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The socioeconomic burden of Huntington's chorea in South Wales

Published online by Cambridge University Press:  31 July 2008

Audrey Tyler ,
P. S. Harper ,
D. A. Walker ,
Kathleen Davies  and
R. G. Newcombe
Audrey Tyler
Affiliation:
Section of Medical Genetics, Department of Medicine
P. S. Harper
Affiliation:
Section of Medical Genetics, Department of Medicine
D. A. Walker
Affiliation:
Section of Medical Genetics, Department of Medicine
Kathleen Davies
Affiliation:
Department of Medical Statistics, Welsh National School of Medicine, Heath Park, Cardiff
R. G. Newcombe
Affiliation:
Department of Medical Statistics, Welsh National School of Medicine, Heath Park, Cardiff
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Summary

An unselected group of 92 patients, suffering from Huntington's chorea in South Wales, has been studied in relation to the effects of the disease on employment, need for hospitalization, and the financial burden to the state. Results are compared with data from a matched control group. The difficulties of costing are discussed: a total figure of £21,500 is estimated to be the minimum unit cost per patient in 1980.

Type
Research Article
Information
Journal of Biosocial Science , Volume 14 , Issue 4 , October 1982 , pp. 379 - 389
Copyright
Copyright © 1982, Cambridge University Press

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References

Bolt, J.M.W. (1970) Huntington's chorea in the west of Scotland. Br. J. Psychiat. 116, 259.CrossRefGoogle ScholarPubMed
Chiu, E. & Teltscher, B. (1978) Huntington's disease: the establishment of a national register. Med. J. Aust. 3, 394.CrossRefGoogle Scholar
Commission for the Control of Huntington's Disease (1977) Work Group Report, Vol. II, Part 2, p. 141. US Department of Health, Education and Welfare, Bethesda.Google Scholar
Dewhurst, K., Oliver, J.E. & McKnight, A.L. (1970) Socio-psychiatric consequences of Huntington's chorea. Br. J. Psychiat. 116, 255.CrossRefGoogle Scholar
Hans, M.B. & Gilmore, T.H. (1968) Social aspects of Huntington's chorea. Br. J. Psychiat. 114, 93.CrossRefGoogle ScholarPubMed
Harper, P.S., Walker, D.A., Tyler, A., Newcombe, R.G. & Davies, K. (1979) Huntington's chorea. The basis for long-term prevention. Lancet, ii, 346.CrossRefGoogle Scholar
Harper, P.S., Tyler, A., Smith, S. & Jones, P. (1981) Decline in the predicted incidence of Huntington's chorea associated with systematic genetic counselling and family support. Lancet, ii, 411.CrossRefGoogle Scholar
Hayden, M.R., Ehrlich, R., Parker, H. & Ferera, S.J. (1980) Social perspectives in Huntington's chorea. S. Afr. med. J. 58, 201.Google ScholarPubMed
Mattsson, B. (1974) Huntington's chorea in Sweden. Social and clinical data. Acta psychiat. scand. Suppl. 255, 221.CrossRefGoogle Scholar
McAtee, O.B. & Stevens, H.H. (1973) Huntington's chorea at the Madison State hospital 1910–1971. In: Advances in Neurology, Vol. 1. Raven Press, New York.Google Scholar
Office of Health Economics (1980) Huntington's Chorea. Pamphlet No. 67. HM Stationery Office, London.Google Scholar
Panse, F. (1942) Die Erbchorea. Thieme, Leipzig.Google Scholar
Pleydell, M.J. (1954) Huntington's chorea in Northamptonshire. Br. med. J. Vol. 2, 1121.CrossRefGoogle ScholarPubMed
Reed, T.E., Chandler, J.H., Hughes, E.M. & Davidson, R.T. (1958) Huntington's disease in Michigan. 1. Demography and genetics. Am. J. hum. Genet. 10, 201.Google Scholar
Registrar General of England and Wales (1973) Census 1971, England & Wales, County Reports, Part 1. HM Stationery Office, London.Google Scholar
Teltscher, B. & Davies, B. (1972) Medical and social problems of Huntington's disease. Med. J. Aust. 1, 307.CrossRefGoogle ScholarPubMed
Townsend, P. & Wedderburn, D. (1965) The Aged in the Welfare State. Bell, London.Google Scholar
Walker, D.A., Harper, P.S., Wells, C.G.C., Tyler, A., Davies, K. & Newcombe, R.G. (1981) Huntington's chorea in South Wales. A genetic and epidemiological study. J. clin. Genet. 19, 213.CrossRefGoogle Scholar