Hostname: page-component-8448b6f56d-42gr6 Total loading time: 0 Render date: 2024-04-23T05:22:06.995Z Has data issue: false hasContentIssue false

The Picture Theory of Disability

Published online by Cambridge University Press:  05 April 2023

Steven J. Firth*
Affiliation:
Department of Social and Moral Philosophy, University of Helsinki, Helsinki, Finland

Abstract

The leading models of disability struggle to fully encompass all aspects of “disability.” This difficulty arises, the author argues, because the models fundamentally misunderstand the nature of disability. Current theoretical approaches to disability can be understood as “nounal,” in that they understand disability as a thing that is caused or embodied. In contrast, this paper presents an adverbial perspective on disability, which shows that disability is experienced as a personally irremediable impediment to daily-living tasks or goals-like-ours. The picture theory of disability technically constitutes a species of relational approach because its analysis references the interplay between an individual and their environment; it differs from other relational accounts, however, by interpreting disability as a certain kind of negative experience—rather than a function of that relationship. This purely descriptive theory makes no normative claims about disability and operates as both a mechanism for the evaluation of the experience of disability and a heuristic device for the proper interpretation of disability. When disability is reframed in this way, the theory offers a particularist perspective which shows if, when, where, and how disability is experienced.

Type
Research Article
Copyright
© The Author(s), 2023. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Notes

1. Firth, SJ. The Picture Theory of Disability [dissertation]. Lethbridge, AB: University of Lethbridge; 2015 Google Scholar.

2. The theory presented here is not the first phenomenological or ‘experience-based’ account of disability, see Martiny, K. How to develop a phenomenological model of disability. Medicine, Health Care, and Philosophy Online 2015;18:553–65. doi:10.1007/s11019-015-9625-xCrossRefGoogle ScholarPubMed. The picture theory of disability improves on this and other ‘experience-based’ accounts by providing a means of connecting an individual’s experience to reality and by developing a mechanism to blend a subjective experience with an objective analysis.

3. Heavy, D, The Disabled Century [TV film]. London: BBC; 1999 Google Scholar.

4. Tøssebro, J. Introduction to the special issue: Understanding disability. Scandinavian Journal of Disability Research 2004;6(1):37. doi:10.1080/15017410409512635CrossRefGoogle Scholar.

5. Savulescu, J, Kahane, G. Disability: A welfarist approach. In: Brownlee, K, Cureton, A, eds. Disability and Disadvantage. Oxford: Oxford University Press; 2009:1453 Google Scholar.

6. Boorse, C. Health as a theoretical concept. Philosophy of Science 1977;44(4):542 CrossRefGoogle Scholar.

7. See note 6, Boorse 1977, at 542.

8. See note 1, Firth 2015.

9. Shakespeare, T. The social model of disability. In: Davis, LJ, ed. The Disability Studies Reader. New York: Routledge; 2010:266–73Google Scholar.

10. See note 1, Firth 2015.

11. Shakespeare, T. Social models of disability and other life strategiesScandinavian Journal of Disability Research 2004;6(1):821. doi:10.1080/15017410409512636CrossRefGoogle Scholar.

12. Disability-studies.leeds.ac.uk. Leeds: Leeds University Library; 1997. UPIAS & The Disability Alliance. Fundamental principles of disability; [cited 2022 Oct 8];0–34; available at https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/UPIAS-fundamental-principles.pdf (last accessed 13 March 2023).

13. See note 12, UPIAS & The Disability Alliance 1997, at 14.

14. Shakespeare, T. Disability Rights and Wrongs Revisited. 2nd ed. Abingdon: Oxon; 2014 Google Scholar.

15. Oliver, M. Conductive education: If it wasn’t so sad it would be funny. Disability, Handicap and Society 1989;4(2):197200. doi:10.1080/02674648966780191CrossRefGoogle Scholar.

16. Oliver, M. Social Work with Disabled People. Basingstoke: McMillan Education; 1983. doi:10.1007/978-1-349-86058-6_7CrossRefGoogle Scholar.

17. Oliver, M. The Politics of Disablement. London: Red Globe Press; 1990. doi:10.1007/978-1-349-20895-1CrossRefGoogle Scholar.

18. Oliver, M. Understanding Disability: From Theory to Practice. London: Red Globe Press; 1990. doi:10.1007/978-1-349-24269-6Google Scholar.

19. Finkelstein, V. Attitudes and Disabled People. New York: World Rehabilitation Fund; 1980 Google Scholar.

20. Finkelstein, V. To deny or not to deny disability. In: Brechin, A, Liddiard, P, Swain, J, eds. Handicap in a Social World. Sevenoaks: Hodder and Stoughton; 1981 Google Scholar.

21. Independent Living Institute. Farsta, Sweden: Finklestein V; 2001. A personal journey into disability politics; [cited 2014 Dec 18]; available at http://www.independentliving.org/docs3/finkelstein01a.pdf.

22. An example of this empowerment can be seen in the adoption of the locution ‘disabled person”’ in preference to the American ‘person with disability.’ In the former, the person receives the disability, while in the latter, disability is a quantifiable property of the individual.

23. Shakespeare, T, Watson, N. The social model of disability: An outdated ideology? Research in Social Science and Disability 2002;9. doi:10.1016/S1479-3547(01)80018-XGoogle Scholar.

24. See note 23, Shakespeare, Watson 2002.

25. See note 1, Firth 2015.

26. Crow, L. Including all our lives. In: Morris, J, ed. Encounters with Strangers: Feminism and Disability. London: Women’s Press; 1996 Google Scholar.

27. Morris, J. Pride against Prejudice. London: Women’s Press; 1996 Google Scholar.

28. French, S. Disability, impairment or something in between? In: Swain, J, Finkelstein, V, French, S, Oliver, M, eds. Disabling Barriers, Enabling Environments. London: OUP/Sage; 1993 Google Scholar.

29. See note 11, Shakespeare 2004, at 13.

30. See note 11, Shakespeare 2004, at 17–8.

31. Shakespeare, T, Watson, N. The social model of disability: An outdated ideology? In: Barnartt, SN , Altman, BM, eds. Exploring Theories and Expanding Methodologies: Where Are We and Where Do We Need to Go? Research in Social Science and Disability. Vol. 2. Amsterdam: JAI; 2001:928. doi:10.1016/S1479-3547(01)80018-X.CrossRefGoogle Scholar

32. Silvers, A. An essay on modeling: The social model of disability. In: Ralston, DC, Ho, J, eds. Philosophical Reflections on Disability. London: Springer; 2010:1936. doi:10.1007/978-90-481-2477-0_2Google Scholar.

33. See note 11, Shakespeare 2004.

34. See note 32, Silvers 2010.

35. See note 14, Shakespeare 2014.

36. Amundson, Ron. Amundson disability rights: Do we really mean it? In: Ralston, DC, Ho, J, eds. Philosophical Reflections on Disability. London: Springer; 2010:169–82. doi:10.1007/978-90-481-2477-0_10Google Scholar.

37. Bethke, EJ. Neither victims nor heroes: Reflections from a polio person. In: Ralston, DC, Ho, J, eds. Philosophical Reflections on Disability. London: Springer; 2010:241–50. doi:10.1007/978-90-481-2477-0_15Google Scholar.

38. Charlton, J. Nothing about Us without Us. Oakland: University of California Press; 1998 CrossRefGoogle Scholar.

39. Danieli, A, Woodhams, C. Emancipatory research methodology and disability: A critique. International Journal of Social Research Methodology 2005;8(4):281–96CrossRefGoogle Scholar.

40. Engel, GL. The need for a new medical model: A challenge for biomedicine. Science, New Series 1977;196(4286):129–36Google Scholar.

41. See note 19, Finklestein 1980.

42. Institute of Medicine (US), Committee on Disability in America. The Future of Disability in America. Washington, DC: National Academies Press; 2007. doi:10.17226/11898.

43. Jackson, MA. Models of disability and human rights: Informing the improvement of built environment accessibility for people with disability at neighborhood scale? Laws 2018;7:10. doi:10.3390/laws7010010 CrossRefGoogle Scholar.

44. See note 14, Shakespeare 2014.

45. See note 14, Shakespeare 2014.

46. Now The National Academy of Medicine.

47. See note 32, Silvers 2010, at 21.

48. See note 42, Institute of Medicine (US), 2007.

49. Vehmas, S. Philosophy and science: The axes of evil in disability studies? Journal of Medical Ethics 2008;43:21–3. doi:10.1136/jme.2006.019968 CrossRefGoogle Scholar.

50. Tøssebro, J. Introduction to the special issue: Understanding disability. Scandinavian Journal of Disability Research 2004;6(1):37. doi: 10.1080/15017410409512635CrossRefGoogle Scholar.

51. Gustavasson, A. The role of disability research—Springboard or straight-jacket? Scandinavian Journal of Disability Research 2004;6(1):5570. doi:10.1080/15017410409512639 CrossRefGoogle Scholar.

52. Nirje, B. The normalisation principle and its human management implications. SRV-VRS: The International Social Role Valorization Journal 1994;1(2):1923 Google Scholar.

53. Governor’s Planning Council on Developmental Disabilities. Changing Patterns in Residential Services for the Mentally Retarded. Washington, DC: President’s Committee on Mental Retardation; 1969:181–95Google Scholar.

54. Nirji extended the principle to include disabled people in 1985. See Perrin, B. The original “Scandinavian” normalization principle and its continuing relevance for the 1990s. In: Flynn, RJ, Lemay, RA, eds. A Quarter Century of Normalization and Social Role Valorization. Ottawa: University of Ottawa Press; 1999:181–96CrossRefGoogle Scholar. available at http://books.openedition.org/uop/2463.

55. Langøren, E, Magnus, E. We are just ordinary people working hard to reach our goals! Disabled students’ participation in Norwegian higher education. Disability & Society 2018;33(4):598617. doi: 10.1080/09687599.2018.1436041 CrossRefGoogle Scholar.

56. See note 51, Gustavasson 2004.

57. Söder M. Specialpedagogisk forskning mellan det kliniska och det kontextuella [Special Education Research: Between the clinical and the contextual perspectives]. Bodø: Nordlandsforskning; 1999:NF8/99.

58. Amundson, R. Disability, handicap, and the environment. Journal of Social Philosophy 1992;23:104. doi:10.1111/j.1467-9833.1992.tb00489.xCrossRefGoogle ScholarPubMed. Emphasis in the original.

59. Amundson, R. Against normal function. Studies in History and Philosophy of Science 2000;31(1):33. doi:10.1016/s1369-8486(99)00033-3CrossRefGoogle Scholar.

60. See note 36, Amundson 2010.

61. See note 5, Savulescu, Kahane 2011.

62. World Health Organisation. International Classification of Functioning, Disability and Health. Geneva: World Health Organisation; 2001 Google Scholar.

63. Shakespeare refers to the British social model as the ‘strong social model.’ See note 29, Shakespeare 2004, at 9.

64. See note 50, Tøssebro 2004, at 4.

65. Nordenfelt, L. On the notions of disability and handicap. International Journal of Social Welfare 1993;2(1):1724 Google Scholar.

66. See note 65, Nordenfelt 1993, at 23. Note that Nordenfelt was writing with the North American terminology, which has become less dominant in the literature. In order to make sense of his position, exchange ‘disability’ for ‘impairment’ and ‘handicap’ for ‘disability.’

67. See note 58, Amundson 1992, at 110. Emphasis in the original.

68. Graef R, Nielsen B. Brett: A Life with No Arms [Documentary]. London: BBC; 2015:59 min., colour.

69. See note 68, Graef 2015.

70. The social model also has difficulty extending to able-bodied pianists who can no longer play due to severe arthritis. According to the model, such pianists are not disabled, as pianos are clearly designed for them; nevertheless their well-being is clearly diminished by no longer being able to play.

71. It should be noted that Nielsen is not a solitary case, see Cooper R. Can it be a good thing to be deaf? Journal of Medicine & Philosophy 2007;32(6):563–83. doi:10.1080/03605310701680940; and YouTube. Talks at Google: Chris Koch: “If I Can….” 2015 Sept 3 [cited 2015 Sept 4]; available at https://www.youtube.com/watch?v=RvQzJIB8Sn0.

72. Behance.net. Behance: Adobe [cited 2022 Nov 2]. Homer Rutledge; Dyslexia Poster; available at https://www.behance.net/gallery/2252974/Dyslexia-Poster.

73. See note 1, Firth 2015.

74. See note 1, Firth 2015.

75. See note 1, Firth 2015, at 84.

76. The written transcript provides a much weaker analysis, as it can struggle to represent the emotional aspect of the experience. It is perhaps only useful at some preliminary stage.

77. Exactly what constitutes a Wittgensteinian ‘object’ remains a matter of debate in the literature. See Johnston, C. Tractarian objects and logical categories. Synthese 2008;167(1):147. doi:10.1007/s11229-008-9307-9 Google Scholar; Griffin, J. Wittgenstein’s Logical Atomism. Oxford: Clarendon Press; 1964 Google Scholar.

78. Broadly, a set of layered propositions that represent several states of affairs.

79. Wittgenstein, L. Tractatus Logico-Philosophicus. Pears, D, BF, McGuinness, trans. Abingdon: Routledge; 2010:10 Google Scholar.

80. For obvious reasons, the box must be opened to determine the status of the cat.

81. The image is a screenshot taken from the Doctor Who 50th Anniversary Special—see Steven, Moffat. Doctor Who; The Day of the Doctor. Film. London: BBC; 2013 Google Scholar. I selected this image because its austere composition makes it suitable for a basic object and relation analysis. The colour analysis (including the goal of the activity) is taken from the events depicted in the episode.

82. Hume D. A treatise on human nature. In: Norton DF, Norton MJ, eds. Oxford: Oxford University Press; 2007; Hume D. A Treatise of Human Nature. 2nd ed. In: Selby-Bigge LA, ed., Nidditch PH, revisor. Oxford: Clarendon Press; 1978:T, 2.1.11.2; SBN 316.

83. See note 82, Hume 1978, T, 2.2.7.2; SBN 369.

84. Etter D, Laith Majid, a Syrian refugee, holding his son and daughter, arrives on the Greek island of Kos. New York Times, 2015 Aug 15.

85. See note 82, Hume 1978, 2.1.11.2; SBN 316.

86. Keysers, C. The discovery of mirror neurons. In: The Empathic Brain: How the Discovery of Mirror Neurons Changes Our Understanding of Human Nature. Lexington, KY: Social Brain Press; 2011:114 Google Scholar.

87. Mendez, MF. The neurobiology of moral behaviour: Review and neuropsychiatric implications. CNS Spectrum 2009;3(11):608–20. doi: 10.1017/S1092852900023853 CrossRefGoogle Scholar.

88. See note 86, Keysers 2011.

89. See 87, Mendez 2009, at 3. Emphasis mine.

90. Other authors (see, e.g., Marsh, AA, Stoycos, SA, Brethel-Haurwitz, KM and Cardinale, EM Neural and cognitive characteristics of extraordinary altruists. Proceedings of the National Academy of Sciences 2014;111(42). doi:10.1073/pnas.1408440111 CrossRefGoogle ScholarPubMed) believe that altruistic behavior (including the desire to intercede to reduce frustration) is instead a function of increased amygdala volume—noting that fearful expressions, in particular, “appear particularly likely to elicit caring responses in perceivers.”

91. While some of the motivation to act in this scenario would have been from politeness, something must have triggered the need for a polite inquiry—likely the presumption of the difficulty and assumed goal of entry. While they may have extended the same courtesy to someone who was lost, there would have been no need to have ‘resolved’ the entrance issue.

92. See note 1, Firth 2015.

93. I use this term loosely; it does not relate to the Husserlian movement.

94. See note 5, Savulescu, Kahane, 2011.

95. It is possible to extrapolate generalised and broad-spectrum ameliorations from those case in which a similar adjustment has been made for multiple persons with a certain set of experiences of disability. In as much, it is possible for the theory to advocate for something like ‘chirping crosswalks’ by noting that such a modification has improved the experiences of many elderly, blind, or other cross-walk users.

96. See note 5, Savulescu, Kahane 2011, at 43. Emphasis mine.