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The Portuguese Participation in the Actifcare (Access to Timely Formal Care in Dementia) European Study: Preliminary Results of Systematic Reviews, Qualitative and Quantitative Data

Published online by Cambridge University Press:  23 March 2020

M. Gonçalves-Pereira
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
M.J. Marques
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
C. Balsinha
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
T. Reis
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
A. Machado
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
H. Bárrios
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
L. Alves
Affiliation:
Nova Medical School/FCM, Universidade Nova de Lisboa, CEDOC, Chronic Diseases Research Center, Lisbon, Portugal
A. Verdelho
Affiliation:
Faculdade de Medicina, Universidade de Lisboa, Department of Neurosciences and Mental Health-IMM-ISAMB, Lisbon, Portugal
G. Meyer
Affiliation:
Martin Luther University Halle-Wittenberg, Medical Faculty, Institute for Health and Nursing Sciences, Halle, Germany
B. Woods
Affiliation:
Bangor University, Dementia Services Development Centre Wales, Bangor-Wales, United Kingdom
A. Wimo
Affiliation:
Karolinka Institutet, KI Alzheimer's Disease Research Center-Department Neurobiology-Care Sciences and Society, Stockholm, Sweden
G. Selbaeck
Affiliation:
Faculty of Medicine, University of Oslo, Norwegian Advisory Unit on Ageing and Health-Tonsberg, Oslo, Norway
K. Irving
Affiliation:
Dublin City University, School of Nursing and Human Sciences, Dublin, Ireland
O. Zanetti
Affiliation:
“Centro S. Giovanni di Dio” Fatebenefratell, Alzheimer's RU-Memory Clinic, Brescia, Italy
M. Orrell
Affiliation:
Nottingham University, Institute of Mental Health, Nottingham, United Kingdom
M. De Vugt
Affiliation:
Maastricht University, Department of Psychiatry and Neuropsychology, Maastricht, The Netherlands
F. Verhey
Affiliation:
Maastricht University, Department of Psychiatry and Neuropsychology, Maastricht, The Netherlands

Abstract

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Introduction

In the context of untimely access to community formal services, unmet needs of persons with dementia (PwD) and their carers may compromise their quality of life.

Objectives/aims

The Actifcare EU-JPND project (www.actifcare.eu) focuses on access to and (non) utilization of dementia formal care in eight countries (The Netherlands, Germany, United Kingdom, Sweden, Norway, Ireland, Italy, Portugal), as related to unmet needs and quality of life. Evaluations included systematic reviews, qualitative explorations, and a European cohort study (PwD in early/intermediate phases and their primary carers; n = 453 days; 1 year follow-up). Preliminary Portuguese results are presented here (FCT-JPND-HC/0001/2012).

Methods

(1) extensive systematic searches on access to/utilization of services; (2) focus groups of PwD, carers and health/social professionals; (3) prospective study (n = 66 days from e.g., primary care, hospital outpatient services, Alzheimer Portugal).

Results

In Portugal, nationally representative data is scarce regarding health/social services utilization in dementia. There are important barriers to access to community services, according to users, carers and professionals, whose views not always coincide. The Portuguese cohort participants were 66 PwD (62.1% female, 77.3 ± 6.2 years, 55.5% Alzheimer's/mixed subtypes, MMSE 17.8 ± 4.8, CDR1 89.4%) and 66 carers (66.7% female, 64.9 ± 15.0 years, 56.1% spouses), with considerable unmet needs in some domains.

Conclusions

All Actifcare milestones are being reached. The consortium is now analyzing international differences in (un) timely access to services and its impact on quality of life and needs for care (e.g., formal community support is weaker in Portugal than in many European countries). National best-practice recommendations in dementia are also in preparation.

Abstract submitted on behalf of the Actifcare Eu-JPND consortium.

Disclosure of interest

The authors have not supplied their declaration of competing interest.

Type
e-Poster viewing: Old age psychiatry
Copyright
Copyright © European Psychiatric Association 2017
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