CrossRefGoogle Scholar
Chao, YS, Boivin, A, Marcoux, I, et al. (2016) International changes in end-of-life practices over time: A systematic review. BMC Health Services Research 16(1), . doi:10.1186/s12913-016-1749-zCrossRefGoogle ScholarPubMed
Chochinov, HM (2016) Physician-assisted death in Canada. JAMA 315(3), 253–254. doi:10.1001/jama.2015.17435CrossRefGoogle ScholarPubMed
Chochinov, HM, Wilson, KG, Enns, M, et al. (1995) Desire for death in the terminally ill. The American Journal of Psychiatry 152(8), 1185–1191. doi:10.1176/ajp.152.8.1185Google ScholarPubMed
Chochinov, HM, Wilson, KG, Enns, M, et al. (1997) “Are you depressed?” Screening for depression in the terminally ill. The American Journal of Psychiatry 154(5), 674–676. doi:10.1176/ajp.154.5.674Google ScholarPubMed
Durst, AV, Spencer, B, Bula, C, et al. (2020) Wish to die in older patients: Development and validation of two assessment instruments. Journal of the American Geriatrics Society 68(6), 1202–1209. doi:10.1111/jgs.16392CrossRefGoogle ScholarPubMed
Escobedo Portillo, MT, Hernández Gómez, JA, Estebané Ortega, V, et al. (2016) Modelos de ecuaciones estructurales: Características, fases, construcción, aplicación y resultados. Ciencia & Trabajo 55, 16–22. doi:10.4067/S0718-24492016000100004CrossRefGoogle Scholar
Galushko, M, Strupp, J, Walisko-Waniek, J, et al. (2015) Validation of the German version of the Schedule of Attitudes Toward Hastened Death (SAHD-D) with patients in palliative care. Palliative & Supportive Care 13(3), 713–723. doi:10.1017/S1478951514000492CrossRefGoogle ScholarPubMed
Guerrero-Torrelles, M, Rodríguez-Prat, A, Monforte-Royo, C, et al. (2018) Responder al deseo de adelantar la muerte en pacientes al final de la vida: Síntesis de recomendaciones y guías clínicas. Medicina Paliativa 25(3), 121–129. doi:10.1016/j.medipa.2016.09.002CrossRefGoogle Scholar
Hernández Sampieri, R, Baptista Lucio, P, and Fernández Collado, C (2014) Metodología de la Investigación. Mexico: McGraw-Hill Interamericana.Google Scholar
Hu, L and Bentler, PM (1998) Fit indices in covariance structure modeling: Sensitivity to underparameterized model misspecification. Psychological Methods 3, 424–453. doi:10.1037/1082-989X.3.4.424CrossRefGoogle Scholar
Kline, RB (2016) Principles and Practice of Structural Equation Modeling. New York: The Guilford Press.Google Scholar
Koenig, HG (2012) Religion, spirituality, and health: The research and clinical implications. ISRN Psychiatry 2012, . doi:10.5402/2012/278730CrossRefGoogle ScholarPubMed
Kolva, E, Rosenfeld, B, Liu, Y, et al. (2017) Using item response theory (IRT) to reduce patient burden when assessing desire for hastened death. Psychological Assessment 29(3), 349–353. doi:10.1037/pas0000343CrossRefGoogle ScholarPubMed
Kovess-Masfety, V, Evans-Lacko, S, Williams, D, et al. (2017) The role of religious advisors in mental health care in the World Mental Health surveys. Social Psychiatry and Psychiatric Epidemiology 52(3), 353–367. doi:10.1007/s00127-016-1290-8CrossRefGoogle ScholarPubMed
Kremeike, K, Galushko, M, Frerich, G, et al. (2018) The DEsire to DIe in Palliative care: Optimization of Management (DEDIPOM) – a study protocol. BMC Palliative Care 17(1), . doi:10.1186/s12904-018-0279-3CrossRefGoogle ScholarPubMed
Madeira, N, Albuquerque, E, Santos, T, et al. (2011) Death ideation in cancer patients: Contributing factors. Journal of Psychosocial Oncology 29(6), 636–642. doi:10.1080/07347332.2011.615381CrossRefGoogle ScholarPubMed
Mehta, RD and Roth, AJ (2015) Psychiatric considerations in the oncology setting. CA: A Cancer Journal for Clinicians 65(4), 300–314. doi:10.3322/caac.21285Google ScholarPubMed
Monforte-Royo, C, Gonzalez-de Paz, L, Tomas-Sabado, J, et al. (2017) Development of a short form of the Spanish Schedule of Attitudes Toward Hastened Death in a palliative care population. Quality of Life Research 26(1), 235–239. doi:10.1007/s11136-016-1409-0CrossRefGoogle Scholar
Mystakidou, K, Rosenfeld, B, Parpa, E, et al. (2004) The Schedule of Attitudes Toward Hastened Death: Validation analysis in terminally ill cancer patients. Palliative & Supportive Care 2(4), 395–402. doi:10.1017/s1478951504040520CrossRefGoogle ScholarPubMed
Ornelas, M (2015) Resonancia religiosa en México: Cifras básicas. MAD 33, 94–110. doi:10.5354/rmad.v0i33.37325Google Scholar
Pastrana, T, De Lima, L, Sánchez-Cárdenas, M, et al. (2021). Atlas de cuidados paliativos en latinoamérica 2020, Houston.Google Scholar
Porta-Sales, J, Crespo, I, Monforte-Royo, C, et al. (2019) The clinical evaluation of the wish to hasten death is not upsetting for advanced cancer patients: A cross-sectional study. Palliative Medicine 33(6), 570–577. doi:10.1177/0269216318824526CrossRefGoogle Scholar
Quill, TE, Back, AL and Block, SD (2016) Responding to patients requesting physician-assisted death: Physician involvement at the very end of life. JAMA 315(3), 245–246. doi:10.1001/jama.2015.16210CrossRefGoogle ScholarPubMed
Rodríguez-Mayoral, O, Ascencio-Huertas, L, Verástegui, E, et al. (2019a) The desire to hasten death in advanced cancer patients at a Mexican palliative care service. Salud Mental 42(3), 103–109. doi:10.17711/SM.0185-3325.2019.014CrossRefGoogle Scholar
Rodriguez-Mayoral, O, Rodriguez-Ortiz, B, Ascencio-Huertas, L, et al. (2019b) Validation of the Brief Edinburgh Depression Scale (BEDS) in a Mexican population with advanced cancer in a palliative care service. Palliative & Supportive Care 17(4), 436–440. doi:10.1017/S1478951518000640CrossRefGoogle Scholar
Rodriguez-Prat, A, van Leeuwen, E and van Leeuwen, E (2018) Assumptions and moral understanding of the wish to hasten death: A philosophical review of qualitative studies. Medicine, Health Care, and Philosophy 21(1), 63–75. doi:10.1007/s11019-017-9785-yCrossRefGoogle Scholar
Rosenfeld, B, Breitbart, W, Galietta, M, et al. (2000) The Schedule of Attitudes Toward Hastened Death: Measuring desire for death in terminally ill cancer patients. Cancer 88(12), 2868–2875. doi:10.1002/1097-0142(20000615)88:12<2868::AID-CNCR30>3.0.CO;2-K3.0.CO;2-K>CrossRefGoogle ScholarPubMed
Rosenfeld, B, Breitbart, W, Stein, K, et al. (1999) Measuring desire for death among patients with HIV/AIDS: The Schedule of Attitudes Toward Hastened Death. American Journal of Psychiatry 156(1), 94–100. doi:10.1176/ajp.156.1.94CrossRefGoogle ScholarPubMed
Shim, EJ and Hahm, BJ (2011) Anxiety, helplessness/hopelessness and “desire for hastened death” in Korean cancer patients. European Journal of Cancer Care 20(3), 395–402. doi:10.1111/j.1365-2354.2010.01202.xCrossRefGoogle Scholar
Soto-Perez-de-Celis, E, Chavarri-Guerra, Y, Pastrana, T, et al. (2017) End-of-life care in Latin America. Journal of Global Oncology 3(3), 261–270. doi:10.1200/JGO.2016.005579CrossRefGoogle ScholarPubMed
Villavicencio-Chavez, C, Monforte-Royo, C, Tomas-Sabado, J, et al. (2014) Physical and psychological factors and the wish to hasten death in advanced cancer patients. Psycho-Oncology 23(10), 1125–1132. doi:10.1002/pon.3536CrossRefGoogle ScholarPubMed
Wilson, KG, Dalgleish, TL, Chochinov, HM, et al. (2016) Mental disorders and the desire for death in patients receiving palliative care for cancer. BMJ Supportive & Palliative Care 6(2), 170–177. doi:10.1136/bmjspcare-2013-000604CrossRefGoogle ScholarPubMed
Supplementary material: File

Rodríguez-Mayoral et al. supplementary material
Download undefined(File)
File 13.6 KB