Hostname: page-component-84b7d79bbc-5lx2p Total loading time: 0 Render date: 2024-07-30T13:11:01.240Z Has data issue: false hasContentIssue false
  • English
  • Français

Community-based Rehabilitation Needs: Perceptions of Individuals with Brain Injury and Their Families in the Midwestern United States

Published online by Cambridge University Press:  07 November 2013

Veronica I. Umeasiegbu ,
Brittany Waletich ,
Laura A. Whitten  and
Malachy Bishop
Veronica I. Umeasiegbu*
Affiliation:
Southern University
Brittany Waletich
Affiliation:
University of Kentucky
Laura A. Whitten
Affiliation:
University of Kentucky
Malachy Bishop
Affiliation:
University of Kentucky
*
Corresponding author: Veronica I. Umeasiegbu, PhD, CRC, Assistant Professor, Department of Rehabilitation and Disability Studies, Southern University and A & M Colleges, 230 Blanks Hall, Baton Rouge, LA 70813USA. Email: viumeasiegbu@yahoo.com
Get access

Abstract

This study investigated the rehabilitation and services needs, rehabilitation goals and barriers of individuals with brain injury (n = 81, males = 59%, females = 41%, age range 18 to 87), and their family members (n = 19; females = 75%, age range 18 to 65), (ethnicity = white = 89%). Data were collected using a survey instrument and focus group interviews. A descriptive analysis of the quantitative data was conducted, while content analysis was used to analyse the qualitative data. Results suggest that individuals with brain injury and their families experience many unmet needs across the domains of employment, independent living, financial resources and housing. Family involvement was found to be important to community participation after brain injury.

Keywords

brain injuryindividuals and family needsrehabilitation services
Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 19 , Special Issue 2: Family Support and Adjustment Following Acquired Brain Injury: An International Perspective , December 2013 , pp. 155 - 163
Copyright
Copyright © The Author(s), published by Cambridge University Press on behalf of Australian Academic Press Pty Ltd 2013 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Abreu, B.C., Zhang, L., Seale, G., Primeau, L., & Jones, J. (2002). Interdisciplinary meetings: Investigate the collaboration between persons with brain injury and treatment teams. Brain Injury, 16, 691–704. doi: 10.1080/026990502110128942CrossRefGoogle Scholar
Bartlett, S., Lorenz, L., Rankin, T., Elias, E., & Weider, K. (2011). Traumatic brain injury: Looking back, looking forward, part 8. Traumatic Brain Injury-Resource Optimization Center.Google Scholar
Berg, B.L. (2007) Qualitative Research Methods for the Social Sciences (6th ed.). Boston: Pearson.Google Scholar
Bishop, M., Degeneffe, C.E., & Mast, M. (2006). Family needs after traumatic brain injury: Implications for rehabilitation counselling. Australian Journal of Rehabilitation Counselling, 12 (2), 73–87.CrossRefGoogle Scholar
Brain Injury Alliance of Kentucky (2010). Retrieved from: www.biak.us/service-support/trust_fund.Google Scholar
Brain Injury Association of America (2012). Advocacy and government affairs. Retrieved from http://www.biausa.org/biaa-advocacy.htmGoogle Scholar
Corrigan, J.D., Whiteneck, G., & Mellick, D. (2004). Perceived needs following traumatic brain injury. Journal of Head Trauma Rehabilitation, 19 (3), 205–216.CrossRefGoogle ScholarPubMed
Cott, C.A. (2004). Client-centered rehabiliation: Client perspectives. Disability and Rehabiliation, 26, 1411–1422. doi: 10.1080/9638280400000237CrossRefGoogle Scholar
Creswell, J.W. (2009). Research Design: Qualitative, quantitative, and mixed methods approaches (3rd ed.). Thousand Oaks, CA: Sage Publications, Inc.Google Scholar
Degeneffe, C.E., Boot, D., Kuehne, J., et al. (2008). Community-based interventions for persons with traumatic brain injury: A primer for rehabilitation counselors. Journal of Applied Rehabilitation Counseling, 39 (1), 42–48.CrossRefGoogle Scholar
Degeneffe, C.E., & Lee, G.K. (2010). Quality of life after traumatic brain injury: Perspectives of adult siblings. Journal of Rehabilitation, 76 (4), 27–36.Google Scholar
deGuise, E., leBlanc, J., Feyz, M., Meyer, K., Duplantie, J., Thomas, H.,. . . Roger, E. (2008). Long-term outcome after severe traumatic brain injury: The McGill interdisciplinary prospective study. The Journal of Head Trauma Rehabilitation, 23 (5), 294–303.CrossRefGoogle ScholarPubMed
Elbogen, E.B., Johnson, S.C., Wagner, H.R., Newton, V.M., & Beckham, J.C. (2012). Financial well-being and postdeployment adjustment among Iraq and Afghanistan war veterans. Military Medicine, 177 (6), 669–675.CrossRefGoogle ScholarPubMed
Gontkovsky, S.T., Sherer, M., Nick, T.G., Nakase-Thompson, R., & Yablon, S.A. (2006). Effect of urbanicity of residence on TBI outcome at one year post-injury. Brain Injury, 20 (7), 701–709. doi:10.1080/02699050600744103CrossRefGoogle ScholarPubMed
Heinemann, A.W., Sokol, K., Garvin, L., & Bode, R.K. (2002). Measuring unmet needs and services among persons with traumatic brain injury. Archives of Physical Medicine Rehabiliation, 83, 1052–1059.CrossRefGoogle ScholarPubMed
Jennekens, N., Dierckx de Caterle, B., & Dobbels, F. (2010). A systematic review of care needs of people with traumatic brain injury (TBI) on a cognitive, emotional and behavioral level. Journal of Clinical Nursing, 19, 1198–1206. doi: 10.1111/j.1365-2702.2009.03114.xCrossRefGoogle Scholar
Kreutzer, J., & Marwitz, J. (1989). The Family Needs Questionnaire. Richmond, Virginia: The National Resource Center for Traumatic Brain Injury.Google Scholar
Lefebvre, H., & Levert, M. (2012). The close relatives of people who have had a traumatic brain injury and their special needs. Brain Injury, 26 (9), 1084–1097.CrossRefGoogle ScholarPubMed
Lehan, T., Arango-Lasprilla, J.C., de los Reyes, J., & Quijano, M.C. (2012). The ties that bind: The relationship between caregiver burden and the neuropsychological functioning of traumatic brain injury survivors. NeuroRehabilitation, 30, 87–95.CrossRefGoogle Scholar
Man, D.W.K., Lee, E.W.T., Tong, E.C.H., Yip, S.C.S., Lui, W.F., & Lam, C.S. (2004). Health services needs and quality of life assessment of individuals with brain injuries: A pilot cross-sectional study. Brain Injury, 18 (6), 577–591.CrossRefGoogle ScholarPubMed
Murphy, M.P., & Carmine, H. (2012). Long-term health implications of individuals with TBI: A rehabilitation perspective. NeuroRehabilitation, 31, 85–94. doi:10.3233/NRE-2012-0777CrossRefGoogle ScholarPubMed
O'Callaghan, A.M., McAllister, L., & Wilson, L. (2010). Experiences of care reported by adults with traumatic brain injury. International Journal of Speech-Language Pathology 12 (2), 107–123.CrossRefGoogle ScholarPubMed
O'Callaghan, A.M., McAllister, L., & Wilson, L. (2011). Experiences of care: Perspectives of carers of adults with traumatic brain injury. International Journal of Speech-Language Pathology, 13 (3), 218–226.CrossRefGoogle ScholarPubMed
Pickelsimer, E.E., Selassie, A.W., Sample, P.L., Heinemann, A.W., Gu, J.K., & Veldheer, L.C. (2007). Unmet service needs of persons with traumatic brain injury. Journal of Head Trauma Rehabilitation, 22 (1), 1–13.CrossRefGoogle ScholarPubMed
Ponsford, J., Harrington, H., Olver, J., & Roper, M. (2006). Evaluation of a community-based model of rehabilitation following traumatic brain injury. NeuroPsychological Rehabilitation, 16 (3), 315–328. Doi:10.1080/09602010500176534CrossRefGoogle ScholarPubMed
Rotondi, A.J., Sinkule, J., Balzer, K., Harris, J., & Moldovan, R. (2007). Journal of Head Trauma Rehabilitation, 22 (1), 14–25.CrossRefGoogle Scholar
Sinnakaruppan, I., & Williams, D.M. (2001). Family carers and the adult head-injured: A critical review of carers’ needs. Brain Injury, 8, 653–672. doi: 10.1080/02699050010025759Google Scholar
Spearman, R.C., Stamm, B.H., & Tivis, L.J. (2007). Traumatic brain injury state planning grant: Preparing for change in rural state. Brain Injury, 21 (8), 837–849.CrossRefGoogle ScholarPubMed
Turner, B.J., Fleming, J., Ownsworth, T., & Cornwell, P. (2011). Perceived service and support needs during transition from hospital to home following acquired brain injury. Disability and Rehabilitation, 33 (10), 818–829. doi:10.3109/09638288.2010.513422CrossRefGoogle ScholarPubMed
U.S. Department of Health and Human Services, Center for Disease Control and Prevention, National Center for Injury Prevention and Control. (2010). Traumatic brain injury in the United States: Emergency department visits, hospitalizations and deaths 2002–2006. Retrieved from www.cdc.gov/TraumaticBrainInjuryGoogle Scholar
Vaughn, S.L., & King, A. (2001). A survey of state programs to finance rehabilitation and community services for individuals with brain injury. Journal of Head Trauma Rehabilitation, 16 (1), 20–33.CrossRefGoogle ScholarPubMed