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The London field trial for hoarding disorder

Published online by Cambridge University Press:  10 August 2012

D. Mataix-Cols*
Affiliation:
King's College London, Institute of Psychiatry, London, UK
D. Billotti
Affiliation:
King's College London, Institute of Psychiatry, London, UK
L. Fernández de la Cruz
Affiliation:
King's College London, Institute of Psychiatry, London, UK
A. E. Nordsletten
Affiliation:
King's College London, Institute of Psychiatry, London, UK
*
*Address for correspondence: D. Mataix-Cols, Ph.D., Departments of Psychosis Studies and Psychology, King's College London, Institute of Psychiatry, PO Box 69, De Crespigny Park, London SE5 8AF, UK. (Email: david.mataix-cols@kcl.ac.uk)

Abstract

Background

A new diagnostic category, hoarding disorder (HD), has been proposed for inclusion in DSM-5. This study field-tested the validity, reliability and perceived acceptability of the proposed diagnostic criteria for HD.

Method

Fifty unselected individuals with prominent hoarding behavior and 20 unselected, self-defined ‘collectors’ participated in thorough psychiatric assessments, involving home visits whenever possible. A semi-structured interview based on the proposed diagnostic criteria for HD was administered and scored by two independent raters. ‘True’ diagnoses were made by consensus according to the best-estimate diagnosis procedure. The percentage of true positive HD cases (sensitivity) and true negative HD cases (specificity) was calculated, along with inter-rater reliability for the diagnosis and each criterion. Participants were asked about their perceptions of the acceptability, utility and stigma associated with the new diagnosis.

Results

Twenty-nine (58%) of the hoarding individuals and none of the collectors fulfilled diagnostic criteria for HD. The sensitivity, specificity and inter-rater reliability of the diagnosis, and of each individual criterion and the specifiers, were excellent. Most participants with HD (96%) felt that creating a new disorder would be very or somewhat acceptable, useful (96%) and not too stigmatizing (59%).

Conclusions

The proposed HD criteria are valid, reliable and perceived as acceptable and useful by the sufferers. Crucially, they seem to be sufficiently conservative and unlikely to overpathologize normative behavior. Minor changes in the wording of the criteria are suggested.

Type
Original Articles
Copyright
Copyright © Cambridge University Press 2012

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References

APA (2010). DSM-5 Development. Proposed Draft Revisions to DSM Disorders and Criteria (www.dsm5.org). Accessed 15 February 2012. American Psychiatric Association: Arlington, VA.Google Scholar
Eisen, JL, Phillips, KA, Baer, L, Beer, DA, Atala, KD, Rasmussen, SA (1998). The Brown Assessment of Beliefs Scale: reliability and validity. American Journal of Psychiatry 155, 102108.CrossRefGoogle ScholarPubMed
Frost, RO, Hartl, TL (1996). A cognitive-behavioral model of compulsive hoarding. Behavioural Research and Therapy 34, 341350.CrossRefGoogle ScholarPubMed
Frost, RO, Steketee, G, Grisham, J (2004). Measurement of compulsive hoarding: saving inventory-revised. Behavioural Research and Therapy 42, 11631182.CrossRefGoogle ScholarPubMed
Frost, RO, Steketee, G, Tolin, D, Renaud, S (2008). Development and validation of the Clutter Image Rating. Journal of Psychopathology and Behavioral Assessment 30, 193203.CrossRefGoogle Scholar
Frost, RO, Steketee, G, Williams, L (2002). Compulsive buying, compulsive hoarding, and obsessive-compulsive disorder. Behavior Therapy 33, 201214.CrossRefGoogle Scholar
Frost, RO, Tolin, DF, Steketee, G, Fitch, KE, Selbo-Bruns, A (2009). Excessive acquisition in hoarding. Journal of Anxiety Disorders 23, 632639.CrossRefGoogle ScholarPubMed
Landau, D, Iervolino, AC, Pertusa, A, Santo, S, Singh, S, Mataix-Cols, D (2011). Stressful life events and material deprivation in hoarding disorder. Journal of Anxiety Disorders 25, 192202.CrossRefGoogle ScholarPubMed
Landis, JR, Koch, GG (1977). An application of hierarchical kappa-type statistics in the assessment of majority agreement among multiple observers. Biometrics 33, 363374.CrossRefGoogle ScholarPubMed
Leckman, JF, Sholomskas, D, Thompson, WD, Belanger, A, Weissman, MM (1982). Best estimate of lifetime psychiatric diagnosis: a methodological study. Archives of General Psychiatry 39, 879883.CrossRefGoogle ScholarPubMed
Lecrubier, Y, Sheehan, DV, Weiller, E, Amorim, P, Bonora, I, Harnett Sheehan, K, Janavs, J, Dunbar, GC (1997). The Mini International Neuropsychiatric Interview (MINI). A short diagnostic structured interview: reliability and validity according to the CIDI. European Psychiatry 12, 224231.CrossRefGoogle Scholar
Marks, I (1986). Behavioural Psychotherapy. John Wright: Bristol.Google Scholar
Mataix-Cols, D, Fernández de la Cruz, L, Nakao, T, Pertusa, A (2011). Testing the validity and acceptability of the diagnostic criteria for Hoarding Disorder: a DSM-5 survey. Psychological Medicine 41, 24752484.CrossRefGoogle ScholarPubMed
Mataix-Cols, D, Frost, RO, Pertusa, A, Clark, LA, Saxena, S, Leckman, JF, Stein, DJ, Matsunaga, H, Wilhelm, S (2010). Hoarding disorder: a new diagnosis for DSM-V? Depression and Anxiety 27, 556572.CrossRefGoogle ScholarPubMed
Mataix-Cols, D, Pertusa, A (2012). Annual Research Review: Hoarding disorder – potential benefits and pitfalls of a new mental disorder. Journal of Child Psychology and Psychiatry 53, 608618.CrossRefGoogle ScholarPubMed
Mundt, J, Marks, I, Shear, M, Greist, J (2002). The Work and Social Adjustment Scale: a simple measure of impairment in functioning. British Journal of Psychiatry 180, 461464.CrossRefGoogle Scholar
Nordsletten, AE, Mataix-Cols, D (2012). Hoarding versus collecting: where does pathology diverge from play? Clinical Psychology Review 32, 165176.CrossRefGoogle ScholarPubMed
Pertusa, A, Bejerot, S, Eriksson, J, Fernández de la Cruz, L, Bonde, S, Russell, A, Mataix-Cols, D (2012). Do patients with hoarding disorder have autistic traits? Depression and Anxiety 29, 210218.CrossRefGoogle ScholarPubMed
Phillips, KA, Stein, DJ, Rauch, SL, Hollander, E, Fallon, BA, Barsky, A, Fineberg, N, Mataix-Cols, D, Ferrao, YA, Saxena, S, Wilhelm, S, Kelly, MM, Clark, LA, Pinto, A, Bienvenu, OJ, Farrow, J, Leckman, J (2010). Should an obsessive-compulsive spectrum grouping of disorders be included in DSM-V? Depression and Anxiety 27, 528555.CrossRefGoogle ScholarPubMed
Sheehan, DV, Lecrubier, Y, Sheehan, KH, Amorim, P, Janavs, J, Weiller, E, Hergueta, T, Baker, R, Dunbar, GC (1998). The Mini-International Neuropsychiatric Interview (M.I.N.I.): the development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. Journal of Clinical Psychiatry 59 (Suppl. 20), 2233; quiz 34-57.Google ScholarPubMed
Steketee, G, Frost, R, Kyrios, M (2003). Cognitive aspects of compulsive hoarding. Cognitive Therapy and Research 27, 463479.CrossRefGoogle Scholar
Steketee, G, Frost, RO, Tolin, DF, Rasmussen, J, Brown, TA (2010). Waitlist-controlled trial of cognitive behavior therapy for hoarding disorder. Depression and Anxiety 27, 476484.CrossRefGoogle ScholarPubMed
Timpano, KR, Exner, C, Glaesmer, H, Rief, W, Keshaviah, A, Brahler, E, Wilhelm, S (2011). The epidemiology of the proposed DSM-5 hoarding disorder: exploration of the acquisition specifier, associated features, and distress. Journal of Clinical Psychiatry 72, 780786; quiz 878–879.CrossRefGoogle ScholarPubMed
Tolin, DF, Fitch, KE, Frost, RO, Steketee, G (2010 a). Family informants' perceptions of insight in compulsive hoarding. Cognitive Therapy and Research 34, 6981.CrossRefGoogle Scholar
Tolin, DF, Frost, RO, Steketee, G (2010 b). A brief interview for assessing compulsive hoarding: the Hoarding Rating Scale-Interview. Psychiatry Research 178, 147152.CrossRefGoogle ScholarPubMed
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