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Special Issue: Patient and Public Involvement in HTA

April 2021

Guest Editors:

Sophie Söderholm Werkö and Sophie Staniszewska


Editorial

Patient and public involvement in Health Technology Assessment: a new dawn?
Sophie Söderholm Werkö, Sophie Staniszewska
Published online by Cambridge University Press: 12 April 2021, e54


Letters

Letter of support from Professor Gillian Leng CBE, Chief Executive, National Institute for Health and Care Excellence
Gillian Leng
Published online by Cambridge University Press: 12 April 2021, e49


Letter of support from Eric Low, Director, Eric Low Consulting, Edinburgh, UK
Eric Low
Published online by Cambridge University Press: 29 January 2021, e32


Commentaries

Mind the evidence gap: the use of patient-based evidence to create “complete HTA” in the twenty-first century
Sophie Staniszewska, Sophie Söderholm Werkö
Published online by Cambridge University Press: 22 March 2021, e46


Rapid qualitative evidence syntheses (rQES) in health technology assessment: experiences, challenges, and lessons
Umair Majid, Laura Weeks
Published online by Cambridge University Press: 09 October 2020, e14


Expertise, experience, and excellence. Twenty years of patient involvement in health technology assessment at NICE: an evolving story
Laura Norburn, Lizzie Thomas
Published online by Cambridge University Press: 10 November 2020, e15


Patient involvement in relative effectiveness assessments in the European Network for Health Technology Assessment
Ida Kristin Ørjasæter Elvsaas, Sabine Ettinger, Anne Willemsen
Published online by Cambridge University Press: 20 January 2021, e24


Scottish Health Technologies Group: enhancing patient engagement
James Angus Stewart, Edward Clifton, Karen Macpherson, Nikolina Angelova, Graeme Morrison
Published online by Cambridge University Press: 20 January 2021, e21


Pilot approach to analyzing patient and citizen involvement in health technology assessment in four diverse low- and middle-income countries
Anke-Peggy Holtorf, Debjani Mueller, M. Sharmila A. Sousa, Lauren Pretorius, Kalman Emry Wijaya, Sylvester Adeyemi, Dipen Ankleshwaria
Published online by Cambridge University Press: 25 January 2021, e1


Development of an international template to support patient submissions in Health Technology Assessments
Nigel Cook, Heidi Livingstone, Jennifer Dickson, Louise Taylor, Kate Morgan, Martin Coombes, Sally Wortley, Elisabeth Oehrlein, María José Vicente-Edo, Franz Waibel, Barry Liden
Published online by Cambridge University Press: 01 April 2021, e50


Policy

The rationale and design of public involvement in health-funding decision making: focus groups with the Canadian public
Edilene Lopes, Jackie Street, Tania Stafinski, Tracy Merlin, Drew Carter
Published online by Cambridge University Press: 05 August 2020, pp. 592-598


Methods

Evaluation of patient involvement strategies in health technology assessment in Spain: the viewpoint of HTA researchers
Ana Toledo-Chávarri, Yolanda Triñanes Pego, Eva Reviriego Rodrigo, Nora Ibargoyen Roteta, Blanca Novella-Arribas, María José Vicente Edo, Patricia Gavín Benavent, Elisa Puigdomenech, Juan Máximo Molina Linde
Published online by Cambridge University Press: 11 September 2020, e25


Development of a decisional flowchart for meaningful patient involvement in Health Technology Assessment
Ana Toledo-Chávarri, Marie-Pierre Gagnon, Yolanda Álvarez-Pérez, Lilisbeth Perestelo-Pérez, Yolanda Triñanes Pego, Pedro Serrano Aguilar, On behalf of the Patient Involvement Interest Group of the Spanish Network for Health Technology Assessment of the National Health System (RedETS)
Published online by Cambridge University Press: 03 December 2020, e3


Patient and caregiver engagement in the Patient-Centered Outcomes Research Institute (PCORI) Health Care Horizon Scanning System (HCHSS) process
Kelley Tipton, Jennifer De Lurio, Eileen Erinoff, Randy Hulshizer, Diane Robertson, Donna Beales, Damian Carlson, Christian Cuevas, Eloise DeHaan, Andrea Druga, Marcus Lynch, Misha Mehta, Maria Middleton, Brian Wilkinson, Karen Schoelles
Published online by Cambridge University Press: 15 December 2020, e13


Assessments

Developing an agency's position with respect to patient involvement in health technology assessment: the importance of the organizational culture
Irina Cleemput, Marie Dauvrin, Laurence Kohn, Patriek Mistiaen, Wendy Christiaens, Christian Léonard
Published online by Cambridge University Press: 02 October 2020, pp. 569-578


Patients, users, caregivers, and citizens' involvement in local health technology assessment unit in Quebec: a survey
Thomas G. Poder, Catherine Safianyk, Monique F. Fournier, Isabelle Ganache, Moustapha Touré, Marie-Pascale Pomey, Marie-Pierre Gagnon
Published online by Cambridge University Press: 29 September 2020, e5


Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient's perspective in a controversial environment
Marie-Pascale Pomey, Paula L. Bush, Olivier Demers-Payette, Audrey L'Espérance, Louis Lochhead, Isabelle Ganache, Denis Roy
Published online by Cambridge University Press: 23 December 2020, e11


Evaluation of the impact of patient input in health technology assessments at NICE
Heidi Livingstone, Vassilia Verdiel, Helen Crosbie, Sheela Upadhyaya, Kevin Harris, Lizzie Thomas
Published online by Cambridge University Press: 29 January 2021, e33


Patient and public involvement in health technology assessment: update of a systematic review of international experiences
Marie-Pierre Gagnon, Mylène Tantchou Dipankui, Thomas G. Poder, Julie Payne-Gagnon, Gisèle Mbemba, Valentina Beretta
Published online by Cambridge University Press: 05 February 2021, e36


An institutional ethnographic analysis of public and patient engagement activities at a national health technology assessment agency
Julia Bidonde, Meredith Vanstone, Lisa Schwartz, Julia Abelson
Published online by Cambridge University Press: 09 February 2021, e37


The contribution of French patient and consumer groups to health technology assessments over a 2-year period: an observational retrospective study
Cedric Gesbert, Joëlle André-Vert, Marc Guerrier, Margaret Galbraith, Christine Devaud, Jean-Claude K. Dupont, Marie-France Mamzer
Published online by Cambridge University Press: 22 March 2021, e48


Perspectives

Community engagement in Health Technology Assessment and beyond: from guests in the process to hosts
Catherine M. Holliday
Published online by Cambridge University Press: 15 October 2020, e27


Importance of involving patients and public in health research in Bangladesh and Nepal
Bibha Simkhada, Edwin van Teijlingen, Aliya Naheed, Angela Warren, Sue Green
Published online by Cambridge University Press: 05 November 2020, e10


Role of patients’ organizations in Health Technology Assessment: a Habermasian system and lifeworld perspective
Neda Milevska-Kostova, Sita Ratna Devi Duddi, Richard J. Cooper
Published online by Cambridge University Press: 15 December 2020, e6


Strengthening patient outcome evidence in health technology assessment: a coproduction approach
Mark Rasburn, Heidi Livingstone, Sarah E. Scott
Published online by Cambridge University Press: 13 January 2021, e12


Creating a patient and community advisory committee at the Canadian Agency for Drugs and Technologies in Health
Sarah Berglas, Nadine Vautour, Daryl Bell
Published online by Cambridge University Press: 22 January 2021, e19


A voice to be heard: patient and public involvement in health technology assessment and clinical practice guidelines in Malaysia
Hanin Farhana Kamaruzaman, Ku Nurhasni Ku Abd Rahim, Izzuna Mudla Mohamed Ghazali, Mohd Aminuddin Mohd Yusof
Published online by Cambridge University Press: 22 March 2021, e47