Hostname: page-component-77c89778f8-vsgnj Total loading time: 0 Render date: 2024-07-23T22:21:35.689Z Has data issue: false hasContentIssue false
  • English
  • Français

Sustaining the Family: The Case for Effective Early Intervention

Published online by Cambridge University Press:  26 February 2016

Barry Carpenter
Barry Carpenter*
Affiliation:
Sunfield West Midlands, United Kingdom
*
Address for: Professor Barry Carpenter, Director, Centre tor the Study of Special Education, Westminster College, OXFORD 0X2 9AT United Kingdom. Email: CSSE@ox-west.ac.uk.
Get access Rights & Permissions [Opens in a new window]

Extract

Robert and Louise eagerly anticipated the arrival of their first child, and when Clare was born they were elated. Their joy lasted on a few sort moments. Clare’s physical disability was obvious – only one ear, her chin depressed into her neck. The paediatrician advised an emergency tracheotomy.

Numbed with shock, Robert and Louise agreed to the operation. During the operation, Clare lost consciousness for 15 minutes. In spite of this she survived. As feeding was clearly going to be a problem, a nasogatric tube was fitted.

Type
Research Article
Information
Australasian Journal of Special Education , Volume 23 , Issue 2-3 , 1999 , pp. 79 - 89
Copyright
Copyright © The Australian Association of Special Education 1999

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Ball, I. (1995). Drugs Fear for Unborn Babies, The Times, 15th July, 1995.Google Scholar
Ballard, K. (Ed.) (1994). Disability, family, Whanau and society, Palmerston North, NZ: Dunmore Press.Google Scholar
Basil, C. (1994). Family involvement in the intervention process. In Eroding, J., and Bjorck-Akesson, E., (Eds.), Methodological issues in research in augmentative and alternative communication, Jonkoping: Jonkoping University Press.Google Scholar
Bray, A., Skelton, E., Ballard, K., & Clarkson, J. (1995). Fathers of children with disabilities: Some experiences and reflections, New Zealand Journal of Disability Studies, 1, 164–176.Google Scholar
Brown, C. (1994). Parents and professionals: future directions. In Ballard, K., (Ed.), Disability, family, Whanau and society, Palmerston North, NZ: Dunmore Press.Google Scholar
Carpenter, B. (Ed.) (1994). Early intervention: Where are we now?, Oxford: Westminster College.Google Scholar
Carpenter, B. (1995). Involving fathers: A preliminary evaluation of the IF project (occasional paper). Oxford: Westminster College.Google Scholar
Carpenter, B. & Carpenter, S.A. (1989). The Blythe home-liaison playgroup: An early intervention scheme for very young children with special educational needs and their parents. Early Child Development and Care, 53, 13–21.Google Scholar
Carpenter, B. & Herbert, E. (1994). The peripheral parent: Research issues and reflections on the role of fathers in Early Intervention. PMLD Link, 19 (Summer), 16–25.Google Scholar
Champion, P. (1998). Infant maternal interactive social/emotional learning where the infant/child has a disability, or is at risk of a disability. Keynote Address to the IVth European Symposium on Early Intervention, Butgenbach, Belgium 14th – 17th October, 1998.Google Scholar
Doyle, B. (1997). Transdisiplinary approaches to working with families. In Carpenter, B. (Ed.), Families in context: Emerging trends in family support and early intervention. London: David Fulton.Google Scholar
Emsley, H., Wardle, S., Sims, D., Chiswick, M., & D’Souza, S., (1998). Increased survival and deteriorating developmental outcomes in 23–25 week old gestation infants 1990–4 compared with 1984–89. Archives of diseases in childhood, 78(2).Google Scholar
Fitton, P. (1994). Listen to me: Communicating the needs of people with profound intellectual and multiple disabilities. London: Jessica Kingsley.Google Scholar
Guralnick, M. (1991). The next decade of research on the effectiveness of early Intervention. Exceptional Children, 58, 174–183.Google Scholar
Hebden, J. (1985). She’ll never do anything, dear. London: Souvenir Press.Google Scholar
Herbert, E., & Carpenter, B. (1994). Fathers: The secondary partners. Children and Society, 8(10), 31–41.CrossRefGoogle Scholar
Hornby, G. (1991). Parental involvement. In Mitchell, D. and Brown, R., (Eds.), Early intervention studies for children with special needs. Norwich: Chapman Hall.Google Scholar
Johnson, C., & Crowder, J. (1994). Autism: From tragedy to triumph. Boston, MA: Bradnen.Google Scholar
Lacey, P., & Lomas, J. (1993). Support services and the curriculum: A practical guide to collaboration. London: David Fulton.Google Scholar
Levy, J., Rimmerman, A., Botuk, S., Ardito, M., Freeman, S., & Levy, P. (1996). The support network of mothers of younger adult children with mental retardation and developmental disabilities receiving care management. British Journal of Developmental Disabilities, 42(82), 24–31.Google Scholar
Longhom, F. (1998). A sensory curriculum for very special people. London: Souvenir Press.Google Scholar
Macdonald, V. (1998). New born babies feel pain more than adults - and it lasts longer. The Sunday Telegraph, August 2nd, 1998.Google Scholar
Marfo, K., & Kysela, G. (1985). Early Intervention with mentally handicapped children: a critical appraisal of applied research. Journal of Paediatric Psychology, 10(3), 305.Google Scholar
McConachie, H. (1986). Parents and young children mentally handicapped children: A review of research issues, London: Croom Helm.Google Scholar
McConachie, H. (1994). Implications of a model of stress and coping for services to families of young disabled children. Care, Health and Development, 20, 1–10.CrossRefGoogle Scholar
McConkey, R. (1994). Early intervention: Planning futures, shaping years. Mental Handicap Research, 7(1), 4–15.Google Scholar
Meyer, D. (1986). The father role: Applied perspectives. New York: John Crowley.Google Scholar
Meyer, D., & Vadsey, P. (1996). Living with a brother or sister with special needs (2nd ed.). Seattle: University of Washington Press.Google Scholar
Mirfin-Veitch, B., & Bray, A. (1997). Grandparents: Part of the family. In Carpenter, B. (Ed.), Families in context: Emerging trends in family support and early intervention. London: David Fulton.Google Scholar
Mittler, P. (1994). Early Intervention: Which way forward? In Carpenter, B., (Ed.), Early intervention: Where are we now? Oxford: Westminster College.Google Scholar
Mittler, P. (1996). Laying the foundation of self-advocacy: The role of home and school. In Coupe O’Kane, J., and Goldbart, J., (Eds.), Whose Choice?: Contentious issues for those working with people with learning difficulties. London: David Fulton.Google Scholar
Ofsted, . (1995). The OFSTED handbook: Guidance on the inspection of special schools. London: HMSO.Google Scholar
Pugh, G. (1994). The sooner, the better: Early education. Paper presented to the Our Children, Our Future Conference, Primary Schools Research and Development Group, University of Birmingham, U.K. Google Scholar
Rodrique, J., Morgan, S. & Geffken, G. (1992). Psychological adaptation of fathers of children with autism, Down’s syndrome and normal development. Journal of Autism and Developmental Disorders, 22, 249–63.Google Scholar
Rogers, L. (1996). Multiple births put babies at risk of blindness. The Sunday Times, 20th October, 1996.Google Scholar
Russell, P. (1994). Surveillance and intervention: Special issues in child care services. In Carpenter, B., (Ed.), Early intervention: Where are we now? Oxford: Westminster College.Google Scholar
Sainsbury, K. (1998). Whose life is it? The Guardian, 20th March, 1998.Google Scholar
The Guardian. (1998). Smoking is worse than cocaine. The Guardian, 3rd June, 1998.Google Scholar
Tolston, A. (1977). The units of masculinity. London: Tavistock Publications.Google Scholar
Wills, R. (1994). Its time to stop. In Ballard, K., (Ed.), Disability, family, Whanau and society. Palmerston North, NZ: Dunmore Press.Google Scholar
Wilton, K., & Renaut, J. (1986). Stress levels in families with intellectually handicapped pre-school children and families with non-handicapped pre-school children. Journal of Mental Deficiency Research, 30, 163–169.Google Scholar
Wyman, L. (1986). Multiply handicapped children. London: Souvenir Press.Google Scholar