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A palliative environment: Caring for seriously ill hospitalized patients

Published online by Cambridge University Press:  13 February 2014

Connie Timmermann ,
Lisbeth Uhrenfeldt ,
Mette Terp Høybye  and
Regner Birkelund
Connie Timmermann*
Affiliation:
Section of Nursing, Health; The Horsens Hospital Research Unit and Medical Department, Aarhus University, Horsens, Denmark
Lisbeth Uhrenfeldt
Affiliation:
Section of Nursing, Health; The Horsens Hospital Research Unit, Aarhus University, Horsens, Denmark
Mette Terp Høybye
Affiliation:
Interdisciplinary Research Unit, Elective Surgery Center, Silkeborg Regional Hospital and Institute of Public Health, University of Southern Denmark, Copenhagen, Denmark
Regner Birkelund
Affiliation:
Institute of Regional Health Research; Lillebælt Hospital, University of Southern Denmark, Vejle, Denmark
*
Address correspondence and reprint requests to: Connie Timmermann, Department of Public Health, Aarhus University, Horsens Regional Hospital Research Unit and Medical Department, 8000 Aarhus C, Horsens, Denmark. E-mail: connie.timmermann@horsens.rm.dk.
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Abstract

Objective:

To explore how patients experience being in the hospital environment and the meaning they assign to the environment during serious illness.

Method:

A qualitative study design was applied, and the data analysis was inspired by Ricoeur's phenomenological-hermeneutic theory of interpretation. Data were collected through multiple qualitative interviews combined with observations at a teaching hospital in Denmark from May to September 2011. A total of 12 patients participated.

Results:

The findings showed that the hospital environment has a strong impact on patients' emotions and well-being. They reported that aesthetic decorations and small cozy spots for conversation or relaxation created a sense of homeliness that reinforced a positive mood and personal strength. Furthermore, being surrounded by some of their personal items or undertaking familiar tasks, patients were able to maintain a better sense of self. Maintaining at least some kind of familiar daily rhythm was important for their sense of well-being and positive emotions.

Significance of Results:

The results stress the importance of an aesthetically pleasing and homelike hospital environment as part of palliative care, since the aesthetic practice and a sense of homeliness strengthened patients' experiences of well-being, relief, and positive emotions while in a vulnerable situation. Such knowledge could encourage the development of new policies regarding appropriate care settings, which in turn could result in overall improved care during serious illness.

Keywords

Hospital environmentPalliative careWell-beingHomelinessAesthetics
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 2 , April 2015 , pp. 201 - 209
Copyright
Copyright © Cambridge University Press 2014 

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References

REFERENCES

Albarran, J., Rosser, E., Bach, S., et al. (2011). Exploring the development of a cultural care framework for European caring science. International Journal of Qualitative Studies on Health and Well-Being, 6, 11457–11468.Google Scholar
Birkelund, R. (2010). Det æstetiske indtryk—en menneskelig livsnødvendighed [The aesthetic impression—a human life essentiality]. In Ved livets afslutning—om palliativ omsorg, pleje og behandling [At the end of life: About palliative care and treatment]. Birkelund, R. (ed.), pp. 285–301. Århus: Aarhus Universitetsforlag.Google Scholar
Devil, S. & Arneil, A.B. (2003). Health care environments and patient outcomes: A review of the literature. Environment & Behavior, 35, 665–694.Google Scholar
Edvardsson, D., Sandman, P.O. & Rasmussen, B.H. (2005). Sensing an atmosphere of ease: A tentative theory of supportive care settings. Scandinavian Journal of Caring Sciences, 19, 344–353.Google Scholar
Edvardsson, D., Sandman, P.O. & Rasmussen, B.H. (2006). Caring or uncaring: Meanings of being in an oncology environment. Journal of Advanced Nursing, 55, 188–197.Google Scholar
English, J., Wilson, K. & Keller-Olaman, S. (2008). Health, healing and recovery: Therapeutic landscapes and every day lives of breast cancer survivors. Social Science & Medicine, 67, 68–78.Google Scholar
Fog, J. (2007). Det kvalitative forskningsinterview—med samtalen som udgangspunkt [The qualitative research interview: Using conversation as a starting point]. København: Akademisk.Google Scholar
Galvin, K.T. & Todres, L. (2011). Kinds of well-being: A conceptual framework that provides directions for caring. International Journal of Qualitative Studies on Health and Well-Being, 6, 1–13.Google Scholar
Hammersley, M. & Atkinson, P. (2007). Ethnography: Principles in practice. London and New York: Routledge.Google Scholar
Helman, C.G. (2007). Culture, health and illness. London: Hodder Arnold.Google Scholar
Heslet, L. & Dirckinck-Holmfeld, K. (ed.) (2007). Sansernes hospital [Hospital of the senses]. København: Arkitektens forlag.Google Scholar
Høybye, M.T. (2013). Healing environments in cancer treatment and care: Relations of space and practice in hematological cancer treatment. Acta Oncologica, 52, 440–46.Google Scholar
Kvale, S. (1997). Interview—en introduktion til det kvalitative forskningsinterview [The interview: An introduction to the qualitative research interview]. København: Hans Reitzels.Google Scholar
Kvale, S. & Brinkmann, S. (2009). Interview—introduktion til et håndværk [The interview: An introduction to craftsmanship]. København: Hans Reitzels.Google Scholar
Løgstrup, K.E. (1976/1995). Ophav og omgivelse—betragtninger over historie og natur [Source and surroundings: Reflections on history and nature]. København: Nordisk.Google Scholar
Løgstrup, K.E. (1987). Solidaritet og Kærlighed—essays [Solidarity and love: Essays]. Viborg: Gyldendal.Google Scholar
Løgtrup, K.E. (1995). Metaphysics, Vol. 2. Dess, R.L (trans.). Milwaukee: Marquette University Press.Google Scholar
Martinsen, K. (2001). Huset og sangen, gråten og skammen [The house and the song, crying and shame]. In Skam—Perspektiver på skam, ære og skamløshet i det moderne [Shame: Perspectives on shame, pride and shamelessness in the modern society]. Wyller, T. (ed.), pp. 167–190. Bergen: Fagbokforlaget.Google Scholar
Martinsen, K. (2005). At bo på sygehus og erfare arkitektur [Staying in the hospital and experiencing architecture]. In Arkitektur, krop og læring [Architecture, body and learning]. Larsen, K. (ed.), pp. 131–157. København: Hans Reitzels.Google Scholar
Martinsen, K. (2006). Care and vulnerability. Norge: Akribe.Google Scholar
Nightingale, F. (1859/1992). Notes on nursing: What is and what is not. London: Harrison and Sons.Google Scholar
Norberg-Shulz, C. (1971). Existence, space and architecture. London: Fakenham and Reading.Google Scholar
Norberg-Schulz, C. (1980). Genius loci: Towards a phenomenology of architecture. New York: Rizzoli.Google Scholar
Norberg-Schulz, C. (1985). The concept of dwelling: On the way to figurative architecture. New York: Rizzoli.Google Scholar
Northern Nurses' Federation (2003). Ethical guidelines for nursing research in the Nordic countries. Denmark: Danish Nurses Organisation.Google Scholar
Østergaard Steenfeldt, V. (2013). Hospice—et levende hus. En analyse af levet liv og omsorg på hospice som bidrag til forståelse af åndelig omsorg [Hospice: A house of life. An analysis of lived life and care at the hospice as a contribution to the understanding of spiritual care]. Doctoral dissertation. Trekroner, Denmark: Roskilde University.Google Scholar
Pastrana, T., Jünger, S., Ostgathe, C., et al. (2008). A matter of definition: Key elements identified in a discourse analysis of definitions of palliative care. Palliative Medicine, 22, 222–232.Google Scholar
Rasmussen, B.H. & Edvardsson, D. (2007). The influence of environment in palliative care: Supporting or hindering experiences of “at-homeness.” Advances in Contemporary Palliative and Supportive Care, 27, 119–131.Google Scholar
Rowlands, J. & Noble, S. (2008). How does the environment impact on the quality of life of advanced cancer patients? A qualitative study with implications for ward design. Palliative Medicine, 22, 768–774.Google Scholar
Ricoeur, P. (1979). Fortolkningsteori [Theory of interpretation]. København: Vinten.Google Scholar
Rogers, M. (1970). An introduction to the theoretical basis of nursing. Philadelphia: Davis.Google Scholar
Saunders, C.M. (1978). The philosophy of terminal care. In The management of terminal malignant disease. Saunders, C.M. (ed.), pp. 193–202. London: Edward Arnold.Google Scholar
Spichiger, E. (2009). Being in the hospital: An interpretive phenomenological study of terminally ill cancer patients' experiences. European Journal of Oncology Nursing, 13, 16–21.Google Scholar
Spradley, J.P. (1980). Participant observation. New York: Rinehart and Winston.Google Scholar
Timmermann, C., Uhrenfeldt, L. & Birkelund, R. (2012). Cancer patients and positive sensory impressions in the hospital environment: A qualitative interview study. European Journal of Cancer Care, 22, 117–24.CrossRefGoogle ScholarPubMed
Todres, L. & Galvin, K.T. (2010). “Dwelling-mobility”: An existential theory of well-being. International Journal of Qualitative Studies on Health and Well-Being, 5, 1–6.Google Scholar
Watson, J. (1985). Nursing: The philosophy and science of caring. Boulder: Colorado University Press.Google Scholar
Wikström, M. (2002). Nurses' strategies for patients' aesthetics needs: Personal experiences of aesthetic means of expressions. Clinical Nursing Research, 11, 22–33.Google Scholar