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Effects of Dignity Therapy on individuals with amyotrophic lateral sclerosis: Case studies

Published online by Cambridge University Press:  05 January 2024

Mariana do Valle Meira
Affiliation:
Postgraduate Programme in Nursing and Health, Nursing School at the Federal University of Bahia, Salvador, Bahia, Brazil
Rudval Souza da Silva*
Affiliation:
Postgraduate Programme in Nursing and Health, Nursing School at the Federal University of Bahia, Salvador, Bahia, Brazil School of Nursing, Bahia State University, Senhor do Bonfim, Bahia, Brazil
Harvey Max Chochinov
Affiliation:
Department of Psychiatry, University of Manitoba, Winnipeg, MB, Canada
Maria Olivia Sobral Fraga de Medeiros
Affiliation:
School of Nursing, Bahiana School of Medicine and Public Health, Salvador, Bahia, Brazil
Marilaine Matos de Menezes Ferreira
Affiliation:
School of Nursing, Bahiana School of Medicine and Public Health, Salvador, Bahia, Brazil
Marina de Góes Salvetti
Affiliation:
School of Nursing, São Paulo University, São Paulo, Brazil
*
Corresponding author: Rudval Souza da Silva; Email: rudsouza@uneb.br

Abstract

Objectives

To analyze the effects of Dignity Therapy (DT) on the physical, existential, and psychosocial symptoms of individuals with amyotrophic lateral sclerosis (ALS).

Methods

This is a mixed-methods case study research that used the concurrent triangulation strategy to analyze the effects of DT on 3 individuals with ALS. Data collection included 3 instances of administering validated scales to assess multiple physical symptoms, anxiety, depression, spiritual well-being, and the Patient Dignity Inventory (PDI), followed by the implementation of DT and a semi-structured interview.

Results

The scale results indicate that DT led to an improvement in the assessment of physical, social, emotional, spiritual, and existential symptoms according to the score results. It is worth noting that the patient with a recent diagnosis showed higher scores for anxiety and depression after DT. Regarding the PDI, the scores indicate improvements in the sense of dignity in all 3 cases, which aligns with the positive verbal reports after the implementation of DT.

Significance of results

This study allowed us to analyze the effects of DT on the physical, existential, and psychosocial symptoms of individuals with ALS, suggesting the potential benefits of this approach for this group of patients. Participants reported positive effects regarding pain and fatigue, could reflect on their life trajectories, and regained their value and meaning.

Type
Original Article
Copyright
© The Author(s), 2024. Published by Cambridge University Press.

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