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The NIH Toolbox: Overview of Development for Use with Hispanic Populations

Published online by Cambridge University Press:  17 February 2020

Richard C. Gershon*
Affiliation:
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Rina S. Fox
Affiliation:
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Jennifer J. Manly
Affiliation:
Department of Neurology, College of Physicians and Surgeons, Taub Institute for Research on Alzheimer’s Disease and the Aging Brain, Columbia University, New York, NY, USA
Dan M. Mungas
Affiliation:
Department of Neurology, University of California, Davis, Davis, CA, USA
Cindy J. Nowinski
Affiliation:
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Ellen M. Roney
Affiliation:
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Jerry Slotkin
Affiliation:
The Center for Health Assessment Research and Translation, University of Delaware, Newark, DE, USA
*
Correspondence and reprint requests to: Richard C. Gershon, PhD, Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 625 N. Michigan Ave., 27th Floor, Chicago, IL, USA. E-mail: gershon@northwestern.edu

Abstract

Objective:

Hispanics/Latinos are the largest and fastest-growing minority population in the United States. To facilitate appropriate outcome assessment of this expanding population, the NIH Toolbox for Assessment of Neurological and Behavioral Function® (NIH Toolbox®) was developed with particular attention paid to the cultural and linguistic needs of English- and Spanish-speaking Hispanics/Latinos.

Methods:

A Cultural Working Group ensured that all included measures were appropriate for use with Hispanics/Latinos in both English and Spanish. In addition, a Spanish Language Working Group assessed all English-language NIH Toolbox measures for translatability.

Results:

Measures were translated following the Functional Assessment of Chronic Illness Therapy (FACIT) translation methodology for instances where language interpretation could impact scores, or a modified version thereof for more simplified translations. The Spanish versions of the NIH Toolbox Cognition Battery language measures (i.e., Picture Vocabulary Test, Oral Reading Recognition Test) were developed independently of their English counterparts.

Conclusions:

The Spanish-language version of the NIH Toolbox provides a much-needed set of tools that can be selected as appropriate to complement existing protocols being conducted with the growing Hispanic/Latino population in the United States.

Type
Regular Research
Copyright
Copyright © INS. Published by Cambridge University Press, 2020

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Footnotes

*

These authors contributed equally to this manuscript.

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