To send content items to your account,
please confirm that you agree to abide by our usage policies.
If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account.
Find out more about sending content to .
To send content items to your Kindle, first ensure firstname.lastname@example.org
is added to your Approved Personal Document E-mail List under your Personal Document Settings
on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part
of your Kindle email address below.
Find out more about sending to your Kindle.
Note you can select to send to either the @free.kindle.com or @kindle.com variations.
‘@free.kindle.com’ emails are free but can only be sent to your device when it is connected to wi-fi.
‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.
The main considerations in the discussion about feedback are the right not to know, the duty of confidentiality and the duty of care. The central question is whether the operator of a genetic database has a duty to inform the participants or third parties about findings of research conducted on data deriving from this database. One must not forget that such research may be carried out many years after a research subject has decided to take part in the population-based genetic project. Living conditions, attitudes towards life, health, social and family status and other aspects which may have had an impact on a person's decision to know or not to know his/her genetic data may have changed significantly, so that the decision which seemed to be right for a research subject five years ago may not seem right in the light of altered circumstances. The question is even more complex in cases where a project has not been designed as a pure research undertaking (the UK Biobank) but also involves elements of a clinical relationship (the Estonian Genome Project) due to additional duties arising from this relationship.
Right not to know
Among the above-mentioned three principles, the right not to know is probably the most modern one given the fact that the roots of international recognition of confidentiality and duty of care can be traced back to the Hippocratic Oath.
Email your librarian or administrator to recommend adding this to your organisation's collection.