Skip to main content Accessibility help
×
Home
Hostname: page-component-544b6db54f-kbvt8 Total loading time: 0.665 Render date: 2021-10-20T22:17:23.098Z Has data issue: true Feature Flags: { "shouldUseShareProductTool": true, "shouldUseHypothesis": true, "isUnsiloEnabled": true, "metricsAbstractViews": false, "figures": true, "newCiteModal": false, "newCitedByModal": true, "newEcommerce": true, "newUsageEvents": true }

Book contents

Chapter 5 - Informed Consent in Pediatric and Adolescent Gynecology Practice: From Ethical Principles to Ethical Behaviors

Published online by Cambridge University Press:  01 February 2018

Sarah M. Creighton
Affiliation:
University College Hospital, London
Adam Balen
Affiliation:
University of Leeds
Lesley Breech
Affiliation:
Cincinnati Children’s Hospital
Lih-Mei Liao
Affiliation:
University College Hospital, London
Get access

Summary

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Pediatric and Adolescent Gynecology
A Problem-Based Approach
, pp. 45 - 52
Publisher: Cambridge University Press
Print publication year: 2018

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Tamar-Mattis, A, Baratz, A, Baratz Dalke, K, Karkazis, K. Emotionally and cognitively informed consent for clinical care for differences of sex development. Psychology & Sexuality (2013). DOI: 10.1080/19419899.2013.831215CrossRef
Kahnemen, D. Thinking Fast and Slow. New York: Farrar, Straus and Giroux, 2011.Google Scholar
Judicial Council of California. Civil Jury Instruction 532.
Faden, R, Beauchamp, T, King, N. A History and Theory of Informed Consent. New York: Oxford University Press, 1986.Google Scholar
Hack, TF, Degner, L, Parker, P. The communication goals and needs of cancer patients: a review. Psycho-Oncology 2005; 14: 831–45.CrossRefGoogle ScholarPubMed
Davison, SN. Facilitating advance care planning for patients with end-stage renal disease: the patient perspective. Clinical Journal of the American Society of Nephrology 2006; 1(5): 1023–28.CrossRefGoogle ScholarPubMed
Gattellari, M, Butow, P, Tattersall, M. Sharing decisions in cancer care. Social Science and Medicine 2001; 52: 1865–78.CrossRefGoogle ScholarPubMed
Say, R, Murtagh, M, Thomson, R. Patients’ preference for involvement in medical decision making: A narrative review. Patient Education and Counseling 2006; 60: 102–14.CrossRefGoogle ScholarPubMed
Butow, P, Maclean, M, Dunn, SM, Tattersall, MHN, Boyer, MJ. The dynamics of change: cancer patients’ preferences for information involvement and support. Annals of Oncology 1997; 8: 857–63.CrossRefGoogle Scholar
Fine, A. Nephrologists should voluntarily divulge survival data to potential dialysis patients: a questionnaire study. Peritoneal Dialysis International 2005; 25(3): 269–73.Google ScholarPubMed
American Academy of Pediatrics. Informed consent, parental permission, and assent in pediatric practice (RE9510). Pediatrics 1995; 95(2): 314–17.
Kon, AA. Ethical issues in decision-making for infants with disorders of sex development. Horm Metab Res 2015; 47: 340–43.Google ScholarPubMed
Tamar-Mattis, A. Exceptions to the rule: curing the law’s failure to protect intersex infants. Berkeley Journal of Gender, Law & Justice 2006; 21: 59110.Google Scholar
Karkazis, K, Tamar-Mattis, A, Kon, AA. Genital surgery for disorders of sex development: implementing a shared decision-making approach. Journal of Pediatric Endocrinology and Metabolism 2010; 23(8): 789805.CrossRefGoogle ScholarPubMed
Hester, JD. Intersex(es) and informed consent: how physicians’ rhetoric constrains choice. Theoretical Medicine 2004; 25: 2149.CrossRefGoogle ScholarPubMed
Fallowfield, L, Jenkins, V. Communicating sad, bad, and difficult news in medicine Lancet 2004; 363: 312–19.CrossRefGoogle Scholar
Paulus, MP, Yu, AJ. Emotion and decision-making: affect-driven belief systems in anxiety and depression. Trends in Cognitive Sciences 2012; 16(9): 476–83.CrossRefGoogle ScholarPubMed
Davies, G, Feder, E. (eds). Narrative Symposium: Intersex. Narrative Inquiry in Bioethics 2015; 5(2): 87150.Google Scholar
Magritte, E. Working together in placing the long term interests of the child at the heart of the DSD evaluation. Journal of Pediatric Urology 2012. http://dx.doi.org/10.1016/j.jpurol.2012.07.011CrossRef
Ehlers, A, Clark, DM. A cognitive model of post-traumatic stress disorder. Behaviour Research and Therapy 2000; 38: 319–45.CrossRefGoogle Scholar
Heller-Boersma, JG, Edmonds, DK, Schmidt, UH. Cognitive behavioural model and therapy for utero-vaginal agenesis (Mayer-Rokitansky-Kuster-Hauser Syndrome: MRKH). Behavioural and Cognitive Psychotherapy, 2009; 37: 449–67.CrossRefGoogle Scholar
Boyle, M, Smith, S, Liao, LM. Adult genital surgery for intersex women: a solution to what problem? Journal of Health Psychology 2005; 10: 573–84.CrossRefGoogle ScholarPubMed
Alderson, J, Roen, K, Muscarella, M. Psychological Care: Addressing the Effects of Sexual and Gender Norms. In Creighton, SM, Balen, A, Breech, L, Liao, LM (Eds.), Pediatric & Adolescent Gynecology: A Problem-Based Approach. Cambridge University Press, 2017.Google Scholar
Streuli, JC, Vayena, E, Cavicchia-Balmer, Y, Huber, J. Shaping parents: impact of contrasting professional counseling on parents’ decision making for children with disorders of sex development. J Sex Med 2013; 10: 1953–60. DOI:10.1111/jsm.12214.CrossRefGoogle ScholarPubMed
Liao, LM, Taghinejadi, N, Creighton, SM. A content and implications analysis of online advertisements for female genital cosmetic surgery. BMJ Open 2012; 2: e001908. DOI:10.1136/bmjopen-2012-001908.CrossRefGoogle ScholarPubMed
Liao, LM, Wood, D, Creighton, SM. Between a rock and a hard place: parents choosing normalising cosmetic genital surgery for their children. BMJ 2015; 351: h5124.CrossRefGoogle Scholar
Mukherjee, K. A dual system model of preferences under risk. Psychol Rev 2010; 177(1): 243–55.Google Scholar
Ha, JF, Longnecker, N. Doctor-patient communication: a review. Ochsner Journal 2010; 10: 3843.Google ScholarPubMed
Liao, LM, Baker, E, Boyle, ME, Woodhouse, CRJ, Creighton, SM. Experiences of surgical approaches to continence management for cloacal anomalies: a qualitative analysis based on six women. Journal of Pediatric and Adolescent Gynecology 2013. DOI: 10.1016/j.jpag.2013.11.011.CrossRef
Platt, FW, Keating, KN. Differences in physician and patient perceptions of uncomplicated UTI symptom severity: understanding the communication gap. Int J Clin Prac. 2007; 61(2): 303–8.CrossRefGoogle ScholarPubMed
Michie, S, van Stralen, MM, West, R. The behaviour change wheel: A new method for characterising and designing behaviour change interventions. Implementation Science 2011; 6: 42. DOI:10.1186/1748-5908-6-42.CrossRefGoogle ScholarPubMed
1
Cited by

Send book to Kindle

To send this book to your Kindle, first ensure no-reply@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about sending to your Kindle.

Note you can select to send to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be sent to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Send book to Dropbox

To send content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about sending content to Dropbox.

Available formats
×

Send book to Google Drive

To send content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about sending content to Google Drive.

Available formats
×