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13 - The Consumer Recovery Movement in the United States

Historical Considerations, Key Concepts, and Next Steps for Action

from Part III - Community Psychology in Action

Published online by Cambridge University Press:  16 December 2021

Caroline S. Clauss-Ehlers
Long Island University, New York
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This chapter focuses on the consumer recovery movement. A brief history of key events that have supported the consumer recovery movement in the USA is provided. A definition of recovery is provided along with consideration of the Substance Abuse and Mental Health Services Administration’s (SAMHSA) guiding principles for recovery. Mental health-related stigma is discussed as a barrier to the consumer recovery movement and the access and utilization of mental health services in general. An interview with the Director of The Carter Center’s Mental Health Program is provided to demonstrate programmatic examples of the consumer recovery movement in action. The chapter concludes with a discussion of key current policies and future directions for research and practice.

The Cambridge Handbook of Community Psychology
Interdisciplinary and Contextual Perspectives
, pp. 266 - 288
Publisher: Cambridge University Press
Print publication year: 2021

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Ahmed, A. O., Buckley, P. F., & Mabe, P. A. (2012). Recovery: International efforts at implementing and advancing the recovery model. International Psychiatry: Bulletin of the Board of International Affairs of the Royal College of Psychiatrists, 9(1), 46.CrossRefGoogle ScholarPubMed
Americans with Disabilities Act. (1990). 42 U.S.C. §§ 12101–12141.Google Scholar
Bellack, A. S., & Drapalski, A. (2012). Issues and developments on the consumer recovery construct. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 11(3), 156160. ScholarPubMed
Beronio, K., Po, R., Skopec, L., & Glied, S. (2013). ASPE Research Brief: Affordable Care Act will expand mental health and substance use disorder benefits and parity protections for 62 million Americans. US Department of Health and Human Services.Google Scholar
Burnim, I. (2015). The promise of the Americans with Disabilities Act for people with mental illness. Journal of the American Medical Association, 313(22), 2223–224. ScholarPubMed
Campbell, J. (2005). The historical and philosophical development of peer-run support programs. In Clay, S., Schell, B., Corrigan, P. W., & Ralph, R. O. (Eds.), On our own together: Peer programs for people with mental illness (pp. 1764). Nashville, TN: Vanderbilt Press.CrossRefGoogle Scholar
Campbell, J. (2008). Key ingredients of peer programs identified. Missouri Institute of Mental Health. Scholar
Centers for Medicare and Medicaid Services. (n.d.). Young adults and the Affordable Care Act: Protecting young adults and eliminating burdens on families and businesses. Scholar
Chicago Tribune. (1993, September 27). Hillary Clinton one of three first ladies to testify. Scholar
Clauss-Ehlers, C. S. (2008). Sociocultural factors, resilience, and coping: Support for a culturally sensitive measure of resilience. Journal of Applied Developmental Psychology, 29(3), 197212. Scholar
Clauss-Ehlers, C. S., Chiriboga, D., Hunter, S. J., Roysircar, G., & Tummala-Narra, P. (2019). APA Multicultural Guidelines executive summary: Ecological approach to context, identity, and intersectionality. American Psychologist, 74(2), 232244. ScholarPubMed
Clauss-Ehlers, C. S., Guevara Carpio, M., & Weist, M. D. (2020). Mental health literacy: A strategy for global adolescent mental health promotion. Adolescent Psychiatry, 10(2), 7383. Scholar
Davidson, L. (2015, March 20). History of the peer support movement. International Association of Peer Supporters (iNAPS). Scholar
Davidson, L. (2016). The recovery movement: Implications for mental health care and enabling people to participate fully in life. Health Affairs, 35(6), 10911097. ScholarPubMed
Douglas, M., Wrenn, G., Bent-Weber, S., et al. (2018). Evaluating state mental health and addiction parity laws: A technical report. The Kennedy Forum. Scholar
Drapalski, A. L., Medoff, D., Unick, G. J., et al. (2012). Assessing recovery of people with serious mental illness: Development of a new scale. Psychiatry Services, 63(1), 4853. ScholarPubMed
Economic Policy Institute. (n.d.). How would repealing the Affordable Care Act affect health care and jobs in your state? Scholar
Equip for Equality. (n.d.). Personal decision-making: Self-advocacy for people with mental illness. Scholar
Gehart, D. R. (2011). The mental health recovery movement and family therapy, Part I: Consumer-led reform of services to persons diagnosed with severe mental illness. Journal of Marital and Family Therapy, 38(3), 429442. ScholarPubMed
Golberstein, E., Busch, S. H., Zaha, R., et al. (2015). Effect of the Affordable Care Act’s young adult insurance expansions on hospital-based mental health care. American Journal of Psychiatry, 172(2), 182189. ScholarPubMed
Goldstrom, I., Campbell, J., Rogers, J., et al. (2006). Mental health consumer organizations: A national picture. In Manderscheid, R. W. and Berry, J. T. (Eds.), Center for Mental Health Services: Mental health, United States, 2004 (DHHS Pub No. [SMA]-06-4195, pp. 247255). Rockville, MD: Substance Abuse and Mental Health Services Administration.Google Scholar
Grob, G. N. (2005). Public policy and mental illnesses: Jimmy Carter’s Presidential Commission on Mental Health. The Milbank Quarterly, 83(3), 425456. ScholarPubMed
Gronfein, W. (1985). Incentives and intentions in mental health policy: A comparison of the Medicaid and community mental health programs. Journal of Health and Social Behavior, 26(3), 192206. ScholarPubMed
Happell, B., & Scholz, B. (2017). Doing what we can, but knowing our place: Being an ally to promote consumer leadership in mental health. International Journal of Mental Health Nursing, 27(1), 440447. 10.1111/inm.12404CrossRefGoogle ScholarPubMed
Henderson, C., Evans-Lacko, S., & Thornicroft, G. (2013). Mental illness stigma, help seeking, and public health programs. American Journal of Public Health, 103(5), 777780. ScholarPubMed
Hunt, M. G., & Resnick, S. G. (2015). Two birds, one stone: Unintended consequences and a potential solution for problems with recovery in mental health. Psychiatric Services, 66(11), 12351237. 10.1176/ Scholar
Hunter, M. (1979, February 8). Mrs. Carter, in Capitol debut, praised by Kennedy. The New York Times. Scholar
Jeste, D. V., Eglit, G., Palmer, B. W., et al. (2018). Supported decision making in serious mental illness. Psychiatry, 81(1), 2840. ScholarPubMed
Kessler, R. C., Amminger, G. P., Aguilar-Gaxiola, S., et al. (2007). Age of onset of mental disorders: A review of recent literature. Current Opinion in Psychiatry, 20(4), 359364. ScholarPubMed
Mabe, P., Ahmed, A., Duncan, G., Fenley, G., & Buckley, P. (2014). Project GREAT: Immersing physicians and doctorally-trained psychologists in recovery-oriented care. Professional Psychology: Research and Practice, 45(5), 347356. Scholar
Mechanic, D., & Rochefort, D. A. (1992). A policy of inclusion for the mentally ill. Health Affairs, 11(1), 128150. ScholarPubMed
Melek, S., Davenport, S., & Gray, T. J. (2019, November 19). Addiction and mental health vs. physical health: Widening disparities in network use and provider reimbursement: A deeper analytical dive and updated results through 2017 for 37 million employees and dependents. Milliman Research Report. dening_disparities_in_network_use_and_provider_reimbursement.pdfGoogle Scholar
National Institutes of Health. (n.d.). National Institute of Mental Health (NIMH). The NIH Scholar
Norman, C. (2006). The Fountain House Movement, an alternative rehabilitation model for people with mental health problems, members’ descriptions of what works. Scandinavian Journal of Caring Sciences, 20(2), 184192. ScholarPubMed
Olmstead, v. L. C. (1999). (98–536) 527 U.S. 581.Google Scholar (n.d.). Help sheet: Our consumerism. Scholar
Parham, W. D., & Clauss-Ehlers, C. S. (2016). Following inspiration: A conversation with Former First Lady Rosalynn Carter. Journal of Multicultural Counseling and Development, 44(3), 156175 (Archived at the Drs. Nicholas and Dorothy Cummings Center for the History of Psychology, The University of Akron). Scholar
President’s Commission on Mental Health. (1978). Report to the President from the President’s Commission on Mental Health, 4 vols. Washington, DC: US Government Printing Office.Google Scholar
Riotta, C. (2017, July 29). GOP aims to kill Obamacare yet again after failing 70 times. Newsweek. Scholar
Rogers, E. S., Teague, G., Lichtenstein, C., et al. (2007). The effects of participation in adjunctive consumer-operated programs on both personal and organizationally mediated empowerment: Results of a multi-site study. A Special Issue of the Journal of Rehabilitation Research and Development, 44(6), 785800. Scholar
Seeman, N. (2015). Use data to challenge mental-health stigma. Nature, 528(7582), Article 309. ScholarPubMed
Seeman, N., Tang, S., Brown, A. D., & Ing, A. (2016). World survey of mental illness stigma. Journal of Affective Disorders, 190, 115121. ScholarPubMed
Segal, S. P. (2011). Outcomes from consumer-operated and community mental health services: A randomized controlled trial. Yearbook of Psychiatry and Applied Mental Health, 62(8), 915921. ScholarPubMed
Silversides, A. (2009). Medical profession urged to end mental health discrimination. Canadian Medical Association Journal, 181(12), E317E318. Scholar
Substance Abuse and Mental Health Services Administration. (2012). SAMHSA’s working definition of recovery: 10 guiding principles of recovery [Brochure]. Scholar
Tanenbaum, S. J. (2011). Mental health consumer-operated services organizations in the US: Citizenship as a core function and strategy for growth. Health Care Analysis, 19(2), 192205. doi:10.1007/s10728-010-0151-yCrossRefGoogle ScholarPubMed
Thornicroft, G., Deb, T., & Henderson, C. (2016). Community mental health care worldwide: Current status and further developments. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 15(3), 276286. ScholarPubMed
US Department of Health and Human Services. (n.d.). Consumer-operated services. Substance Abuse and Mental Health Services Administration, Center for Mental Health Services. Scholar
Young Minds Advocacy (n.d.). The Community Mental Health Act of 1963. Scholar

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