American Psychiatric Association (1994) Diagnostic and Statistical Manual of Mental Disorders (4th edn) (DSM–IV). Washington, DC: APA.
Barrowclough, C. & Parle, M. (1997) Appraisal, psychological adjustment and expressed emotion in relatives of patients suffering from schizophrenia. British Journal of Psychiatry, 171, 26–30.
Birchwood, M. & Cochrane, R. (1990) Families coping with schizophrenia: coping styles, their origins and correlates. Psychological Medicine, 20, 857–865.
Department of Health (1999) National Service Framework. London: Department of Health.
Goldberg, D. P. & Hillier, V. F. (1979) A scaled version of the General Health Questionnaire. Psychological Medicine, 9, 139–145.
Kay, S. R., Fishbone, A. & Olper, L. A. (1987) The positive and negative syndrome scale. Schizophrenia Bulletin, 13, 261–276.
Kuipers, E. & Raune, D. (2000) The early development of EE and burden in the families of first onset psychosis. In Early Intervention in Psychosis. A Guide to Concepts, Evidence and Interventions (eds Birchwood, M. & Fowler, D.), pp. 128–140. Chichester: John Wiley & Sons.
Kuipers, E., Leff, J. & Lam, D. (1992) Family Work for Schizophrenia. A Practical Guide. London: Gaskell.
Maccarthy, B., Lesage, A. & Brewin, C. R. (1989) Needs for care among the relatives of long-term users of day care. Psychological Medicine, 19, 725–736.
Magliano, L., Vetro, F. & Maj, M. (1998) Social and clinical factors influencing the choice of coping strategies in relatives of patients with schizophrenia: Results of the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 33, 403–409.
Michael, B., Gibbon, M., Spitzer, R. L., et al (1996) User Guide for the Structured Clinical Interview for DSM–IV Axis I Disorders. Research Version (SCID I, Biometrics Research). New York: New York State Psychiatric Institute.
Office of Population Censuses and Surveys (1990) Standard Occupational Classification. Vol I: Structure and Definition of Major, Minor and Unit Groups. London: HMSO.
Scazufca, M. & Kuipers, E. (1996) Links between expressed emotion and burden of care in relatives of patients with schizophrenia. British Journal of Psychiatry, 168, 580–587.
Scazufca, M. & Kuipers, E. (1997) Impact on women who care for those with schizophrenia. Psychiatric Bulletin, 21, 469–471.
Schene, A. H. & van Wijngaarden, B. (1992) The Involvement Evaluation Questionnaire. Amsterdam: Department of Psychiatry, University of Amsterdam.
Schene, A. H.
van Wijngaarden, B. & Koeter, M. (1998) Family caregiving in schizophrenia: domains and distress. Schizophrenia Bulletin, 24, 609–618.
Szmukler, G. I., Burgess, P., Herman, H., et al (1996) Caring for relatives with serious mental illness – the development of the Experience of Caregiving Inventory. Social Psychiatry and Psychiatric Epidemiology, 31, 134–148.
Tucker, C., Barker, A. & Gregoire, A. (1998) Living with schizophrenia: caring for a person with a severe mental illness. Social Psychiatry and Psychiatric Epidemiology, 33, 305–309.