Skip to main content Accessibility help
×
Home
  • Get access
    Check if you have access via personal or institutional login
  • Cited by 4
  • Print publication year: 2011
  • Online publication date: January 2011

8 - Measuring quality of life in dementia

Related content

Powered by UNSILO

References

1. MackJL, WhitehousePJ.Quality of life in dementia: State of the Art – Report of the International Group for Harmonization of Dementia Drug Guidelines and the Alzheimer's Society Satellite Meeting. Alzheimer Dis Assoc Disord 2001; 15: 69–71.
2. FrankLB.Commentary on ‘Health economics and the value of therapy in Alzheimer's disease.’ Report from the Alzheimer's Association Research Roundtable on patient-reported outcomes and dementia research. Alzheim Dement 2007; 3: 162–165.
3. EttemaTP, DroesR-M, de LangeJ, et al. A review of quality of life instruments used in dementia. Qual Life Res 2005; 14: 675–686.
4. GerritsenDL, EttemaTP, BoelensE, et al. Quality of life in dementia: do professional caregivers focus on the significant domains? Am J Alzheimer's Dis 2007; 22: 176–183.
5. HoeJ, KatonaC, OrrellM, et al. Quality of life in dementia: care recipient and caregiver perceptions of quality of life in dementia. The LASER-AD study. Int J Geriatr Psychiatry 2007; 22: 1031–1036.
6. CarrAJ, HigginsonIJ.Measuring quality of life: are quality of life measures patient centered? BMJ 2001; 322: 1357–1360.
7. SmithSC, LampingDL, BanerjeeS, et al. Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQoL) and an evaluation of current methodology. Health Technol Assess 2005; 9: 1–107.
8. BrodM, StewartAL, SandsL.Conceptualization of quality of life in dementia, In: AlbertSM, LogsdonRG, eds. Assessing Quality of Life in Alzheimer's Disease. New York: Springer, 2000; 3–16.
9. BrodM, StewartAL, SandsL, et al. Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQoL). Gerontologist 1999; 39: 25–35.
10. LogsdonRG, GibbonsLE, McCurrySM, et al. Assessing quality of life in older adults with cognitive impairment. Psychosom Med 2002; 64: 510–519.
11. SmithSC, MurrayJ, BanerjeeS, et al. What constitutes health-related quality of life in dementia? Development of a conceptual framework for people with dementia and their carers. Int J Geriatr Psychiatry 2005; 20: 889–895.
12. TriggR, SkevingtonSM, JonesRW.How can we best assess the quality of life of people with dementia? The Bath Assessment of Subjective Quality of Life in Dementia (BASQID). Gerontologist 2007; 47: 789–797.
13. TriggR, JonesRW, SkevingtonSM.Can people with mild to moderate dementia provide reliable answers about their quality of life? Age Ageing 2007; 36: 663–669.
14. WhitehouseP, PattersonMB, SamiSA.Quality of life in dementia: ten years later. Alzheimer Dis Assoc Disord 2003; 17: 1999–200.
15. ReadyRE.Patient-reported outcomes in clinical trials for Alzheimer's disease. Alzheimer Dement 2007; 3: 172–176.
16. EttemaTP, Droes R-M, de LangeJ, et al. QUALIDEM: development and evaluation of a dementia specific quality of life instrument – validation. Int J Geriatr Psychiatry 2007; 22: 424–430.
17. SloanePD, ZimmermanS, WilliamsCS, et al. Evaluating the quality of life of long-term care residents with dementia. Gerontologist 2005; 45: 37–49.
18. Schölzel-DorenbosCJM, EttemaTP, BosJ, et al. Evaluating the outcome of interventions on quality of life in dementia: selection of the appropriate scale. Int J Geriatr Psychiatry 2007; 22: 511–519.
19. ReadyRE, OttBR.Quality of life measures for dementia. Health Qual Life Outcomes 2003; 1: 11.
20. ReadyRE, OttBR, GraceJ.Insight and self-reported QOL from memory disorder patients. Am J Alzheimer Dis 2006; 21: 242–248.
21. FeinbergLF, WhitlatchCJ.Are persons with cognitive impairment able to state consistent choices? Gerontologist 2001; 47: 374–382.
22. ReadyRE, OttBR, GraceJ.Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer's disease. Int J Geriatr Psychiatry 2004; 19: 256–265.
23. ShinIS, CarterM, MastermanD, et al. Neuropsychiatric symptoms and quality of life in Alzheimer's disease. Am J Geriatr Psychiatry 2005; 13: 469–474.
24. JamesBD, XieSX, KarlawishJHT. How do patients with Alzheimer's disease rate their overall quality of life? Am J Geriatr Psychiatry 2005; 13: 484–490.
25. BehlP, LanctotKL, StreinerDL, et al. Cholinesterase inhibitors slow decline in executive functions, rather than memory, in Alzheimer's disease: a 1-year observational study in Sunnybrook Dementia Court. Curr Alzheimer Res 2006; 3: 147–156.
26. ThorgrimsenL, SelwoodA, SpectorA, et al. Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) Scale. Alzheimer Dis Assoc Disord 2003; 17: 201–108.
27. MatsuiT, NakaakiS, MurataY, et al. Determinants of the quality of life in Alzheimer's disease patients as assessed by the Japanese Version of the Quality of Life – Alzheimer's Disease scale. Dement Geriatr Cogn Disord 2006; 21: 182–191.
28. SandsLP, FerreiraP, StewartAL, et al. What explains differences between dementia patients’ and their caregivers’ ratings of patient's quality of life? Am J Geriatr Psychiatry 2004; 12: 272–280.
29. SnowAL, DaniR, SouchekJ, et al. Comorbid psychosocial symptoms and quality of life in patients with dementia. Am J Geriatr Psychiatry 2005; 13: 393–401.
30. BanerjeeS, SamsiK, PetrieCD, et al. What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. Int J Geriatr Psychiatry 2009; 24: 15–24.
31. HoeJ, HancockG, LivingstonG, et al. Quality of life of people with dementia in residential care homes. Br J Psychiatry 2006; 188: 468–464.
32. SmithSC, LampingDL, BanerjeeS, et al. Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychol Med 2007; 37: 737–746.
33. RosenbergPB, MielkeMM, LyketsosCG.Caregiver assessment of patients’ depression in Alzheimer's disease: Longitudinal analysis in a drug treatment study. Am J Geriatr Psychiatry 2005; 13: 822–826.
34. ArltS, HornungJ, EichenlaubM, et al. The patient with dementia, the caregiver and the doctor: Cognition, depression and quality of life from three perspectives. Int J Geriatr Psychiatry 2008; 23: 604–610.
35. SneeuwKCA, AaronsonNK, OsobaD, et al. The use of significant others as proxy raters of the quality of life of patients with brain cancer. Med Care 1997; 35: 490–506.
36. PhillipsWT, AlexanderJL, PepinV, et al. Cardiac rehabilitation patient versus proxy quality-of-life perceptions. Clin Nurs Res 2003; 12: 282–293.
37. KublerA, WinterS, LudolphAC, et al. Severity of depressive symptoms and quality of life in patients with Amyotrophic Lateral Sclerosis. Neurorehabil Neural Repair 2005; 19: 182–193.
38. SandgrenAK, MullensAB, EricksonSC, et al. Confidant and breast cancer patient reports of quality of life. Qual Life Res 2004; 13: 155–160.
39. JonesCA, FeenyDH.Agreement between patient and proxy responses of health-related quality of life after hip fracture. J Am Geriatr Soc 2005; 53: 1227–1233.
40. FunderDC.Accuracy in personality judgment: Research and theory concerning an obvious question. In: RobertsBW, HoganR, eds. Personality Psychology in the Workplace. Washington, DC: American Psychological Association, 2001.
41. ReadyRE, ClarkLA, WatsonD, et al. Self- and peer-reported personality: agreement, trait ratability, and the “self-based heuristic.” J Res Personality 2000; 34: 208–224.
42. DroesR-M, Boelens-Van der KnoopECC, BosJ, et al. Quality of life in dementia in perspective: an exploratory study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia 2006; 5: 533–558.
43. SpectorA, ThorgrimsenL, WoodsB, et al. Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia. Br J Psychiatry 2003; 183: 248–254.
44. McCarneyR, FisherP, IliffeS, et al. Ginkgo biloba for mild to moderate dementia in a community setting: a pragmatic, randomised, parallel-group, double-blind, placebo-controlled trial. Int J Geriatr Psychiatry 2008; 23: 1222–1230.
45. FuhJL, WangSJ.Assessing quality of life in Taiwanese patients with Alzheimer's disease. Int J Geriatr Psychiatry 2006; 21: 103–107.
46. WolakA, NovellaJ-L, DrameM, et al. Transcultural adaptation and psychometric validation of a French-language version of the QoL-AD. Citation only available. Aging Ment Health 2009; 13(4): 593–600.
47. Hao-yingH, Guo-dongM, Mou-niT.Reliabilities and validities of the Quality of Life-Alzheimer's Disease (QOL-AD) scale. Chin J Clin Psychol 2005; 13: 402–404.
48. BanerjeeS, SmithSC, LampingDL, et al. Quality of life in dementia: more than just cognition. An analysis of associations with quality of life in dementia. J Neurol Neurosurg Psychiatry 2006; 77: 146–148.
49. KarimS, RamannaG, PetitT, et al. Development of the Dementia Quality of Life questionnaire (D-QOL): UK version. Aging Ment Health 2008; 12: 144–148.
50. Van Der SteenJT, van CampenC, BosboomPR, et al. Quality of life and dementia. II. Selection of a measurement instrument for well-being appropriate for the reference model. Tijdschrift voor Gerontologie an Geratrie 2001; 32: 259–264.
51. SuzukiM, UchidaA, KanamoriM, et al. Development of the Dementia Quality of Life Instrument-Japanese version. Nippon Ronen Igakkai Zasshi 2005; 42.
52. BanerjeeS.Commentary on “Health economics and the value of therapy in Alzheimer's disease.” Quality of life in dementia: Development and use of a disease-specific measure of health-related quality of life in dementia. Alzheimer Dement 2007; 3: 166–171.
53. EttemaTP, DroesR-M, de LangeJ, et al. QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. Int J Geriatr Psychiatry 2007; 22: 549–556.
54. BullingerM, AndersonR, CellaD, et al. Developing and evaluating cross-cultural instruments from minimum requirements to optimal models. Qual Life Res 1993; 2: 451–459.
55. KoopmansRTCM, Van Der MolenM, RaatsM, et al. Neuropsychiatric symptoms and quality of life in patients in the final phase of dementia. Int J Geriatr Psychiatry 2009; 24: 25–32.
56. Kotler-CopeS, CampCJ.Anosognosia in Alzheimer disease. Alzheimer Dis Assoc Disord 1995; 9: 52–56.
57. VasterlingJJ, SeltzerB, WatrousWE.Longitudinal assessment of deficit unawareness in Alzheimer's disease. Neuropsychiatry Neuropsychol Behav Neurol 1997; 10: 197–202.
58. LogsdonRG, GibbonsLE, McCurrySM, et al. Quality of life in Alzheimer's disease: patient and caregiver reports. J Ment Health Aging 1999; 5: 21–32.
59. ReadyRE, OttBR, GraceJ, et al. The Cornell-Brown Scale for Quality of Life in Dementia. Alzheimer Dis Assoc Disord 2002; 16: 109–115.
60. SelaiCE, TrimbleMR, RossorM, et al. Assessing quality of life in dementia: preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychol Rehabil 2001; 11: 219–243.
61. SmithTL, ToselandRW, RizzoVM, et al. Telephone caregiver support groups. J Gerontol Social Work 2004; 44: 151–172.
62. RabinsPV.Measuring quality of life in persons with dementia. Int Psychogeriatr 2000; 12: 47–49.
63. RabinsPV, KasperJD, KleinmanL, et al. Concepts and methods in the development of the ADRQL: an instrument for assessing health-related quality of life in persons with Alzheimer's disease. J Ment Health Aging 1999; 5: 33–48.
64. FosseyJ, LeeL, BallardC.Dementia care mapping as a research tool for measuring quality of life in care setting: psychometric properties. Int J Geriatr Psychiatry 2002; 17: 1064–1070.
65. BrookerD, FosterN, BannerA, et al. The efficacy of dementia care mapping as an audit tool: report of a 3-year British NHS evaluation. Aging Ment Health 1998; 2: 60–70.
66. BeavisD, SimpsonS, GrahamI.A literature review of dementia care mapping: methodological considerations and efficacy. J Psychiatr Ment Health Nurs 2002; 9: 725–736.
67. AlbertSM, Castillo-CastanadaC, JacobsDM, et al. Proxy-reported quality of life in Alzheimer's patients: comparison of clinical and population-based samples. J Ment Health Aging 1999; 5: 49–58.
68. AlbertSM, Castillo-CastanedaCD, SanoM, et al. Quality of life in patients with Alzheimer's disease as reported by patient proxies. J Am Geriatr Soc 1996; 44: 1342–1347.
69. AlbertSM, JacobsDM, SanoM, et al. Longitudinal study of quality of life in people with advanced Alzheimer's disease. Am J Geriatr Psychiatry 2001; 9: 160–168.
70. WeinerMF, Martin-CookK, SvetlikDA, et al. The Quality of Life in Late-Stage Dementia (QUALID) Scale. J Am Med Dir Assoc 2000; 1: 114–116.