Skip to main content Accessibility help
Hostname: page-component-684899dbb8-489z4 Total loading time: 1.34 Render date: 2022-05-20T18:15:21.482Z Has data issue: true Feature Flags: { "shouldUseShareProductTool": true, "shouldUseHypothesis": true, "isUnsiloEnabled": true, "useRatesEcommerce": false, "useNewApi": true }

Works Cited

Published online by Cambridge University Press:  05 June 2012

D. Micah Hester
University of Arkansas
Get access


Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
End-of-Life Care and Pragmatic Decision Making
A Bioethical Perspective
, pp. 163 - 176
Publisher: Cambridge University Press
Print publication year: 2009

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)


Alderson, P, Sutcliffe, K, and Curtis, K. 2006. Children's Competence to Consent to Medical Treatment. Hastings Center Report, 36(6):25–34.CrossRefGoogle ScholarPubMed
,American Academy of Pediatrics (AAP): Committee on Bioethics. 1995. Informed Consent, Parental Permission, and Assent in Pediatric Practice.” Pediatrics, 95:314–7.Google Scholar
Andrews, K 1996. Misdiagnosis of the Vegetative State: Retrospective Study in a Rehabilitation Unit. British Medical Journal, 313:13–6.CrossRefGoogle Scholar
Arras, JD. 1984. Towards an Ethic of Ambiguity. Hastings Center Report, 14(2):25–33.CrossRefGoogle Scholar
Arras, JD. 1997. Physician-Assisted Suicide: A Tragic View. Journal of Contemporary Health Law and Policy, 13:361–89, and in Battin, Rhodes, and Silvers 1998, 279–300.Google ScholarPubMed
Asch, A. 2005. Recognizing Death while Affirming Life: Can End-of-Life Reform Uphold a Disabled Person's Interest in Continued Life? In Improving End of Life Care: A Hastings Center Special Report. Jennings, B, Kaebnick, GE, and Murray, TH (eds.), S31–36.
Avesani, R, Gambini, MG, and Albertini, G. 2006. The Vegetative State: A Report of Two Cases with a Long-Term Follow-Up. Brain Injury, 20(3):333–8.CrossRefGoogle ScholarPubMed
Baird, R and Rosenbaum, S (eds.). 1989. Euthanasia: The Moral Issues. Prometheus Books.
Battin, MP. 1994. The Least Worst Death: Essays in Bioethics on the End of Life. Oxford University Press.Google Scholar
Battin, MP. 2005. Ending Life: Ethics and the Way We Die. Oxford University Press.CrossRefGoogle Scholar
Battin, MP.Rhodes, R and Silvers, A. 1998. Physician-Assisted Suicide. Routledge.Google Scholar
Baumrin, B. 1998. Physician, Stay Thy Hand! In Battin, Rhodes, and Silvers 1998, 177–81.
Beauchamp, T (ed.). 1996. Intending Death. Prentice Hall.
Beauchamp, T and Childress, J. 1996. The Principles of Biomedical Ethics, 4th edition, Oxford University Press. Also see 5th edition, 2001, and 6th edition, 2009.Google Scholar
Bellantoni, L. 2003. What Good is a Pragmatic Bioethic?Journal of Medicine and Philosophy, 28(5–6):615–34.CrossRefGoogle ScholarPubMed
Benjamin, M. 2003. Pragmatism and the Determination of Death. In McGee 2003, 193–206.
Benjamin, M. 2003. Philosophy and This Actual World. Rowman & Littlefield.Google Scholar
Berlin, I. 1969. Four Essays on Liberty. Oxford University Press.Google Scholar
Berger, JT et al. 2008. Surrogate Decision Making: Reconciling Ethical Theory and Clinical Practice, Annals of Internal Medicine, 149(1):48–53.CrossRefGoogle ScholarPubMed
Bernat, JL. 2004. On Irreversibility as a Prerequisite for Brain Death Determination. In Machado and Shewmon 2004, 161–8.
Bernstein, JM. 1990. Self-Knowledge as Praxis: Narrative and Narration in Psychoanalysis. In Narrative in Culture. C, Nash (ed.). Routledge.Google Scholar
Bliton, M and Finder, S. 2002. Traversing Boundaries: Clinical Ethics, Moral Experience, and Withdrawal of Life Supports.” Theoretical Medicine and Bioethics, 23:233–258.CrossRefGoogle ScholarPubMed
Blustein, J. 1999. Choosing for Others as Continuing a Life Story: The Problem of Personal Identity Revisited. Journal of Law, Medicine & Ethics, 27:20–31.CrossRefGoogle ScholarPubMed
Blustein, J. 2009. Response (to Ross 2009). Cambridge Quarterly of Healthcare Ethics, 18(3):315–20.CrossRefGoogle Scholar
Brody, BA. 1999. How Much of the Brain Must Be Dead? In Younger 1999, 71–82.
Brody, H. 1987/2003. Stories of Sickness, 1st/2nd edition. Oxford University Press.Google Scholar
Brown, H. 2000. William James on Radical Empiricism and Religion. University of Toronto Press.CrossRefGoogle Scholar
Buchanan, A. 1989. The Treatment of Incompetents. In Health Care Ethics: An Introduction. Reagan, T (ed.). Temple University Press, 215–38.Google Scholar
Buchanan, A. and Brock, D. 1989. Deciding for Others: The Ethics of Surrogate Decision Making. Oxford University Press.Google Scholar
Buchanan, JH. 1989. Patient Encounters. Henry Holt.Google Scholar
Burrell, D and Hauerwas, S. 1979. From System to Story: An Alternative Pattern for Rationality in Ethics. In Why Narrative? Readings in Narrative Theology. Hauerwas, S and Jones, LG (eds.). W.B. Eerdmans, 158–190.Google Scholar
Burt, RA. 2005. The End of Autonomy. In Improving End of Life Care: A Hastings Center Special Report. Jennings, B, Kaebnick, GE, and Murray, TH (eds.), S9–13.
Byock, I. 1997. Physician-Assisted Suicide is Not an Acceptable Practice for Physicians. In Weir 1997, 107–35.
Byock, I. 2003. Rediscovering Community at the Core of the Human Condition and Social Covenant. Access to Hospice Care: Expanding Boundaries, Overcoming Barriers: Hastings Center Supplement. Jennings, B et al. (eds.), S40–4.Google ScholarPubMed
Byrne, PA and Weaver, WF. 2004. “Brain Death” Is Not Death. In Machado and Shewmon 2004, 43–50.
Byrne, PJ and Murphy, A. 2005. Informed Consent and Hypoplastic Left Heart Syndrome. Acta Paediatrica, 94(9):1171–5.CrossRefGoogle ScholarPubMed
Callahan, D. 1992. Self-Determination Run Amok. Hastings Center Report 22:52–55.CrossRefGoogle Scholar
Callahan, D. 1994. Ad Hominem Run Amok: A Response to John Lachs. Journal of Clinical Ethics. 5(1):13–5.Google Scholar
Callahan, D. 1995. Terminating Life-Sustaining Treatment of the Demented. Hastings Center Report, 25(6):25–31.CrossRefGoogle ScholarPubMed
Callahan, D. 2000. A Burden upon Others: A Response to John Hardwig. In Hardwig 2000, 139–45.
Callahan, D. 2002. Reason, Self-Determination, and Physician-Assisted Suicide. In Foley and Hendin 2002, 52–68.
Capron, AM. 1999. The Bifurcated Legal Standard for Determining Death: Does It Work? In Younger 1999, 117–136.
Capron, AM. 2001. Brain Death – Well Settled yet Still Unresolved. New England Journal of Medicine, 344(16), 1244–6.CrossRefGoogle ScholarPubMed
Carter, BS and Leuthner, SR. 2002. Decision Making in the NICU – Strategies, Statistics, and “Satisficing.”Bioethics Forum, 18(3/4):7–15.Google ScholarPubMed
Carter, BS and Levetown, M, eds. 2004. Palliative Care for Infants, Children, and Adolescents: A Practical Handbook. Johns Hopkins University Press.
,Centers for Disease Control (CDC). 2004. Deaths From 39 Selected Causes by Place of Death.
Chambers, T. 1999. The Fiction of Bioethics: Cases as Literary Texts. Routledge.Google Scholar
Charon, R. 2006. Narrative Medicine: Honoring the Stories of Illness. Oxford University Press.Google Scholar
Childs, NL and Mercer, WN. 1996. Late Improvement of Consciousness after Post-Traumatic Vegetative State. New England Journal of Medicine, 334:11, 24–5.CrossRefGoogle ScholarPubMed
Churchill, J. 1989 Advance Directives: Beyond Respect for Freedom. In Hackler, Moseley, and Vawter 1989, 171–9.
Churchill, LR. 1979. Interpretations of Dying: Ethical Implications for Patient Care. Ethics, Science, and Medicine, 6(4):211–22.Google ScholarPubMed
Clauss, RP and Nel, WH. 2006. Drug Induced Arousal from the Permanent Vegetative State. NeuroRehabilitation, 21:23–8.Google ScholarPubMed
Clauss, RP, Guldenpfennig, WM, Nel, HW, et al. 2000. Extraordinary Arousal from Semi-Comatose State on Zolpidem: A Case Study. South African Medical Journal, 90:68–72.Google Scholar
Clayton, EW. 2009. Response (to Ross 2009). Cambridge Quarterly of Healthcare Ethics, 18(3):320–22.CrossRefGoogle Scholar
Cohn, F and Lynn, J. A Duty to Care. In Hardwig 2000, 145–54.
Cohn, F and Lynn, J. 2002. Vulnerable People: Practical Rejoinders to Claims in Favor of Assisted Suicide. In Foley and Hendin 2002, 238–60.
Coleman, D. 2002. Not Dead Yet. In Foley and Hendin 2002, 213–37.
Coleman, GD. 1987. Assisted Suicide: An Ethical Perspective. In Baird and Rosembaum, 1989.
Coles, Robert. 1989. The Call of Stories: Teaching and the Moral Imagination. Houghton Mifflin.Google Scholar
Cooper, W. 2002. The Unity of William James's Thought. Vanderbilt University Press.Google Scholar
Cranford, RE. 1988. The Persistent Vegetative State: The Medical Reality (Getting the Facts Straight). Hastings Center Report, 18(1):27–32.CrossRefGoogle Scholar
Cranford, RE 1991. Helga Wanglie's Ventilator. Hastings Center Report, 21(4):23–4.Google ScholarPubMed
Cranford, RE. 2002. What is the Minimally Conscious State?Western Journal of Medicine, 176:129–30.Google ScholarPubMed
Dagi, TF and Kaufman, R. 2001. Clarifying the Discussion on Brain Death. Journal of Medicine and Philosophy, 26(5):503–25.CrossRefGoogle ScholarPubMed
Davidoff, F. 2002. Lessons from the Dying. In Snyder and Caplan 2002, 98–105.
Dewey, J. 1985 [1916]. Democracy and Education. Middle Works of John Dewey, 1899–1924, vol. 9. Boydston, J (ed.). Southern Illinois University Press.Google Scholar
Dewey, J. 1988 [1920]. Reconstruction in Philosophy. Middle Works of John Dewey, 1899–1924, vol. 12. Boydston, J (ed.). Southern Illinois University Press, 77–201.Google Scholar
Dewey, J. 1988 [1922]. Human Nature and Conduct. Middle Works of John Dewey, 1899–1924, vol. 14. Boydston, J (ed.). Southern Illinois University Press.Google Scholar
Dewey, John and Tufts, James. 1989 [1932]. Ethics. Later Works of John Dewey, 1925–1953, vol. 7. Boydston, J (ed.). Southern Illinois University Press.Google Scholar
Dewey, John and Tufts, James. 1991 [1939a]. Theory of Valuation. Later Works of John Dewey, 1925–1953. Boydston, J (ed.). Southern Illinois University Press, 189–251.Google Scholar
Dewey, John and Tufts, James. 1991 [1939b]. The Unity of the Human Being. Later Works of John Dewey, 1925–1953. Boydston, J (ed.). Southern Illinois University Press, 323–37.Google Scholar
Diekema, DS. 2004. Parental Refusals of Medical Treatments: The Harm Principle as Threshold for State Intervention. Theoretical Medicine and Bioethics. 24:243–64.CrossRefGoogle Scholar
Dorland, WAN. 1994. Dorland's Illustrated Medical Dictionary, 28th edition, W.B. Saunders.Google Scholar
Dresser, R. 1989. Advance Directives, Self-Determination, and Personal Identity. In Hackler et al. 1989, 155–70.
Dresser, R. 1995. Dworkin on Dementia: Elegant Theory, Questionable Policy. Hastings Center Report, 25(6):32–8.CrossRefGoogle ScholarPubMed
Dubler, NN. 2005. Conflict and Consensus at the End of Life. In Improving End of Life Care: A Hastings Center Special Report. Jennings B, Kaebnick GE, and Murray TH (eds.), S19–25.
Dubler, NN. and Nimmons, D. 1992. Ethics on Call. Harmony Books.Google Scholar
Dworkin, R. 1993. Life's Dominion: An Argument about Abortion, Euthanasia, and Individual Freedom. Alfred A. Knopf.Google Scholar
Emanuel, EJ, Fairclough, DL, and Emanuel, LL. 2000. Attitudes and Desires Related to Euthanasia and Physician-Assisted Suicide among Terminally Ill Patients and Their Caregivers. Journal of the American Medical Association, 284(19):2460–8.CrossRefGoogle ScholarPubMed
Emanuel, EJ, Fairclough, DL, Daniels, ER, and Clarridge, BR. 1996. Euthanasia and Physician-Assisted Suicide: Attitudes and Experiences of Oncology Patients, Oncologists, and the Public. Lancet, 347(9018):1805–10.CrossRefGoogle Scholar
Emanuel, LL and Emanuel, EJ. 1993. Decisions at the End of Life: Guided by Communities of Patients. Hastings Center Report, 23(5):6–14.CrossRefGoogle ScholarPubMed
Engelhardt, HT. 1975. Ethical Issues in Aiding the Death of Young Children. In Beneficent Euthanasia. Kohl, M (ed.). Prometheus Books.Google Scholar
Engelhardt, HT. 1986. The Foundations of Bioethics. Oxford University Press.Google Scholar
Engelhardt, HT. 1987. Introduction. In Euthanasia and the Newborn. McMillan, RC, Engelhardt, TS, and Spicker, SF (eds.). Reidel.Google Scholar
Faber-Langendoen, K and Karlawish, JHT. 2002. Ought Physician-Assisted Suicide Be Only Physician Assisted? In Snyder and Caplan 2002, 44–54.
Facco, E and Machado, C. 2004. Evoked Potentials in Diagnosis of Brain Death. In Machado and Shewmon 2004, 175–188.
Fesmire, S. 1995. Dramatic Rehearsal and the Moral Artist: A Deweyan Theory of Moral Understanding. Transactions of the Charles S. Peirce Society, 21:568–97.Google Scholar
Fesmire, S. 2003. John Dewey and Moral Imagination: Pragmatism in Ethics. Indiana University Press.Google Scholar
Feudtner, Chris. 2007. Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-solving and Decision-making. Pediatric Clinics of North America, 54:583–607.CrossRefGoogle ScholarPubMed
Fins, JJ. 2005. Rethinking Disorders of Consciousness: New Research and Its Implications. Hastings Center Report, 35(2):22–4.CrossRefGoogle ScholarPubMed
Fins, JJ. 2006. A Palliative Ethic of Care: Clinical Wisdom at Life's End. Jones and Bartlett.Google Scholar
Fins, JJ. et al. 1999. End-of-life Decision Making in the Hospital: Current Practice and Future Prospects. Journal of Pain and Symptom Management, 17(1):6–15.CrossRefGoogle ScholarPubMed
Foley, K. 2002. Compassionate Care, Not Assisted Suicide. In Foley and Hendin 2002, 293–309.
Foley, K. and Hendin, H (eds.). 2002. The Case against Assisted Suicide: For the Right to End-of-Life Care. Johns Hopkins University Press.
Frank, A. 1991. At the Will of the Body: Reflections on Illness. Houghton Mifflin.Google Scholar
Frank, A. 1995. The Wounded Storyteller: Body, Illness, and Ethics. University of Chicago Press.CrossRefGoogle Scholar
Frank, A. 1997. Enacting Illness Stories: When, What, and Why. Nelson 1997, 31–49.
Gale, R. 1999. The Divided Self of William James. Cambridge University Press.CrossRefGoogle Scholar
Galston, WA. 2002. Liberal Pluralism. Cambridge University Press.CrossRefGoogle Scholar
Ganzini, L, Goy, ER, and Dobscha, SK. 2008. Prevalence of Depression and Anxiety in Patients Requesting Physicians' Aid in Dying: Cross Sectional Survey. British Medical Journal, 337:973–5.CrossRefGoogle ScholarPubMed
Gavin, WJ. 1995. Cuttin' the Body Loose. Temple University Press.Google Scholar
Gavin, WJ 2003 [1999]. On “Tame” and “Untamed” Death: Jamesian Reflections. In McGee 2003, 93–108.
Gaylin, W, Kass, LR, Pellegrino, ED, and Siegler, M. 1988. Doctors Must Not Kill. Journal of the American Medical Association, 259(14):2139–40.CrossRefGoogle Scholar
Gert, Bernard. 2004. Common Morality: Deciding What to Do. Oxford University Press.CrossRefGoogle Scholar
Giacino, JT et al. 2002. The Minimally Conscious State: Definition and Diagnostic Criteria. Neurology, 58:349–53.CrossRefGoogle ScholarPubMed
Gill, CJ. 1992. Suicide Intervention for People with Disabilities: A Lesson in Inequality. Issues in Law & Medicine, 8:37–51.Google ScholarPubMed
Groves, K. 2006. Justified Paternalism: The Nature of Beneficence in the Care of Demented Patients. Penn Bioethics Journal, 2(2):17–20.Google Scholar
Grunau, R. 2002. Early Pain in Preterm Infants. A Model of Long-Term Effects. Clinical Perinatology, 29(3):373–94.CrossRefGoogle ScholarPubMed
Hackler, JC, Moseley, R, and Vawter, (eds.). 1989. Advance Directives in Medicine. Praeger.
Halevy, Amir. 2001. Beyond Brain Death?Journal of Medicine and Philosophy, 26(5):493–502.CrossRefGoogle ScholarPubMed
Halevy, A and Brody, BA. 1993. Brain Death: Reconciling Definitions, Criteria, and Tests. Annals of Internal Medicine, 119:519–25.CrossRefGoogle ScholarPubMed
Hamilton, NG. 2002. Oregon's Culture of Silence. In Foley and Hendin 2002, 175–91.
Hammes, BJ, Klevan, J, Kempf, M, and Williams, MS. 2005. Pediatric Advance Care Planning. Journal of Palliative Medicine, 8(4):766–73.CrossRefGoogle ScholarPubMed
Hardwig, J. 1997a. Autobiography, Biography, and Narrative Ethics. In Nelson 1997, 50–64. Also in Hardwig 2000, 101–117.
Hardwig, J. 1997b. Is There a Duty to Die?Hastings Center Report, 27(2):34–42. Also in Hardwig 2000, 119–136.CrossRefGoogle Scholar
Hardwig, J. 2000. Is There a Duty to Die? (and Other Essays in Medical Ethics). Routledge.Google Scholar
Hester, DM. 1998. Progressive Dying: Meaningful Act of Euthanasia and Assisted Suicide. Journal of Medical Humanities, 19(4):279–98.CrossRefGoogle Scholar
Hester, DM. 2001. Community As Healing: Pragmatist Ethics in Medical Encounters. Rowman & Littlefield.Google Scholar
Hester, DM. 2003 [1999]. Significance at the End of Life. In McGee 2003, 121–36.
Hester, DM. 2007. Interests and Neonates: There Is More to the Story than We Explicitly Acknowledge. Theoretical Medicine and Bioethics, 28(5):357–72.CrossRefGoogle ScholarPubMed
Himelstein, BP, Hilden, JM, Boldt, AM, and Weissman, D. 2004. Pediatric Palliative Care. New England Journal of Medicine, 350(17):1752–60.CrossRefGoogle ScholarPubMed
Hook, S. 1974. Pragmatism and the Tragic Sense of Life. Basic Books.Google Scholar
Hook, Sidney. 2002. The Ethics of Controversy. Talisse, R and Tempio, R (eds.), The Essential Essays of Sidney Hook on Pragmatism, Democracy, and Freedom. Prometheus Books, 289–95.Google Scholar
Hughes, JJ. 2004. The Death of Death. In Machado and Shewmon 2004, 79–87.
,Institutes of Medicine (IOM). 2002. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families.
James, W. 1977. The Writings of William James: A Comprehensive Edition. McDermott, JJ (ed.). University of Chicago Press.Google Scholar
James, W. [1891]. The Moral Philosopher and the Moral Life. In James 1977, 610–29.
James, W. [1897]. “Radical Empiricism” from The Will to Believe. In James 1977, 134–6.
James, W. [1899a]. On a Certain Blindness in Human Beings. In James 1977, 629–45.
James, W. [1899b]. What Makes a Life Significant. In James 1977, 645–60.
James, W. [1904]. A World of Pure Experience. In James 1977, 194–214.
James, W. [1909]. “Radical Empiricism” from The Meaning of Truth. In James 1977, 136.
James, W. [1911]. Faith and the Right to Believe. In James 1977, 735–40.
James, W. 1902. The Varieties of Religious Experience: A Study in Human Nature. Longmans, Green.CrossRefGoogle Scholar
Jennett, B and Plum, F. 1972. Persistent Vegetative State after Brain Damage. A Syndrome in Search of a Name. Lancet, 1:734–7.CrossRefGoogle Scholar
Jonas, H. 1974. Against the Stream: Comments on Definition and Redefinition of Death. In Philosophical Essays: From Ancient Creed to Technological Man. Jonas, H (ed.). Prentice Hall, 132–40.Google Scholar
Jotkowitz, AB and Glick, S. 2006. The Groningen Protocol: Another Perspective. Journal of Medical Ethics. 32:157–8.CrossRefGoogle ScholarPubMed
Kadish, SH. 1992. Letting Patients Die: Legal and Moral Reflections. California Law Review, 80(4):857–88.CrossRefGoogle ScholarPubMed
Kamerman, . 1988. Death in the Midst of Life. Prentice Hall.Google Scholar
Karakatsanis, KG and Tsanakas, JN. 2002. A Critique of the Concept of “Brain Death.”Issues in Law & Medicine, 18(2):127–42.Google ScholarPubMed
Kass, LR. 2002. “I Will Give No Deadly Drug”: Why Doctors Must Not Kill. In Foley and Hendin 2002, 17–40.
Kaufman, SR. 2005.…And a Time to Die: How American Hospitals Shape the End of Life. Scribner.Google Scholar
Kerridge, IH et al. 2002. Death, Dying and Donation: Organ Transplantation and the Diagnosis of Death. Journal of Medical Ethics, 28:89–94.CrossRefGoogle ScholarPubMed
King, NMP. 1996. Making Sense of Advance Directives, revised ed. Georgetown University Press.Google Scholar
Kipnis, K. 2004. When Are You Dead?The Philosopher's Magazine, Vol. 27.Google Scholar
Kleinman, A. 1988. The Illness Narratives. Basic Books.Google Scholar
Kobylarz, EJ and Schiff, ND. 2004. Functional Imaging of Severely Brain-injured Patients: Process, Challenges, and Limitations. Archives of Neurology, 61:1357–60.CrossRefGoogle Scholar
Kon, AA. 2005. Discussing Nonsurgical Care with Parents: Newborns with Hypoplastic Left Heart Syndrome. Newborn and Infant Nursing Review, 5(2):60–8.CrossRefGoogle Scholar
Kon, AA. 2007. Neonatal Euthanasia Is Unsupportable: The Groningen Protocol Should Be Abandoned. Theoretical Medicine and Bioethics, 28(5):453–63.CrossRefGoogle ScholarPubMed
Kon, AA., Ackerson, L, and Lo, B. 2004. How Pediatricians Counsel Parents When no “Best-Choice” Management Exists: Lessons to be Learned from Hypoplastic Left Heart Syndrome. Archives of Pediatric and Adolescent Medicine. 158(5):436–41.CrossRefGoogle ScholarPubMed
Kopelman, AE. 2006. Understanding, Avoiding, and Resolving End-of-Life Conflicts in the NICU. Mount Sinai Journal of Medicine, 73(3):580–5.Google ScholarPubMed
Kopelman, L. 1997. The Best-Interests Standard as Threshold, Ideal, and Standard of Reasonableness. Journal of Medicine and Philosophy, 22:271–89.CrossRefGoogle ScholarPubMed
Kopelman, L. 2005. Rejecting the Baby Doe Rules and Defending a “Negative” Analysis of the Best Interests Standard. Journal of Medicine and Philosophy, 30:331–52.CrossRefGoogle ScholarPubMed
Korein, J and Machado, C. 2004. Brain Death: Updating a Valid Concept for 2004. In Machado and Shewmon 2004, 1–14.
Kubler-Ross, E. 1969. On Death and Dying. Macmillan.Google Scholar
Kuczewski, MG. 1999. Commentary: Narrative Views of Personal Identity and Substituted Judgment in Surrogate Decision Making. Journal of Law, Medicine & Ethics, 27:32–6.CrossRefGoogle ScholarPubMed
Lachs, J. 1994. When Abstract Moralizing Runs Amok. Journal of Clinical Ethics. 5(1):10–3.Google ScholarPubMed
Lammi, MH et al. 2005. The Minimally Conscious State and Recovery Potential: A Follow-Up Study 2 to 5 Years after Traumatic Brain Injury. Archives of Physical Medicine and Rehabilitation, 86(4):746–54.CrossRefGoogle ScholarPubMed
Lang, CJG and Heckman, JG. 2004. How Should Testing for Apnea Be Performed in Diagnosing Brain Death? In Machado and Shewmon 2004, 169–174.
Lantos, JD. 2001. The Lazarus Case. Johns Hopkins University Press.Google Scholar
Laureys, S, Owen, AM, and Schiff, ND. 2004. Brain Function in Coma, Vegetative State, and Related Disorders. Lancet Neurology, 3(69):537–46.CrossRefGoogle ScholarPubMed
Lee, SJ et al. 2005. Fetal Pain: A Systematic Multidisciplinary Review of the Evidence. Journal of the American Medical Association, 294(8):947–54.CrossRefGoogle Scholar
Lewis, P. 2000. The Logic of Christian Theology and the “Right” to Die. Issues in Integrative Studies, 18:65–79.Google Scholar
Lizza, JP. 2004. The Conceptual Basis for Brain Death Revisited: Loss of Organic Integration or Loss of Consciousness. In Machado and Shewmon 2004.
Lizza, JP 2005. Potentiality, Irreversibility, and Death. Journal of Medicine and Philosophy, 30:45–64.CrossRefGoogle ScholarPubMed
Loewy, EH and Loewy, RS. 2000. The Ethics of Terminal Care: Orchestrating the End of Life. Kluwer Academic.Google Scholar
Machado, C and Shewmon, DA (eds.). 2004. Brain Death and Disorders of Consciousness (Advances in Experimental Medicine and Biology, vol. 550).
Mahowald, MB. 2003. On Helping People Die: A Pragmatic Account. In McGee 2003, 109–120.
McAiley, LG and Daly, BJ. 2002. Baby Grace (case study with commentaries). Hastings Center Report, 32(1):12–15.CrossRefGoogle Scholar
McAiley, LG, Hudson-Barr, DC, Gunning, RS, and Rowbottom, LA. 2000. The Use of Advance Directives with Adolescents. Pediatric Nursing, 26(5):471–80.Google Scholar
McDermott, JJ. 1986. Streams of Experience: Reflections on the History and Philosophy of American Culture. University of Massachusetts Press.Google Scholar
McDermott, JJ 2006. Afterword: You Are Really Able. In Experience As Philosophy: On the Work of John J. McDermott. Campbell, J and Hart, RE (eds.). 2006. Fordham University Press, 237–271.Google Scholar
McGee, GE (ed.). 2003. Pragmatic Bioethics, 2nd edition, MIT Press. First edition, Vanderbilt University Press, 1999.
Mead, GH. 1938. The Philosophy of the Act. Morris, CW (ed.). University of Chicago Press.Google Scholar
Mead, GH. 1962 [1934]. Mind, Self, and Society from the Standpoint of a Social Behaviorist. Morris, CM (ed.). University of Chicago Press.Google Scholar
Miller, FG, Fins, JJ, and Snyder, L. 2002. Assisted Suicide and Refusal of Treatment: Valid Distinction or Distinction without a Difference? In Snyder and Caplan 2002, 17–28.
Miller, RB. 2003. Children, Ethics, and Modern Medicine. Indiana University Press.Google Scholar
Misak, C. 2000. Truth, Politics, Morality: Pragmatism and Deliberation. Routledge.CrossRefGoogle Scholar
Montell, M and Lantos, J. 2002. The Karamazov Complex: Dostoevsky and DNR Orders. Perspectives in Biology and Medicine, 45:190–9.CrossRefGoogle Scholar
,Multi-society Task Force Report on PVS. 1994. Medical Aspects of the Persistent Vegetative State. New England Journal of Medicine, 330:1499–508, 1572–9.CrossRefGoogle Scholar
Murphy, DM and Pritchard, J. 2005. Letter to the Editor (Euthanasia in Severely Impaired Newborns). New England Journal of Medicine. 352(22):2353–4.Google Scholar
Myers, GE. 1986. William James: His Life and Thought. Yale University Press.Google Scholar
Naccache, L. 2006. Is She Conscious?Science, 313:1395–6.CrossRefGoogle ScholarPubMed
Nelson, HL (ed.). 1997. Stories and Their Limits: Narrative Approaches to Bioethics. Routledge.
Nelson, HL and Nelson, JL. 1995. The Patient in the Family. Routledge.Google Scholar
Newton, MJ. 1999. Precedent Autonomy: Life-Sustaining Intervention and the Demented Patient. Cambridge Quarterly of Healthcare Ethics, 8(2):189–99.CrossRefGoogle ScholarPubMed
,Nuffield Council on Bioethics. 2006. Critical Care Decisions in Fetal and Neonatal Medicine: Ethical Issues.
Nuland, SB. 1993. How We Die: Reflections on Life's Final Chapter. Alfred A. Knopf.Google Scholar
Oliver, P. 2001. Springs of Delight: The Return to Life. Vanderbilt University Press.Google Scholar
Orentlicher, D and Snyder, L. 2002. Can Assisted Suicide Be Regulated? In Snyder and Caplan 2002, 55–69.
Osiovich, H, Phillipos, E, Byrne, P, and Robertson, M. Hypoplastic Left Heart Syndrome: “To Treat or Not To Treat.”Journal of Perinatology, 20(6):363–5.CrossRef
Owen, AM et al. 2006. Detecting Awareness in the Vegetative State. Science, 313:1402.CrossRefGoogle ScholarPubMed
Paris, JJ, Graham, N, Schreiber, MD, and Goodwin, M. 2006a. Approaches to End-of-Life Decision-Making in the NICU: Insights from Dostoevsky's The Grand Inquisitor. Journal of Perinatology, 26:389–91.CrossRefGoogle ScholarPubMed
Paris, JJ, Graham, N, Schreiber, MD, and Goodwin, M 2006b. Has the Emphasis on Autonomy Gone Too Far? Insights from Dostoevsky on Parental Decision-Making in the NICU. Cambridge Quarterly of Healthcare Ethics. 15:147–51.CrossRefGoogle ScholarPubMed
Paris, JJ and Moreland, MP. 1998. A Catholic Perspective on Physician-assisted Suicide. In Battin, Rhodes, and Silvers 1998, 324–33.
Pellegrino, ED. 1979. Anatomy of a Clinical Judgment: Some Notes on Right Reason and Right Action. In Clinical Judgment: A Critical Appraisal. Engelhardt, HT et al. (eds.). D. Reidel Publishing, 169–194.CrossRefGoogle Scholar
Plato, . 1997. Plato: Complete Works. Cooper, JM (ed.). Hackett.Google Scholar
Potts, M. 2001. A Requiem for Whole Brain Death: A Response to D. Alan Shewmon's “The Brain and Somatic Integration.”Journal of Medicine and Philosophy, 26(5):479–491.CrossRefGoogle Scholar
Potts, M.Byrne, PA and Nilges, RG (eds.). 2000. Beyond Brain Death: The Case against Brain Based Criteria for Human Death. Kluwer Academic.
Prado, CG. 2008. Choosing to Die: Elective Death and Multiculturalism. Cambridge University Press.CrossRefGoogle Scholar
President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1981. Defining Death.
President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1983. Deciding to Forego Life-Sustaining Treatment.
President's Council on Bioethics. 2008. Controversies in the Determination of Death: A White Paper by the President's Council on Bioethics.
Puchalski, M and Hummel, P. 2002. The Reality of Neonatal Pain. Advances in Neonatal Care, 2(5):233–44.
Quill, TE and Battin, MP (eds.). 2004. Physician-Assisted Dying: The Case for Palliative Car and Patient Choice. Johns Hopkins University Press.
Quill, TE, Lee, BC, and Nunn, SJ. 2002. Palliative Treatments of Last Resort: Choosing the Least Harmful Alternative. In Snyder and Caplan 2002, 70–83.
Ramsay, S. 1996. British Group Presents Vegetative-State Criteria, The Lancet, 347(9009):917.Google Scholar
Randall, F and Downie, RS. 1999. Palliative Care Ethics: A Companion for all Specialties, 2nd ed. Oxford University Press.CrossRefGoogle Scholar
Rappaport, ZH and Rappaport, IT. 2004. Brain Death and Organ Transplantation: Concepts and Principles in Judaism. In Machado and Shewmon 2004, 133–38.
Rawls, J. 1996. Political Liberalism. Columbia University Press.Google Scholar
Rich, BA. 1997. Prospective Autonomy and Critical Interests: A Narrative Defense of the Moral Authority of Advance Directives. Cambridge Quarterly of Healthcare Ethics, 6(2):138–47.CrossRefGoogle ScholarPubMed
Rieff, D. 2008. Swimming in the Sea of Death: A Son's Memoir. Simon & Schuster.Google Scholar
Robertson, J. 1975. Involuntary Euthanasia of Defective Newborns. Stanford Law Review. 27:246–61.CrossRefGoogle ScholarPubMed
Rosner, F. 1999. The Definition of Death in Jewish Law. In Younger 1999, 210–22.
Ross, LF. 1997. Health Care Decision-Making By Children. Hastings Center Report. 27(6):41–45.CrossRef
Ross, LF. 1998. Children, Families, and Health Care Decision Making. Oxford University Press.Google Scholar
Ross, LF. 2009. Against the Tide: Arguments against Respecting a Minor's Refusal of Efficacious Life-Saving Treatment. Cambridge Quarterly of Healthcare Ethics, 18(3):302–15.CrossRefGoogle ScholarPubMed
Ross, LF and Frader, JE. 2009. Hypoplastic Left Heart Syndrome: A Paradigm Case for Examining Conscientious Objection in Pediatric Practice. Pediatrics, 155(1):12–15.CrossRefGoogle ScholarPubMed
Roth, JK. 1969. Freedom and the Moral Life: The Ethics of William James. Westminster Press.Google Scholar
Rubin, SB. 1998. When Doctors Say No: The Battleground of Medical Futility. Indiana University Press.Google Scholar
Sacks, O. 1990. Awakenings. Harper Perennial.Google Scholar
Schiff, ND et al. 2002. Residual Cerebral Activity and Behavioural Fragments Can Remain in the Persistently Vegetative Brain. Brain, 125:1210–34.CrossRefGoogle ScholarPubMed
Schneiderman, LJ and Jecker, NS. 1995. Wrong Medicine: Doctors, Patients, and Futile Treatment. Johns Hopkins University Press.Google Scholar
Seifert, J. 2004. Consciousness, Mind, Brain, and Death. In Machado and Shewmon 2004, 61–78.
Seigfried, CH. 1990. William James's Radical Reconstruction of Philosophy. SUNY Press.Google Scholar
Selzer, R. 1990. Imagine a Woman & Other Tales. Random House.Google Scholar
Selzer, R. 1992. Down from Troy. Little, Brown.Google Scholar
Shade, Patrick. 2001. Habits of Hope: A Pragmatic Theory. Vanderbilt University Press.Google Scholar
Shavelson, Lonny. 1995. A Chosen Death: The Dying Confront Assisted Suicide. Simon & Schuster.Google Scholar
Shewmon, DA. 1998. “Brainstem Death,” “Brain Death” and Death: A Critical Re-evaluation of the Purported Equivalence. Issues in Law and Medicine, 14(2):125–145.Google ScholarPubMed
Shewmon, DA. 2001. The Brain and Somatic Integration: Insights into the Standard Biological Rationale for Equating “Brain Death” with Death. Journal of Medicine and Philosophy, 26(5):457–78.CrossRefGoogle ScholarPubMed
Shewmon, DA. 2004. The ABC of PVS: Problems of Definition. In Machado and Shewmon2004, 215–228.
Shewmon, DA. and Shewmon, ES. 2004. The Semiotics of Death and Its Medical Implications. In Machado and Shewmon 2004, 89–114.
Silvers, A. 1998. Protecting the Innocents for Physician-Assisted Suicide. In Battin, Rhodes, and Silvers 1998, 133–48.
Smith, WJ. 1997. Forced Exit: Euthanasia, Assisted Suicide, and the New Duty to Die. Encounter Books.Google Scholar
Snyder, L and Caplan, A (eds.). 2002. Assisted Suicide: Finding Common Ground. Indiana University Press.
Snyder, L and Caplan, A and Faber-Langedoen, K. 2002. The Role of Guidelines in the Practice of Physician-Assisted Suicide. In Snyder and Caplan 2002, 29–43.
Stoddard, S. 1991. The Hospice Movement: A Better Way of Caring for the Dying, revised edition. Vintage Books.Google Scholar
Sulmasy, Daniel. 1995. Managed Care, Managed Death. Archives of Internal Medicine, 155(2):133–36.CrossRefGoogle ScholarPubMed
,SUPPORT Principal Investigators. 1995. A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). Journal of the American Medical Association, 274(20):1591–8.CrossRefGoogle Scholar
Talisse, RB. 2004. Can Value Pluralists Be Comprehensive Liberals? Galston's Liberal Pluralism. Contemporary Political Theory, 3(2):127–39.CrossRefGoogle Scholar
Talisse, RB. 2005. Democracy after Liberalism: Pragmatism and Deliberative Politics. Routledge.Google Scholar
Talisse, RB. and Aikin, SF. 2008. Pragmatism: A Guide for the Perplexed. Continuum.Google Scholar
Talisse, RB. and Hester, DM. 2004. On James: Philosophy As Vision. Wadsworth.Google Scholar
Teno, JM et al. 2007. Association between Advance Directives and Quality of End-of-Life Care: A National Study. Journal of the American Geriatrics Association, 55(2):189–94.CrossRefGoogle ScholarPubMed
Torke, AM et al. 2008. Substituted Judgment: The Limitations of Autonomy in Surrogate Decision Making. Journal of General Internal Medicine, 23(9):1514–7.CrossRefGoogle ScholarPubMed
Truog, R. 1997. Is It Time to Abandon Brain Death?Hastings Center Report, 27(1):29–37.CrossRefGoogle ScholarPubMed
Valdiserri, R. 1994. Gardening in Clay: Reflections on AIDS. Cornell University Press.Google Scholar
Heide, A et al. 2007. End-of-Life Practices in the Netherlands under the Euthanasia Act. New England Journal of Medicine, 356:1957–65.CrossRefGoogle ScholarPubMed
Veatch, RM. 1976. Death, Dying and the Biological Revolution: Our Last Quest for Responsibility. Yale University Press.Google Scholar
Veatch, RM. 1999. The Conscience Clause: How Much Individual Choice in Defining Death Can Our Society Tolerate? In Younger 1999, 137–60.
Veatch, RM. 2005. The Death of Whole-Brain Death: The Plague of the Disaggregators, Somaticists, and Mentalists. Journal of Medicine and Philosophy. 30:353–78.CrossRefGoogle ScholarPubMed
Verhagen, AAE and Sauer, PJJ. 2005a. The Groningen Protocol – Euthanasia in Severely Ill Newborns. New England Journal of Medicine, 352(10):959–62.CrossRefGoogle ScholarPubMed
Verhagen, AAE and Sauer, PJJ. 2005b. End-of-Life Decisions in Newborns: An Approach from the Netherlands. Pediatrics, 1116(3):736–9.CrossRefGoogle Scholar
Verhey, A. 1998. A Protestant Perspective on Ending Life. In Battin, Rhodes, and Silvers 1998, 347–61.
Walker, MU. 1998. Moral Understandings: A Feminist Study of Ethics. Routledge.Google Scholar
Weir, RF (ed.). 1997. Physician-Assisted Suicide. Indiana University Press.PubMed
Wharton, RH, Levine, KR, Buka, S, Emanuel, L. 1996. Advance care planning for children with special health care needs: a survey of parental attitudes. Pediatrics, 97(5):682–7.Google ScholarPubMed
Wijdicks, EFM. 2001. The Diagnosis of Brain Death. New England Journal of Medicine, 344(16):1215–21.CrossRefGoogle Scholar
Wijdicks, EFM. 2006. Minimally Conscious State vs. Persistent Vegetative State: The Case of Terry (Wallis) vs. the Case of Terri (Schiavo). Mayo Clinic Proceedings, 81(9):1155–8.CrossRefGoogle Scholar
Wijdicks, EFM. and Cranford, RE. 2005. Clinical Diagnosis of Prolonged States of Impaired Consciousness in Adults. Mayo Clinic Proceedings, 80(8):1037–46.CrossRefGoogle ScholarPubMed
Wild, J. 1980. The Radical Empiricism of William James. Greenwood.Google Scholar
Wilson, KG et al. 2007. Desire for Euthanasia or Physician-Assisted Suicide in Palliative Cancer Care. Health Psychology, 26(3):314–23.CrossRefGoogle ScholarPubMed
Wilson, KG 2000. Attitudes of Terminally Ill Patients Toward Euthanasia and Physician-Assisted Suicide. Archives of Internal Medicine, 160(16):2454–60.CrossRefGoogle ScholarPubMed
Woodbridge, FJE. 1929. Son of Apollo: Themes of Plato. Houghton Mifflin.Google Scholar
Young, Robert. 2008. Medically Assisted Death. Cambridge University Press.Google Scholar
Younger, SJ, Arnold, RM. 2001. Philosophical Debates about the Definition of Death: Who Cares?Journal of Medicine and Philosophy, 26(5):527–37.CrossRefGoogle Scholar
Younger, SJ, Arnold, RM. and Schapiro, R (eds.). 1999. The Definition of Death: Contemporary Controversies. Johns Hopkins University Press.
Zaner, RM. 1988. Ethics and the Clinical Encounter. Prentice Hall.Google Scholar
Zeman, A. 1997. Persistent Vegetative State. Lancet, 350:795–9.CrossRefGoogle ScholarPubMed
Zucker, MB and Zucker, HD (eds.). 1997. Medical Futility and the Evaluation of Life-Sustaining Interventions. Cambridge University Press.CrossRef

Save book to Kindle

To save this book to your Kindle, first ensure is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the or variations. ‘’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

  • Works Cited
  • D. Micah Hester, University of Arkansas
  • Book: End-of-Life Care and Pragmatic Decision Making
  • Online publication: 05 June 2012
  • Chapter DOI:
Available formats

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

  • Works Cited
  • D. Micah Hester, University of Arkansas
  • Book: End-of-Life Care and Pragmatic Decision Making
  • Online publication: 05 June 2012
  • Chapter DOI:
Available formats

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • Works Cited
  • D. Micah Hester, University of Arkansas
  • Book: End-of-Life Care and Pragmatic Decision Making
  • Online publication: 05 June 2012
  • Chapter DOI:
Available formats