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Predicting additional care in young children with neurodevelopmental disability: a systematic literature review

Published online by Cambridge University Press:  17 January 2006

Anke Meester-Delver
Affiliation:
Department of Rehabilitation, Academic Medical Centre, Amsterdam, the Netherlands.
Anita Beelen
Affiliation:
Department of Rehabilitation, Academic Medical Centre, Amsterdam, the Netherlands.
Raoul Hennekam
Affiliation:
Department of Paediatrics, Academic Medical Centre, Amsterdam, the Netherlands. Clinical and Molecular Genetics Unit, Institute of Child Health, Great Ormond Street Hospital for Sick Children, University College London, UK.
Mijna Hadders-Algra
Affiliation:
Department of Neurology – Developmental Neurology, University Medical Centre Groningen, Groningen, the Netherlands.
Frans Nollet
Affiliation:
Department of Rehabilitation, Academic Medical Centre, Amsterdam, the Netherlands.
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Abstract

Children with developmental disabilities often show a variety of associated impairments that lead to a lifelong need for additional care. Careful assessment of these impairments is required not only for diagnostic purposes but also to inform the parents about the expected additional care needs in the future. We present a systematic review of the literature to identify instruments that classify the type and amount of this care for the individual child. A literature search was performed in the Medline database (January 1966 – June 2005) on instruments that classify the type and amount of expected additional care needs in the future. Seven standardized measurement instruments describing current additional care needs were identified, but none of these instruments was developed to provide information about the expected need for additional care in the future. For parents of young children with non-progressive developmental disorders it is essential to be informed on the expectations of required additional care in the future. However, comprehensive instruments providing such information are currently lacking and, thus, need to be developed.

Type
Review
Copyright
2006 Mac Keith Press

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