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Paediatric cardiologist adherence to American Heart Association neurodevelopmental recommendations for CHD patients

Published online by Cambridge University Press:  05 May 2022

Sharnendra K. Sidhu ,
Laura J. McLaughlin ,
Tammy B. Pham ,
Bojan Lazarevic ,
Elana R. Kriegel ,
Hannah E. Rosenthal ,
Edon J. Rabinowitz  and
Ruth L. Milanaik Open the ORCID record for Ruth L. Milanaik [Opens in a new window]
Sharnendra K. Sidhu
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA
Laura J. McLaughlin
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA
Tammy B. Pham
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA
Bojan Lazarevic
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA
Elana R. Kriegel
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA
Hannah E. Rosenthal
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA
Edon J. Rabinowitz
Affiliation:
Division of Pediatric Cardiology and Division of Pediatric Critical Care Medicine, Washington University in St Louis, St Louis, MO, USA
Ruth L. Milanaik*
Affiliation:
Division of Developmental & Behavioral Pediatrics, Steven and Alexandra Cohen Children’s Medical Center of New York, New Hyde Park, NY, USA Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, USA
*
Author for correspondence: Ruth L. Milanaik, D.O., Associate Professor, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, 1983 Marcus Avenue, Suite 130, Lake Success, NY 11042, USA. Tel: +1 516-802-6100. E-mail: rmilanai@northwell.edu
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Abstract

A 2012 American Heart Association statement concluded that children with CHD are at an increased risk for neurodevelopmental delays. Routine surveillance and evaluation throughout childhood are recommended. To assess paediatric cardiologist compliance with American Heart Association guidelines and developmental referral practices, a survey was distributed to paediatric cardiologists nationwide (n = 129). The majority of participants (69%) stated they were somewhat familiar or not familiar with the American Heart Association statement and were concerned about patients not being properly referred to specialists for developmental evaluation. Forty paediatric cardiologists (31%) indicated that their institution did not have a neurodevelopmental cardiology programme. Of these, 25% indicated they generally did not refer CHD patients for neurodevelopmental evaluation, 45% performed surveillance and referred if warranted, and 30% generally referred all patients for surveillance. Lastly, 43% of paediatric cardiologists did not feel responsible for developmental surveillance, and 11% did not feel responsible for referrals. To ensure all children with CHD are appropriately screened and referred, paediatricians and cardiologists must work together to address differing impressions of accountability for surveillance and screening of children with CHD.

Keywords

CHDadherenceAmerican Heart Associationneurodevelopmental outcomes
Type
Original Article
Information
Cardiology in the Young , Volume 33 , Issue 4 , April 2023 , pp. 590 - 596
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Copyright
© The Author(s), 2022. Published by Cambridge University Press

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