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Men with Adult Onset Epileptic Seizures: Their Coping Strategies and Sense of Subjective Wellbeing following Elective Neurosurgery

  • Martin Raffaele (a1) (a2), Elias Mpofu (a1) (a3), Jennifer Smith-Merry (a4) and Martin Mackey (a5)


This study aimed to understand the coping strategies used by men with Adult Onset Epileptic Seizures (AOES) following elective neurosurgery, and in particular, how those adaptive skills relate to their subjective wellbeing (SWB). Open-ended qualitative interviews were conducted with five men with a history of neurosurgery for AOES (aged 34–59). The interview data was thematically analysed utilising interpretive phenomenological analysis. The findings indicated that the men experienced significant role marginalisation by family and co-workers, and also poor communication provided by health care professionals. They reported a higher sense of SWB with the use of ego-buffering strategies, such as positive reframing, threat minimisation, emotional self-acceptance and engaging in wish-fulfilling fantasies. Self-blame led to lower SWB. Findings imply that agentic behaviour is important to successful living with AOES following neurosurgery.


Corresponding author

Address for correspondence: Elias Mpofu, Discipline of Rehabilitation Counselling, Faculty of Health Sciences, University of Sydney, Room T-428, Cumberland Campus, 75 East Street Lidcombe, NSW, 2141, Australia. E-mail:


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Note. The first listed author is an individual living with adult onset epilepsy and completed the study on which this manuscript is based as part of his doctoral degree studies.



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Asadi-Pooya, A.A., Schilling, C.A., Glosser, D., Tracy, J.I., & Sperling, M.R. (2007). Health locus of control in patients with epilepsy and its relationship to anxiety, depression, and seizure control. Epilepsy & Behavior, 11 (3), 347350. doi: 10.1016/j.yebeh.2007.06.008.
Banerjee, P.N., Filippi, D., & Hauser, W.A. (2009). The descriptive epidemiology of epilepsy. Epilepsy Research, 85 (1), 3145.
Bankhead, C.R., Brett, J., Bukach, C., Webster, P., Stewart-Brown, S., Munafo, E., & Austoker, J. (2003). The impact of screening on future health-promoting behaviour and health beliefs: A system review. Health Technology Assessment: HTA, 7 (42), 192.
Barak, Y., & Achiron, A. (2009) Happiness and neurological diseases. Expert Review Neurotherapeutics, 9 (4), 445459.
Bellon, M., Walker, C., Peterson, C., & Cookson, P. (2013). The “e” word: Epilepsy and perceptions of unfair treatment from the 2010 Australian epilepsy longitudinal survey. Epilepsy & Behavior. 27 (1), 251256. doi: 10.1016/j.yebeh.2013.01.016.
Berridge, K.C., & Kringelbach, M.L. (2011). Building a neuroscience of pleasure and well-being. Psychology of Well-Being, 1 (1), 126. doi: 10.1186/2211-1522-1-3.
Biddle, S.J.H. (2010). Physical activity. In French, D., Vedhara, K., Kaptein, A.A., & Weinman, J. (eds.). Health Psychology. (2nd ed., pp. 110). Oxford, UK: BPS Blackwell.
Bishop, M., & Allen, C.A. (2003). The impact of epilepsy on quality of life: A qualitative analysis. Epilepsy and Behavior, 4 (3), 226233. doi: 10.1016/S1525-5050(03)00111-2.
Bond, K.S., Mpofu, E., & Millington, M. (2015). Treating women with genito-pelvic pain/penetration disorder: Influences of patient agendas on help-seeking. Journal of Family Medicine, 2 (4), 10331041.
Bordenheimer, T., Lorig, H., Holman, H., & Grumbach, K. (2002). Patient self-management of chronic disease in primary care. The Journal of the American Medical Association, 288 (19), 24692475. doi: 10.1001/jama288.19.2469.
Braiker, H.B. (2006). Who's Pulling Your Strings? How to Break the Cycle of Manipulation. New York: McGraw-Hill.
Bressi, C., Cornaggia, C.M., Beghi, M., Iandoli, I.I., & Invernizzi, G., (2007). Epilepsy and family expressed emotion: Results of a prospective study. Seizure: European Journal of Epilepsy, 16 (5), 417423. doi: 10.1016/j.seisure.2007.02.015.
Buckner, R.L., Andrews-Hanna, J.R., & Schacter, D.L. (2008). The brain's default network: Anatomy, function and relevance to disease. Anals of the New York Academy of Sciences, 1124 (1), 138. doi: 10.1196/annals.1440.011.
Connell, R. (2014). Margin becoming centre: For a world-centred rethinking of masculinities. NORMA: International Journal for Masculinity Studies, 9 (4), 217231.
Croyle, R.T., Sun, Y.C., & Louie, D.H. (1993). Psychological minimization of cholesterol test results: Moderators of appraisal in college students and community residents. Health Psychology, 12, 503507.
Cummings, R. A. (2013). The relationship between subjective wellbeing and health. In Caltabiano, M. L. & Ricciardelli, L. (eds.). Applied Topics in Health Psychology (pp. 101.111). Chichester, UK: Wiley-Blackwell.
Diener, E., Oishi, S., & Lucas, R.E. (2003). Personality, culture, and subjective well-being: Emotional and cognitive evaluations of life. Annual Review of Psychology, 54, 403425. doi: 10.1146/annurev.psych.54.101601.145056.
Diener, E., & Ryan, K. (2009). Subjective well-being: A general overview. South African Journal of Psychology 39 (4), 391406.
Dune, T., & Mpofu, E. (2015). Evaluating person-centered measures to understand sexuality with cerebral palsy: Procedures and applications. International Journal of Social Sciences, 3 (4), 144155.
Eifert, G.H., & Heffner, M. (2003). The effects of acceptance versus control contexts on avoidance of panic-related symptoms. Journal of Behavior Therapy and Experimental Psychiatry, 30, 293312.
Elliott, J.O. (2014). A fiteen-year annivessary for epilepsy and behavior: Reflections on the past and suggestions for the future. Epilepsy and Behavior, 40, 9295. doi: 10.1016/j.yebeh.2014.08.125.
Elliott, J.O., & Richardson, V.E. (2014). The biopsychosocial model and quality of life in persons with active epilepsy. Epilepsy and Behavior, 41, 5565. doi: 10.1016/j.yebeh.2014.09.125.
Englot, D.J., Wang, D.D., Rolston, J.D., Shih, T.T., & Chang, E.F. (2012). Rates and predictors of long-term seizure freedom after frontal lobe epilepsy surgery: A systematic review and meta-analysis: Clinical article. Journal of Neurosurgery, 116 (5), 10421048.
Feinberg, T.A. (2013). Neuropathologies of the self and the right hemisphere: A window into productive personal pathologies. Frontiers in Human Neuroscience, 20 August 2013 doi:
Fisher, R.S., Vickrey, B.G., Gibson, P., Hermann, B., Penovich, P., Scherer, A., & Walker, S. (2000). The impact of epilepsy from a patient's perspective II: Views about therapy and health care. Epilepsy Research, 41 (1), 5361. doi: 10.1016/S0920-1211(00)00126-1.
Gandy, M., Sharpe, L., & Perry, N.K. (2012). Psychosocial predictors of depression and anxiety in patients with epilepsy: A systematic review. Journal of Affective Disorders, 140 (3), 222232. doi: 10.1016/j.jad.2011.11.039.
Hixson, J.D., & Kirsch, H.E. (2009). The effects of epilepsy and its treatments on affect and emotion. Neuroscience, 15 (3), 206216. doi: 10.1080/13554790802632876.
Jacoby, A. (2002). Stigma, epilepsy, and quality of life. Epilepsy & Behavior, 3 (6, Supplement 2), 1020. doi: 10.1016/S1525-5050(02)00545-0.
Jacoby, A., Baker, G.A., Crossley, J., & Schachter, S. (2013). Tools for assessing quality of life in epilepsy patients. Expert Review of Neurotherapeuitics, 13 (12), 13551369. doi:10.1586/1473715.2013.850032.
Jacoby, A., Ring, A., Whitehead, M., Marson, A., & Baker, G.A., (2014). Exploring loss and replacement of loss for understanding the impact of epilepsy onset: A qualitative investigation. Epilepsy and Behavior, 33, 5968. doi: 10.1111/j.1528.1992.tb01769.x.
Jacoby, A., Snape, D., & Baker, A. (2009). Determinants of quality of life in people with epilepsy. Neorologic Clinics, 27 (4), 843863. doi: 10.1016/j.ncl.2009.06.003.
Keyes, C.L.M., Fredrickson, B.A. & Park, N. (2012). Positive psychology and the quality of life. In Keyes, C., Fredrickson, B., & Park, N. (eds.). Handbook of Social Indicators and Quality of Life Research (pp. 99112). The Netherlands: Springer.
Krause, J.S., & Broderick, L. (2004). Outcomes after spinal cord injury: Comparisons as a function of gender and race and ethnicity. Archives of Physical Medicine & Rehabilitation, 85 (3), 355362. doi: 10.1016/S0003-9993(03)00615-4.
Kvale, S. (1996). InterViews: An Introduction to Qualitative Research lnterviewing. Thousand Oaks: Sage Publications.
Livneh, H., Wilson, L.M., Duchesneau, A., & Antonak, R.F. (2001). Psychosocial adaptation to epilepsy: The role of coping strategies. Epilepsy and Behavior, 2 (6), 533544. doi: 10.1006/ebeh.2001.0284.
Luborsky, M. (1994). The identification and analysis of themes and patterns. Gubrium, J., & Sankar, A. (eds.). Qualitative Methods in Aging Research (pp. 189210). Sage: Thousand Oaks.
Mahoney, M.J. & Arnkoff, D.B. (1978). Cognitive and self-control therapies. In Garfield, S. & Bergin, A.E. (eds.). Handbook of Psychotherapy and Behaviour Changes (pp. 75–96). New York, NY: Wiley.
Nelson, A. (2001). Rehabilitation. In Nelson, A., Zejdlik, C.P., & Love, L. (eds.). Nursing Practice Related to Spinal Cord Injury and Disorders (pp. 409–22). Chicago: Demos Medical Publishing.
Ng, K.C., Chan, K.L., & Straughan, P.T. (1995). A study of post-stroke depression in a rehabilitative center. Acta Psychiatrica Scandinavica, 92 (1), 7579.
Ouimet, M.A., Primeau, F., & Cole, M.G. (2001). Psychosocial risk factors in poststroke depression: A systematic review. Canadian Journal of Psychiatry, 46 (9), 819828.
Poochikian-Sarkissian, S., Sidani, S., Wennberg, R., & Devins, G.M., (2008). Psychological impact of illness instrusiveness in epilepsy: Comparison of treatments. Psychology, Health and Medicine, 13 (2), 129145. doi: 10.1080/135485000701294515.
Shariff, A.F., & Tracy, J.L. (2011). What are emotion expressions for? Current Directions in Psychological Science, 20, 395399.
Shepard, K.F., Jensen, G.M., Schmoll, B.J., Hack, L.M., & Gwyer, J. (1993). Alternative approaches to research in physical therapy: Positivism and phenomenology. Physical Therapy, 73, 3447.
Smith, J.A., Flowers, P., & Larkin, M. (2009). Interpretative Phenomenological Analysis: Theory Method and Research. London: Sage.
Sweeny, K., Melnyk, D., Miller, W., & Shepperd, J.A. (2010). Information avoidance: Who, what, when, and why. Review of General Psychology, 14 (4), 340353. doi: 10.1037/a0021288.
Tenev, V.T., Robinson, R.G., & Jorge, R.E. (2009). Is family history of depression a risk factor for poststroke depression? Meta-analysis. The American Journal of Geriatric Psychiatry, 17 (4), 276280. doi:
Thompson, P.J., & Upton, D. (1992). The impact of chronic epilepsy on the family. Seizure, 1 (1), 4348.
Wedlund, E.W., Nilsoon, L., Tomson, T., & Erdner, A. (2013). What is important in the rehabilitation for persons with epilepsy? Experiences from focus group interviews with patents and staff. Epilepsy and Behavior, 28 (3), 347353. doi: 10.1016/j.yebeh.2013.05.022.
Wheless, J.W. (2006). Intractable epilepsy: A survey of patients and caregivers. Epilepsy Behavior, 8 (4), 756764. doi: 10.1016/j.yebeh.2006.03.010.
Willis, J. (2007). Foundations of Qualitative Research: Interpretive and Critical Approaches. Thousand Oaks: Sage Publications.
World Health Organization: WHO (2016). Epilepsy Fact Sheet. Retrieved from: http://whoint/mediacentre/factsheets/fr999/en.
Zangi, H.A., Hauge, M.I., Steen, E., Finset, A., & Hagen, K.B. (2011). I am not only a disease, I am so much more". Patients with rheumatic diseases' experiences of an emotion-focused group intervention. Patient Educational Counselling, 85 (3), 419424. doi: 10.1016/j.pec.2010.12.032.
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