Ajana, Btihaj. (2010) ‘Recombinant Identities: Biometrics and Narrative Bioethics’. Journal of Bioethical Inquiry 7 (2): 237–58.Google Scholar

Ajana, Btihaj. (2020) ‘Personal Metrics: Users’ Experiences and Perceptions of Self-Tracking Practices and Data’. Social Science Information 59 (4): 654–78.CrossRefGoogle Scholar

Akandji-Kombe, Jean-François. (2007) Positive Obligations under the European Convention on Human Rights: A Guide to the Implementation of the European Convention on Human Rights. Human Rights Handbooks (No. 7). Strasbourg: Council of Europe.Google Scholar

Alaimo, Stacy, and Hekman, Susan J. (2008) ‘Introduction: Emerging Models of Materiality in Feminist Theory’. In Material Feminisms, edited by Alaimo, Stacy and Hekman, Susan J. Bloomington: Indiana University Press: 1–22.Google Scholar

Alpert, Sheri. (2012) ‘The Specter of Commercial Neuroimaging’. AJOB Neuroscience 3 (4): 56–8.Google Scholar

Anderson, James A, and Illes, Judy. (2012) ‘Neuroimaging and Mental Health: Drowning in a Sea of Acrimony’. AJOB Neuroscience 3 (4): 42–3.Google Scholar

Anderson, James A, Mizgalewicz, Ania, and Illes, Judy. (2013) ‘Triangulating Perspectives on Functional Neuroimaging for Disorders of Mental Health’. BMC Psychiatry 13 (1): 1–11.Google Scholar

Andorno, Roberto. (2004) ‘The Right Not to Know: An Autonomy Based Approach’. Journal of Medical Ethics 30 (5): 435–9.Google Scholar

Annas, George J, and Elias, Sherman. (2014) ‘23andMe and the FDA’. New England Journal of Medicine 370 (11): 985–8.Google Scholar

Appleby, John. (2018) ‘Should Mitochondrial Donation Be Anonymous?’. The Journal of Medicine and Philosophy 43 (2): 261–80.Google Scholar

Appleby, John B, Blake, Lucy, and Freeman, Tabitha. (2012) ‘Is Disclosure in the Best Interests of Children Conceived by Donation?’. In Reproductive Donation: Practice, Policy and Bioethics, edited by Richards, Martin, Pennings, Guido and Appleby, John B. Cambridge: Cambridge University Press: 231–49.Google Scholar

Ashida, Sato, Koehly, Laura M, Roberts, J Scott et al. (2010) ‘The Role of Disease Perceptions and Results Sharing in Psychological Adaptation after Genetic Susceptibility Testing: The REVEAL Study’. European Journal of Human Genetics 18 (12): 1296–301.Google Scholar

Atkins, Emily R, and Panegyres, Peter K. (2011) ‘The Clinical Utility of Gene Testing for Alzheimer’s Disease’. Neurology International 3 (1): 1–3.Google Scholar

Atkins, Kim. (2008) ‘Narrative Identity and Practical Continuity’. In Practical Identity and Narrative Agency, edited by Mackenzie, Catriona and Atkins, Kim. New York: Routledge: 78–98.Google Scholar

Barclay, Linda. (2000) ‘Autonomy and the Social Self’. In Relational Autonomy: Feminist Perspectives on Automony, Agency, and the Social Self, edited by Mackenzie, Catriona and Stoljar, Natalie. Oxford: Oxford University Press: 52–71.Google Scholar

Baylis, Françoise. (2012) ‘The Self in Situ: A Relational Account of Personal Identity’. In Being Relational: Reflections on Relational Theory and Health Law, edited by Downie, Jocelyn and Llewellyn, Jennifer J. Vancouver: UBC Press: 109–31.Google Scholar

Beeson, Diane R, Jennings, Patricia K, and Kramer, Wendy. (2011) ‘Offspring Searching for Their Sperm Donors: How Family Type Shapes the Process’. Human Reproduction 26 (9): 2415–24.Google Scholar

Bemelmans, Sonja, Tromp, Krista, Bunnik, Eline et al. (2016) ‘Psychological, Behavioral and Social Effects of Disclosing Alzheimer’s Disease Biomarkers to Research Participants: A Systematic Review’. Alzheimer’s Research & Therapy 8 (1): 1–17.Google Scholar

Ben-David, Shelly, and Kealy, David. (2020) ‘Identity in the Context of Early Psychosis: A Review of Recent Research’. Psychosis 12 (1): 68–78.CrossRefGoogle Scholar

Berkman, Benjamin E, Hull, Sara Chandros, and Eckstein, Lisa. (2014) ‘The Unintended Implications of Blurring the Line between Research and Clinical Care in a Genomic Age’. Personalized Medicine 11 (3): 285–95.Google Scholar

Besson, Samantha. (2007) ‘Enforcing the Child’s Right to Know Her Origins: Contrasting Approaches under the Convention on the Rights of the Child and the European Convention on Human Rights’. International Journal of Law, Policy and the Family 21 (2): 137–59.Google Scholar

Blake, Lucy, Jadva, Vasanti, and Golombok, Susan. (2014) ‘Parent Psychological Adjustment, Donor Conception and Disclosure: A Follow-up over 10 Years’. Human Reproduction 29 (11): 2487–96.Google Scholar

Blauwhoff, Richard J. (2008) ‘Tracing Down the Historical Development of the Legal Concept of the Right to Know One’s Origins: Has “to Know or Not to Know” Ever Been the Legal Question?’. Utrecht Law Review 4 (2): 99–116.Google Scholar

Blyth, Eric. (2012) ‘Genes R Us? Making Sense of Genetic and Non-Genetic Relationships Following Anonymous Donor Insemination’. Reproductive Biomedicine Online 24 (7): 719–26.Google Scholar

Blyth, Eric, and Frith, Lucy. (2009) ‘Donor-Conceived People’s Access to Genetic and Biographical History: An Analysis of Provisions in Different Jurisdictions Permitting Disclosure of Donor Identity’. International Journal of Law, Policy and the Family 23 (2): 174–91.Google Scholar

Borgelt, Emily L, Buchman, Daniel Z, and Illes, Judy. (2011) ‘“This Is Why You’ve Been Suffering”: Reflections of Providers on Neuroimaging in Mental Health Care’. Journal of Bioethical Inquiry 8 (1): 15–25.Google Scholar

Borgelt, Emily L, Buchman, Daniel Z, and Illes, Judy. (2012) ‘Neuroimaging in Mental Health Care: Voices in Translation’. Frontiers in Human Neuroscience 6: 293–7.Google Scholar

Borry, Pascal, Schotsmans, Paul, and Dierickx, Kris. (2004) ‘What Is the Role of Empirical Research in Bioethical Reflection and Decision-Making? An Ethical Analysis’. Medicine, Health Care and Philosophy 7 (1): 41–53.Google Scholar

Bortolotti, Lisa. (2013) ‘The Relative Importance of Undesirable Truths’. Medicine, Health Care and Philosophy 16 (4): 683–90.Google Scholar

Brandeis, Louis, and Warren, Samuel. (1890) ‘The Right to Privacy’. Harvard Law Review 4 (5): 193–220.Google Scholar

Brandon, Priscilla. (2016) ‘Body and Self: An Entangled Narrative’. Phenomenology and the Cognitive Sciences 15 (1): 67–83.Google Scholar

British Medical Association. (2019) Access to Health Records. www.bma.org.uk/media/2821/bma-access-to-health-records-june-20.pdf.Google Scholar

Bryman, Alan. (2016) Social Research Methods. Oxford: Oxford University Press.Google Scholar

Buchanan, Allen. (1988) ‘Advance Directives and the Personal Identity Problem’. Philosophy & Public Affairs 17 (4): 277–302.Google ScholarPubMed

Buchman, Daniel Z, Borgelt, Emily L, Whiteley, Louise, and Illes, Judy. (2013) ‘Neurobiological Narratives: Experiences of Mood Disorder through the Lens of Neuroimaging’. Sociology of Health & Illness 35 (1): 66–81.Google Scholar

Bulgin, Dominique, Tanabe, Paula, and Jenerette, Coretta. (2018) ‘Stigma of Sickle Cell Disease: A Systematic Review’. Issues in Mental Health Nursing 39 (8): 675–86.Google Scholar

Bunnik, Eline M, Janssens, A Cecile JW, and Schermer, Maartje HN. (2014) ‘Personal Utility in Genomic Testing: Is There Such a Thing?’. Journal of Medical Ethics 41 (4): 322–6.Google ScholarPubMed

Bunnik, Eline M, Schermer, Maartje HN, and Janssens, A Cecile JW. (2011) ‘Personal Genome Testing: Test Characteristics to Clarify the Discourse on Ethical, Legal and Societal Issues’. BMC Medical Ethics 12 (1): 1–13.Google Scholar

Butow, Phyllis N, Lobb, Elizabeth A, Barratt, Alexandra, Meiser, Bettina, and Tucker, Katherine M. (2003) ‘Psychological Outcomes and Risk Perception after Genetic Testing and Counselling in Breast Cancer: A Systematic Review’. Medical Journal of Australia 178 (2): 77–81.Google Scholar

Calhoun, Cheshire. (2000) ‘Losing Oneself’. In Relational Autonomy, edited by Mackenzie, Catriona and Stoljar, Natalie. Oxford: Oxford University Press: 193–211.Google Scholar

Callus, Thérèse. (2004) ‘Tempered Hope? A Qualified Right to Know One’s Genetic Origin: Odièvre v France’. The Modern Law Review 67 (4): 658–69.Google Scholar

Camporesi, Silvia. (2019) ‘When Does an Advantage Become Unfair? Empirical and Normative Concerns in Semenya’s Case’. Journal of Medical Ethics 45 (11): 700–4.Google Scholar

Carel, Havi. (2011) ‘Phenomenology and Its Application in Medicine’. Theoretical Medicine and Bioethics 32 (1): 33–46.Google Scholar

Carel, Havi. (2016) Phenomenology of Illness. Oxford: Oxford University Press.Google Scholar

Carter, Pam, Laurie, Graeme T, and Dixon-Woods, Mary. (2015) ‘The Social Licence for Research: Why Care.Data Ran into Trouble’. Journal of Medical Ethics 41 (5): 404–9.Google Scholar

Cassam, Quassim. (2011) ‘The Embodied Self’. In The Oxford Handbook of the Self, edited by Gallagher, Shaun. Oxford: Oxford University Press: 139–56.Google Scholar

Chadwick, Ruth, Levitt, Mairi, and Shickle, Darren. (2014) The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility. Cambridge: Cambridge University Press.Google Scholar

Chan, Sarah, Cunningham-Burley, Sarah, de Togni, Giulia et al. (2020) ‘Beyond Binaries: Dissolving the Empirical/Normative Divide’. AJOB Empirical Bioethics 11 (1): 17–19.Google Scholar

Chan, Sarah W, Tulloch, Ed, Cooper, E Sarah et al. (2017) ‘Montgomery and Informed Consent: Where Are We Now?’. BMJ 357–9.Google Scholar

Chilibeck, Gillian, Lock, Margaret, and Sehdev, Megha. (2011) ‘Postgenomics, Uncertain Futures, and the Familiarization of Susceptibility Genes’. Social Science & Medicine 72 (11): 1768–75.Google Scholar

Christensen, Kurt D, Karlawish, Jason, Roberts, J Scott et al. (2020) ‘Disclosing Genetic Risk for Alzheimer’s Dementia to Individuals with Mild Cognitive Impairment’. Alzheimer’s & Dementia: Translational Research & Clinical Interventions 6 (1): e12002.Google Scholar

Christensen, Kurt D, Roberts, J Scott, Uhlmann, Wendy R, and Green, Robert C. (2011) ‘Changes to Perceptions of the Pros and Cons of Genetic Susceptibility Testing after APOE Genotyping for Alzheimer Disease Risk’. Genetics in Medicine 13 (5): 409–14.Google Scholar

Christman, John, ed. (1989) The Inner Citadel: Essays on Individual Autonomy. New York: Oxford University Press.Google Scholar

Christman, John, (1991) ‘Autonomy and Personal History’. Canadian Journal of Philosophy 21 (1): 1–24.Google Scholar

Christman, John, (2004) ‘Narrative Unity as a Condition of Personhood’. Metaphilosophy 35 (5): 695–713.Google Scholar

Christman, John, (2015) ‘Telling Our Own Stories: Narrative Selves and Oppressive Circumstance’. In The Philosophy of Autobiography, edited by Cowley, Christopher. Chicago: University of Chicago Press: 122–40.Google Scholar

Cohn, Simon. (2010) ‘Picturing the Brain Inside, Revealing the Illness Outside: A Comparison of the Different Meanings Attributed to Brain Scans by Scientists and Patients’. In Technologized Images, Technologized Bodies, edited by Edwards, Jeanette, Harvey, Penelope, and Wade, Peter. New York: Berghahn Books: 65–84.Google Scholar

Cooper, Deborah, Limet, Natalie, McClung, Ian, and Lawrie, Stephen M. (2013) ‘Towards Clinically Useful Neuroimaging in Psychiatric Practice’. The British Journal of Psychiatry 203 (4): 242–4.Google Scholar

Corsico, Paolo. (2021) ‘“It’s All About Delivery”: Researchers’ and Health Professionals’ Views on the Moral Challenges of Accessing Neurobiological Information in the Context of Psychosis’. BMC Medical Ethics 22 (1): 1–15.Google Scholar

Council for International Organizations of Medical Sciences. (2016) International Ethical Guidelines for Health-Related Research Involving Humans. www.cioms.ch/wp-content/uploads/2017/01/WEB-CIOMS-EthicalGuidelines.pdfGoogle Scholar

Crawshaw, Marilyn, and Daniels, Ken. (2019) ‘Revisiting the Use of “Counselling” as a Means of Preparing Prospective Parents to Meet the Emerging Psychosocial Needs of Families That Have Used Gamete Donation’. Families, Relationships and Societies 8 (3): 395–409.Google Scholar

d’Agincourt-Canning, Lori. (2006) ‘Genetic Testing for Hereditary Breast and Ovarian Cancer: Responsibility and Choice’. Qualitative Health Research 16 (1): 97–118.Google Scholar

Daniels, Ken R., Grace, Victoria M., and Gillett, Wayne R.. (2011) ‘Factors Associated with Parents’ Decisions to Tell Their Adult Offspring About the Offspring’s Donor Conception’. Human Reproduction 26 (10): 2783–90.Google Scholar

Davis, Dena S. (1997) ‘Genetic Dilemmas and the Child’s Right to an Open Future’. Hastings Center Report 27 (2): 7–15.Google Scholar

Davis, Nicola (2020) ‘Long-Term Offenders Have Different Brain Structure, Study Says’. The Guardian. www.theguardian.com/science/2020/feb/17/long-term-offenders-have-different-brain-structure-study-says#:~:text=Now%20researchers%20say%20they%20have,who%20transgressed%20only%20as%20adolescentsGoogle Scholar

de Melo‐Martín, Inmaculada. (2014) ‘The Ethics of Anonymous Gamete Donation: Is There a Right to Know One’s Genetic Origins?’. Hastings Center Report 44 (2): 28–35.Google Scholar

de Melo-Martín, Inmaculada. (2016) ‘How Best to Protect the Vital Interests of Donor-Conceived Individuals: Prohibiting or Mandating Anonymity in Gamete Donations?’ Reproductive Biomedicine & Society Online 3: 100–8. https://doi.org/10.1016/j.rbms.2017.01.003.Google Scholar

De Winter, Jan. (2016) Interests and Epistemic Integrity in Science: A New Framework to Assess Interest Influences in Scientific Research Processes. Lanham: Rowman & Littlefield.Google Scholar

DeGrazia, David. (2005) Human Identity and Bioethics. Cambridge: Cambridge University Press.Google Scholar

Department of Health. (2001) Donor Information Consultation: Providing Information About Gamete and Embryo Donors.Google Scholar

Department of Health. (2014) Mitochondrial Donation: Government Response to the Consultation on Draft Regulations to Permit the Use of New Treatment Techniques to Prevent the Transmission of a Serious Mitochondrial Disease from Mother to Child. www.assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/332881/Consultation_response.pdfGoogle Scholar

Dove, Edward S, Chico, Vicky, Fay, Michael et al. (2019) ‘Familial Genetic Risks: How Can We Better Navigate Patient Confidentiality and Appropriate Risk Disclosure to Relatives?’. Journal of Medical Ethics 45 (8): 504–7.Google Scholar

Dubov, Alex, and Shoptawb, Steven. (2020) ‘The Value and Ethics of Using Technology to Contain the Covid-19 Epidemic’. The American Journal of Bioethics 20 (7): W7–W11.CrossRefGoogle ScholarPubMed

Dumit, Joseph. (2003) ‘Is It Me or My Brain? Depression and Neuroscientific Facts’. Journal of Medical Humanities 24 (1): 35–47.Google Scholar

Dumit, Joseph. (2004) Picturing Personhood: Brain Scans and Biomedical Identity. Princeton: Princeton University Press.Google Scholar

Dworkin, Gerald. (1988) The Theory and Practice of Autonomy. Cambridge: Cambridge University Press.Google Scholar

Eckert, Susan Larusse, Katzen, Heather, Roberts, J Scott et al. (2006) ‘Recall of Disclosed Apolipoprotein E Genotype and Lifetime Risk Estimate for Alzheimer’s Disease: The REVEAL Study’. Genetics in Medicine 8 (12): 746–51.Google Scholar

Eckstein, Lisa, Garrett, Jeremy R, and Berkman, Benjamin E. (2014) ‘A Framework for Analyzing the Ethics of Disclosing Genetic Research Findings’. The Journal of Law, Medicine & Ethics 42 (2): 190–207.Google Scholar

Edelman, Marian Wright. (2015) ‘It’s Hard to Be What You Can’t See’. Huffington Post, 21 August. www.huffpost.com/entry/its-hard-to-be-what-you-c_b_8022776.Google Scholar

Eijkholt, Marleen. (2010) ‘Sterilisation and the Birth of a Right: Effective Access to Medical Records’. Medical Law Review 18 (1): 96–102.Google Scholar

Esplen, Mary Jane, Stuckless, Noreen, Hunter, Jonathan et al. (2009) ‘The BRCA Self-Concept Scale: A New Instrument to Measure Self-Concept in BRCA1/2 Mutation Carriers’. Psycho-Oncology 18 (11): 1216–29.Google Scholar

Etkin, Amit. (2019) ‘A Reckoning and Research Agenda for Neuroimaging in Psychiatry’. American Journal of Psychiatry 176 (7): 507–11.Google Scholar

Farah, Martha J. (2014) ‘Brain Images, Babies, and Bathwater: Critiquing Critiques of Functional Neuroimaging’. Hastings Center Report 44 (s2): S19–S30.Google Scholar

Farah, Martha J, and Gillihan, Seth J. (2012) ‘The Puzzle of Neuroimaging and Psychiatric Diagnosis: Technology and Nosology in an Evolving Discipline’. AJOB Neuroscience 3 (4): 31–41.Google Scholar

Farrer, Lindsay A, Cupples, L Adrienne, Haines, Jonathan L et al. (1997) ‘Effects of Age, Sex, and Ethnicity on the Association between Apolipoprotein E Genotype and Alzheimer Disease: A Meta-Analysis’. JAMA 278 (16): 1349–56.Google Scholar

Feinberg, Joel. (1984) Harm to Others: The Moral Limits of the Criminal Law, vol. 1. Oxford: Oxford University Press.Google Scholar

Fenech, Matthew, Strukelj, Nika, and Buston, Olly. (2018) Ethical, Social, and Political Challenges of Artificial Intelligence in Health. London: Wellcome Trust & Future Advocacy.Google Scholar

Floridi, Luciano. (2019) ‘Semantic Conceptions of Information’. In Stanford Encyclopedia of Philosophy, edited by Zalta, Edward N. www.plato.stanford.edu/archives/win2019/entries/information-semantic/.Google Scholar

Fortin, Jane. (2011) ‘Children’s Right to Know Their Origins – Too Far, Too Fast?’. Child and Family Law Quarterly 21 (3): 336–55.Google Scholar

Foster, Morris W, Mulvihill, John J, and Sharp, Richard R. (2009) ‘Evaluating the Utility of Personal Genomic Information’. Genetics in Medicine 11 (8): 570–4.Google Scholar

Freeman, Tabitha. (2014) ‘Introduction’. In Relatedness in Assisted Reproduction, edited by Freeman, Tabitha, Graham, Susanna, Ebtehaj, Fatemeh and Richards, Martin. Cambridge: Cambridge University Press: 1–18.Google Scholar

Freeman, Tabitha. (2015) ‘Gamete Donation, Information Sharing and the Best Interests of the Child: An Overview of the Psychosocial Evidence’. Monash Bioethics Review 33 (1): 45–63.Google Scholar

Freeman, Tabitha, Bourne, Kate, Vasanti, Jadva, and Smith, Venessa. (2014) ‘Making Connections: Contact between Sperm Donor Relations’. In Relatedness in Assisted Reproduction, edited by Freeman, Tabitha, Graham, Susanna, Ebtehaj, Fatemeh, and Richards, Martin. Cambridge: Cambridge University Press: 270–95.Google Scholar

Freeman, Tabitha, and Golombok, Susan. (2012) ‘Donor Insemination: A Follow-up Study of Disclosure Decisions, Family Relationships and Child Adjustment at Adolescence’. Reproductive Biomedicine Online 25 (2): 193–203.Google Scholar

Frith, Lucy, Blyth, Eric, Crawshaw, Marilyn, and van den Akker, Olga. (2018a) ‘Searching for “Relations” Using a DNA Linking Register by Adults Conceived Following Sperm Donation’. BioSocieties 13 (1): 170–89.Google Scholar

Frith, Lucy, Blyth, Eric, Crawshaw, Marilyn, and van den Akker, Olga. (2018b) ‘Secrets and Disclosure in Donor Conception’. Sociology of Health & Illness 40 (1): 188–203.Google Scholar

Gallagher, Shaun. (2006) How the Body Shapes the Mind. Wotton-under-Edge:Clarendon Press.Google Scholar

Gergen, Kenneth J, and Gergen, Mary M. (1988) ‘Narrative and the Self as Relationship’. Advances in Experimental Social Psychology 21 (1): 17–56.Google Scholar

Gibbon, Sahra. (2007) ‘Charity, Breast Cancer Activism and the Iconic Figure of the BRCA Carrier’. In Biosocialities, Genetics and the Social Sciences: Making Biologies and Identities, edited by Gibbon, Sahra and Novas, Carlos. Abingdon: Routledge: 19–37.Google Scholar

Gibbon, Sahra, and Novas, Carlos. (2007) ‘Introduction’. In Biosocialities, Genetics and the Social Sciences: Making Biologies and Identities, edited by Gibbon, Sahra and Novas, Carlos. London: Routledge: 1–18.CrossRefGoogle Scholar

Gibson, Lorna M, Littlejohns, Thomas J, Adamska, Ligia et al. (2017) ‘Impact of Detecting Potentially Serious Incidental Findings During Multi-Modal Imaging’. Wellcome Open Research 2: 114.Google Scholar

Giddens, Anthony. (1991) Modernity and Self-Identity: Self and Society in the Late Modern Age. Cambridge: Polity Press in association with Blackwell.Google Scholar

Gilbert, Frederic. (2015) ‘A Threat to Autonomy? The Intrusion of Predictive Brain Implants’. AJOB Neuroscience 6 (4): 4–11.Google Scholar

Gilbert, Frederic, Cook, Mark, O’Brien, Terrence, and Illes, Judy. (2019) ‘Embodiment and Estrangement: Results from a First-in-Human “Intelligent BCI” Trial’. Science and Engineering Ethics 25 (1): 83–96.Google Scholar

Giordano, James. (2012) ‘Neuroimaging in Psychiatry: Approaching the Puzzle as a Piece of the Bigger Picture(S)’. AJOB Neuroscience 3 (4): 54–6.Google Scholar

Glannon, Walter. (2009) ‘Our Brains Are Not Us’. Bioethics 23 (6): 321–9.Google Scholar

Glover, Jonathan. (1988) I: The Philosophy and Psychology of Personal Identity. London: Penguin.Google Scholar

Golombok, Susan. (2017) ‘Disclosure and Donor-Conceived Children’. Human Reproduction 32 (7): 1532–6.Google Scholar

Golombok, Susan, Brewaeys, Anne, Giavazzi, Michele T. et al. (2002) ‘The European Study of Assisted Reproduction Families: The Transition to Adolescence’. Human Reproduction 17 (3): 830–40.Google Scholar

Gooding, Holly C, Linnenbringer, Erin L, Burack, Jeffrey et al. (2006) ‘Genetic Susceptibility Testing for Alzheimer Disease: Motivation to Obtain Information and Control as Precursors to Coping with Increased Risk’. Patient Education and Counseling 64 (1–3): 259–67.Google Scholar

Green, Robert C, and Farahany, Nita A. (2014) ‘Regulation: The FDA Is Overcautious on Consumer Genomics’. Nature News 505 (7483): 286.Google Scholar

Hacking, Ian. (1995) ‘The Looping Effect of Human Kinds’. In Causal Cognition: A Multi-Disciplinary Debate, edited by Sperber, Dan, Premack, David and Premack, A James. New York: Oxford University Press: 351–83.Google Scholar

Hacking, Ian. (1999) The Social Construction of What? Cambridge, MA: Harvard University Press.Google Scholar

Hacking, Ian. (2004) ‘Between Michel Foucault and Erving Goffman: Between Discourse in the Abstract and Face-to-Face Interaction’. Economy and Society 33 (3): 277–302.Google Scholar

Hallowell, Nina. (1999) ‘Doing the Right Thing: Genetic Risk and Responsibility’. Sociology of Health & Illness 21 (5): 597–621.Google Scholar

Hallowell, Nina, Cooke, Sarah, Crawford, Gillian et al. (2010) ‘An Investigation of Patients’ Motivations for Their Participation in Genetics-Related Research’. Journal of Medical Ethics 36 (1): 37–45.Google Scholar

Hallowell, Nina, Foster, Claire, Eeles, Rosalind, et al. (2004) ‘Accommodating Risk: Responses to BRCA1/2 Genetic Testing of Women Who Have Had Cancer’. Social Science & Medicine 59 (3): 553–65.Google Scholar

Hallowell, Nina, Foster, Claire, Eeles, Ros et al. (2003) ‘Balancing Autonomy and Responsibility: The Ethics of Generating and Disclosing Genetic Information’. Journal of Medical Ethics 29 (2): 74–9.Google Scholar

Haraway, Donna. (2006) ‘A Manifesto for Cyborgs: Science, Technology, and Socialist Feminism in the 1980s’. In International Handbook of Virtual Learning Environments, vol. 1, edited by Weiss, Joel, Nolan, Jason, Hunsinger, Jeremy and Trifonas, Peter. New York: Springer: 117–58.Google Scholar

Hardcastle, Valerie Gray. (2008) Constructing the Self. Amsterdam: John Benjamins.Google Scholar

Harper, Joyce C, Kennett, Debbie, and Reisel, Dan. (2016) ‘The End of Donor Anonymity: How Genetic Testing Is Likely to Drive Anonymous Gamete Donation out of Business’. Human Reproduction 31 (6): 1135–40.Google Scholar

Harris, John, and Keywood, Kirsty. (2001) ‘Ignorance, Information and Autonomy’. Theoretical Medicine and Bioethics 22 (5): 415–36.Google Scholar

Haslanger, Sally. (2009) ‘Family, Ancestry and Self: What Is the Moral Significance of Biological Ties?’. Adoption & Culture 2: 91–122.Google Scholar

Hauskeller, Christine. (2004) ‘Genes, Genomes and Identity. Projections on Matter’. New Genetics and Society 23 (3): 285–99.Google Scholar

Hauskeller, Christine. (2006) ‘Human Genomics as Identity Politics.’ Award Paper for Young Scholar Conference, Cornell University, 7–9 April. https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.571.6238&rep=rep1&type=pdf.Google Scholar

Hedgecoe, Adam M. (2004) ‘Critical Bioethics: Beyond the Social Science Critique of Applied Ethics’. Bioethics 18 (2): 120–43.Google Scholar

Henschke, Adam. (2010) ‘Did You Just Say What I Think You Said? Talking About Genes, Identity and Information’. Identity in the Information Society 3 (3): 435–56.Google Scholar

Henschke, Adam (2017) Ethics in an Age of Surveillance: Personal Information and Virtual Identities. Cambridge: Cambridge University Press.Google Scholar

Heshka, Jodi T, Palleschi, Crystal, Howley, Heather, Wilson, Brenda, and Wells, Philip S. (2008) ‘A Systematic Review of Perceived Risks, Psychological and Behavioral Impacts of Genetic Testing’. Genetics in Medicine 10 (1): 19–32.Google Scholar

Hesse-Biber, Sharlene, and An, Chen. (2016) ‘Genetic Testing and Post-Testing Decision Making among BRCA-Positive Mutation Women: A Psychosocial Approach’. Journal of Genetic Counseling 25 (5): 978–92.CrossRefGoogle ScholarPubMed

Hewitt, Geraldine. (2002) ‘Missing Links: Identity Issues of Donor Conceived People’. Journal of Fertility Counselling 9: 14–19.Google Scholar

Hickey, Blake Anthony, Chalmers, Taryn, Newton, Phillip et al. (2021) ‘Smart Devices and Wearable Technologies to Detect and Monitor Mental Health Conditions and Stress: A Systematic Review’. Sensors 21 (10): 3461.Google Scholar

House of Commons Science and Technology Committee. (2021) Direct-to-Consumer Genomic Testing. www.publications.parliament.uk/pa/cm5802/cmselect/cmsctech/94/9403.htmGoogle Scholar

Huckvale, Kit, Venkatesh, Svetha, and Christensen, Helen. (2019) ‘Toward Clinical Digital Phenotyping: A Timely Opportunity to Consider Purpose, Quality, and Safety’. npj Digital Medicine 2 (1): 1–11.Google Scholar

Human Fertilisation and Embryology Authority. (2019) HFEA Code of Practice, 9th ed. www.portal.hfea.gov.uk/media/1605/2019-12-03-code-of-practice-december-2019.pdf.Google Scholar

Hurley, Ann C, Harvey, Rose, Roberts, J Scott et al. (2005) ‘Genetic Susceptibility for Alzheimer’s Disease: Why Did Adult Offspring Seek Testing?’. American Journal of Alzheimer’s Disease and Other Dementias 20 (6): 374–81.Google Scholar

Husted, Jørgen. (2014) ‘Autonomy and a Right Not to Know’. In The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility, edited by Chadwick, Ruth, Levitt, Mairi, and Shickle, Darren. Cambridge: Cambridge University Press: 24–38.Google Scholar

Ienca, Marcello, and Andorno, Roberto. (2017) ‘Towards New Human Rights in the Age of Neuroscience and Neurotechnology’. Life Sciences, Society and Policy 13 (1): 1–27.Google Scholar

Ilioi, Elena, Blake, Lucy, Jadva, Vasanti, Roman, Gabriela, and Golombok, Susan. (2017) ‘The Role of Age of Disclosure of Biological Origins in the Psychological Wellbeing of Adolescents Conceived by Reproductive Donation: A Longitudinal Study from Age 1 to Age 14’. Journal of Child Psychology and Psychiatry 58 (3): 315–24.Google Scholar

Ilioi, Elena Cristiana, and Golombok, Susan. (2015) ‘Psychological Adjustment in Adolescents Conceived by Assisted Reproduction Techniques: A Systematic Review’. Human Reproduction Update 21 (1): 84–96.Google Scholar

Illes, Judy, Lombera, Sofia, Rosenberg, Jarett, and Arnow, Bruce. (2008) ‘In the Mind’s Eye: Provider and Patient Attitudes on Functional Brain Imaging’. Journal of Psychiatric Research 43 (2): 107–14.Google Scholar

Jadva, Vasanti, Freeman, Tabitha, Kramer, Wendy, and Golombok, Susan. (2009) ‘The Experiences of Adolescents and Adults Conceived by Sperm Donation: Comparisons by Age of Disclosure and Family Type’. Human Reproduction 24 (8): 1909–19.Google Scholar

Jain, Sachin H, Powers, Brian W, Hawkins, Jared B, and Brownstein, John S. (2015) ‘The Digital Phenotype’. Nature Biotechnology 33 (5): 462–3.Google Scholar

Jenkins, Richard. (2014) Social Identity. London: Routledge.Google Scholar

Johnston, Carolyn, and Kaye, Jane. (2004) ‘Does the UK Biobank Have a Legal Obligation to Feedback Individual Findings to Participants?’. Medical Law Review 12 (3): 239–67.Google Scholar

Joyce, Kelly. (2005) ‘Appealing Images: Magnetic Resonance Imaging and the Production of Authoritative Knowledge’. Social Studies of Science 35 (3): 437–62.Google Scholar

Kamenova, Kalina, Reshef, Amir, and Caulfield, Timothy. (2014) ‘Angelina Jolie’s Faulty Gene: Newspaper Coverage of a Celebrity’s Preventive Bilateral Mastectomy in Canada, the United States, and the United Kingdom’. Genetics in Medicine 16 (7): 522–8.Google Scholar

Kay, Jackie. (2011) Red Dust Road: An Autobiographical Journey. London: Atlas.Google Scholar

Kellmeyer, Philipp. (2017) ‘Ethical and Legal Implications of the Methodological Crisis in Neuroimaging’. Cambridge Quarterly of Healthcare Ethics 26 (4): 530–54.Google Scholar

Kellmeyer, Philipp. (2021) ‘Big Brain Data: On the Responsible Use of Brain Data from Clinical and Consumer-Directed Neurotechnological Devices’. Neuroethics 14 (1): 83–98.Google Scholar

Kenett, Jeanette, and Matthews, Steve. (2008) ‘Normative Agency’. In Practical Identity and Narrative Agency, edited by Mackenzie, Catriona and Atkins, Kim. New York: Routledge: 212–31.Google Scholar

Kirkman, Maggie. (2003) ‘Parents’ Contributions to the Narrative Identity of Offspring of Donor-Assisted Conception’. Social Science & Medicine 57 (11): 2229–42.Google Scholar

Kirkman, Maggie. (2004) ‘Genetic Connection and Relationships in Narratives of Donor Assisted Conception’. Australian Journal of Emerging Technologies and Society 2 (1). www.hdl.handle.net/11343/33590Google Scholar

Klitzman, Robert. (2009) ‘“Am I My Genes?”: Questions of Identity among Individuals Confronting Genetic Disease’. Genetics in Medicine 11 (12): 880–9.Google Scholar

Konrad, Monica. (2005) Narrating the New Predictive Genetics: Ethics, Ethnography, and Science. Cambridge: Cambridge University Press.Google Scholar

Korsgaard, Christine. (1996) The Sources of Normativity. Cambridge: Cambridge University Press.Google Scholar

Korsgaard, Christine. (2009) Self-Constitution: Agency, Identity, and Integrity. Oxford: Oxford University Press.Google Scholar

Kreitmair, Karola, and Cho, Mildred. (2017) ‘The Neuroethical Future of Wearable and Mobile Health Technology’. In Neuroethics: Anticipating the Future, edited by Illes, Judy. Oxford: Oxford University Press: 80–107.Google Scholar

Kreitmair, Karola V. (2019) ‘Dimensions of Ethical Direct-to-Consumer Neurotechnologies’. AJOB Neuroscience 10 (4): 152–66.Google Scholar

Kuhn, Thomas S. (2012) The Structure of Scientific Revolutions, 50th Anniversary ed. Chicago: University of Chicago Press.Google Scholar

Latour, Bruno, and Woolgar, Steve. (1979) Laboratory Life: The Social Construction of Scientific Facts. Princeton: Princeton University Press.Google Scholar

Laurie, Graeme. (2002) Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge: Cambridge University Press.Google Scholar

Laurie, Graeme. (2004) ‘The Right Not to Know: An Autonomy Based Approach – A Response to Andorno’. Journal of Medical Ethics 30 (5): 439–40.Google Scholar

Laurie, Graeme. (2009) ‘Personality, Privacy and Autonomy in Medical Law’. In Rights of Personality in Scots Law: A Comparative Perspective, edited by Whitty, Niall R and Zimmermann, Reinhard. Dundee: Dundee University Press: 453–83.Google Scholar

Laurie, Graeme. (2014a) ‘Privacy and the Right Not to Know: A Plea for Conceptual Clarity’. In The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility, edited by Chadwick, Ruth, Levitt, Mairi and Shickle, Darren. Cambridge: Cambridge University Press: 38–51.Google Scholar

Laurie, Graeme. (2014b) ‘Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications’. The Journal of Law, Medicine & Ethics 42 (1): 53–63.Google Scholar

Laurie, Graeme, Harmon, Shaun, and Dove, Edward. (2019) Mason and Mccall Smith’s Law and Medical Ethics, 11th ed. Oxford: Oxford University Press.Google Scholar

Lawrie, Stephen M, Fletcher-Watson, Sue, Whalley, Heather C, and McIntosh, Andrew M. (2019) ‘Predicting Major Mental Illness: Ethical and Practical Considerations’. BJPsych Open 5 (2): 1–5.Google Scholar

Lawton, Georgina. (2021) Raceless: In Search of Family, Identity, and the Truth About Where I Belong. London: Sphere.Google Scholar

Lebowitz, Matthew S. (2014) ‘Biological Conceptualizations of Mental Disorders among Affected Individuals: A Review of Correlates and Consequences’. Clinical Psychology: Science and Practice 21 (1): 67–83.Google Scholar

Lennon, Kathleen. (2019) ‘Feminist Perspectives on the Body’. In Stanford Encyclopedia of Philosophy, Fall ed., edited by Zalta, Edward N. www.plato.stanford.edu/archives/fall2019/entries/feminist-body/Google Scholar

Lennon, Kathleen, Gonzalez-Arnal, Stella, and Jagger, Gill. (2012) ‘Introduction’ In Embodied Selves, edited by Gonzalez-Arnal, Stella, Jagger, Gill, and Lennon, Kathleen. Palgrave Macmillan: 1–11.Google Scholar

Levy-Lahad, Ephrat, Catane, Raphael, Eisenberg, Shlomit et al. (1997) ‘Founder BRCA1 and BRCA2 Mutations in Ashkenazi Jews in Israel: Frequency and Differential Penetrance in Ovarian Cancer and in Breast-Ovarian Cancer Families’. American Journal of Human Genetics 60 (5): 1059.Google Scholar

Lillehammer, Hallvard. (2014) ‘Who Cares Where You Came From? Cultivating Virtues of Indifference’. In Relatedness in Assisted Reproduction, edited by Freeman, Tabitha, Graham, Susanna, Ebtehaj, Fatemeh, and Richards, Martin. Cambridge: Cambridge University Press: 97–112.Google Scholar

Lim, Jacqueline, Macluran, Mariette, Price, Melanie, Bennett, Barbara, and Butow, Phyllis. (2004) ‘Short-and Long-Term Impact of Receiving Genetic Mutation Results in Women at Increased Risk for Hereditary Breast Cancer’. Journal of Genetic Counseling 13 (2): 115–33.Google Scholar

Lindemann, Hilde. (2016) Holding and Letting Go: The Social Practice of Personal Identities. Oxford: Oxford University Press.Google Scholar

Lindemann, Hilde. (2001) Damaged Identities, Narrative Repair. Ithaca: Cornell University Press.Google Scholar

Lineweaver, Tara T, Bondi, Mark W, Galasko, Douglas, and Salmon, David P. (2014) ‘Effect of Knowledge of APOE Genotype on Subjective and Objective Memory Performance in Healthy Older Adults’. American Journal of Psychiatry 171 (2): 201–8.Google Scholar

Littlejohns, Thomas J, Holliday, Jo, Gibson, Lorna M et al. (2020) ‘The UK Biobank Imaging Enhancement of 100,000 Participants: Rationale, Data Collection, Management and Future Directions’. Nature Communications 11 (1): 1–12.Google Scholar

Lloyd, Genevieve. (2003) Being in Time: Selves and Narrators in Philosophy and Literature. London: Routledge.Google Scholar

Lock, Margaret. (2008) ‘Biosociality and Susceptibility Genes: A Cautionary Tale’. In Biosocialities, Genetics and the Social Sciences: Making Biologies and Identities, edited by Gibbon, Sahra and Novas, Carlos. London: Routledge: 56–78.Google Scholar

Lock, Margaret, Cunningham-Burley, Sarah, Franklin, Sarah et al. (2005) ‘Eclipse of the Gene and the Return of Divination 1’. Current Anthropology 46 (S5): S47–S70.Google Scholar

Lock, Margaret, Freeman, Julia, Chilibeck, Gillian et al. (2007) ‘Susceptibility Genes and the Question of Embodied Identity’. Medical Anthropology Quarterly 21 (3): 256–76.Google Scholar

Lock, Margaret, Freeman, Julia, Sharples, Rosemary, and Lloyd, Stephanie. (2006) ‘When It Runs in the Family: Putting Susceptibility Genes in Perspective’. Public Understanding of Science 15 (3): 277–300.Google Scholar

Loughlin, Michael, Lewith, George, and Falkenberg, Torkel. (2013) ‘Science, Practice and Mythology: A Definition and Examination of the Implications of Scientism in Medicine’. Health Care Analysis 21 (2): 1–16.Google Scholar

Lupton, Deborah. (2013) ‘Quantifying the Body: Monitoring and Measuring Health in the Age of Mhealth Technologies’. Critical Public Health 23 (4): 393–403.Google Scholar

Lynch, Henry T, Snyder, Carrie, Lynch, Jane F et al. (2006) ‘Patient Responses to the Disclosure of BRCA Mutation Tests in Hereditary Breast-Ovarian Cancer Families’. Cancer Genetics and Cytogenetics 165 (2): 91–7.Google Scholar

Machado, Helena, and Granja, Rafaela. (2020) ‘Emerging DNA Technologies and Stigmatization’. In Forensic Genetics in the Governance of Crime, edited by Machado, Helena and Granja, Rafaela. Singapore: Palgrave Pivot: 85–104.Google Scholar

MacIntyre, Alasdair C. (1985) After Virtue: A Study in Moral Theory, 2nd ed. London: Duckworth.Google Scholar

Mackenzie, Catriona. (2000) ‘Imagining Oneself Otherwise’. In Relational Autonomy, edited by Mackenzie, Catriona and Stoljar, Natalie. Oxford: Oxford University Press: 124–51.Google Scholar

Mackenzie, Catriona. (2007) ‘Bare Personhood? Velleman on Selfhood’. Philosophical Explorations 10 (3): 263–81.Google Scholar

Mackenzie, Catriona. (2008a) ‘Introduction: Practical Identity and Narrative Agency’. In Practical Identity and Narrative Agency, edited by Mackenzie, Catriona and Atkins, Kim. London: Routledge: 1–28.Google Scholar

Mackenzie, Catriona. (2008b) ‘Imagination, Identity, and Self-Transformation’. In Practical Identity and Narrative Agency, edited by Atkins, Kim and Mackenzie, Catriona. London: Routledge: 121–45.Google Scholar

Mackenzie, Catriona. (2009) ‘Personal Identity, Narrative Integration, and Embodiment’. In Embodiment and Agency, edited by Campbell, Sue, Maynell, Letitia, and Sherwin, Susan. Pennsylvania: Pennsylvania State University Press: 100–25.Google Scholar

Mackenzie, Catriona, and Poltera, Jacqui. (2010) ‘Narrative Integration, Fragmented Selves, and Autonomy’. Hypatia 25 (1): 31–54.Google Scholar

Mackenzie, Catriona, and Poltera, Jacqui. (2011) ‘Narrative Identity and Autonomy: Reply to Commentaries’. MIT Symposia on Gender, Race and Philosophy 7 (1): 1–9.Google Scholar

Mackenzie, Catriona, and Scully, Jackie Leach. (2007) ‘Moral Imagination, Disability and Embodiment’. Journal of Applied Philosophy 24 (4): 335–51.Google Scholar

Mackenzie, Catriona, and Stoljar, Natalie. (2000) ‘Introduction: Autonomy Reconfigured’. In Relational Autonomy: Feminist Perspectives on Automony, Agency, and the Social Self, edited by Mackenzie, Catriona and Stoljar, Natalie. Oxford: Oxford University Press: 3–31.Google Scholar

Mackenzie, Catriona, and Walker, Mary. (2015) ‘Neurotechnologies, Personal Identity and the Ethics of Authenticity’. In Handbook of Neuroethics, edited by Clausen, Jens and Levy, Neil. Dordrecht: Springer: 373–92.Google Scholar

Mahlstedt, Patricia P, LaBounty, Kathleen, and Kennedy, William Thomas. (2010) ‘The Views of Adult Offspring of Sperm Donation: Essential Feedback for the Development of Ethical Guidelines within the Practice of Assisted Reproductive Technology in the United States’. Fertility and Sterility 93 (7): 2236–46.Google Scholar

Marshall, Jill. (2014) Human Rights Law and Personal Identity. London: Routledge.Google Scholar

Martin, Emily. (2010) ‘Self-Making and the Brain’. Subjectivity 3 (4): 366–81.Google Scholar

McConkie‐Rosell, Allyn, and DeVellis, Brenda M. (2000) ‘Threat to Parental Role: A Possible Mechanism of Altered Self‐Concept Related to Carrier Knowledge’. Journal of Genetic Counseling 9 (4): 285–302.Google Scholar

McGuinness, Sheelagh, Koops, Bert-Jaap, and Asscher, Eva. (2010) ‘Genetics, Information and Identity’. Identity in the Information Society 3 (3): 415–21.Google Scholar

McMillan, Catriona, Dove, Edward, Laurie, Graeme et al. (2021) ‘Beyond Categorisation: Refining the Relationship between Subjects and Objects in Health Research Regulation’. Law, Innovation and Technology 13 (1): 194–222.Google Scholar

Mella, Sara, Muzzatti, Barbara, Dolcetti, Riccardo et al.(2017) ‘Emotional Impact on the Results of BRCA1 and BRCA2 Genetic Test: An Observational Retrospective Study’. Hereditary Cancer in Clinical Practice 15 (1): 1–7.Google Scholar

Merleau-Ponty, Maurice. (1962) Phenomenology of Perception, translated by Colin Smith. London: Routledge.Google Scholar

Meyers, Diana T. (2000) ‘Intersectional Identity and the Authentic Self? Opposites Attract’. In Relational Autonomy: Feminist Perspectives on Automony, Agency, and the Social Self, edited by Mackenzie, Catriona and Stoljar, Natalie. Oxford: Oxford University Press: 151–80.Google Scholar

Miller, Franklin G, Mello, Michelle M, and Joffe, Steven. (2008) ‘Incidental Findings in Human Subjects Research: What Do Investigators Owe Research Participants?’. The Journal of Law, Medicine & Ethics 36 (2): 271–9.Google Scholar

Miller, Sarah Clark. (2013) The Ethics of Need: Agency, Dignity, and Obligation. London: Routledge.Google Scholar

Molewijk, Bert, Stiggelbout, Anne M, Otten, Wilma et al. (2004) ‘Scientific Contribution. Empirical Data and Moral Theory. A Plea for Integrated Empirical Ethics’. Medicine, Health Care and Philosophy 7 (1): 55–69.Google Scholar

Mozersky, Jessica, and Joseph, Galen. (2010) ‘Case Studies in the Co-Production of Populations and Genetics: The Making of “at Risk Populations” in BRCA Genetics’. BioSocieties 5 (4): 415–39.Google Scholar

Murdoch, Iris. (2013) The Sovereignty of Good. London: Routledge.Google Scholar

National Institute for Health and Care Excellence. (2013, updated 2019) Guidelines: Familial Breast Cancer: Classification and Care of People at Risk of Familial Breast Cancer and Management of Breast Cancer and Related Risks in People with a Family History of Breast Cancer (Cg164). www.nice.org.uk/guidance/cg164Google Scholar

Nazroo, James Y, Bhui, Kamaldeep S, and Rhodes, James. (2020) ‘Where Next for Understanding Race/Ethnic Inequalities in Severe Mental Illness? Structural, Interpersonal and Institutional Racism’. Sociology of Health & Illness 42 (2): 262–76.Google Scholar

Nelson, Alondra. (2008) ‘Bio Science: Genetic Genealogy Testing and the Pursuit of African Ancestry’. Social Studies of Science 38 (5): 759–83.Google Scholar

Nelson, Alondra. (2016) The Social Life of DNA: Race, Reparations, and Reconciliation after the Genome. Boston: Beacon Press.Google Scholar

Nelson, Jamie Lindemann. (1992) ‘Genetic Narratives: Biology, Stories, and the Definition of the Family’. Health Matrix 2: 71.Google Scholar

Niedenthal, Paula M. (2007) ‘Embodying Emotion’. Science 316 (5827): 1002–5.Google Scholar

Nordgren, Anders, and Juengst, Eric T.. (2009) ‘Can Genomics Tell Me Who I Am? Essentialistic Rhetoric in Direct-to-Consumer DNA Testing’. New Genetics and Society 28 (2): 157–72.Google Scholar

Novas, Carlos, and Rose, Nikolas. (2001) ‘Genetic Risk and the Birth of the Somatic Individual’. Economy and Society 29 (4): 485–513.Google Scholar

Nuffield Council on Bioethics. (2013) Donor Conception: Ethical Aspects of Information Sharing. www.nuffieldbioethics.org/publications/donor-conceptionGoogle Scholar

Nussbaum, Martha Craven. (2006) Frontiers of Justice: Disability, Nationality, Species Membership. Cambridge, MA: Belknap Press.Google Scholar

O’Connor, Cliodhna, and Joffe, Helene. (2013) ‘How Has Neuroscience Affected Lay Understandings of Personhood? A Review of the Evidence’. Public Understanding of Science 22 (3): 254–68.Google Scholar

O’Connor, Cliodhna, Rees, Geraint, and Joffe, Helene. (2012) ‘Neuroscience in the Public Sphere’. Neuron 74 (2): 220–6.Google Scholar

O’Neill, Onora. (2002) Autonomy and Trust in Bioethics: Gifford Lectures. Cambridge: Cambridge University Press.Google Scholar

Parens, Erik, and Appelbaum, Paul S. (2019) ‘On What We Have Learned and Still Need to Learn About the Psychosocial Impacts of Genetic Testing’. Hastings Center Report 49 (S1): S2–S9. https://doi.org/10.1002/hast.1011.Google Scholar

Parfit, Derek. (1984) Reasons and Persons. Oxford: Oxford University Press.Google Scholar

Parker, Michael, and Lucassen, Anneke M. (2004) ‘Genetic Information: A Joint Account?’. BMJ 329 (7458): 165–7.Google Scholar

Parry, Bronwyn. (2013) ‘Knowing Mycellf™: Personalized Medicine and the Economization of Prospective Knowledge About Bodily Fate’. In Knowledge and the Economy, edited by Meusburger, Peter, Glückler, Johannes, and el Meskioui, Martina. Knowledge and Space (Klaus Tschira Symposia). Dordrecht: Springer: 157–71.Google Scholar

Peake, Jonathan M, Kerr, Graham, and Sullivan, John P. (2018) ‘A Critical Review of Consumer Wearables, Mobile Applications, and Equipment for Providing Biofeedback, Monitoring Stress, and Sleep in Physically Active Populations’. Frontiers in Physiology 9: 743.Google Scholar

Pennings, Guido. (2017) ‘Disclosure of Donor Conception, Age of Disclosure and the Well-Being of Donor Offspring’. Human Reproduction 32 (5): 969–73.Google Scholar

Pickersgill, Martyn. (2011) ‘“Promising” Therapies: Neuroscience, Clinical Practice, and the Treatment of Psychopathy’. Sociology of Health & Illness 33 (3): 448–64.Google Scholar

Pickersgill, Martyn, Cunningham-Burley, Sarah, and Martin, Paul. (2011) ‘Constituting Neurologic Subjects: Neuroscience, Subjectivity and the Mundane Significance of the Brain’. Subjectivity 4 (3): 346–65.Google Scholar

Pinto-Basto, Jorge, Guimarães, Bárbara, Rantanen, Elina et al. (2010) ‘Scope of Definitions of Genetic Testing: Evidence from a Eurogentest Survey’. Journal of Community Genetics 1 (1): 29–35.Google Scholar

Postan, Emily. (2016) ‘Defining Ourselves: Personal Bioinformation as a Tool of Narrative Self-Conception’. Journal of Bioethical Inquiry 13 (1): 133–51.Google Scholar

Postan, Emily. (2021) ‘Narrative Devices: Neurotechnologies, Information, and Self-Constitution’. Neuroethics 14: 231–251.Google Scholar

Postan, Emily. (2021) ‘Changing Identities in Disclosure of Research Findings’. In The Cambridge Handbook of Health Research Regulation, edited by Laurie, Graeme, Dove, Edward, Ganguli-Mitra, Agomoni et al. Cambridge: Cambridge University Press.Google Scholar

Rabinow, Paul. (2010) ‘Artificiality and Enlightenment: From Sociobiology to Biosociality’. Politix 90(2): 21–46.Google Scholar

Racine, Eric, Bar-Ilan, Ofek, and Illes, Judy. (2005) ‘fMRI in the Public Eye’. Nature Review Neuroscience 6 (2): 159–64.Google Scholar

Racine, Eric, Waldman, Sarah, Rosenberg, Jarett, and Illes, Judy. (2010) ‘Contemporary Neuroscience in the Media’. Social Science & Medicine 71 (4): 725–33.Google Scholar

Raghupathi, Wullianallur, and Raghupathi, Viju. (2014) ‘Big Data Analytics in Healthcare: Promise and Potential’. Health Information Science and Systems 2 (1): 1–10.Google Scholar

Ramos, Renato T. (2012) ‘The Conceptual Limits of Neuroimaging in Psychiatric Diagnosis’. AJOB Neuroscience 3 (4): 52–3.Google Scholar

Ravelingien, An, Provoost, Veerle, and Pennings, Guido. (2013) ‘Donor-Conceived Children Looking for Their Sperm Donor: What Do They Want to Know?’. Facts, Views & Vision in ObGyn 5 (4): 257–64.Google Scholar

Ravitsky, Vardit. (2010) ‘“Knowing Where You Come From”: The Rights of Donor-Conceived Individuals and the Meaning of Genetic Relatedness’. Minnesota Journal of Law, Science & Technology 11 (2): 655–84.Google Scholar

Ravitsky, Vardit. (2014) ‘Autonomous Choice and the Right to Know One’s Genetic Origins’. Hastings Center Report 44 (2): 36–7.Google Scholar

Ravitsky, Vardit. (2016) ‘Donor Conception and Lack of Access to Genetic Heritage’. American Journal of Bioethics 16 (12): 45–6.Google Scholar

Ravitsky, Vardit, and Wilfond, Benjamin S. (2006) ‘Disclosing Individual Genetic Results to Research Participants’. American Journal of Bioethics 6 (6): 8–17.Google Scholar

Read, John. (2007) ‘Why Promoting Biological Ideology Increases Prejudice against People Labelled “Schizophrenic”’. Australian Psychologist 42 (2): 118–28.Google Scholar

Readings, Jennifer, Blake, Lucy, Casey, Polly et al. (2011) ‘Secrecy, Disclosure and Everything in-Between: Decisions of Parents of Children Conceived by Donor Insemination, Egg Donation and Surrogacy’. Reproductive Biomedicine Online 22 (5): 485–95.Google Scholar

Rehmann-Sutter, Christoph. (2009) ‘Allowing Agency: An Ethical Model for Communicating Personal Genetic Information’. In Disclosure Dilemmas: Ethics of Genetic Prognosis after the ‘Right to Know/Not to Know’ Debate, edited by Rehmann-Sutter, Christoph and Müller, Hansjakob. Farnham: Ashgate: 242–73.Google Scholar

Richards, Martin. (2014) ‘A British History of Collaborative Reproduction and the Rise of the Genetic Connection’. In Relatedness in Assisted Reproduction, edited by Freeman, Tabitha, Graham, Susanna, Ebtehaj, Fatemeh, and Richards, Martin. Cambridge: Cambridge University Press: 21–43.Google Scholar

Ricoeur, Paul. (1992) Oneself as Another, translated by Kathleen Blamey. Chicago: University of Chicago Press.Google Scholar

Riessman, Catherine Kohler. (2008) Narrative Methods for the Human Sciences. Los Angeles: Sage.Google Scholar

Roberts, J Scott. (2012) ‘Genetic Testing for Risk of Alzheimer’s Disease: Benefit or Burden?’. Neurodegenerative Disease Management 2 (2): 141–4.Google Scholar

Roberts, J Scott, Christensen, Kurt D, and Green, Robert C. (2011) ‘Using Alzheimer’s Disease as a Model for Genetic Risk Disclosure: Implications for Personal Genomics’. Clinical Genetics 80 (5): 407–14.Google Scholar

Roberts, J Scott, Cupples, L Adrienne, Relkin, Norman R et al. (2005) ‘Genetic Risk Assessment for Adult Children of People with Alzheimer’s Disease: The Risk Evaluation and Education for Alzheimer’s Disease (Reveal) Study’. Journal of Geriatric Psychiatry and Neurology 18 (4): 250–5.Google Scholar

Roberts, J Scott, and Uhlmann, Wendy R. (2013) ‘Genetic Susceptibility Testing for Neurodegenerative Diseases: Ethical and Practice Issues’. Progress in Neurobiology 110: 89–101.Google Scholar

Roberts, Scott J, LaRusse, Susan A, Katzen, Heather et al. (2003) ‘Reasons for Seeking Genetic Susceptibility Testing among First‐Degree Relatives of People with Alzheimer Disease’. Alzheimer Disease & Associated Disorders 17 (2): 86–93.Google Scholar

Roe, David, and Davidson, Larry. (2005) ‘Self and Narrative in Schizophrenia: Time to Author a New Story’. Medical Humanities 31 (2): 89–94.Google Scholar

Rogers, Wendy, Mackenzie, Catriona, and Dodds, Susan. (2012) ‘Why Bioethics Needs a Concept of Vulnerability’. International Journal of Feminist Approaches to Bioethics 5 (2): 11–38.Google Scholar

Rose, Diana, Papoulias, Constantina, MacCabe, James, and Walke, Jennifer. (2015) ‘Service Users’ and Carers’ Views on Research Towards Stratified Medicine in Psychiatry: A Qualitative Study’. BMC Research Notes 8 (1): 1–9.Google Scholar

Rose, Nikolas. (2007) Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton: Princeton University Press.Google Scholar

Rose, Nikolas S, and Abi-Rached, Joelle M. (2013) Neuro: The New Brain Sciences and the Management of the Mind. Princeton: Princeton University Press.Google Scholar

Roskies, Adina L. (2008) ‘Neuroimaging and Inferential Distance’. Neuroethics 1 (1): 19–30.Google Scholar

Rowbottom, Darrell P. (2019) ‘Scientific Realism: What It Is, the Contemporary Debate, and New Directions’. Synthese 196 (2): 451–84.Google Scholar

Rowley, Jennifer. (2007) ‘The Wisdom Hierarchy: Representations of the DIKW Hierarchy’. Journal of Information Science 33 (2): 163–80.Google Scholar

Royal, Charmaine D, Novembre, John, Fullerton, Stephanie M et al. (2010) ‘Inferring Genetic Ancestry: Opportunities, Challenges, and Implications’. The American Journal of Human Genetics 86 (5): 661–73.Google Scholar

The Royal Marsden NHS Foundation Trust. (2016) Patient Information: A Beginner’s Guide to BRCA1 and BRCA2. www.patientinfolibrary.royalmarsden.nhs.uk/brca1brac2Google Scholar

Sabatello, Maya, and Juengst, Eric. (2019) ‘Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern’. Hastings Center Report 49: S10–S18.Google Scholar

Saini, Angela. (2019) Superior: The Return of Race Science. Boston: Beacon Press.Google Scholar

Saks, Elyn R. (2007) The Centre Cannot Hold. London: Virago.Google Scholar

Scanlon, Thomas. (1975) ‘Thomson on Privacy’. Philosophy & Public Affairs 4 (4): 315–22.Google Scholar

Scanlon, Thomas. (1998) What We Owe to Each Other. Cambridge: Belknap Press of Harvard University Press.Google Scholar

Schechtman, Marya. (1996) The Constitution of Selves. Ithaca: Cornell University Press.Google Scholar

Schechtman, Marya. (2007) ‘Stories, Lives, and Basic Survival: A Refinement and Defense of the Narrative View’. Royal Institute of Philosophy Supplements 60: 155–78.Google Scholar

Schechtman, Marya. (2012) ‘Making the Truth: Self-Understanding, Self-Constitution, Neuroscience, and Narrative’. AJOB Neuroscience 3 (4): 75–6.Google Scholar

Schechtman, Marya. (2014) Staying Alive: Personal Identity, Practical Concerns, and the Unity of a Life. Oxford: Oxford University Press.Google Scholar

Scheib, Joanna E, Riordan, Maura, and Rubin, Susan. (2003) ‘Choosing Identity‐Release Sperm Donors: The Parents’ Perspective 13–18 Years Later’. Human Reproduction 18 (5): 1115–27.Google Scholar

Schrijvers, Anne, Bos, Henny, van Rooij, Floor et al. (2019) ‘Being a Donor-Child: Wishes for Parental Support, Peer Support and Counseling’. Journal of Psychosomatic Obstetrics & Gynecology 40 (1): 29–37.Google Scholar

Scott, Susie, Prior, Lindsay, Wood, Fiona, and Gray, Johnathan. (2005) ‘Repositioning the Patient: The Implications of Being “at Risk”’. Social Science & Medicine 60 (8): 1869–79.Google Scholar

Scully, Jackie Leach. (2008) Disability Bioethics: Moral Bodies, Moral Difference. Lanham: Rowman & Littlefield.Google Scholar

Scully, Jackie Leach. (2009) ‘Receiving and Interpreting Information: A Joint Enterprise’. In Disclosure Dilemmas: Ethics of Genetic Prognosis after the ‘Right to Know/Not to Know’ Debate, edited by Rehmann-Sutter, Christoph and Hansjakob, Müller. Farnham: Ashgate: 216–29.Google Scholar

Scully, Jackie Leach. (2017) ‘A Mitochondrial Story: Mitochondrial Replacement, Identity and Narrative’. Bioethics 31 (1): 37–45.Google Scholar

Sharon, Tamar. (2017) ‘Self-Tracking for Health and the Quantified Self: Re-Articulating Autonomy, Solidarity, and Authenticity in an Age of Personalized Healthcare’. Philosophy & Technology 30 (1): 93–121.Google Scholar

Sharon, Tamar, and Lucivero, Federica. (2019) ‘Introduction to the Special Theme: The Expansion of the Health Data Ecosystem – Rethinking Data Ethics and Governance’. Big Data and Society 6 (2): 1–5.Google Scholar

Shaw, Alison. (2006) ‘The Contingency of the “Genetic Link” in the Construction of Kinship and Inheritance: An Anthropological Perspective’. In Freedom and Responsibility in Reproductive Choice, edited by Spencer, John R and Du Bois-Pedain, Antje. London: Hart Publishing: 73–90.Google Scholar

Shildrick, Margrit. (2005) ‘Introduction: Beyond the Body of Bioethics’. In Ethics of the Body: Postconventional Challenges, edited by Shildrick, Margrit and Mykitiuk, Roxanne. Cambridge, MA: MIT Press: 1–24.Google Scholar

Skinner, David. (2020) ‘Forensic Genetics and the Prediction of Race: What Is the Problem?’. BioSocieties 15 (3): 329–49.Google Scholar

Skirton, Heather, Goldsmith, Lesley, Jackson, Leigh, and O’Connor, Anita. (2012) ‘Direct to Consumer Genetic Testing: A Systematic Review of Position Statements, Policies and Recommendations’. Clinical Genetics 82 (3): 210–18.Google Scholar

Solove, Daniel J. (2002) ‘Conceptualizing Privacy’. California Law Review 90: 1087.Google Scholar

Somers, Margaret R. (1994) ‘The Narrative Constitution of Identity: A Relational and Network Approach’. Theory and Society 23: 605–49.Google Scholar

Staudt, Michael D, Herring, Eric Z, Gao, Keming, Miller, Jonathan P, and Sweet, Jennifer A. (2019) ‘Evolution in the Treatment of Psychiatric Disorders: From Psychosurgery to Psychopharmacology to Neuromodulation’. Frontiers in Neuroscience 13: 1–10.Google Scholar

Stewart, George. (1992) ‘Interpreting the Child’s Right to Identity in the UN Convention on the Rights of the Child’. Family Law Quarterly 26: 221–4.Google Scholar

Strawson, Galen. (2008) ‘Against Narrativity’. In Real Materialism and Other Essays, edited by Strawson, Galen. Oxford: Clarendon Press: 189–208.Google Scholar

Sunstein, Cass R. (1996) ‘On the Expressive Function of Law’. University of Pennsylvania Law Review 144 (5): 2021–53.Google Scholar

Tallandini, Maria Anna, Zanchettin, Liviana, Gronchi, Giorgio et al. (2016) ‘Parental Disclosure of Assisted Reproductive Technology (Art) Conception to Their Children: A Systematic and Meta-Analytic Review’. Human Reproduction 31 (6): 1275–87.Google Scholar

Taylor, Charles. (1989) Sources of the Self: The Making of the Modern Identity. Cambridge: Cambridge University Press.Google Scholar

Taylor, Charles. (1992) The Ethics of Authenticity. Cambridge, MA: Harvard University Press.Google Scholar

Taylor, Mark. (2012) Genetic Data and the Law: A Critical Perspective on Privacy Protection. Cambridge: Cambridge University Press.Google Scholar

Thom, Robyn, and Farrell, Helen M. (2019) ‘Neuroimaging in Psychiatry: Potentials and Pitfalls’. Current Psychiatry 18 (12): 27–34.Google Scholar

Topol, Eric. (2018) ‘Blood, Sweat and Tears in Biotech: The Theranos Story’. Nature 557 (7706): 306–8.Google Scholar

Turkmendag, Ilke. (2012) ‘The Donor‐Conceived Child’s “Right to Personal Identity”: The Public Debate on Donor Anonymity in the United Kingdom’. Journal of Law and Society 39 (1): 58–75.Google Scholar

Turner, Amanda J, and Coyle, Adrian. (2000) ‘What Does It Mean to Be a Donor Offspring? The Identity Experiences of Adults Conceived by Donor Insemination and the Implications for Counselling and Therapy’. Human Reproduction 15 (9): 2041–51.Google Scholar

UK National Screening Committee. (2015) Criteria for Appraising the Viability, Effectiveness and Appropriateness of a Screening Programme. www.gov.uk/government/publications/evidence-review-criteria-national-screening-programmes/criteria-for-appraising-the-viability-effectiveness-and-appropriateness-of-a-screening-programme.Google Scholar

Underhill, Meghan L, Lally, Robin M, Kiviniemi, Marc T, Murekeyisoni, Christine, and Dickerson, Suzanne S. (2012) ‘Living My Family’s Story: Identifying the Lived Experience in Healthy Women at Risk for Hereditary Breast Cancer’. Cancer Nursing 35 (6): 493.Google Scholar

Van Assche, Kristof, Gutwirth, Serge, and Sterckx, Sigrid. (2013) ‘Protecting Dignitary Interests of Biobank Research Participants: Lessons from Havasupai Tribe v Arizona Board of Regents’. Law, Innovation and Technology 5 (1): 54–84.Google Scholar

Van Fraassen, Bas C. (1980) The Scientific Image. Oxford: Oxford University Press.Google Scholar

Vayena, Effy. (2015) ‘Direct-to-Consumer Genomics on the Scales of Autonomy’. Journal of Medical Ethics 41 (4): 310–14.Google Scholar

Vayena, Effy, Blasimme, Alessandro, and Cohen, I Glenn. (2018) ‘Machine Learning in Medicine: Addressing Ethical Challenges’. PLOS Medicine 15 (11): e1002689.Google Scholar

Velleman, J David. (1996) ‘Self to Self’. The Philosophical Review 105 (1): 39–76.Google Scholar

Velleman, David. (2005a) ‘Self as Narrator’. In Autonomy and the Challenges to Liberalism: New Essays, edited by Christman, John and Anderson, Joel. Cambridge: Cambridge University Press: 56–76.Google Scholar

Velleman, J David. (2005b) ‘Family History’. Philosophical Papers 34 (3): 357–78.Google Scholar

Velleman, J David. (2006) Self to Self: Selected Essays. Cambridge: Cambridge University Press.Google Scholar

Velleman, David. (2008) ‘The Gift of Life’. Philosophy & Public Affairs 36 (3): 245–66.Google Scholar

Vodermaier, Andrea, Esplen, Mary Jane, and Maheu, Christine. (2010) ‘Can Self-Esteem, Mastery and Perceived Stigma Predict Long-Term Adjustment in Women Carrying a BRCA1/2-Mutation? Evidence from a Multi-Center Study’. Familial Cancer 9 (3): 305–11.Google Scholar

Wachbroit, Robert. (2002) ‘Genetic Determinism, Genetic Reductionism, and Genetic Essentialism’ In Encyclopedia of Ethical, Legal and Policy Issues in Biotechnology, edited by Thomas H. Murray and Maxwell J. Mehlman. New York: John Wiley: 352–6.Google Scholar

Wade, Christopher H. (2019) ‘What Is the Psychosocial Impact of Providing Genetic and Genomic Health Information to Individuals? An Overview of Systematic Reviews’. Hastings Center Report 49 (S1): S88–S96. https://doi.org/10.1002/hast.1021Google Scholar

Walker, Mary Jean. (2012) ‘Neuroscience, Self-Understanding, and Narrative Truth’. AJOB Neuroscience 3 (4): 63–74.Google Scholar

Walker, Mary Jean. (2019) ‘Two Senses of Narrative Unification’. Philosophical Explorations 22 (1): 78–93.Google Scholar

Walker, Mary Jean, and Rogers, Wendy A. (2017) ‘Diagnosis, Narrative Identity, and Asymptomatic Disease’. Theoretical Medicine and Bioethics 38 (4): 307–21.Google Scholar

Weiner, Kate, Martin, Paul, Richards, Martin, and Tutton, Richard. (2017) ‘Have We Seen the Geneticisation of Society? Expectations and Evidence’. Sociology of Health & Illness 39 (7): 989–1004.Google Scholar

Widdows, Heather. (2013) The Connected Self: The Ethics and Governance of the Genetic Individual. Cambridge: Cambridge University Press.Google Scholar

Widmer, Pierre. (1994) Human Rights Issues in Research on Medical Genetics. Strasbourg: Council of Europe.Google Scholar

Wilson, Margaret. (2002) ‘Six Views of Embodied Cognition’. Psychonomic Bulletin & Review 9 (4): 625–36.Google Scholar

Wilson, Sarah. (1997) ‘Identity, Genealogy and the Social Family: The Case of Donor Insemination’. International Journal of Law, Policy and the Family 11 (2): 270–97.Google Scholar

Wisdom, Jennifer P., Bruce, Kevin, Saedi, Goal Auzeen, Weis, Teresa, and Green, Carla A. (2008) ‘“Stealing Me from Myself”: Identity and Recovery in Personal Accounts of Mental Illness’. Australian and New Zealand Journal of Psychiatry 42 (6): 489–95.Google Scholar

Witz, Anne. (2000) ‘Whose Body Matters? Feminist Sociology and the Corporeal Turn in Sociology and Feminism’. Body & Society 6 (2): 1–24.Google Scholar

Wolf, Susan M, Lawrenz, Frances P, Nelson, Charles A et al. (2008) ‘Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations’. The Journal of Law, Medicine & Ethics 36 (2): 219–48.Google Scholar

World Health Organization. (2021) Global Strategy on Digital Health 2020–2025. www.who.int/docs/default-source/documents/gs4dhdaa2a9f352b0445bafbc79ca799dce4d.pdfGoogle Scholar

Xafis, Vicki, Schaefer, G Owen, Labude, Markus K et al. (2019) ‘An Ethics Framework for Big Data in Health and Research’. Asian Bioethics Review 11 (3): 227–54.Google Scholar

Young, Iris Marion. (2005) ‘Throwing Like a Girl: A Phenomenology of Feminine Body Comportment Motility and Spatiality’. In On Female Body Experience: ‘Throwing Like a Girl’ and Other Essays. Oxford: Oxford University Press: 27–45.Google Scholar

Young, Robert. (1982) ‘The Value of Autonomy’. The Philosophical Quarterly 32 (126): 35–44.Google Scholar

Zadeh, Sophie, Ilioi, Elena, Jadva, Vasanti, and Golombok, Susan. (2018) ‘The Perspectives of Adolescents Conceived Using Surrogacy, Egg or Sperm Donation’. Human Reproduction 33 (6): 1099–106.Google Scholar

Zeiler, Kristin. (2009) ‘Symposium on Genetics, Identity and Ethics’. New Genetics and Society 28 (2): 153–6.Google Scholar