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Nomenclature for Pediatric and Congenital Cardiac Care: Unification of Clinical and Administrative Nomenclature – The 2021 International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Revision of the International Classification of Diseases (ICD-11)

Published online by Cambridge University Press:  29 July 2021

Jeffrey P. Jacobs*
Affiliation:
Congenital Heart Center, UF Health Shands Hospital, Division of Cardiovascular Surgery, Departments of Surgery and Pediatrics, University of Florida, Gainesville, FL, USA
Rodney C. G. Franklin
Affiliation:
Paediatric Cardiology Department, Royal Brompton & Harefield NHS Trust, London, UK
Marie J. Béland
Affiliation:
Division of Paediatric Cardiology, The Montreal Children’s Hospital of the McGill University Health Centre, Montréal, Québec, Canada
Diane E. Spicer
Affiliation:
Congenital Heart Center, UF Health Shands Hospital, Division of Cardiovascular Surgery, Departments of Surgery and Pediatrics, University of Florida, Gainesville, FL, USA Johns Hopkins All Children’s Hospital, Johns Hopkins University, Saint Petersburg, FL, USA
Steven D. Colan
Affiliation:
Department of Cardiology, Boston Children’s Hospital, Harvard University, Boston, MA, USA
Henry L. Walters III
Affiliation:
Cardiovascular Surgery, Children’s Hospital of Michigan, Wayne State University School of Medicine, Detroit, MI, USA
Frédérique Bailliard
Affiliation:
Bailliard Henry Pediatric Cardiology, Raleigh, North Carolina, United States of America Duke University, Durham, NC, USA
Lucile Houyel
Affiliation:
Congenital and Pediatric Medico-Surgical Unit, Necker Hospital-M3C, Paris, France
James D. St. Louis
Affiliation:
Department of Surgery and Pediatrics, Children Hospital of Georgia, Augusta University, Augusta, Georgia
Leo Lopez
Affiliation:
Lucile Packard Children’s Hospital Stanford, Stanford University School of Medicine, Palo Alto, California, USA
Vera D. Aiello
Affiliation:
Heart Institute (InCor), University of São Paulo School of Medicine, São Paulo, Brazil
J. William Gaynor
Affiliation:
Cardiac Center, Children’s Hospital of Philadelphia, Philadelphia, PA, USA
Otto N. Krogmann
Affiliation:
Pediatric Cardiology-Congenital Heart Disease, Heart Center Duisburg, Duisburg, Germany
Hiromi Kurosawa
Affiliation:
Cardiovascular Surgery, Tokyo Women’s Medical University, Tokyo, Japan
Bohdan J. Maruszewski
Affiliation:
Department for Pediatric and Congenital Heart Surgery, Children’s Memorial Health Institute, Warsaw, Poland
Giovanni Stellin
Affiliation:
Pediatric and Congenital Cardiac Surgical Unit, Department of Cardiothoracic and Vascular Sciences, University of Padova, Padova, Italy
Paul Morris Weinberg
Affiliation:
Cardiac Center, Children’s Hospital of Philadelphia, Philadelphia, PA, USA
Marshall Lewis Jacobs
Affiliation:
Johns Hopkins University, Baltimore, Maryland, USA
Jeffrey R. Boris
Affiliation:
Jeffrey R. Boris, MD LLC, Moylan, PA, USA
Meryl S. Cohen
Affiliation:
Cardiac Center, Children’s Hospital of Philadelphia, Philadelphia, PA, USA
Allen D. Everett
Affiliation:
Johns Hopkins University, Baltimore, Maryland, USA
Jorge M. Giroud
Affiliation:
All Children’s Hospital, Saint Petersburg, FL, USA
Kristine J. Guleserian
Affiliation:
Congenital Heart Surgery, Medical City Children’s Hospital, Dallas, TX, USA
Marina L. Hughes
Affiliation:
Cardiology Department, Norfolk and Norwich University Hospital NHS Trust, UK
Amy L. Juraszek
Affiliation:
Terry Heart Institute, Wolfson Children’s Hospital, Jacksonville, FL, USA
Stephen P. Seslar
Affiliation:
Department of Pediatrics, Division of Pediatric Cardiology, Seattle Children’s Hospital, University of Washington, Seattle, WA, USA
Charles W. Shepard
Affiliation:
Children’s Heart Clinic of Minneapolis, Minneapolis, MN, USA
Shubhika Srivastava
Affiliation:
Division of Cardiology, Department of Cardiovascular Medicine, Nemours Cardiac Center at the Alfred I. duPont Hospital for Children, Wilmington, DE, USA
Andrew C. Cook
Affiliation:
Institute of Cardiovascular Science, University College London, London, UK
Adrian Crucean
Affiliation:
Congenital Heart Surgery, Birmingham Women’s and Children’s Foundation Trust Hospital, University of Birmingham, Birmingham, UK
Lazaro E. Hernandez
Affiliation:
Joe DiMaggio Children’s Hospital Heart Institute, Hollywood, FL, USA
Rohit S. Loomba
Affiliation:
Advocate Children’s Heart Institute, Advocate Children’s Hospital, Oak Lawn, IL, USA
Lindsay S. Rogers
Affiliation:
Cardiac Center, Children’s Hospital of Philadelphia, Philadelphia, PA, USA
Stephen P. Sanders
Affiliation:
Department of Cardiology, Boston Children’s Hospital, Harvard University, Boston, MA, USA
Jill J. Savla
Affiliation:
Cardiac Center, Children’s Hospital of Philadelphia, Philadelphia, PA, USA
Elif Seda Selamet Tierney
Affiliation:
Lucile Packard Children’s Hospital Stanford, Stanford University School of Medicine, Palo Alto, California, USA
Justin T. Tretter
Affiliation:
Department of Pediatrics, Heart Institute, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA
Lianyi Wang
Affiliation:
Heart Centre, First Hospital of Tsinghua University, Beijing, China
Martin J. Elliott
Affiliation:
University College London, London, UK
Constantine Mavroudis
Affiliation:
Johns Hopkins University, Baltimore, Maryland, USA Peyton Manning Children’s Hospital, Indianapolis, IN, USA
Christo I. Tchervenkov
Affiliation:
Division of Cardiovascular Surgery, The Montreal Children’s Hospital of the McGill University Health Centre, Montréal, Québec, Canada
*Corresponding
Author for correspondence: Jeffrey P. Jacobs, MD, FACS, FACC, FCCP, Congenital Heart Center, UF Health Shands Hospital, Division of Cardiovascular Surgery, Departments of Surgery and Pediatrics, University of Florida, 1600 SW Archer Road, Gainesville, Florida, 32608, USA. E-mails: jeffjacobs@msn.com and jeffreyjacobs@ufl.edu

Abstract

Substantial progress has been made in the standardization of nomenclature for paediatric and congenital cardiac care. In 1936, Maude Abbott published her Atlas of Congenital Cardiac Disease, which was the first formal attempt to classify congenital heart disease. The International Paediatric and Congenital Cardiac Code ( IPCCC ) is now utilized worldwide and has most recently become the paediatric and congenital cardiac component of the Eleventh Revision of the International Classification of Diseases ( ICD-11 ). The most recent publication of the IPCCC was in 2017. This manuscript provides an updated 2021 version of the IPCCC .

The International Society for Nomenclature of Paediatric and Congenital Heart Disease ( ISNPCHD ), in collaboration with the World Health Organization (WHO), developed the paediatric and congenital cardiac nomenclature that is now within the eleventh version of the International Classification of Diseases (ICD-11). This unification of IPCCC and ICD-11 is the IPCCC ICD-11 Nomenclature and is the first time that the clinical nomenclature for paediatric and congenital cardiac care and the administrative nomenclature for paediatric and congenital cardiac care are harmonized. The resultant congenital cardiac component of ICD-11 was increased from 29 congenital cardiac codes in ICD-9 and 73 congenital cardiac codes in ICD-10 to 318 codes submitted by ISNPCHD through 2018 for incorporation into ICD-11. After these 318 terms were incorporated into ICD-11 in 2018, the WHO ICD-11 team added an additional 49 terms, some of which are acceptable legacy terms from ICD-10, while others provide greater granularity than the ISNPCHD thought was originally acceptable. Thus, the total number of paediatric and congenital cardiac terms in ICD-11 is 367. In this manuscript, we describe and review the terminology, hierarchy, and definitions of the IPCCC ICD-11 Nomenclature . This article, therefore, presents a global system of nomenclature for paediatric and congenital cardiac care that unifies clinical and administrative nomenclature.

The members of ISNPCHD realize that the nomenclature published in this manuscript will continue to evolve. The version of the IPCCC that was published in 2017 has evolved and changed, and it is now replaced by this 2021 version. In the future, ISNPCHD will again publish updated versions of IPCCC , as IPCCC continues to evolve.

Type
Original Article
Copyright
© The Author(s), 2021. Published by Cambridge University Press

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Footnotes

This Article has been copublished in Cardiology in the Young and in the World Journal for Pediatric and Congenital Heart Surgery.

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Nomenclature for Pediatric and Congenital Cardiac Care: Unification of Clinical and Administrative Nomenclature – The 2021 International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Revision of the International Classification of Diseases (ICD-11)