Book contents
- Frontmatter
- Contents
- Notes on contributors
- Preface and acknowledgements
- one Sociology and survivor research: an introduction
- two Mental health service users’ experiences and epistemological fallacy
- three Doing good carer-led research: reflecting on ‘Past Caring’ methodology
- four Theorising service user involvement from a researcher perspective
- five How does who we are shape the knowledge we produce? Doing collaborative research about personality disorders
- six Where do service users’ knowledges sit in relation to professional and academic understandings of knowledge?
- seven Recognition politics as a human rights perspective on service users’ experiences of involvement in mental health services
- eight Theorising a social model of ‘alcoholism’: service users who misbehave
- nine “Hard to reach”? Racialised groups and mental health service user involvement
- ten Individual narratives and collective knowledge: capturing lesbian, gay and bisexual service user experiences
- eleven Alternative futures for service user involvement in research
- twelve Brief reflections
- Appendix Details of the seminar series
- Index
four - Theorising service user involvement from a researcher perspective
Published online by Cambridge University Press: 03 February 2022
- Frontmatter
- Contents
- Notes on contributors
- Preface and acknowledgements
- one Sociology and survivor research: an introduction
- two Mental health service users’ experiences and epistemological fallacy
- three Doing good carer-led research: reflecting on ‘Past Caring’ methodology
- four Theorising service user involvement from a researcher perspective
- five How does who we are shape the knowledge we produce? Doing collaborative research about personality disorders
- six Where do service users’ knowledges sit in relation to professional and academic understandings of knowledge?
- seven Recognition politics as a human rights perspective on service users’ experiences of involvement in mental health services
- eight Theorising a social model of ‘alcoholism’: service users who misbehave
- nine “Hard to reach”? Racialised groups and mental health service user involvement
- ten Individual narratives and collective knowledge: capturing lesbian, gay and bisexual service user experiences
- eleven Alternative futures for service user involvement in research
- twelve Brief reflections
- Appendix Details of the seminar series
- Index
Summary
Introduction
There has been a growing momentum concerning patient and public involvement (PPI) in research over the last decade in the UK, with the concomitant establishment of appropriate infrastructure, in particular, the development of INVOLVE (Hanley et al, 2004), which is supported by the Department of Health (DH) expressly to promote PPI in research. In 2005, the DH explicitly stated that members of the public, including service users (patients) and carers, should be actively involved in ‘design, conduct, analysis and reporting of research’ (DH, 2005), while the National Institute for Health Research (NIHR) increasingly requires evidence of active public involvement when commissioning health care research (NIHR, 2012). The NIHR is one of two main public bodies (the other being the Medical Research Council) through which health care research is funded in the UK, and is therefore hugely influential in this area. Principles for good practice when involving service users in research have also been published in different areas of health care, in particular mental health (UK Mental Health Research Network, 2011).
Over a similar period, theorists and other academics have started to develop and codify knowledge concerning issues arising from PPI in research. These have included the definition of different models of participation and a discussion of different conceptions of knowledge itself (Nolan et al, 2007; Oliver et al, 2008; Morrow et al, 2010). In this chapter, we intend to discuss some of these issues in relation to our real-world experience of leading and working on academic-funded projects in which service users have played active roles to varying extents.
At the University of the West of England (UWE), over the last five years, we have had a particular focus on working with service users across a range of activities within the institution, including research. We have assigned the term ‘service user research partner’ to those individuals, neither academics nor health or social care practitioners, who have been active within research projects. In 2010, we produced a guide for good practice for involving service users in research, developed jointly by services users, carers, academics, practitioners and members of the public (UWE, 2010).
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- Mental Health Service Users in ResearchCritical Sociological Perspectives, pp. 39 - 52Publisher: Bristol University PressPrint publication year: 2013
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