Hostname: page-component-76fb5796d-zzh7m Total loading time: 0 Render date: 2024-04-27T01:43:40.379Z Has data issue: false hasContentIssue false

‘We go for a homely feel … not the clinical dementia side’: care home managers’ experiences of supporting residents with dementia to orientate and navigate care environments

Published online by Cambridge University Press:  14 December 2020

Michelle Heward*
Affiliation:
Ageing and Dementia Research Centre, Bournemouth University, Poole, UK Department of Rehabilitation and Sport Science, Bournemouth University, Bournemouth, UK
Amanda Adams
Affiliation:
Department of Psychology, Bournemouth University, Poole, UK
Ben Hicks
Affiliation:
Centre for Dementia Studies, Trafford Centre, Brighton and Sussex Medical School, Brighton, UK
Jan Wiener
Affiliation:
Ageing and Dementia Research Centre, Bournemouth University, Poole, UK Department of Psychology, Bournemouth University, Poole, UK
*
*Corresponding author. Email: mheward@bournemouth.ac.uk

Abstract

Living with dementia can adversely affect people's spatial (orientation and navigation) and reality (time, date and place) orientation, which can detrimentally impact on their sense of social inclusion and wellbeing. This is an important challenge to address within United Kingdom (UK) care homes where around 70 per cent of the residents are living with dementia or severe memory problems. Care home managers have some autonomy in decision-making that impacts on the daily functioning of residents and are key in enacting the orientation and navigation agenda within a care home environment. Yet a paucity of literature explores their understanding and experiences of this issue. Contributing to this knowledge gap, our exploratory study examined managers’ current practice of supporting residents with dementia to minimise disorientation and their knowledge of dementia-friendly design principles, guidelines and audit tools. Semi-structured telephone interviews with 12 UK care home managers were conducted. Questions started generally targeting residents’ orientation and navigation abilities, followed by specific questions to draw out strategies used to support residents. Thematic analysis identified three higher-order themes: aligning strategies with needs, intuitive learning and managing within the wider business context. The findings demonstrated that managers perceive dementia to impact on a person's spatial and reality orientation. Consequently, the strategies they chose to adopt were tailored towards alleviating both challenges. However, although managers were aware of some design principles, they frequently relied on intuitive learning and past experiences to inform their choice of interventions, reporting a lack of knowledge and/or time to seek out orientation-specific training and guidance, resulting in a low uptake of guidelines and audit tools in practice. This gap between theory and practice highlights a need for accessible guidelines that integrate strategies with neuropsychological theory, and appropriate training to improve orientation and navigation in care home environments. Managers, staff, business owners, architects and designers all play a key role in implementing orientation guidelines into practice and ensuring dementia-friendly care home environments for residents.

Type
Article
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Aguirre, E, Woods, RT, Spector, A and Orrell, M (2013) Cognitive stimulation for dementia: a systematic review of the evidence of effectiveness from randomised controlled trials. Ageing Research Reviews 12, 253262.CrossRefGoogle ScholarPubMed
Alzheimer's Association, (2020) What is Alzheimer's Disease. Available at https://www.alz.org/alzheimers-dementia/what-is-alzheimers (accessed 30/11/2020).Google Scholar
Alzheimer's Disease International (2020) The World Alzheimer Report 2020: Design, Dignity, Dementia: Dementia-related Design and the Built Environment, Vol. I. Available at https://www.alz.co.uk/research/world-report-2020.Google Scholar
Alzheimer's Society (2016) Fix Dementia Care: NHS and Care Homes. London: Alzheimer's Society.Google Scholar
American Psychiatric Association (1997) Practice guideline for the treatment of patients with Alzheimer's disease and other dementias of late life. American Journal of Psychiatry 154, 139.CrossRefGoogle Scholar
Barnes, S (2002) The design of caring environments and the quality of life of older people. Ageing & Society 22, 775789.CrossRefGoogle Scholar
Bartlett, R and O'Connor, D (2010) Broadening the Dementia Debate: Towards Social Citizenship. Bristol, UK: Policy Press.Google Scholar
Benton, A and Tranel, D (1993) Visuoperceptual, visuospatial, and visuoconstructive disorders. In Heilman, KM and Valenstein, E (eds), Clinical Neuropsychology, 3rd Edn. New York, NY: Oxford University Press, pp. 165213.Google Scholar
Braun, V and Clarke, V (2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77101.CrossRefGoogle Scholar
Bryman, A (2008) Social Science Methods. Oxford: Oxford University Press.Google Scholar
Caspi, E (2014) Wayfinding difficulties among elders with dementia in an assisted living residence. Dementia 13, 429450.CrossRefGoogle Scholar
Chaudhury, H, Cooke, H, Cowie, H and Razaghi, L (2018) The influence of the physical environment on residents with dementia in long-term care settings: a review of the empirical literature. The Gerontologist 58, 325337.CrossRefGoogle ScholarPubMed
Cunningham, J (2005) Care Staff Views About Telling the Absolute Truth to People with Dementia (Doctoral dissertation). University of Newcastle, Newcastle upon Tyne, UK.Google Scholar
Davis, S, Byers, S, Nay, R and Koch, S (2009) Guiding design of dementia friendly environments in residential care settings: considering the living experiences. Dementia 8, 185203.CrossRefGoogle Scholar
Day, K, Carreon, D and Stump, C (2000) The therapeutic design of environments for people with dementia: a review of the empirical research. The Gerontologist 40, 397416.CrossRefGoogle ScholarPubMed
Day, A, James, I, Meyer, T and Lee, D (2011) Do people with dementia find lies and deception in dementia care acceptable? Aging and Mental Health 15, 822829.CrossRefGoogle ScholarPubMed
Dementia Friendly Community (2015) Dementia Friendly Community: Community Interest Company. Available at http://www.adementiafriendlycommunity.com.Google Scholar
Dementia Service Design Centre (2011) Dementia Design Audit Tool. Available at http://dementia.stir.ac.uk/design.Google Scholar
Department of Health (2009) Living Well with Dementia: A National Dementia Strategy. London: DH Publications.Google Scholar
Department of Health (2015) Prime Minister's Challenge on Dementia 2020. London: DH Publications.Google Scholar
Dowling, S, Manthorpe, J and Cowley, S (2006) Person-centred Planning in Social Care – A Scoping Review. York, UK: Joseph Rowntree Foundation.Google Scholar
Elvish, R, James, I and Milne, D (2010) Lying in dementia care: an example of a culture that deceives in people's best interests. Aging and Mental Health 14, 255262.CrossRefGoogle ScholarPubMed
Fleming, R (2011) An environmental audit tool suitable for use in homelike facilities for people with dementia. Australasian Journal on Ageing 30, 108112.CrossRefGoogle ScholarPubMed
Fleming, R, Forbes, I and Bennett, K (2003) The Environmental Audit Tool (EAT). Available at https://www.enablingenvironments.com.au/uploads/5/0/4/5/50459523/acute-care-eat-tool.pdf.Google Scholar
Garcia, L, Hebert, M, Kozak, J, Senecal, I, Slaughter, S, Aminzadeh, F, Dalziel, W, Charles, J and Eliasziw, M (2012) Perceptions of family and staff on the role of the environment in long-term care homes for people with dementia. International Psychogeriatrics 24, 753765.Google ScholarPubMed
Golledge, RG (1987) Environmental cognition. In Stokols, D and Altman, I (eds), Handbook of Environmental Psychology. New York, NY: Wiley, pp. 131174.Google Scholar
Hadjri, K, Faith, V and McManus, M (2012) Designing dementia nursing and residential care homes. Journal of Integrated Care 20, 322340.CrossRefGoogle Scholar
Health Facilities Scotland (2007 a) Wayfinding: Effective Wayfinding and Signing Systems Guidance for Healthcare Facilities. Glasgow: Health Facilities Scotland, a Division of NHS Services Scotland.Google Scholar
Health Facilities Scotland (2007 b) Dementia Design Checklist. Glasgow: Health Facilities Scotland, a Division of NHS National Services Scotland.Google Scholar
Heward, M, Innes, A, Cutler, C and Hambidge, S (2017) Dementia-friendly communities: challenges and strategies for achieving stakeholder involvement. Health and Social Care in the Community 25, 858867.CrossRefGoogle ScholarPubMed
Hicks, B and Innes, A (2020) Developing collaborative relationships with rural-dwelling older men with dementia in the UK: lessons learned from a community technological initiative. In Innes A, Morgan D, and Farmer J, (eds), Remote and Rural Dementia Care. Bristol, UK: Policy Press, pp. 151184.Google Scholar
Hughes, J (2014) How We Think About Dementia: Personhood, Rights, Ethics, the Arts and What They Mean for Care. London: Jessica Kingsley Publishers.Google Scholar
Hughes, J (2019) Citizenship and authenticity in dementia: a scoping review. Maturitas 125, 1116.CrossRefGoogle ScholarPubMed
James, I, Wood-Mitchell, A, Waterworth, A, Mackenzie, L and Cunningham, J (2006) Lying to people with dementia: developing ethical guidelines for care settings. International Journal of Geriatric Psychiatry 21, 800801.CrossRefGoogle ScholarPubMed
Jamshed, S (2014) Qualitative research method – interviewing and observation. Journal of Basic and Clinical Pharmacy 5, 8788.CrossRefGoogle ScholarPubMed
Kellaher, L (1986) Determinants of quality of life in residential settings for old people. In Judge, K and Sinclair, I (eds), Residential Care for Elderly People. London: HMSO, pp. 127138.Google Scholar
Kelly, F, Innes, A and Dincarslan, O (2011) Improving care home design for people with dementia. Journal of Care Services Management 5, 147155.CrossRefGoogle Scholar
King's Fund (2012) Enhancing and Healing Environments Environmental Assessment Tool. Available at https://www.kingsfund.org.uk/projects/enhancing-healing-environment/ehe-design-dementia.Google Scholar
Kitwood, T (1990) The dialectics of dementia: with particular reference to Alzheimer's disease. Ageing & Society 10, 177196.CrossRefGoogle Scholar
Kitwood, T (1997) Dementia Reconsidered. Buckingham, UK: Open University Press.Google Scholar
Lewis, A, Torrington, J, Barnes, S, Darton, R, Holder, J, McKee, K, Netten, A and Orrell, A (2010) EVOLVE: a tool for evaluating the design of older people's housing. Housing Care and Support 13, 3641.CrossRefGoogle Scholar
Lin, S (2017) ‘Dementia-friendly communities’ and being dementia friendly in healthcare settings. Current Opinions in Psychiatry 30, 145150.CrossRefGoogle ScholarPubMed
Lynch, K (1960) The Image of the City. Cambridge, MA: Massachusetts Institute of Technology.Google Scholar
Macdonald, A and Cooper, B (2007) Long-term care and dementia services: an impending crisis. Age and Ageing 36, 1622.Google Scholar
MacDonald, M and Settin, J (1978) Reality orientation versus sheltered workshops as treatment for the institutionalized ageing. Journal of Gerontology 33, 416421.CrossRefGoogle Scholar
Marquardt, G (2011) Wayfinding for people with dementia – a review of the role of architectural design. Health Environments Research and Design Journal (HERD) 4, 2241.Google ScholarPubMed
Marquardt, G and Schmieg, P (2009) Dementia-friendly architecture: environments that facilitate wayfinding in nursing homes. American Journal of Alzheimer's Disease & Other Dementias 24, 333340.CrossRefGoogle ScholarPubMed
Marshall, M (1992) Designing for disorientation. Access by Design 58, 1517.Google Scholar
Marshall, M (2001) Environment: how it helps to see dementia as a disability. Journal of Dementia Care 6, 1517.Google Scholar
Mitchell, L and Burton, E (2004) Neighbourhoods for Life. A Checklist of Recommendations for Designing Dementia-friendly Outdoor Environments. London: Oxford Institute for Sustainable Development (OISD) and the Housing Corporation.Google Scholar
Molony, S (2010) The meaning of home: a qualitative metasynthesis. Research in Gerontological Nursing 3, 291307.CrossRefGoogle Scholar
National Institute for Health Care Excellence (2019) Running Cognitive Stimulation Therapy (CST) groups as part of core Community Mental Health Team (CMHT) work. Available at https://www.nice.org.uk/sharedlearning/running-cognitive-stimulation-therapy-cst-groups-as-part-of-core-community-mental-health-team-cmht-work (30/11/2020)Google Scholar
National Institute for Health Research (2016) Understanding Care Homes. Available at http://enrich.nihr.ac.uk/page/understanding-care-homes.Google Scholar
Office for Budget Responsibility (2019) Fiscal Risks Report. Available at www.gov.uk/official-documents.Google Scholar
Olsson, A, Skovdahl, K and Engstrom, M (in press) Strategies used by people with Alzheimer's disease for outdoor wayfinding: a repeated observational study. Dementia. Available online doi:10.1177/1471301219896453.Google Scholar
O'Malley, M, Innes, A and Wiener, J (2015) Decreasing spatial disorientation in care-home settings: how psychology can guide the development of dementia friendly design guidelines. Dementia 16, 315328.CrossRefGoogle Scholar
O'Malley, M, Innes, A, Muir, S and Wiener, J (2018) All the corridors are the same: a qualitative study of the orientation experiences and design preferences of UK older adults living in a communal retirement development. Ageing & Society 38, 17911816.CrossRefGoogle Scholar
Pai, M and Jacobs, W (2004) Topographical disorientation in community-residing patients with Alzheimer's disease. International Journal of Geriatric Psychiatry 19, 250252.CrossRefGoogle ScholarPubMed
Passini, R, Pigot, H, Rainville, C and Tetreault, M (2000) Wayfinding in a nursing home for advanced dementia of the Alzheimer's type. Environment and Behavior 32, 684710.CrossRefGoogle Scholar
Rabig, J, Thomas, W, Kane, RA, Cutler, LJ and McAlilly, S (2006) Radical redesign of nursing homes: applying the Green House concept in Tupelo, Mississippi. The Gerontologist 46, 533539.CrossRefGoogle ScholarPubMed
Seetharaman, K, Shepley, M and Cheairs, C (2020) The saliency of geographical landmarks for community navigation: a photovoice study with persons living with dementia. Dementia. Available online https://doi.org/10.1177/1471301220927236.Google ScholarPubMed
Smith, R, Fleming, R, Chenoweth, L, Jeon, Y-H, Stein-Parbury, J and Brodaty, H (2012) Validation of the Environmental Audit Tool in both purpose-built and non-purpose-built dementia care settings. Australasian Journal on Ageing 31, 159163.CrossRefGoogle ScholarPubMed
Sury, L, Burns, K and Brodaty, H (2013) Moving in: adjustment of people living with dementia going into a nursing home and their families. International Psychogeriatrics 25, 867876.Google ScholarPubMed
Taulbee, L and Folsom, J (1966) Reality orientation for geriatric patients. Hospital and Community Psychiatry 17, 133135.Google ScholarPubMed
Verbeek, H, van Rossum, E, Zwakhalen, S, Kempen, G and Hamers, J (2009) Small, homelike care environments for older people with dementia: a literature review. International Psychogeriatrics 21, 252264.CrossRefGoogle ScholarPubMed
Voelkel, D (1978) A study of reality orientation and resocialisation groups with confused elderly. Journal of Gerontological Nursing 4, 318.CrossRefGoogle Scholar
Williamson, T (2012) A Stronger Collective Voice for People with Dementia. York, UK: Joseph Rowntree Foundation.Google Scholar
Woods, B, Aguirre, E, Spector, A and Orrell, M (2012) Cognitive stimulation to improve cognitive functioning in people with dementia. Cochrane Database of Systematic Reviews 2, CD005562.Google Scholar
Yates-Bolton, N, Yates, K, Williamson, T, Newton, R and Codinhoto, R (2012) Improving Hospital Environments for People with Dementia: Listening Event Report. Salford, UK: Salford University.Google Scholar
Zeisel, J, Silverstein, N, Hyde, J, Levkoff, S, Powell Lawton, M and Holmes, W (2003) Environmental correlates to behavioral health outcomes in Alzheimer's special care units. The Gerontologist 43, 697711.CrossRefGoogle ScholarPubMed