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Post-operative discharge education for parent caregivers of children with congenital heart disease: a needs assessment

Published online by Cambridge University Press:  22 September 2020

Candace N. Mannarino Open the ORCID record for Candace N. Mannarino [Opens in a new window] ,
Kelly Michelson ,
Lindsay Jackson ,
Erin Paquette  and
Mary E. McBride
Candace N. Mannarino*
Affiliation:
Division of Paediatric Cardiology, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA
Kelly Michelson
Affiliation:
Division of Paediatric Critical Care Medicine, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA
Lindsay Jackson
Affiliation:
Division of Paediatric Cardiology, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA
Erin Paquette
Affiliation:
Division of Paediatric Critical Care Medicine, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA
Mary E. McBride
Affiliation:
Division of Paediatric Cardiology, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA
*
Author for correspondence: Candace Mannarino, MD, Ann & Robert H. Lurie Children’s Hospital of Chicago, Division of Paediatric Cardiology, Box 21, 225 E Chicago Avenue, Chicago, IL60611, USA. Tel: +1 312 227 4421; Fax: +1 312 227 9646. E-mail: cmannarino@luriechildrens.org
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Abstract

Objective:

Children with congenital heart disease (CHD) have complex unique post-operative care needs. Limited data assess parents’ hospital discharge preparedness and education quality following cardiac surgery. The goals were to identify knowledge gaps in discharge preparedness after congenital heart surgery and to assess the acceptability of an educational mobile application to improve discharge preparedness.

Methods:

Telephonic interviews with parents of children with two-ventricle physiology who underwent cardiac surgery 5–7 days post-discharge and in-person interviews with clinicians were conducted. We collected parent and clinician demographics, parent health literacy information and patient clinical data. We analysed interview transcripts using summative content analysis.

Results:

We interviewed 26 parents and 6 clinicians. Twenty-two of the 26 (85%) parents felt ready for discharge; 4 of the 6 (67%) clinicians did not feel most parents were ready for discharge. Fifteen of the 26 parents (58%) reported receiving the majority of discharge teaching on the day of discharge. Eight parents did not feel like all of their questions were answered. Most parents (14/26, 54%) preferred visual educational learning aids and could accurately describe important aspects of care. Most parents (23/26, 88%) and all 6 clinicians felt a mobile application for post-operative care education would be helpful.

Conclusions:

Most parents received education on the day of discharge and could describe the information they received prior to discharge, although there were some preparedness gaps identified after discharge. Clinicians and parents varied in their perceptions of the readiness for discharge. Most responses suggest that a mobile application for discharge education may be helpful for transition to home.

Keywords

Paediatric cardiac carecongenital heart diseasedischarge readinessparent educationmobile technology
Type
Original Article
Information
Cardiology in the Young , Volume 30 , Issue 12 , December 2020 , pp. 1788 - 1796
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Copyright
© The Author(s), 2020. Published by Cambridge University Press

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