Hostname: page-component-f7d5f74f5-4fqgl Total loading time: 0 Render date: 2023-10-03T12:17:30.255Z Has data issue: false Feature Flags: { "corePageComponentGetUserInfoFromSharedSession": true, "coreDisableEcommerce": false, "coreDisableSocialShare": false, "coreDisableEcommerceForArticlePurchase": false, "coreDisableEcommerceForBookPurchase": false, "coreDisableEcommerceForElementPurchase": false, "coreUseNewShare": true, "useRatesEcommerce": true } hasContentIssue false

Patient and public involvement: in theory and in practice

Published online by Cambridge University Press:  15 April 2014

A Robinson*
Research Design Service North East, National Institute for Health Research, jointly hosted by the Institute of Health and Society, Newcastle University, and the School of Medicine, Pharmacy and Health, Durham University, UK
Address for correspondence: Mr A Robinson, North of England Commissioning Support, Teesdale House, Westpoint Road, Thornaby, Stockton-on-Tees TS17 6BL, UK E-mail:



You've probably heard of patient and public involvement by now. You may even have ‘involved’ people in your research. But why involve patients, carers and members of the public at all? Is it just another hoop to jump through when preparing a research funding application for submission, or could it actually add something to your research? Could involving patients and members of the public even help you to design and deliver better research, with outcomes focused directly on the needs of your patient group?


This article aims to answer some of these questions. It considers the theory underpinning patient and public involvement. This is followed by practical suggestions and advice to help you develop (or further develop if you already involve people!) patient and public involvement within your own research. There is also a case study to illustrate some of the main points, and extracts written by members of Research Design Service North East Consumer Panels.

Review Article
Copyright © JLO (1984) Limited 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)


1About Involve. In: [14 March 2014]Google Scholar
3Patient and public awareness. In: [14 March 2014]Google Scholar
6Involve. Briefing Notes for Researchers: Involving the Public in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2012Google Scholar
7Involve. Diversity and Inclusion: What's it About and Why is it Important for Public Involvement in Research? Eastleigh: Involve, 2012Google Scholar
8Pathways through participation. Briefing paper number 3 - Who participates? The actors of participation. In: [14 March 2014]Google Scholar
10Burgess-Watson, DL, Lewis, S, Buckley, J. John's cheese sandwich: taking on PPI, with relish. Involve Newsletter 2011;(Autumn):910Google Scholar
11Staley, K. Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2009Google Scholar
13Brett, J, Staniszewska, S, Mockford, C, Seers, K, Herron-Marx, S, Bayliss, H. The PRICOM Study: A Systematic Review of the Conceptualisation, Measurement, Impact and Outcomes of Patient and Public Involvement in Health and Social Care Research. London: UK Clinical Research Collaboration, 2010Google Scholar
14Mockford, C, Staniszewska, S, Griffiths, F, Herron-Marx, S. The impact of patient and public involvement on UK NHS health care: a systematic review. Int J Qual Health Care 2012;24:2838CrossRefGoogle ScholarPubMed
15Staniszewska, S, Brett, J, Mockford, C, Barber, R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. Int J Technol Assess Health Care 2011;27:391–9CrossRefGoogle ScholarPubMed
16Public Involvement Impact Assessment Framework (Piiaf). In: [14 March 2014]Google Scholar
17Ennis, L, Wykes, T. Impact of patient involvement in mental health research: longitudinal study. Brit J Psychiatry 2013;203:381–6CrossRefGoogle ScholarPubMed
19Patient and public involvement in research and research ethics committee review. In: [14 March 2014]Google Scholar
20Involve. Payment for Involvement: A Guide for Making Payments to Members of the Public Actively Involved in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2010Google Scholar
22Developing training and support. In: [14 March 2014]Google Scholar
24NIHR Clinical Research Network structure. In: [14 March 2014]Google Scholar
25New Academic Health Science Networks Announced. In: [14 March 2014]Google Scholar
26Welcome to INVOLVE… In: [14 March 2014]Google Scholar