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Health-related quality of life in adolescents with congenital heart disease

Published online by Cambridge University Press:  27 March 2014

Juliana Bertoletti ,
Giovana C. Marx ,
Sérgio P. Hattge Jr  and
Lúcia C. Pellanda
Juliana Bertoletti
Affiliation:
Department of Cardiology, Post-Graduation Program in Health Sciences, Instituto de Cardiologia/Fundação Universitária de Cardiologia, Porto Alegre, RS, Brazil
Giovana C. Marx
Affiliation:
Universidade Federal de Ciências da Saúde de Porto Alegre, UFCSPA, Porto Alegre, RS, Brazil
Sérgio P. Hattge Jr
Affiliation:
Universidade Federal de Ciências da Saúde de Porto Alegre, UFCSPA, Porto Alegre, RS, Brazil
Lúcia C. Pellanda*
Affiliation:
Department of Cardiology, Post-Graduation Program in Health Sciences, Instituto de Cardiologia/Fundação Universitária de Cardiologia, Porto Alegre, RS, Brazil Universidade Federal de Ciências da Saúde de Porto Alegre, UFCSPA, Porto Alegre, RS, Brazil
*
Correspondence to: Prof L. C. Pellanda, Av Princesa Isabel, 370, Santana, Porto Alegre, RS 90620-000, Brazil. Tel: +55 51 32303600; Fax:+55 51 32172035; E-mail: pellanda.pesquisa@gmail.com
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Abstract

Purpose: This study aims to evaluate the health-related quality of life of adolescents with congenital heart disease, describing health-related quality of life according to the diagnosis and severity of congenital heart disease, identified by variables such as the presence of symptoms, surgical interventions, use of medication, and residual lesion. Methods: A cross-sectional study was conducted on 203 adolescents with congenital heart disease attended at the Pediatric Cardiology ambulatory of a reference hospital in Brazil. The Brazilian version of the questionnaire KIDSCREEN-27 was used for the assessment of health-related quality of life. Information related to the congenital heart disease diagnosis and clinical variables were collected from the medical records of the patients. Results: There was no statistically significant difference between acyanotic and cyanotic groups, as well as for the different diagnosis of congenital heart disease. A trend for better health-related quality of life in the dimension of Psychological Well-Being (p=0.054) was found in the groups with surgical intervention and use of medication. Adolescents that referred a good general health presented significantly better results in all dimensions of health-related quality of life, except for Autonomy and Parent Relation, than those who presented clinical symptoms (p<0.05). Conclusions: Type of congenital heart disease and initial diagnosis did not seem to affect the perception of health-related quality of life, corroborating findings of several studies. Surgical interventions and the use of medication can improve previous clinical status, and therefore it seems to be beneficial in terms of Psychological Well-Being. The presence of clinical symptoms was the variable that caused the largest impact on the perception of health-related quality of life, possibly because of the impairment they bring to the daily lives of these patients.

Keywords

Quality of lifeheart defectscongenitaladolescent
Type
Original Articles
Information
Cardiology in the Young , Volume 25 , Issue 3 , March 2015 , pp. 526 - 532
Copyright
© Cambridge University Press 2014 

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