Skip to main content Accessibility help
×
Home
  • Print publication year: 2021
  • Online publication date: February 2021

References

Aman, M. G., Singh, N., Stewart, A. W., & Field, C. J. (1985). The Aberrant Behavior Checklist: a behavior rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89, 485–91.
Bailey, N., & Cooper, S.-A. (1998). NHS beds for people with learning disabilities. Psychiatric Bulletin, 22, 6972.
Bouras, N. (1999). Mental health in learning disabilities: Planning and service developments. Tizard Learning Disability Review, 4, 35.
Bouras, N., & Holt, G. (2001). Community mental health services for adults with learning disabilities. In Thornicroft, G. & Szmukler, G. (eds.), Textbook of Community Psychiatry, pp. 397407. Oxford: Oxford University Press.
Bouras, N., & Holt, G. (eds.). (2010). Mental Health Services for Adults with Intellectual Disability: Strategies and Solutions: the Maudsley Series. London: Psychology Press.
Bradshaw, J. (1972). A taxonomy of social need. In McLachlan, G. (ed.), Problems and Progress in Medical Care: Essays on Current Research. Oxford: Oxford University Press.
Cadman, T., Eklund, H., Howley, D., et al. (2012). Caregiver burden as people with ASD and ADHD transition into adolescence and adulthood in the UK. Journal of American Academy of Child & Adolescent Psychiatry, 51(9), 879–88.
Cooper, S. A., Smiley, E., Morrison, J., Williamson, A., & Allan, L. (2007). Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. British Journal of Psychiatry 190, 2735.
Deb, S., Thomas, M., & Bright, C. (2001). Mental disorder in adults with intellectual disability: I Prevalence of functional psychiatric disorder among a community-based population aged between 16 and 64 years. Journal of Intellectual Disability Research, 45, 495505.
Department of Health. (1997). The New NHS: Modern, Dependable (Cm 3807). London: Department of Health.
Department of Health. (1999a). Modernising Mental Health Services. London: Department of Health.
Department of Health. (1999b). National Service Framework for Mental Health. London: Department of Health.
Department of Health. (2001). Valuing People: A New Strategy for Learning Disabilities for the 21st Century (Cm5086). London: Department of Health.
Department of Health. (2012). Transforming Care: A National Response to Winterbourne View Hospital. London: Department of Health.
Department of Health Social Services Inspectorate. (1991). Care Management and Assessment: Summary of Practice Guidance. London: HMSO.
Doll, E. A. (1965). The Vineland Social Maturity Scale. Circle Pines, MN: American Guidance Service.
Eaton, I. F., & Menolascino, F. J. (1982). Psychiatric disorders in the mentally retarded: Types, problems and challenges. American Journal of Psychiatry, 139, 1298–303.
Eklund, H., Findon, J., Cadman, T., et al. (2018). Needs of adolescents and young adults with neurodevelopmental disorders: Comparisons of young people and parent perspectives. Journal of Autism and Developmental Disorders, 48, 8391.
Fisher, A. G. (1995). Assessment of Motor and Process Skills. Fort Collins, CO: Three Star Press.
Flynn, S., Vereenooghe, L., Hastings, R. P., et al. (2017). Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review. Clinical Psychology Review, 57, 3244.
Gould, A. (1998). The Service Need Assessment Profile (version 1). Computer software and manual. New South Wales: ATG & Associates Pty Ltd.
Gravestock, S., & Bouras, N. (1997). Survey of services for people with learning disabilities. Psychiatric Bulletin, 21, 197–9.
Guscia, R., Harries, J., Kirby, N., & Nettlebeck, T. (2005). Reliability of the Service Need Assessment Profile (SNAP): A measure of support for people with disabilities. Journal of Intellectual and Developmental Disability, 30(1), 2430.
Guscia, R., Harries, J., Kirby, N., Nettlebeck, T., & Taplin, J. (2006). Construct and criterion validities of the Service Need Assessment Profile (SNAP): a measure of support for people with disabilities. Journal of Intellectual and Developmental Disability, 31(3), 148–55.
Hall, I., Parkes, C., Samuels, S., & Hassiotis, A. (2006). Working across boundaries: Clinical outcomes for an integrated mental health service for people with intellectual disabilities. Journal of Intellectual Disability Research, 50(8), 598607.
Harrison, P. L., & Oakland, T. (2003). Adaptive Behavior Assessment System (2nd ed.). San Antonio, TX: Harcourt Assessment, Inc.
Hassiotis, A., Barron, P., & O’Hara, J. (2000). Mental health services for people with learning disabilities. British Medical Journal, 321, 583–4.
Holmes, N., Shah, A., & Wing, L. (1982). The Disability Assessment Schedule: a brief screening device for use with the mentally retarded. Psychological Medicine, 12, 879–90.
House of Commons. (1990). The National Health Service and Community Care Act. London: HMSO.
Howard, L., Hunt, K., Slade, M., et al. (2007). Assessing the needs of pregnant women and mothers with severe mental illness: the psychometric properties of the Camberwell Assessment of Need – Mothers (CAN-M). International Journal of Methods in Psychiatric Research, 16(4), 177–85.
Jeffree, D., & Cheseldine, S. (1982). Pathways to Independence: Checklists of Self-Help, Personal and Social Skills. Northfleet: Stoneford Press.
Junghan, U. M., Leese, M., Priebe, S. & Slade, M. (2007). Staff and patient perspectives on unmet need and therapeutic alliance in community mental health services. British Journal of Psychiatry, 191, 543–7.
Kazdin, A. E., Matson, J. L., & Senator, V. (1983). Assessment of depression in mentally retarded adults. American Journal of Psychiatry, 140, 1040–3.
Koch, A., Vogel, A., Becker, T., et al. (2015). Proxy and self-reported Quality of Life in adults with intellectual disabilities: Impact of psychiatric symptoms, problem behaviour, psychotropic medication and unmet needs. Research in Developmental Disabilities, 45–6, 136–46.
Koch, A., Vogel, A., Holzmann, M., et al. (2014). MEMENTA: ‘Mental healthcare provision for adults with intellectual disability and a mental disorder’. A cross-sectional epidemiological multisite study assessing prevalence of psychiatric symptomatology, needs for care and quality of healthcare provision for adults with intellectual disability in Germany: a study protocol. BMJ Open, 4, e004878. Doi:10.1136/bmjopen-2014-004878.
Leese, M., Johnson, S., Slade, M., et al. (1998). User perspective on needs and satisfaction with mental health services: PRiSM Psychosis Study. 8. British Journal of Psychiatry 173: 409–15.
Luckasson, R., Coulter, D., Polloway, E., et al. (1992). Mental retardation: Definition, classification, and systems of supports. Washington, DC: American Association on Mental Retardation.
MacMillan, D. L., Gresham, F. M., & Siperstein, G. N. (1995). Heightened concerns over the 1992 AAMR definition: Advocacy vs precision. American Journal of Mental Retardation, 100(1), 8795.
Marshall, M., Hogg, L. I., Gath, D. H., & Lockwood, A. (1995). The Cardinal Needs Schedule: a modified version of the MRC Needs for Care Schedule. Psychological Medicine, 25, 605–17.
Martin, G., Costello, H., Leese, M., et al. (2005). An exploratory study of assertive community treatment for people with intellectual disability and psychiatric disorders: Conceptual, clinical and service issues. Journal of Intellectual Disability Research, 49(7), 516–24.
McCausland, D., Guerin, S., Tyrell, J., Donohoe, C., O’Donoghue, I., & Dodd, P. (2010). Self-reported needs among older persons with intellectual disabilities in an Irish community-based service. Research in Developmental Disabilities, 31, 381–7.
McConkey, R., & Walsh, J. (1982). An index of social competence for use in determining the service needs of mentally handicapped people. Journal of Mental Deficiency Research, 26, 4761.
Melville, C. A., Johnson, P., Smiley, E., et al. (2016). Problem behaviours and symptom dimensions of psychiatric disorders in adults with intellectual disabilities: an exploratory and confirmatory factor analysis. Research in Developmental Disabilities, 55, 113.
Mooney, G. (1986). Need, demand and the agency relationship. In Mooney, G. (ed.), Economics, Medicine and Health Care. London: Harvester Wheatsheaf.
Moss, S., Prosser, H., Costello, H., et al. (1998). Reliability and validity of the PAS-ADD Checklist for detecting psychiatric disorders in adults with intellectual disability. Journal of Intellectual Disability Research, 42, 173–83.
NHS England. (2015a). Building the Right Support [online]. www.england.nhs.uk/wp-content/uploads/2015/10/ld-nat-imp-plan-oct15.pdf
NHS England (2015b). Care and Treatment Review: Policy and Guidance [online]. www.england.nhs.uk/wp-content/uploads/2015/10/ctr-policy-guid.pdf
Nihira, K., Foster, R., Shelhaas, M., & Leland, H. (1974). AAMD Adaptive Behavior Scale. Washington, DC: American Association on Mental Deficiency.
Orrell, M., & Hancock, G. (2004). CANE: Camberwell Assessment of Need for the Elderly. A needs assessment for older mental health service users. London: Gaskel.
Painter, J., Trevithick, L., Hastings, R. P., Ingham, B., & Roy, A. (2016). Development and validation of the Learning Disabilities Needs Assessment Tool (LDNAT): a HoNOS-based needs assessment tool for use with people with intellectual disability. Journal of Intellectual Disability Research, 60(12), 1178–88.
Phelan, M., Slade, M., Thornicroft, G., et al. (1995). The Camberwell Assessment of Need: The validity and reliability of an instrument to assess the needs of people with severe mental illness. British Journal of Psychiatry, 167, 589–95.
Reiss, S. (1994). Psychopathology in mental retardation. In Bouras, N. (ed.), Mental Health in Mental Retardation. Cambridge: Cambridge University Press.
Reiss, S. (1988). The Reiss Screen for maladaptive behaviour test manual. Chicago: International Diagnostic Systems, Inc.
Reynolds, T., Thornicroft, G., Abas, M., et al. (2000). Camberwell Assessment of Need for the Elderly (CANE): Development, validity, and reliability. British Journal of Psychiatry, 176, 444–52.
Riches, V. C., Parmenter, T. R., Llewellyn, G., Hindmarsh, G., & Chan, J. (2009). I-CAN: a New Instrument to Classify Support Needs for People with Disability: Part I. Journal of Applied Research in Intellectual Disabilities, 22, 326–39.
Royal College of Psychiatrists. (1996). Meeting the Mental Health Needs of Adults with Mild Learning Disabilities (Council Report CR56). London: Royal College of Psychiatrists.
Schalock, R. L., Borthwick-Duffy, S., Bradley, V. J., et al. (2010). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, DC: American Association on Intellectual and Developmental Disabilities.
Schuetzwohl, M., Koch, A., Koslowski, N., et al. (2016). Mental illness, problem behaviour, needs and service use in adults with intellectual disability. Social Psychiatry and Psychiatric Epidemiology, 51, 767–76.
Schuetzwohl, M., Voss, E., Salize, H. J., et al. (2018). Self- and proxy-rated needs in adults with mild to moderate intellectual disabilities: Perspective matters. Journal of Applied Research in Intellectual Disabilities. 31, 285295.
Semrau, M., van Ommeren, M., Blagescu, M., et al. (2012). The development and psychometric properties of the Humanitarian Emergency Settings Perceived Needs (HESPER) Scale. American Journal of Public Health, 102(10): e55-63.
Shackleton-Bailey, M. J., & Pidcock, B. E. (1983). Hampshire Assessment of Living with Others (5th version). Winchester: Hampshire Social Services.
Slade, M. (1994). Needs assessment: Involvement of staff and users will help to meet needs. British Journal of Psychiatry, 165, 293–6.
Slade, M. (1999). Camberwell Assessment of Need. London: Gaskell, Royal College of Psychiatrists.
Slade, M., Leese, M., Cahill, S., Thornicroft, G., & Kuipers, E. (2005). Patient-rated mental health needs and quality of life improvement. British Journal of Psychiatry, 187: 256–61.
Sovner, R., & Hurley, A. D. (1983). Do the mentally retarded suffer from affective illness? Archives of General Psychiatry, 40, 61–7.
Stevens, A., & Gabbay, J. (1991). Needs assessment needs assessment. Health Trends, 23, 20–3.
Strydom, A., Hassiotis, A., & Livingston, G. (2005). Mental health and social care needs of older people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 18, 229–35.
Thomas, S. D., Dolan, M., Johnston, S., et al. (2004). Defining the needs of patients with intellectual disabilities in the high security psychiatric hospitals in England. Journal of Intellectual Disability Research, 48(6), 603–10.
Thomas, S. D., Slade, M., McCrone, P., et al. (2008). The reliability and validity of the forensic Camberwell Assessment of Need (CANFOR): A needs assessment for forensic mental health service users. International Journal of Methods in Psychiatric Research, 17(2), 111–20.
Thompson, J. R., Bradley, V. J., Buntinx, W. H. E. et al. (2009). Conceptualizing supports and the support needs of people with intellectual disability. Intellectual and Developmental Disabilities, 47(2), 135–46.
Thompson, J. R., Bryant, B., Campbell, E. M., et al. (2004). The Supports Intensity Scale (SIS): User’s manual. Washington, DC: American Association on Mental Retardation.
Thompson, J. R., Bryant, B., Schalock, R. L., et al. (2015). Supports Intensity Scale—Adult Version: User’s manual. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Torr, J. (2004). CANDID: Camberwell Assessment of Needs for Adults with Developmental and Intellectual Disabilities. Journal of Intellectual and Developmental Disabilities, 29(4), 371–2.
Trauer, T. (2004). The Camberwell Assessment of Needs for Adults with Developmental and Intellectual Disabilities. Journal of Intellectual Disability Research, 48(6), 623–5.
White, M. J., Nichols, C. N., Cook, R. S., et al. (1995). Diagnostic overshadowing and mental retardation: a meta-analysis. American Journal of Mental Retardation, 100(3), 293–8.
Williams, C. (1982). The STAR Profile: Social Training Achievement Record. Kidderminster: British Institute of Mental Handicap.
Xenitidis, K., Thornicroft, G., Leese, M., et al. (2000). Reliability and validity of the CANDID: a needs assessment instrument for adults with learning disabilities and mental health problems. British Journal of Psychiatry, 176, 473–8.