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Service users with psychosis may not consent to sharing information with
carers. However, carers require access to relevant information to support
them in their role.
To inform clinical practice when service users withhold consent to share
information with their carer.
Study data were derived from a synthesis of policy review
(n=91), national survey (n=595) and
individual interviews (n=24).
Key principles to guide information-sharing practices were identified.
Service users highlighted confidentiality being guaranteed by consent
processes. Carers suggested a ‘culture shift’ was required, with
professionals trained to work with carers. Professionals emphasised
mental capacity, professional judgement and the context of care. A best
practice framework is proposed.
An important distinction is between general information, which can always
be shared without consent, and personal information, which is new to the
carer and where consent needs to be considered. Clinical judgement is
central to balancing conflicting ethical imperatives in this area.
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