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Aims, outcome measures, study sites and patient sample: EPSILON Study I

  • Thomas Becker (a1), Martin Knapp (a2), Helle Charlotte Knudsen (a3), Aart H. Schene (a4), Michele Tansella (a5), Graham Thornicroft (a6), José Luis Vázquez-Barquero (a7) and Epsilon Study Group...

Abstract

Background

Cross-national research into the care of people with severe mental illnesses is hampered by a lack of standardised measures. The European Psychiatric Services: Inputs Linked to Outcome Domains and Needs (EPSILON) Study is a European Union funded project within the BIOMED-2 programme. The project aims to develop standardised instruments to facilitate future cross-national research.

Aims

To describe the aims, outcome measures, study sites and patient samples of the EPSILON Study.

Method, results, conclusions

See companion papers in this supplement.

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Copyright

Corresponding author

Professor Thomas Becker, Department of Psychiatry, University of Leipzig, Liebigstrasse 22b, D-04103 Leipzig, Germany. Tel: +49 341 972 4401; fax: +49 341 960 4409
Study coordinating centre: Professor Graham Thornicroft, Health Services Research Department, Institute of Psychiatry King's College London, De Crespigny Park, Denmark Hill, London SE5 8AF

Footnotes

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Declaration of interest

No conflict of interest. Funding detailed in Acknowledgements.

Footnotes

References

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American Psychiatric Association (1987) Diagnostic and Statistical Manual of Mental Disorders (3rd edn, revised) (DSM–III–R). Washington, DC: APA.
Becker, T., Knapp, M., Knudsen, H. C., et al (1999) The EPSILON Study of schizophrenia in five European countries: design and methodology for standardising outcome measures and comparing patterns of care and service costs. British Journal of Psychiatry, 175, 514521.
Beecham, J. & Knapp, M. (1992) Costing psychiatric interventions. In Measuring Mental Health Needs (eds Thornicroft, G., Brewin, C. R. & Wing, J.), pp. 163183. London: Gaskell.
Chisholm, D., Knapp, M. R. J., Knudsen, H. C., et al (2000) The Client Socio-Demographic and Service Receipt Inventory: development of an instrument for international research. EPSILON Study 5. British Journal of Psychiatry, 177 (suppl. 39), s28s33.
Gaite, L., Vázquez-Barquero, J. L., Arriaga Arrizabalaga, A., et al (2000) Quality of life in schizophrenia: development, reliability and internal consistency of the Lancashire Quality of Life Profile – European Version. EPSILON Study 8. British Journal of Psychiatry, 177 (suppl. 39), s49s54.
Johnson, S., Ramsay, R., Thornicroft, G., et al (eds) (1997) London's Mental Health. The Report to the King's Fund London Commission. London: King's Fund.
Johnson, S., Salvador-Carulla, L. & the EPCAT group (1998) Description and classification of mental health services: a European perspective. European Psychiatry, 13, 333341.
Kastrup, M. (1998) Mental health in the city of Copenhagen, Denmark. In Mental Health in our Future Cities (eds Goldberg, D. & Thornicroft, G.), pp. 101123. Hove: Psychology Press.
Knudsen, H. C., Vázquez-Barquero, J. L., Welcher, B., et al (2000) Translation and cross-cultural measurements for schizophrenia. EPSILON Study 2. British Journal of Psychiatry, 177 (suppl. 39), s8s14.
McCrone, P., Leese, M., Thornicroft, G., et al (2000) Reliability of the Camberwell Assessment of Need – European Version. EPSILON Study 6. British Journal of Psychiatry, 177 (suppl. 39), s34s40.
Oliver, J., Huxley, P., Bridges, K., et al (1996) Quality of Life and Mental Health Services. London: Routledge.
Phelan, M., Slade, M., Thornicroft, G., et al (1995) The Camberwell Assessment of Need: the validity and reliability of an instrument to assess the needs of people with severe mental illness. British Journal of Psychiatry, 167, 589595.
Ruggeri, M. & Dall'Agnola, R. (1993) The development and use of the Verona Expectations for Care Scale (VECS) and the Verona Service Satisfaction Scale (VSSS) for measuring expectations and satisfaction with community-based psychiatric services to patients, relatives and professionals. Psychological Medicine, 23, 511523.
Ruggeri, M., Lasalvia, A., Dell'Agnola, R., et al (2000) Development, internal consistency and reliability of the Verona Service Satisfaction Scale – European Version. EPSILON Study 7. British Journal of Psychiatry, 177 (suppl. 39), s41s47.
Schene, A. H. & van Wijngaarden, B. (1992) The Involvement Evaluation Questionnaire. Amsterdam: Department of Psychiatry, Academic Medical Center, University of Amsterdam.
Schene, A. H. Hoffmann, E. & Goethals, A. L. J. (1998) Mental health in Amsterdam. In Mental Health in our Future Cities (eds Goldberg, D. & Thornicroft, G.), pp. 3355. Hove: Psychology Press.
Schene, A. H., Koeter, M., van Wijngaarden, B., et al (2000) Methodology of a multi-site reliability study. EPSILON Study 3. British Journal of Psychiatry, 177 (suppl. 39), s15s20.
Tansella, M., Amaddeo, F., Burti, L., et al (1998) Community-based mental health care in Verona, Italy. In Mental Health in our Future Cities (eds Goldberg, D. & Thornicroft, G.), pp. 239262. Hove: Psychology Press.
Thornicroft, G. & Goldberg, D. (1998) London's Mental Health Services. In Mental Health in our Future Cities (eds Goldberg, D. & Thornicroft, G.), pp. 1531. Hove: Psychology Press.
van Wijngaarden, B., Schene, A. H., Koeter, M., et al (2000) Caregiving in schizophrenia: development, internal consistency and reliability of the Involvement Evaluation Questionnaire – European Version. EPSILON Study 4. British Journal of Psychiatry, 177 (suppl. 39), s21s27.
Vázquez-Barquero, J. L. & Garcia, J. (1999) Deinstitutionalization and psychiatric reform in Spain. European Archives of Psychiatry and Clinical Neuroscience, 249, 128135.
Ventura, J., Green, M. F., Shaner, A., et al (1993) Training and quality assurance with the Brief Psychiatric Rating Scale: ‘The drift busters’. International Journal of Methods in Psychiatric Research, 3, 221244.
World Health Organization (1992) Schedules for Clinical Assessment in Neuropsychiatry (ed.-in-chief Wing, J. K.). Geneva: WHO.

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Aims, outcome measures, study sites and patient sample: EPSILON Study I

  • Thomas Becker (a1), Martin Knapp (a2), Helle Charlotte Knudsen (a3), Aart H. Schene (a4), Michele Tansella (a5), Graham Thornicroft (a6), José Luis Vázquez-Barquero (a7) and Epsilon Study Group...
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