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Predictors of self- and caregiver-rated quality of life for people with dementia living in the community and in nursing homes in northern Taiwan

Published online by Cambridge University Press:  03 December 2014

Hsiu-Li Huang*
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan Healthy Aging Research Center, Chang Gung University, Tao-Yuan, Taiwan
Li-Chueh Weng
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan
Yu-Hsia Tsai
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan
Yi-Chen (Yulanda) Chiu
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan Healthy Aging Research Center, Chang Gung University, Tao-Yuan, Taiwan
Kang-Hua Chen
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan
Chin-Chang Huang
Affiliation:
Department of Neurology, Chang Gung Memorial Hospital, No. 199, Tun-Hwa North Road, Taipei, 10547Taiwan School of Medicine, Chang Gung University, Tao-Yuan, Taiwan
John Sai-Hung Tang
Affiliation:
Cardinal Tien Hospital, No.362, Chung Cheng Rd., Hsintien Taipei Hsien 23137, Taiwan
Woan-Shyuan Wang
Affiliation:
School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan
*
Correspondence should be addressed to: Hsiu-Li Huang, No. 259, Wen-Hwa 1st Road, Kwei-Shen, Taoyuan 33302, Taiwan. Phone: +886-3-2118800; ext. 5183; Fax: +886-3-2118800-5326. Email: hsiuli@mail.cgu.edu.tw.

Abstract

Background:

Factors affecting quality of life (QOL) ratings for people with dementia (PWD) have been well studied, but few studies have examined the effect of residence on PWD- and caregiver-rated QOL for PWDs. We designed this study to determine the factors related to PWD- and caregiver-rated QOL in dementia as well as factors related to the discrepancy in these ratings.

Methods:

For this cross-sectional study, we analyzed data from a convenience sample of 106 PWD-family caregiver dyads (58 community-dwelling dyads and 48 nursing-home dyads). PWDs’ data included socio-demographic variables, QOL (assessed by the Quality of Life-Alzheimer's Disease [QOL-AD] scale), cognition, dementia severity, depression, comorbidities, and quality of the dyadic relationship. Caregivers’ data included socio-demographic variables, depressive symptoms, and mutuality of the dyadic relationship.

Results:

QOL-AD scores were lower when rated by caregivers than by PWDs. The key factors positively related to both PWD- and caregiver-rated QOL for PWDs were fewer PWD depressive symptoms and higher quality of the PWD-caregiver relationship. The key factors related to the discrepancy in PWD- and caregiver-rated QOL in dementia were PWD residence in a nursing home and lower dementia severity, as well as higher caregiver depression, being an adult child caregiver, and lower caregiver-PWD mutuality.

Conclusion:

Caregiver-rated QOL for PWDs and the discrepancy in rated QOL were significantly associated with PWD residence. If caregiver-rated QOL is needed, the effect of residence of PWD should be taken into consideration. Caregivers’ depressive status and mutuality with PWD must be also carefully assessed.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2014 

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