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Validation of the caregiver oncology quality of life questionnaire in Portuguese caregivers of myeloma patients

Published online by Cambridge University Press:  18 July 2019

M. Graça Pereira Open the ORCID record for M. Graça Pereira [Opens in a new window] ,
Margarida Vilaça Open the ORCID record for Margarida Vilaça [Opens in a new window] ,
Marta Pereira Open the ORCID record for Marta Pereira [Opens in a new window] ,
Rosário Bacalhau Open the ORCID record for Rosário Bacalhau [Opens in a new window] ,
Sara Monteiro ,
Bruna Fernandes ,
Sara Faria  and
Gabriela Ferreira Open the ORCID record for Gabriela Ferreira [Opens in a new window]
M. Graça Pereira*
Affiliation:
School of Psychology, University of Minho, Braga, Portugal Psychology Research Center (CIPsi), University of Minho, Braga, Portugal
Margarida Vilaça
Affiliation:
Psychology Research Center (CIPsi), University of Minho, Braga, Portugal
Marta Pereira
Affiliation:
School of Psychology, University of Minho, Braga, Portugal Psychology Research Center (CIPsi), University of Minho, Braga, Portugal
Rosário Bacalhau
Affiliation:
Portuguese Institute of Oncology Francisco Gentil, Lisboa, Portugal
Sara Monteiro
Affiliation:
Department of Education and Psychology, University of Aveiro, Aveiro, Portugal Center for Health Technology and Services Research (CINTESIS), University of Porto, Porto, Portugal
Bruna Fernandes
Affiliation:
Department of Education and Psychology, University of Aveiro, Aveiro, Portugal
Sara Faria
Affiliation:
School of Psychology, University of Minho, Braga, Portugal
Gabriela Ferreira
Affiliation:
School of Psychology, University of Minho, Braga, Portugal Psychology Research Center (CIPsi), University of Minho, Braga, Portugal
*
Corresponding Author: M. Graça Pereira, School of Psychology, University of Minho, Campus de Gualtar, 4710-057Braga, Portugal Email: gracep@psi.uminho.pt
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Abstract

Objective

Cancer diagnosis affects patients, their families, and their caregivers in particular. This study focused on the validation of the CareGiver Oncology Quality of Life (CarGOQoL) questionnaire in Portuguese caregivers of patients with multiple myeloma, from the caregiver's point of view.

Method

This was a cross-sectional study with 146 caregivers of patients with multiple myeloma from outpatient medical oncology and clinical hematology consultations from five hospitals in north and central Portugal. Participants were assessed on quality of life (QoL), psychological morbidity and social support.

Result

The Portuguese version maintains 17 of the original 29 items version, maintaining general coherence and a dimensional structure that is clinically interpretable. Reliability findings indicated good internal consistency for the total scale (0.86) and respective subscales (0.75 to 0.88), which is in agreement with the alpha values from the previous CarGOQoL validation study for the corresponding subscales (0.74 to 0.89) and total scale (0.90).

Significance of results

The CarGOQoL is a reliable and valid tool for clinical trials and intervention programs to assess QoL in caregivers of myeloma patients. Future studies should validate the adapted version in caregivers of other types of cancer patients including other chronic diseases.

Keywords

Multiple myelomacaregiverquestionnaire validationquality of lifepsychological morbidity
Type
Original Article
Information
Palliative & Supportive Care , Volume 18 , Issue 2 , April 2020 , pp. 178 - 185
Copyright
Copyright © Cambridge University Press 2019

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