Hostname: page-component-8448b6f56d-mp689 Total loading time: 0 Render date: 2024-04-18T02:24:36.168Z Has data issue: false hasContentIssue false

The 2nd Annual US Celebration of World Hospice and Palliative Care Day: A virtual coming together to support equity in palliative care access

Published online by Cambridge University Press:  04 March 2022

William E. Rosa*
Affiliation:
Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY
Shila Pandey
Affiliation:
Supportive Care Service, Memorial Sloan Kettering Cancer Center, New York, NY
Andrew S. Epstein
Affiliation:
Department of Medicine, Memorial Sloan Kettering Cancer Center, New York, NY
Stephen R. Connor
Affiliation:
Worldwide Hospice Palliative Care Alliance, London, UK
Laurie J. Andersen
Affiliation:
Supportive Care Service, Memorial Sloan Kettering Cancer Center, New York, NY
Allison J. Applebaum
Affiliation:
Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY Weill Cornell Medical College, New York, NY
Liz Blackler
Affiliation:
Ethics Committee, Memorial Sloan Kettering Cancer Center, New York, NY
Lauren Akua Koranteng
Affiliation:
Supportive Care Service, Memorial Sloan Kettering Cancer Center, New York, NY
William S. Breitbart
Affiliation:
Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY Weill Cornell Medical College, New York, NY
Judith E. Nelson
Affiliation:
Supportive Care Service, Memorial Sloan Kettering Cancer Center, New York, NY Weill Cornell Medical College, New York, NY
*
Author for correspondence: William E. Rosa, Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, 641 Lexington Avenue, 7th fl., New York, NY 10022, USA. E-mail: rosaw@mskcc.org

Abstract

Objective

On October 5–6, 2021, the Memorial Sloan Kettering Cancer Center Supportive Care Service and Department of Psychiatry and Behavioral Sciences hosted the 2nd Annual United States (US) Celebration of World Hospice and Palliative Care Day (WHPCD). The purpose of this article is to describe the event within the broader context of the international WHPCD theme: “Leave No One Behind — Equity in Access to Palliative Care.” We reflect on lessons learned in anticipation of the 3rd annual conference to be held October 3–4, 2022.

Methods

Description of the 2nd annual event, conference planning team reflection, and attendee evaluation responses.

Results

The Worldwide Hospice Palliative Care Alliance launched WHPCD in 2005 as an annual unified day of action to celebrate and support hospice and palliative care around the world. The 2021 US-based innovative virtual conference featured 37 interprofessional hospice and palliative care specialists and patient and family caregiver speakers across 11 diverse sessions with a focus on health equity and COVID-19 considerations. Two primary aims continue to guide the event: community building and wisdom sharing at the intersection of art and science. 278 registrants from at least 14 countries and 21 different states across the US joined the program, which served as a global debriefing for hospice and palliative care workers from diverse settings, contexts, and disciplines.

Significance of results

The US WHPCD Celebration creates a virtual coming together for collective reflection on hospice and palliative care delivery amid vast changes in clinical practice, research, and policy, both locally and globally. In addition, our goal to ensure an internationally relevant, culturally inclusive, and multidisciplinary agenda will continue to draw increased participation worldwide during future annual events.

Type
Original Article
Copyright
Copyright © The Author(s), 2022. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

REFERENCES

Connor, S (ed.) (2020) Global Atlas of Palliative Care, 2nd ed. London, UK: Worldwide Hospice Palliative Care Alliance. Available at: http://www.thewhpca.org/resources/item/global-atlas-of-palliative-care-2nd-ed-2020Google Scholar
Connor, SR, Centeno, C, Garralda, E, et al. (2021) Estimating the number of patients receiving specialized palliative care globally in 2017. Journal of Pain and Symptom Management 61(4), 812816. doi:10.1016/j.jpainsymman.2020.09.036CrossRefGoogle ScholarPubMed
Elk, R, Emanuel, L, Hauser, J, et al. (2020) Developing and testing the feasibility of a culturally based tele-palliative care consult based on the cultural values and preferences of southern, rural african American and white community members: A program by and for the community. Health Equity 4(1), 5283. doi:10.1089/heq.2019.0120CrossRefGoogle ScholarPubMed
Knaul, FM, Farmer, PE, Krakauer, EL, et al. (2018) Alleviating the access abyss in palliative care and pain relief - An imperative of universal health coverage: The Lancet Commission report. Lancet 391(10128), 13911454. doi:10.1016/S0140-6736(17)32513-8CrossRefGoogle ScholarPubMed
Memorial Sloan Kettering Cancer Center (MSK) (2021) 2nd Annual U.S. Celebration of World Hospice & Palliative Care Day: A Virtual Coming Together. Available at: https://mskcc.cloud-cme.com/course/courseoverview?P=5&EID=28753Google Scholar
Palliative Care in Humanitarian Aid Situations and Emergencies (PallCHASE) (2021) Home. Available at: https://www.pallchase.orgGoogle Scholar
Rosa, WE, Buck, HG, Squires, AP, et al. (2021a) International consensus-based policy recommendations to advance universal palliative care access from the American academy of nursing expert panels. Nursing Outlook. S0029-6554(21)00163-9. Advance online publication. doi:10.1016/j.outlook.2021.06.018CrossRefGoogle Scholar
Rosa, WE, Pandey, S, Epstein, AS, et al. (2021b) The inaugural United States World Hospice and Palliative Care Day celebration: A virtual coming together. Palliative & Supportive Care 19(2), 182186. doi:10.1017/S1478951521000237CrossRefGoogle Scholar
Rosa, WE, Parekh de Campos, A, Abedini, NC, et al. (2021c) Optimizing the global nursing workforce to ensure universal palliative care access and alleviate serious health-related suffering worldwide. Journal of Pain and Symptom Management. S0885-3924(21)00470-X. Advance online publication. doi:10.1016/j.jpainsymman.2021.07.014Google Scholar
Rosa, WE, Pettus, KI, De Lima, L, et al. (2021d) Top ten tips palliative clinicians should know about evidence-based advocacy. Journal of Palliative Medicine 24(8), 12401245. doi:10.1089/jpm.2021.0182CrossRefGoogle Scholar
United Nations (UN) (2021) Goal 3: Ensure health lives and promote well-being for all at all ages. Available at: https://sdgs.un.org/goals/goal3Google Scholar
Watts, KA, Gazaway, S, Malone, E, et al. (2020) Community tele-pal: A community-developed, culturally based palliative care tele-consult randomized controlled trial for African American and White rural southern elders with a life-limiting illness. Trials 21(1), 672. doi:10.1186/s13063-020-04567-wCrossRefGoogle ScholarPubMed
World Health Organization (2021) Assessing the development of palliative care worldwide: a set of actional indicators. Available at: https://www.who.int/publications/i/item/9789240033351Google Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021a) Home. Available at: http://www.thewhpca.orgGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021b) Campaign Toolkit: Leave No One Behind. Available at: http://www.thewhpca.org/resources-2021/category/campaign-toolkit-leave-no-one-behindGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021c) World day: People living low and middle income countries (LICs and LMICs). Available at: http://www.thewhpca.org/people-living-in-low-and-middle-income-countries-lics-and-lmicsGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021d) World day: People living in humanitarian crisis. Available at: http://www.thewhpca.org/people-living-in-humanitarian-crisisGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021e) World day: Children and neonates. Available at: http://www.thewhpca.org/children-and-neonatesGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021f) World day: People living with physical or intellectual disabilities. Available at: http://www.thewhpca.org/people-living-with-physical-or-intellectual-disabilitiesGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021g) World day: Those people experiencing homelessness. Available at: http://www.thewhpca.org/those-people-experiencing-homelessnessGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021h) World day: Incarcerated people including prisoners. Available at: http://www.thewhpca.org/prisonersGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2021i) World day: LGBTQ+ people. Available at: http://www.thewhpca.org/lgbtq-peopleGoogle Scholar