1Alzheimer’s Disease International (2013) World Alzheimer Report 2013: An Analysis of Long-Term Care for Dementia.
2Boyd, M., Bowman, C., Broad, J. B., Connolly, M. J. (2012) ‘International comparison of long-term care resident dependency across four countries (1998–2009): A descriptive study’. Australas J Ageing 31(4): 233–40.
3Boyd, M., Broad, J B., Kerse, N., et al. (2011) ‘Twenty-year trends in dependency in residential aged care in Auckland, New Zealand: A descriptive study. J Am Med Dir Assoc 12(7): 535–40.
7Tranvag, O., Petersen, K. A., Naden, D. (2016) ‘Crucial dimensions constituting dignity experience in persons living with dementia’. Dementia (London) 15(4): 578–95.
9The Law Commission (2017) Mental Capacity and Deprivation of Liberty. Law Com No 372 2017 Law Commission (Dec 17). Web ISBN 9781474141642.
11Creighton, A. S., Davison, T. E., Kissane, D. W. (2016) ‘The prevalence of anxiety among older adults in nursing homes and other residential aged care facilities: A systematic review’. Int J Geriatr Psychiatry 31(6): 555–66.
12Smalbrugge, M., Jongenelis, L., Pot, A. M., et al. (2005) ‘Comorbidity of depression and anxiety in nursing home patients’. Int J Geriatr Psychiatry 20(3): 218–26.
13Snowdon, J., Fleming, R. (2008) ‘Recognising depression in residential facilities: An Australian challenge’. Int J Geriatr Psychiatry 23(3): 295–300.
14Leyhe, T., Reynolds, C. F. 3rd, Melcher, T., et al. (2017) ‘A common challenge in older adults: Classification, overlap, and therapy of depression and dementia’. Alzheimers Dement 13(1): 59–71.
15Davison, T. E., McCabe, M. P., Knight, T., Mellor, D. (2012) ‘Biopsychosocial factors related to depression in aged care residents’. J Affect Disord 142 (1–3): 290–6.
16McCabe, M. P., Davison, T., Mellor, D., George, K. (2009) ‘Barriers to care for depressed older people: Perceptions of aged care among medical professionals’. Int J Aging Hum Dev 68(1): 53–64.
17Meeks, S., Van Haitsma, K., Schoenbachler, B., Looney, S. W. (2015) ‘BE-ACTIV for depression in nursing homes: Primary outcomes of a randomized clinical trial’. J Gerontol B Psychol Sci Soc Sci 70(1): 13–23.
19Finkel, S., Burns, A. (1999) BPSD Consensus Statement, International Psychogeriatric Association.
20Selbaek, G., Engedal, K., Benth, J. S., Bergh, S. (2014) ‘The course of neuropsychiatric symptoms in nursing-home patients with dementia over a 53-month follow-up period’. Int Psychogeriatr 26(1): 81–91.
21Stewart, R., Hotopf, M., Dewey, M., et al. (2014) ‘Current prevalence of dementia, depression and behavioural problems in the older adult care home sector: The South East London Care Home Survey’. Age Ageing 43(4): 562–7.
22de Vugt, M. E., Stevens, F., Aalten, P., et al. (2005) ‘A prospective study of the effects of behavioral symptoms on the institutionalization of patients with dementia’. Int Psychogeriatr 17(4): 577–89.
23Zwijsen, S. A., Kabboord, A., Eefsting, J. A., et al. (2014) ‘Nurses in distress? An explorative study into the relation between distress and individual neuropsychiatric symptoms of people with dementia in nursing homes’. Int J Geriatr Psychiatry 29(4): 384–91.
24Schneider, L. S., Dagerman, K. S., Insel, P. (2005) ‘Risk of death with atypical antipsychotic drug treatment for dementia: Meta-analysis of randomized placebo-controlled trials’. JAMA 294(15): 1934–43.
25Meeks, T. W., Jeste, D. V. (2008) ‘Beyond the black box: What is the role for antipsychotics in dementia?’ Curr Psychiatr 7(6): 50–65.
26Ballard, C., Hanney, M. L., Theodoulou, M., et al. (2009) ‘The dementia antipsychotic withdrawal trial (DART-AD): Long-term follow-up of a randomised placebo-controlled trial’. Lancet Neurol 8(2): 151–7.
27Patel, M., Joshi, A., Suthar, J., Desai, S. (2014) ‘Drug utilization pattern in patients with different types of dementia in Western India’. Int J Alzheimers Dis 2014: 435202.
28Lawrence, V., Fossey, J., Ballard, C., et al. (2012) ‘Improving quality of life for people with dementia in care homes: Making psychosocial interventions work’. Br J Psychiatry 201(5): 344–51.
29Kitwood, T. (1998) ‘Toward a theory of dementia care: ethics and interaction’. J Clin Ethics 9(1): 23–34.
30Brooker, D. J., Latham, I., Evans, S. C., et al. (2016) ‘FITS into practice: Translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes’. Aging Ment Health 20(7): 709–18.
31Rokstad, A. M., Rosvik, J., Kirkevold, O., et al. (2013) ‘The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: A 10-month randomized controlled trial’. Dement Geriatr Cogn Disord 36(5–6): 340–53.
32Chenoweth, L., King, M. T., Jeon, Y. H., et al. (2009) ‘Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: A cluster-randomised trial’. Lancet Neurol 8(4): 317–25.
33Fossey, J., Ballard, C., Juszczak, E., et al. (2006) ‘Effect of enhanced psychosocial care on antipsychotic use in nursing home residents with severe dementia: Cluster randomised trial’. BMJ 332(7544): 756–61.
34Sjogren, . K, Lindkvist, M., Sandman, P. O., et al. (2017) ‘Organisational and environmental characteristics of residential aged care units providing highly person-centred care: A cross sectional study’. BMC Nurs 16: 44-017–0240-4. eCollection 2017.
35Grabowski, D. C., O’Malley, A. J., Afendulis, C. C., et al. (2014) ‘Culture change and nursing home quality of care’. Gerontologist 54(Suppl 1): S35–45.
36Marquardt, G., Bueter, K., Motzek, T. ‘Impact of the design of the built environment on people with dementia: An evidence-based review’. (2014) HERD 8(1): 127–57.
37Fleming, R., Kelly, F., Stillfried, G. (2015) ‘“I want to feel at home”: Establishing what aspects of environmental design are important to people with dementia nearing the end of life’. BMC Palliat Care 12(14): 26-015–0026-y.
38Calkins, M. P. (2009) ‘Evidence-based long term care design’. Neuro Rehabilitation 25(3): 145–54.
39Fleming, R., Fay, R., Robinson, A. (2012) ‘Evidence-based facilities design in health care: A study of aged care facilities in Australia’. Health Serv Manage Res 25(3): 121–8.
40Fleming, R., Bennett, K. (2015) ‘Assessing the quality of environmental design of nursing homes for people with dementia: Development of a new tool’. Australas J Ageing 34(3): 191–4.
41Whear, R., Coon, J. T., Bethel, A., et al. (2014) ‘What is the impact of using outdoor spaces such as gardens on the physical and mental well-being of those with dementia? A systematic review of quantitative and qualitative evidence’. J Am Med Dir Assoc 15(10): 697–705.
42Marcus, J. F., Cellar, J. S., Ansari, F. P., Bliwise, D. L. (2007) ‘Utility of the Algase Wandering Scale in an outpatient Alzheimer’s disease sample’. Int J Geriatr Psychiatry 22(8): 801–5.
43Kerse, N. (2005) ‘Medication use in residential care’. N Z Fam Physician 32: 251–5.
44Heppenstall, C. P., Broad, J. B., Boyd, M., et al. (2016) ‘Medication use and potentially inappropriate medications in those with limited prognosis living in residential aged care’. Australas J Ageing 35(2): E18–24.
45McLeod, H. (2013) Future Demographic Issues. Wellington, NZ: Palliative Care Council.
46Connolly, M. J., Broad, J. B., Boyd, M., et al. (2014) ‘Residential aged care: The de facto hospice for New Zealand’s older people’. Australas J Ageing 33(2): 114–20.
47Mitchell, S. L., Miller, S. C., Teno, J. M., et al. (2010) ‘Prediction of 6-month survival of nursing home residents with advanced dementia using ADEPT vs. hospice eligibility guidelines’. JAMA 304(17): 1929–35.
48Goodman, C., Evans, C., Wilcock, J., et al. (2010) ‘End of life care for community dwelling older people with dementia: An integrated review’. Int J Geriatr Psychiatry 25(4): 329–37.
49Vandervoort, A., Van den Block, L., van der Steen, J. T., et al. (2013) ‘Nursing home residents dying with dementia in Flanders, Belgium: A nationwide postmortem study on clinical characteristics and quality of dying’. J Am Med Dir Assoc 14(7): 485–92.
50van der Steen, J. T., Goodman, C. (2015) ‘What research we no longer need in neurodegenerative disease at the end of life: The case of research in dementia’. Palliat Med 29(3): 189–92.
51Frey, R., Boyd, M., Foster, S., et al. (2016) ‘What’s the diagnosis? Organisational culture and palliative care delivery in residential aged care in New Zealand’. Health Soc Care Community 24(4): 450–62.
52van Riet Paap, J., Vernooij-Dassen, M., Sommerbakk, R., et al. (2015) ‘Implementation of improvement strategies in palliative care: An integrative review’. Implement Sci 10: 103–015-0293–2.