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Role of patients’ organizations in Health Technology Assessment: a Habermasian system and lifeworld perspective

Published online by Cambridge University Press:  15 December 2020

Neda Milevska-Kostova Open the ORCID record for Neda Milevska-Kostova [Opens in a new window] ,
Sita Ratna Devi Duddi Open the ORCID record for Sita Ratna Devi Duddi [Opens in a new window]  and
Richard J. Cooper
Neda Milevska-Kostova*
Affiliation:
Institute for Social Innovation, Nikola Parapunov 41, Skopje1000, Macedonia International Alliance of Patients’ Organisations, London, UK
Sita Ratna Devi Duddi
Affiliation:
International Alliance of Patients’ Organisations, London, UK Indian Alliance of Patient Groups, Gurgaon, India
Richard J. Cooper
Affiliation:
School of Health and Related Research, University of Sheffield, Sheffield, UK
*
Author for correspondence: Neda Milevska-Kostova, E-mail: nmilevska@studiorum.org.mk
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Abstract

Patient and public involvement in Health Technology Assessment (HTA) is gaining increased interest among research and policy communities. Patients’ organizations represent an important link between individual patients and the health system. Social theories are increasingly being used to explain doctor–patient–system interactions, expanding understanding beyond the mere clinical perspective. In this sense, patient involvement in HTA can also be considered through the Habermas’s theory of communicative action. From a Habermasian perspective, HTA as part of the instrumental rationality contributes to an increased efficiency of resource use within the system; however, such rationalization threatens to colonize the lifeworld by making it “increasingly state administered with attenuated possibilities for communicative action as a result of the commercialization and rationalization in terms of immediate returns.” Using Habermasian system/lifeworld framework, this paper explores opportunities and obstacles to patient involvement in HTA, whereby trying to understand current and possible roles of patients’ organizations as a mediating force between HTA as a function of the system and the lifeworld represented by patients.

Keywords

Technology assessmentBiomedicalPatient participationCommunicationPolicyHealth resourcesSocial theory
Type
Perspective
Information
International Journal of Technology Assessment in Health Care , Volume 37 , Issue 1 , 2021 , e6
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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