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Successful transition for adolescent survivors of CHD: the Cambridge cardiac transition pathway

Published online by Cambridge University Press:  02 May 2023

Norah Y.S. Yap Open the ORCID record for Norah Y.S. Yap [Opens in a new window] ,
Parth Patil ,
Carole Phoenix ,
Katie Bradly Russell ,
Clive Lewis ,
Robert Yates  and
Wilf Kelsall
Norah Y.S. Yap*
Affiliation:
Department of Paediatric Cardiology, University Hospital Southampton, Tremona Road, Southampton SO16 6YD, England, UK
Parth Patil
Affiliation:
School of Clinical Medicine, University of Cambridge, Addenbrooke’s Hospital, Hills Road, Cambridge CB2 0QQ, England, UK
Carole Phoenix
Affiliation:
Department of Cardiology, Royal Papworth Hospital, Papworth Everard, Cambridge CB23 3RE, England, UK
Katie Bradly Russell
Affiliation:
Department of Paediatrics, Addenbrooke’s Hospital, Hills Road, Cambridge CB2 0QQ, England, UK
Clive Lewis
Affiliation:
Department of Cardiology, Royal Papworth Hospital, Papworth Everard, Cambridge CB23 3RE, England, UK
Robert Yates
Affiliation:
Department of Cardiology, Great Ormond Street Hospital, Great Ormond Street, London WC1N 3JH, England, UK
Wilf Kelsall
Affiliation:
Department of Paediatrics, Addenbrooke’s Hospital, Hills Road, Cambridge CB2 0QQ, England, UK
*
Address for correspondence: Dr Norah Y. S. Yap, Paediatric Cardiology Trainee, Southampton General Hospital, Tremona Road, Southampton SO16 6YD, England, UK. E-mail: norahyap@doctors.org.uk
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Abstract

Purpose:

National standards to ensure effective transition and smooth transfer of adolescents from paediatric to adult services are available but data on successful transition in CHD are limited. The aim of this study is to assess the effectiveness of our transition pathway.

Methods:

Adolescents with CHD, aged 15–19 years, who attended the joint cardiac transition clinic between 2009 and 2018 were identified from the Patient Administration Systems. Patient attendance at their first adult CHD service appointment at Royal Papworth Hospital was recorded.

Results:

179 adolescents were seen in the joint cardiac transition clinic in the 9-year study period. The median age of the patients when seen was 16 (range 15–19) years. 145 patients were initially planned for transfer to the Royal Papworth Hospital adult CHD service. Three patients were subsequently excluded and the success of the transfer of care in 142 patients were analysed. 112 (78%) attended their first follow-up in the adult CHD clinic as planned, 28 (20%) attended after reminders were sent out with 5/28 requiring multiple reminders, and only 2 (1.4%) failed to attend. Overall, transfer of care was achieved in 140 (98.6%) patients.

Conclusion:

A dedicated joint cardiac transition clinic involving multi-professional medical and nursing teams from paediatric and adult cardiology services appears to achieve high engagement rates with the adult services. This approach allows a ‘face’ to be put on a named clinician delivering the adult service and should be encouraged.

Keywords

CHDadolescenttransition clinicadult congenital heart disease
Type
Original Article
Information
Cardiology in the Young , Volume 33 , Issue 12 , December 2023 , pp. 2639 - 2643
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Copyright
© The Author(s), 2023. Published by Cambridge University Press

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