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Chapter 22 - Care Homes

Published online by Cambridge University Press:  21 June 2019

Rob Butler
Affiliation:
Waitemata DHB and North Shore Hospital, Auckland
Cornelius Katona
Affiliation:
Helen Bamber Foundation
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Summary

As the population ages, the proportion of older people requiring functional support will increase significantly, as will the ‘dependency ratio’ (the number of dependent people divided by the working-age population). These demographic changes will place significant strain on society and systems of long-term care (LTC). Growing expectations of standards of care will, in the future, amplify tensions between quality and affordability. Although there is significant international variation, the LTC system in many countries has become increasingly sophisticated, with services provided in both the home and residential LTC provision. The roles of informal carers and family are also being acknowledged as part of a complex system of care [1].

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Publisher: Cambridge University Press
Print publication year: 2019

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References

Alzheimer’s Disease International (2013) World Alzheimer Report 2013: An Analysis of Long-Term Care for Dementia. London: Alzheimer’s Disease International.Google Scholar
Boyd, M., Bowman, C., Broad, J. B., Connolly, M. J. (2012) ‘International comparison of long-term care resident dependency across four countries (1998–2009): A descriptive study’. Australas J Ageing 31(4): 233–40.Google Scholar
Boyd, M., Broad, J B., Kerse, N., et al. (2011) ‘Twenty-year trends in dependency in residential aged care in Auckland, New Zealand: A descriptive study. J Am Med Dir Assoc 12(7): 535–40.Google Scholar
United Nations Human Rights Office of the High Commission (2017) International Covenant on Civil and Political Rights, www.ohchr.org/EN/ProfessionalInterest/Pages/CCPR.aspx.Google Scholar
United Nations (2017) Convention on the Rights of Persons with Disabilities, www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html.Google Scholar
United Nations Specialised Conferences (1955) Standard Minimum Rules for the Treatment of Prisoners. 30 August, www.refworld.org/docid/3ae6b36e8.html.Google Scholar
Tranvag, O., Petersen, K. A., Naden, D. (2016) ‘Crucial dimensions constituting dignity experience in persons living with dementia’. Dementia (London) 15(4): 578–95.Google Scholar
Social Care Institute for Excellence (2017) The Dignity Challenge, www.scie.org.uk/publications/guides/guide15/dignitychallenge/.Google Scholar
The Law Commission (2017) Mental Capacity and Deprivation of Liberty. Law Com No 372 2017 Law Commission (Dec 17). Web ISBN 9781474141642.Google Scholar
New Zealand Human Right Commission (2016) He Ara Tika: A Pathway Forward: The Scope and Role of the Optional Protocol to the Convention against Torture (OPCAT) in Relation to Aged Care and Disability Residences and Facilities, www.google.co.nz/search?q=He+Ara+Tika++A+pathway+forward++The+scope+and+role+of+the+Optional+Protocol+to+the+Convention+against+Torture+&ie=utf-8&oe=utf-8&client=firefox-b-ab&gfe_rd=cr&dcr=0&ei=uTw3WvGzNO_c8wePqYv4Cg.Google Scholar
Creighton, A. S., Davison, T. E., Kissane, D. W. (2016) ‘The prevalence of anxiety among older adults in nursing homes and other residential aged care facilities: A systematic review’. Int J Geriatr Psychiatry 31(6): 555–66.Google Scholar
Smalbrugge, M., Jongenelis, L., Pot, A. M., et al. (2005) ‘Comorbidity of depression and anxiety in nursing home patients’. Int J Geriatr Psychiatry 20(3): 218–26.CrossRefGoogle ScholarPubMed
Snowdon, J., Fleming, R. (2008) ‘Recognising depression in residential facilities: An Australian challenge’. Int J Geriatr Psychiatry 23(3): 295300.CrossRefGoogle ScholarPubMed
Leyhe, T., Reynolds, C. F. 3rd, Melcher, T., et al. (2017) ‘A common challenge in older adults: Classification, overlap, and therapy of depression and dementia’. Alzheimers Dement 13(1): 5971.Google Scholar
Davison, T. E., McCabe, M. P., Knight, T., Mellor, D. (2012) ‘Biopsychosocial factors related to depression in aged care residents’. J Affect Disord 142 (1–3): 290–6.Google Scholar
McCabe, M. P., Davison, T., Mellor, D., George, K. (2009) ‘Barriers to care for depressed older people: Perceptions of aged care among medical professionals’. Int J Aging Hum Dev 68(1): 5364.Google Scholar
Meeks, S., Van Haitsma, K., Schoenbachler, B., Looney, S. W. (2015) ‘BE-ACTIV for depression in nursing homes: Primary outcomes of a randomized clinical trial’. J Gerontol B Psychol Sci Soc Sci 70(1): 1323.Google Scholar
International Psychogeriatrics Association (2017) IPA Complete Guides to Behavioral and Psychological Symptoms of Dementia (BPSD), www.ipa-online.org/publications/guides-to-bpsd.Google Scholar
Finkel, S., Burns, A. (1999) BPSD Consensus Statement, International Psychogeriatric Association. Milwaukee, WI: International Psychogeriatric Association.Google Scholar
Selbaek, G., Engedal, K., Benth, J. S., Bergh, S. (2014) ‘The course of neuropsychiatric symptoms in nursing-home patients with dementia over a 53-month follow-up period’. Int Psychogeriatr 26(1): 8191.Google Scholar
Stewart, R., Hotopf, M., Dewey, M., et al. (2014) ‘Current prevalence of dementia, depression and behavioural problems in the older adult care home sector: The South East London Care Home Survey’. Age Ageing 43(4): 562–7.Google Scholar
de Vugt, M. E., Stevens, F., Aalten, P., et al. (2005) ‘A prospective study of the effects of behavioral symptoms on the institutionalization of patients with dementia’. Int Psychogeriatr 17(4): 577–89.Google Scholar
Zwijsen, S. A., Kabboord, A., Eefsting, J. A., et al. (2014) ‘Nurses in distress? An explorative study into the relation between distress and individual neuropsychiatric symptoms of people with dementia in nursing homes’. Int J Geriatr Psychiatry 29(4): 384–91.Google Scholar
Schneider, L. S., Dagerman, K. S., Insel, P. (2005) ‘Risk of death with atypical antipsychotic drug treatment for dementia: Meta-analysis of randomized placebo-controlled trials’. JAMA 294(15): 1934–43.Google Scholar
Meeks, T. W., Jeste, D. V. (2008) ‘Beyond the black box: What is the role for antipsychotics in dementia?Curr Psychiatr 7(6): 5065.Google ScholarPubMed
Ballard, C., Hanney, M. L., Theodoulou, M., et al. (2009) ‘The dementia antipsychotic withdrawal trial (DART-AD): Long-term follow-up of a randomised placebo-controlled trial’. Lancet Neurol 8(2): 151–7.Google Scholar
Patel, M., Joshi, A., Suthar, J., Desai, S. (2014) ‘Drug utilization pattern in patients with different types of dementia in Western India’. Int J Alzheimers Dis 2014: 435202.Google Scholar
Lawrence, V., Fossey, J., Ballard, C., et al. (2012) ‘Improving quality of life for people with dementia in care homes: Making psychosocial interventions work’. Br J Psychiatry 201(5): 344–51.Google Scholar
Kitwood, T. (1998) ‘Toward a theory of dementia care: ethics and interaction’. J Clin Ethics 9(1): 2334.Google Scholar
Brooker, D. J., Latham, I., Evans, S. C., et al. (2016) ‘FITS into practice: Translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes’. Aging Ment Health 20(7): 709–18.Google Scholar
Rokstad, A. M., Rosvik, J., Kirkevold, O., et al. (2013) ‘The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: A 10-month randomized controlled trial’. Dement Geriatr Cogn Disord 36(5–6): 340–53.CrossRefGoogle ScholarPubMed
Chenoweth, L., King, M. T., Jeon, Y. H., et al. (2009) ‘Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: A cluster-randomised trial’. Lancet Neurol 8(4): 317–25.Google Scholar
Fossey, J., Ballard, C., Juszczak, E., et al. (2006) ‘Effect of enhanced psychosocial care on antipsychotic use in nursing home residents with severe dementia: Cluster randomised trial’. BMJ 332(7544): 756–61.Google Scholar
Sjogren, . K, Lindkvist, M., Sandman, P. O., et al. (2017) ‘Organisational and environmental characteristics of residential aged care units providing highly person-centred care: A cross sectional study’. BMC Nurs 16: 44-017–0240-4. eCollection 2017.Google Scholar
Grabowski, D. C., O’Malley, A. J., Afendulis, C. C., et al. (2014) ‘Culture change and nursing home quality of care’. Gerontologist 54(Suppl 1): S35–45.Google Scholar
Marquardt, G., Bueter, K., Motzek, T.Impact of the design of the built environment on people with dementia: An evidence-based review’. (2014) HERD 8(1): 127–57.Google Scholar
Fleming, R., Kelly, F., Stillfried, G. (2015) ‘“I want to feel at home”: Establishing what aspects of environmental design are important to people with dementia nearing the end of life’. BMC Palliat Care 12(14): 26-015–0026-y.Google Scholar
Calkins, M. P. (2009) ‘Evidence-based long term care design’. Neuro Rehabilitation 25(3): 145–54.Google Scholar
Fleming, R., Fay, R., Robinson, A. (2012) ‘Evidence-based facilities design in health care: A study of aged care facilities in Australia’. Health Serv Manage Res 25(3): 121–8.Google Scholar
Fleming, R., Bennett, K. (2015) ‘Assessing the quality of environmental design of nursing homes for people with dementia: Development of a new tool’. Australas J Ageing 34(3): 191–4.Google Scholar
Whear, R., Coon, J. T., Bethel, A., et al. (2014) ‘What is the impact of using outdoor spaces such as gardens on the physical and mental well-being of those with dementia? A systematic review of quantitative and qualitative evidence’. J Am Med Dir Assoc 15(10): 697705.CrossRefGoogle ScholarPubMed
Marcus, J. F., Cellar, J. S., Ansari, F. P., Bliwise, D. L. (2007) ‘Utility of the Algase Wandering Scale in an outpatient Alzheimer’s disease sample’. Int J Geriatr Psychiatry 22(8): 801–5.Google Scholar
Kerse, N. (2005) ‘Medication use in residential care’. N Z Fam Physician 32: 251–5.Google Scholar
Heppenstall, C. P., Broad, J. B., Boyd, M., et al. (2016) ‘Medication use and potentially inappropriate medications in those with limited prognosis living in residential aged care’. Australas J Ageing 35(2): E18–24.Google Scholar
McLeod, H. (2013) Future Demographic Issues. Wellington, NZ: Palliative Care Council.Google Scholar
Connolly, M. J., Broad, J. B., Boyd, M., et al. (2014) ‘Residential aged care: The de facto hospice for New Zealand’s older people’. Australas J Ageing 33(2): 114–20.Google Scholar
Mitchell, S. L., Miller, S. C., Teno, J. M., et al. (2010) ‘Prediction of 6-month survival of nursing home residents with advanced dementia using ADEPT vs. hospice eligibility guidelines’. JAMA 304(17): 1929–35.Google Scholar
Goodman, C., Evans, C., Wilcock, J., et al. (2010) ‘End of life care for community dwelling older people with dementia: An integrated review’. Int J Geriatr Psychiatry 25(4): 329–37.Google Scholar
Vandervoort, A., Van den Block, L., van der Steen, J. T., et al. (2013) ‘Nursing home residents dying with dementia in Flanders, Belgium: A nationwide postmortem study on clinical characteristics and quality of dying’. J Am Med Dir Assoc 14(7): 485–92.Google Scholar
van der Steen, J. T., Goodman, C. (2015) ‘What research we no longer need in neurodegenerative disease at the end of life: The case of research in dementia’. Palliat Med 29(3): 189–92.Google Scholar
Frey, R., Boyd, M., Foster, S., et al. (2016) ‘What’s the diagnosis? Organisational culture and palliative care delivery in residential aged care in New Zealand’. Health Soc Care Community 24(4): 450–62.Google Scholar
van Riet Paap, J., Vernooij-Dassen, M., Sommerbakk, R., et al. (2015) ‘Implementation of improvement strategies in palliative care: An integrative review’. Implement Sci 10: 103–015-0293–2.Google Scholar

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