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“It's not about treatment, it's how to improve your life”: The lived experience of occupational therapy in palliative care

Published online by Cambridge University Press:  15 June 2015

Sarah Badger ,
Rod Macleod  and
Anne Honey
Sarah Badger*
Affiliation:
Faculty of Health Sciences, The University of Sydney, Sydney, Australia
Rod Macleod
Affiliation:
Northern Clinical School, The University of Sydney, and HammondCare, Sydney, Australia
Anne Honey
Affiliation:
Faculty of Health Sciences, The University of Sydney, Sydney, Australia
*
Address correspondence and reprint requests to: Sarah Badger, 67 The Bulwark, Castlecrag NSW 2068, Australia. E-mail: sbad5908@uni.sydney.edu.au
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Abstract

Objectives:

A key aim of palliative care is to improve the quality-of-life of people with a life-threatening illness. Occupational therapists are well positioned to contribute to this aim due to their broad range of interventions, client-centeredness and focus on occupation. However, there is a limited understanding of how occupational therapy contributes to the end-of-life experience, which is crucial to providing optimal care. The aim of this study is to investigate the lived experience of occupational therapy in palliative care for people with a life-threatening illness.

Method:

A hermeneutic interpretive phenomenological approach was adopted. Semi-structured interviews were conducted with eight participants recruited from inpatient and outpatient sectors of a specialist palliative care hospital in Sydney, Australia.

Results:

The two themes developed from participant responses were: (1) occupational therapy provides comfort and safety and (2) trusting the occupational therapist to know what is needed.

Significance of results:

This study gives insight into the ways in which people with a life-threatening illness experience occupational therapy in palliative care. In addition, it provides a starting point to guide practice that is attentive to the needs of people with a life-threatening illness at end-of-life, thus enhancing client-centered care.

Keywords

Occupational therapyPalliative careQuality-of-lifePatient satisfactionphenomenology
Type
Original Articles
Information
Palliative & Supportive Care , Volume 14 , Issue 3 , June 2016 , pp. 225 - 231
Copyright
Copyright © Cambridge University Press 2015 

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References

REFERENCES

Abernethy, A. P., Shelby-James, T., Fazekas, B. S., Woods, D. & Currow, D. C. (2005). The Australia-modified Karnofsky performance status (AKPS) scale: A revised scale for contemporary palliative care clinical practice. BMC Palliative Care, 4, 7.CrossRefGoogle Scholar
American Occupational Therapy Association. (2011). The role of occupational therapy in end-of-life care. American Journal Occupational Therapy, 65, S66–S75.CrossRefGoogle Scholar
Boutin-Lester, P. & Gibson, R. W. (2002). Patients' perceptions of home health occupational therapy. Australian Occupational Therapy Journal, 4, 146–154.CrossRefGoogle Scholar
Carter, H., MacLeod, R., Brander, P. & McPherson, K. (2004). Living with a terminal illness: Patients' priorities. Journal of Advanced Nursing, 45, 611–620.CrossRefGoogle ScholarPubMed
Clarke, C. (2009). An introduction to interpretive phenomenological analysis: A useful approach for occupational therapy research. British Journal of Occupational Therapy, 72, 37–39.CrossRefGoogle Scholar
Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In Existential phenomenologial alternatives for psychology, Valle, R. S. & King, M. (ed.). New York: Oxford University Press, 48–71.Google Scholar
Cole, B. & McLean, V. (2003). Therapeutic relationships re-defined. Occupational Therapy in Mental Health, 19, 33–56.CrossRefGoogle Scholar
Creswell, J. W. (2007). Qualitative Inquiry and Research Design: Choosing Among Five Approaches. Thousand Oaks: Sage Google Scholar
Davis, J., Asuncion, M., Rabello, J., Silangcruz, C. & van Dyk, E. (2013). A qualitative review of occupational therapists' listening behaviours and experiences when caring for patients in palliative or hospice. OTJR: Occupation, Participation and Health, 33, 12–20.Google Scholar
Egan, M. (2003). Occupational therapy at home and in the community for people and families in palliative care. Occupational Therapy Now, 5.Google Scholar
Finlay, L. (2011). Phenomenology for Therapists: Researching the Lived World. West Sussex: Wiley-Blackwell.CrossRefGoogle Scholar
Gruenewald, D. A. & White, E. J. (2006). The illness experience of older adults near the end of life: A systematic review. Anesthesiology Clinics of North America, 24, 163–180.CrossRefGoogle ScholarPubMed
Hack, T., Chochinov, H., Hassard, T., Kristjanson, L., McClement, S. & Harlos, M. (2004). Defining dignity in terminally ill cancer patients: A factor-analytic approach. Psycho-Oncology, 13, 700–708.CrossRefGoogle ScholarPubMed
Hasselkus, B. R. (2002). The Meaning of Everyday Occupation. Thorofare: Slack.Google Scholar
Kealey, P. & McIntyre, I. (2005). An evaluation of the domiciliary occupational therapy service in palliative cancer care in a community trust: A patient and carers perspective. European Journal of Cancer Care, 14, 232–243.CrossRefGoogle Scholar
Keesing, S. & Rosenwax, L. (2011). Is occupation missing from occupational therapy in palliative care? Australian Occupational Therapy Journal, 58, 329–336.CrossRefGoogle ScholarPubMed
La Cour, K., Johannessen, H. & Josephsson, S. (2009). Activity and meaning making in everyday lives of people with advanced cancer. Palliative and Supportive Care, 7, 469–479.CrossRefGoogle ScholarPubMed
La Cour, K., Josephsson, S. & Luborsky, M. (2005). Creating connections to life during life-threatening illness: Creative activity experienced by elderly people and occupational therapists. Scandinavian Journal of Occupational Therapy, 12, 98–109.CrossRefGoogle ScholarPubMed
La Cour, K., Josephsson, S., Tishelman, C. & Nygard, L. (2007). Experiences of engagement in creative activity at a palliative care facility. Palliative and Supportive Care, 5, 241–250.CrossRefGoogle Scholar
Lattanzi, J. B., Giuliano, S., Meehan, C., Sander, B., Wootten, R. & Zimmerman, A. (2010). Recommendations for physical and occupational therapy practice from the perspective of clients undergoing therapy for breast cancer-related impairments. Journal of Allied Health, 39, 257–264.Google ScholarPubMed
Lyons, M., Orozovic, N., Davis, J. & Newman, J. (2002). Doing-being-becoming: Occupational experiences of persons with life-threatening illnesses. American Journal Occupational Therapy, 56, 285–295.CrossRefGoogle ScholarPubMed
McKechnie, R., MacLeod, R. & Keeling, S. (2007). Facing uncertainty: The lived experience of palliative care. Palliative and Supportive Care, 5, 367–376.CrossRefGoogle ScholarPubMed
Orpen, N. & Harris, J. (2010). Patients' perceptions of preoperative home-based occupational therapy and/or physiotherapy interventions prior to total hip replacements. British Journal of Occupational Therapy, 73, 461–469.CrossRefGoogle Scholar
Palliative Care Australia. (2003). Palliative Care Service Provision in Australia: A Planning Guide. Canberra: PCA.Google Scholar
Palmadottir, G. (2006). Client-therapist relationships: Experiences of occupational therapy clients in rehabilitation. British Journal of Occupational Therapy, 69, 394–401.CrossRefGoogle Scholar
Park Lala, A. & Kinsella, E. A. (2011). A phenomenological inquiry into the embodied nature of occupation at end of life. Canadian Journal of Occupational Therapy, 78, 246–254.CrossRefGoogle Scholar
Patton, M. Q. (2002). Qualitative Evaluation and Research Methods. Newbury Park: Sage Google Scholar
Pearson, E., Todd, J. & Futcher, J. M. (2007). How can occupational therapists measure outcomes in palliative care? Palliative Medicine, 21, 477–485.CrossRefGoogle ScholarPubMed
Punwar, J. & Peloquin, M. (2000). Occupational Therapy: Principles and Practice. Philadelphia: Lippincott.Google Scholar
Saarik, J. & Hartley, J. (2010). Living with cancer-related fatigue: Developing an effective management programme. International Journal of Palliative Nursing, 16, 6–12.CrossRefGoogle ScholarPubMed
Scialla, S., Cole, R., Scialla, T., Bednarz, L. & Scheerer, J. (2000). Rehabilitation for elderly patients with cancer asthenia: Making a transition to palliative care. Journal of Palliative Medicine, 14, 121–127.CrossRefGoogle ScholarPubMed
Smith, J. A. & Osborn, M. (2008). Interpretive phenomenological analysis. In Qualitative psychology: A Practical Guide to Research Methods. London: Sage.Google Scholar
Taylor, R. R. (2008). The Intentional Relationship: Occupational Therapy and the Use of Self. Philadelphia: FA Davis.Google Scholar
Townsend, E. (2003). Reflections on power and justice in enabling occupation. Canadian Journal of Occupational Therapy, 70, 74–87.CrossRefGoogle ScholarPubMed
van Manen, M. (1997). Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. London: The Althouse Press.Google Scholar
Vrkljan, B. & Miller-Polgar, J. (2001). Meaning of occupational engagement in life-threatening illness: A qualitative pilot project. The Canadian Journal of Occupational Therapy, 68, 237–246.CrossRefGoogle ScholarPubMed
Wojnar, D. & Swanson, K. (2007). Phenomenology: An exploration. Journal of Holistic Nursing, 25, 172–180.CrossRefGoogle ScholarPubMed
World Federation of Occupational Therapy. (2011). WFOT statement on occupational therapy: WFOT.Google Scholar
World Health Organisation. (2002). National cancer control program: Policies and managerial guideline. Geneva: WHO.Google Scholar
Yoshioka, H. (1994). Rehabilitation for the terminal cancer patient. American Journal of Physical Medicine and Rehabilitation, 73, 199–206.CrossRefGoogle ScholarPubMed