Book contents
- Guidance for Healthcare Ethics Committees
- Guidance for Healthcare Ethics Committees
- Copyright page
- Dedication
- Contents
- Contributors
- Preface
- Section 1 The Context of Healthcare Ethics Committee Work
- Section 2 Consultation
- Chapter 7 Ethics Consultation Mission, Vision, Goals, and Process
- Chapter 8 A Method of Consultation
- Chapter 9 Informed Consent
- Chapter 10 Confidentiality and Privacy
- Chapter 11 Decision-Making Capacity
- Chapter 12 Discharge Challenges
- Chapter 13 Surrogate Decision Making
- Chapter 14 Advance Care Planning and End-of-Life Decision-Making
- Chapter 15 Potentially Inappropriate Treatment and Medical Futility
- Chapter 16 Cognitive Dissonance and the Care of Patients with Disorders of Consciousness
- Chapter 17 Ethical Issues in Reproduction
- Chapter 18 Ethical Issues in Neonatology
- Chapter 19 Ethical Issues in Pediatrics
- Chapter 20 Neuroethics
- Chapter 21 Ethical Issues in Clinical Genetics
- Chapter 22 Challenging Issues in Surgical Ethics
- Chapter 23 Psychiatric Ethics
- Section 3 Policy Development and Organizational Issues
- Index
- References
Chapter 21 - Ethical Issues in Clinical Genetics
from Section 2 - Consultation
Published online by Cambridge University Press: 17 February 2022
- Guidance for Healthcare Ethics Committees
- Guidance for Healthcare Ethics Committees
- Copyright page
- Dedication
- Contents
- Contributors
- Preface
- Section 1 The Context of Healthcare Ethics Committee Work
- Section 2 Consultation
- Chapter 7 Ethics Consultation Mission, Vision, Goals, and Process
- Chapter 8 A Method of Consultation
- Chapter 9 Informed Consent
- Chapter 10 Confidentiality and Privacy
- Chapter 11 Decision-Making Capacity
- Chapter 12 Discharge Challenges
- Chapter 13 Surrogate Decision Making
- Chapter 14 Advance Care Planning and End-of-Life Decision-Making
- Chapter 15 Potentially Inappropriate Treatment and Medical Futility
- Chapter 16 Cognitive Dissonance and the Care of Patients with Disorders of Consciousness
- Chapter 17 Ethical Issues in Reproduction
- Chapter 18 Ethical Issues in Neonatology
- Chapter 19 Ethical Issues in Pediatrics
- Chapter 20 Neuroethics
- Chapter 21 Ethical Issues in Clinical Genetics
- Chapter 22 Challenging Issues in Surgical Ethics
- Chapter 23 Psychiatric Ethics
- Section 3 Policy Development and Organizational Issues
- Index
- References
Summary
Ethical issues in genetics are studied and addressed under the rubric of what is commonly referred to as “ELSI”: the Ethical, Legal, and Social Implications of genetics. In this chapter, we will focus on a subset of ELSI issues in genetic medicine that surround common applications of genetics in general clinical settings. Common ethical issues arising for healthcare ethics committee (HEC) members from genetic technology gravitate toward concerns to assure that genetic testing results are utilized in ethically appropriate ways to identify risk, and develop treatment or health maintenance plans consistent with patient values. This will most commonly take the general form of: (1) protecting against harms that are motivated by unreliable results; (2) promoting informed consent by addressing misunderstanding, misapplication, or unwarranted reaction to genetic testing results on the part of either patients, their families, or members of the healthcare team; or (3) assuring that patient privacy is maintained and applied in appropriate circumstances.
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- Guidance for Healthcare Ethics Committees , pp. 183 - 190Publisher: Cambridge University PressPrint publication year: 2022