Attention Deficit Hyperactivity Disorder (ADHD) is a lifetime neuro-developmental disorder, which causes severe impairment in children and adolescents. A recent epidemiological study of children presenting with ADHD in France suggests an estimated prevalence of ADHD of 3.5-5.6%.

A survey was conducted to gather information from the families of children with ADHD about the care pathway in France in order to improve understanding of the needs in this field.

The survey was conducted between July and August 2009 via an online questionnaire, which was sent to 1217 families registered with the French ADHD association.

The survey response rate was 23% and key findings include the following. Symptoms at school were the key driver in healthcare demand in 77% of cases. Waiting time for an appointment with a specialist averaged 8.2 months. More than 80% of parents felt involved in the choice of care for their children, while only 41% of families considered themselves well-informed during the diagnostic process. Of the 70% of children receiving ADHD medication at the time of the survey, 97% showed good adherence to treatment on school days.

The survey results suggest that the care pathway for ADHD in France is lengthy, with the average time taken before a specialist consultation estimated to be about one school year. Recognition of ADHD appears to originate at school rather than in a preventive manner by the healthcare system.

The survey was supported by Shire Pharmaceuticals Ltd