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327 - The Course and Predictors of Quality of Life in Nursing Home Residents with Young-onset Dementia

Published online by Cambridge University Press:  04 November 2020

Lihui Pu
Affiliation:
Department of Primary and Community Care, Radboud University Nijmegen, Medical Center, Nijmegen, The Netherlands Menzies Health Institute Queensland & School of Nursing and Midwifery, Griffith University, Australia
Christian Bakker
Affiliation:
Department of Primary and Community Care, Radboud University Nijmegen, Medical Center, Nijmegen, The Netherlands Radboudumc Alzheimer Center, Nijmegen, The Netherlands Groenhuysen, Center for Specialized Geriatric Care, Roosendaal, The Netherlands
Britt Appelhof
Affiliation:
Department of Primary and Community Care, Radboud University Nijmegen, Medical Center, Nijmegen, The Netherlands Radboudumc Alzheimer Center, Nijmegen, The Netherlands
Jeannette C.L. Van Duinen-van den Ijssel
Affiliation:
Department of Primary and Community Care, Radboud University Nijmegen, Medical Center, Nijmegen, The Netherlands Radboudumc Alzheimer Center, Nijmegen, The Netherlands
Sandra A. Zwijsen
Affiliation:
Department of General Practice and Elderly Care Medicine/EMGO + Institute for Health and Care Research, Amsterdam UMC, Amsterdam, The Netherlands
Steven Teerenstra
Affiliation:
Department for Health Evidence, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands
Martin Smalbrugge
Affiliation:
Department of General Practice and Elderly Care Medicine/EMGO + Institute for Health and Care Research, Amsterdam UMC, Amsterdam, The Netherlands
Frans R.J. Verhey
Affiliation:
Alzheimer Center Limburg, School for Mental Health and Neuroscience, Maastricht University Medical Center, Maastricht, The Netherlands
Marjolein E. de Vugt
Affiliation:
Alzheimer Center Limburg, School for Mental Health and Neuroscience, Maastricht University Medical Center, Maastricht, The Netherlands
Sytse U. Zuidema
Affiliation:
Department of General Practice, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands
Raymond T.C.M. Koopmans
Affiliation:
Department of Primary and Community Care, Radboud University Nijmegen, Medical Center, Nijmegen, The Netherlands Radboudumc Alzheimer Center, Nijmegen, The Netherlands De Waalboog “Joachim en Anna,” Center for Specialized Geriatric Care, Nijmegen, The Netherlands
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Abstract

Background:

People with young-onset dementia (YOD) living in nursing homes may experience poor quality of life (QoL) due to advanced dementia, high prevalence of neuropsychiatric symptoms and psychotropic drug use. However, the course of QoL in institutionalized people with YOD and factors that predict this course are unclear. This knowledge could help health professionals identify appropriate interventions to improve QoL in YOD.

Objective:

To explore the course of QoL in institutionalized people with YOD and resident-related predictors of that course.

Methods:

Secondary analyses were conducted with longitudinal data from the Behavior and Evolution in Young-ONset Dementia (BEYOND)-II study. A total of 278 people with YOD were recruited from 13 YOD special care units in the Netherlands. QoL was measured by the proxy assessment of Quality of Life in Dementia (QUALIDEM) questionnaire at four assessments over 18 months. Independent variables included age, gender, dementia subtype, length of stay, dementia severity, neuropsychiatric symptoms and psychotropic drug use at baseline. Multilevel modeling adjusted for correlation within nursing homes and residents was used to determine the course and predictors of QoL.

Results:

The total QUALIDEM score (range: 0–111) decreased over 18 months with a statistically significant decline of 0.73 points per six months. A significant increase of QoL over time was seen in the subscales “Care relationship”, “Positive self-image”, and “Feeling at home”. However, a significant decline was observed in the subscales “Positive affect”, “Social relations”, and “Something to do”. Residents’ course of QoL was positively associated with the baseline scores of the QoL, age and longer duration of stay; however, being male, having advanced dementia, Alzheimer’s disease and high rates of neuropsychiatric symptoms at baseline were negatively associated with the course of QoL

Conclusion:

Longitudinal changes in QoL in residents with YOD were small over 18 months and QUALIDEM subscales showed multidirectional changes. The largest QoL decline in the subscale “Positive affect” suggests that interventions should be targeted to improve positive emotions, in particular for male residents with neuropsychiatric symptoms and advanced dementia.

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Copyright
© International Psychogeriatric Association 2020
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