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Mental Health, Legal Capacity, and Human Rights Mental Health, Legal Capacity, and Human Rights
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24 - The Use of Patient Advocates in Supporting People with Psychosocial Disabilities

Published online by Cambridge University Press:  20 August 2021

By
Aikaterini Nomidou
Edited by
Michael Ashley Stein ,
Faraaz Mahomed ,
Vikram Patel  and
Charlene Sunkel
Michael Ashley Stein
Affiliation:
Harvard Law School
Faraaz Mahomed
Affiliation:
Wits University
Vikram Patel
Affiliation:
Harvard Medical School
Charlene Sunkel
Affiliation:
Global Mental Health Peer Network
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Summary

It is now well documented that support is an essential ingredient of the Convention on the Rights of Persons with Disabilities’ (CRPD) paradigm shift for the exercise of legal capacity, and that patient advocacy has the potential to promote the CRPD’s values. What remains less documented is the support sought by and given to persons with psychosocial disabilities by family members and representative psychosocial disability organizations, consisting of persons with psychosocial disabilities and family members, and group advocacy undertaken by the latter. This chapter uses the personal story of a family member of a person with psychosocial disability to lay out some of the key issues relating to exercising legal capacity, including legal and practical barriers and obstacles, enabling factors, and supports that foster autonomy through honoring interdependence with family and friends, and the pivotal role of mixed groups of persons with psychosocial disabilities and family members in working to promote and ensure the right of persons of psychosocial disabilities to be consulted and to express their own views.

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Mental Health, Legal Capacity, and Human Rights , pp. 364 - 377
Publisher: Cambridge University Press
Print publication year: 2021

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References

Bairaktaris, K. (1994). Mental Health and Social Intervention. Athens: Enallaktikes Ekdoseis [in Greek].Google Scholar
Baumann Anja-WHO Regional Office for Europe. (2010). User empowerment in mental health.Google Scholar
Center for Psychiatric Rehabilitation. https://cpr.bu.edu/.Google Scholar
Center for Society Orientation. (2013). www.cod.rs/en/what-we-do/advocacy-and-lobbying/.Google Scholar
Corrigan, P. W. & Watson, A. C. (2002). Understanding the impact of stigma on people with mental illness. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 1(1), 16–20.Google ScholarPubMed
Donabedian, A. (2005). Evaluating the quality of medical care. MilbankQ, 83, (2005), 691‐729. https://doi.org/10.1111/j.1468–0009.2005.00397.x.CrossRefGoogle ScholarPubMed
European Committee for the Prevention of Torture and Inhuman or Degrading Treatment or Punishment. (2019). Report to the Greek Government on the visit to Greece. CPT/Inf (2019) 4. https://rm.coe.int/1680930c9a.Google Scholar
Fytrakis, E. (2007). The involuntary commitment today: A black hole in the rule of law. Greek scientific journal Cahiers Psychiatrics, 100 (October–December 2007), 109–120. www.academia.edu/6735710/The_involuntary_commitment_today_a_black_hole_in_the_rule_of_law_in_Greek.Google Scholar
Gabriel, J. (1990). Island of Outcasts. Video. www.youtube.com/playlist?list=PL7CB3F677112F3989.Google Scholar
Global Leadership Institute. (2012). https://cpr.bu.edu/resources/ecast/2012-archive/2012-12/.Google Scholar
Greek Ombudsman. (2019). Report on the implementation of the CRPD. https://tbinternet.ohchr.org/_layouts/15/TreatyBodyExternal/Countries.aspx?CountryCode=GRC&Lang=EN.Google Scholar
Lally, J., ó Conghaile, A., Quigley, S., Bainbridge, E., & McDonald, C. (2013). Stigma of mental illness and help-seeking intention in university students. The Psychiatrist, 37(8), 253–260. https://doi.org/10.1192/pb.bp.112.041483.CrossRefGoogle Scholar
Lewis, O. (2017). From here to home. Valedictory address to graduating students of the international diploma on mental health, human rights and law. Pune, India. https://cmhlp.org/impact/convocation-address/.Google Scholar
Lewis, O. (2019). Why isn’t the Committee’s interpretation of Article 12 universally accepted? International Journal of Law and Psychiatry, 62, 7–8. https://doi.org/10.1016/j.ijlp.2018.09.006.Google Scholar
Lionis, C. (2015). Why and how is compassion necessary to provide good healthcare? Comments from an academic physician. International Journal of Health Policy and Management, 4(11), 771–772. https://doi.org/10.15171/ijhpm.2015.132.CrossRefGoogle Scholar
Merrit, J. (September 10, 1989). Europe’s guilty secret. The Observer.Google Scholar
Nomidou, A. (2012). QualityRights Assessment Greece. www.who.int/mental_health/policy/quality_rights/enGoogle Scholar
Nomidou, A. (2013). Standards in mental health facilities – an in depth case study in Greece using the WHO QualityRights tool. Journal of Public Mental Health, 12(4), 201–211. https://doi.org/10.1108/JPMH-06-2013-0046.CrossRefGoogle Scholar
Perlin, M., (2013). Sanism and the Law, in Virtual Mentor. 15(10) (2013), 878–885. https://doi.org/10.1001/virtualmentor.2013.15.10.msoc1-1310.Google ScholarPubMed
Simmons, M., & Gooding, P. (October 23, 2017). Spot the difference: Shared decision-making and supported decision-making in mental health. Irish Journal of Psychological Medicine, 34 (4), 275–286. https://doi.org/10.1017/ipm.2017.59.CrossRefGoogle Scholar
SOFPSI.N.Serron. (2013). Changing Perceptions … All Together! Video. www.youtube.com/watch?v=D15hJLO3aJw&t=4sGoogle Scholar
SOFPSI.N.Serron. (2014). From Vision to Reality. Video. www.youtube.com/watch?v=Zqv84M885o0&t=11s.Google Scholar
SOFPSI.N.Serron. (2014). Puppet Theater Group. Video. www.youtube.com/watch?v=Fe7f7u4p2IIGoogle Scholar
Stelios, S., Lily E., P., Nektarios, D., et al. (2017). Patients’ views and experiences of involuntary hospitalization in Greece: A focus group study. International Journal of Culture and Mental Health. https://doi.org/10.1080/17542863.2017.1409778.CrossRefGoogle Scholar
Stylianidis, S., Lavdas, M., Markou, K., Belekou, P. (2016) The Recovery Model and Modern Psychiatric Care: Conceptual Perspective, Critical Approach and Practical Application. In Stylianidis, S. (ed.) Social and Community Psychiatry. Cham: Springer. https://doi.org/10.1007/978-3-319-28616-7_9.CrossRefGoogle Scholar
WHO. (1998). Health Promotion Glossary. www.who.int/healthpromotion/about/HPR%20Glossary%201998.pdf.Google Scholar

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