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Psoriasis today: experiences of healthcare and impact on quality of life in a major UK cohort

  • Avril S. Nash (a1), Helen McAteer (a2), Julia Schofield (a1), R. Penzer (a1) and Annie K. Gilbert (a2)...

Abstract

Aim

To establish how people with psoriasis in the United Kingdom today experience living with their condition including diagnosis, treatment, healthcare provision and impact on daily life.

Background

Psoriasis is a debilitating long-term inflammatory skin disease which can result in severe itching, discomfort and soreness, and may be associated with problems beyond the specific symptoms related to the skin. For many it is accompanied by difficult-to-manage treatment regimes, emotional distress and a negative impact on their quality of life and psychosocial functioning. To date there is little published information about the health experiences of people in the United Kingdom with psoriasis.

Methods

A postal self-administered questionnaire was completed by members of the Psoriasis Association and the responses analysed (n=1564).

Findings

The findings suggest some similarities to surveys in other nations, but specifically highlighted that patients feel under-informed and are dissatisfied with current treatment regimes. Responses provided an insight into aspects of the condition that treatments should be targeting. Specific areas of negative impact on psychosocial functioning were identified, including the lack of available support for those experiencing emotional distress. The research provides important information about how the care of patients with psoriasis can be improved, especially at primary care level. This includes: improved training in psoriasis knowledge and awareness at general practitioner level and greater use of dermatology specialist nurses in primary care settings; more effective and manageable treatment regimes that target visible areas and general well-being; greater support for emotional distress and psychosocial functioning.

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Copyright

Corresponding author

Correspondence to: Dr Avril S Nash, Centre for Research in Primary and Community Care, University of Hertfordshire, College Lane, Hatfield, AL10 9AB, UK. Email: a.s.nash@herts.ac.uk

References

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Anstey, A., McAteer, H., Kamath, N. and Percival, F. 2012: Extending psychosocial assessment of patients with psoriasis in the UK, using a self-rateds, web-based survey. Clinical and Experimental Dermatology 37, 735740.
Bhosle, M.J., Kulkarni, A., Feldman, S.R. and Balkrishnan, R. 2006: Quality of life in patients with psoriasis. Health and Quality of Life Outcomes 4, 35. doi: 1477-7525-4-35 [pii] 10.1186/1477-7525-4-35. Available at http://www.hqlo.com/4/1/35.
Department of Health. 2006: Our health, our care, our say: a new direction for community services. Norwich: Department of Health.
Department of Health. 2011a: Expert patient. London, UK: Department oh Health.
Department of Health. 2011b: Self-management. London, UK: Department of Health.
Dubertret, L., Mrowietz, U., Ranki, A., van de Kerkhof, P.C., Chimenti, S., Lotti, T. and Schafer, G. 2006: European patient perspectives on the impact of psoriasis: the EUROPSO patient membership survey. British Journal of Dermatology 155, 729736.
Ersser, S.J., Cowdell, F.C., Latter, S.M. and Healy, E. 2010: Self-management experiences in adults with mild-moderate psoriasis: an exploratory study and implications for improved support. British Journal of Dermatology 163, 10441049.
Finlay, A.Y. and Khan, G.K. 1994: Dermatology Life Quality Index (DLQI) – a simple practical measure for routine clinical use. Clinical and Experimental Dermatology 19, 210216.
Fortune, D.G., Richards, H.L., Kirby, B., Bowcock, S., Main, C.J. and Griffiths, CEM. 2002: A cognitive-behavioural symptom management programme as an adjunct in psoriasis therapy. British Journal of Dermatology 146, 458465.
Fouere, S., Adjadj, L. and Pawin, H. 2005: How patients experience psoriasis: results from a European survey. Journal of the European Academy of Dermatology and Venereology 19, 26.
Gottlieb, A.B. and Dann, F. 2009: Comorbidities in patients with psoriasis. American Journal of Medicine 122, 1150. e1151e1159.
Griffiths, C.E.M. and Barker, J.N.W.N. 2010: Psoriasis. In D.A. Burns, S.M. Breathnach, R.H.Champion, et al. editors. Rook's textbook of dermatology, eighth edition. Oxford: Wiley-Blackwell.
Griffiths, C.E.M. and Richards, H.L. 2001: Psychological influences in psoriasis. Clinical and Experimental Dermatology 26, 338342.
Krueger, G., Koo, J., Lebwohl, M., Menter, A., Stern, R.S. and Rolstad, T. 2001: The impact of psoriasis on quality of life: results of a 1998 National Psoriasis Foundation patient-membership survey. Archives of Dermatology 137, 280284.
Langley, R.G., Krueger, G.G. and Griffiths, C.E. 2005: Psoriasis: epidemiology, clinical features, and quality of life. Annals of the Rheumatic Diseases 64 (Suppl 2), ii18ii23; discussion ii24–25.
Meyer, N., Paul, C., Feneron, D., Bardoulat, I., Thiriet, C., Camara, C. and Ortonne, J.P. 2010: Psoriasis: an epidemiological evaluation of disease burden in 590 patients. Journal of the European Academy of Dermatology and Venereology 24, 10751082.
Poulin, Y., Papp, K.A., Wasel, N.R., Andrew, R., Fraquelli, E., Bernstein, G. and Chan, D. 2010: A Canadian online survey to evaluate awareness and treatment satisfaction in individuals with moderate to severe plaque psoriasis. International Journal of Dermatology 49, 13681375.
Schmitt-Egenolf, M. 2006: Psoriasis therapy in real life: the need for registries. Dermatology 213, 327330.
Seng, T.K. and Nee, T.S. 1997: Group therapy: a useful and supportive treatment for psoriasis patients. International Journal of Dermatology 36, 110112.
Unaeze, J., Nijsten, T., Murphy, A., Ravichandran, C. and Stern, R.S. 2006: Impact of psoriasis on health-related quality of life decreases over time: an 11-year prospective study. Journal of Investigative Dermatology 126, 14801489.
Wahl, A.K., Mork, C., Lillehol, B.M., Myrdal, A.M., Helland, S., Hanestad, B.R. and Moum, T. 2006: Changes in quality of life in persons with eczema and psoriasis after treatment in departments of dermatology. Acta Dermato Venereologica 86, 198201.

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Psoriasis today: experiences of healthcare and impact on quality of life in a major UK cohort

  • Avril S. Nash (a1), Helen McAteer (a2), Julia Schofield (a1), R. Penzer (a1) and Annie K. Gilbert (a2)...

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