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Roadmap for the Protection of Disaster Research Participants: Findings from the World Trade Center Evacuation Study

Published online by Cambridge University Press:  28 June 2012

Kristine A. Qureshi
Affiliation:
University of Hawaii at Manoa, School of Nursing and Dental Hygiene, Honolulu, Hawaii, USA
Robyn R.M. Gershon*
Affiliation:
Columbia University, Mailman School of Public Heath, Department of Sociomedical Sciences, New York, New York, USA
Elizabeth Smailes
Affiliation:
Occupational Health and Safety Agent for Healthcare in British Columbia, Vancouver, British Columbia, Canada
Victoria H. Raveis
Affiliation:
Columbia University, Mailman School of Public Health, Center for the Psychosocial Study of Health and Illness, New York, New York, USA
Bridgette Murphy
Affiliation:
Montefiore Medical Center, Department of Pathology, Bronx, New York, USA
Frederick Matzner
Affiliation:
Our Lady of Mercy Medical Center, Bronx, New York, USA
Alan R. Fleischman
Affiliation:
New York Academy of Medicine, New York, New York, USA
*
Department of Sociomedical Sciences Columbia University Mailman School of Public Health 722 West 168th Street, Room 1003 Fax: 212-305-8284 E-mail: rg405@columbia.edu

Abstract

Introduction:

This report addresses the development, implementation, and evaluation of a protocol designed to protect participants from inadvertent emotional harm or further emotional trauma due to their participation in the World Trade Center Evacuation (WTCE) Study research project. This project was designed to identify the individual, organizational, and structural (environmental) factors associated with evacuation from the World Trade Center Towers 1 and 2 on 11 September 2001.

Methods:

Following published recommended practices for protecting potentially vulnerable disaster research participants, protective strategies and quality assurance processes were implemented and evaluated, including an assessment of the impact of participation on study subjects enrolled in the qualitative phase of the WTCE Study.

Results:

The implementation of a protocol designed to protect disaster study participants from further emotional trauma was feasible and effective in minimizing risk and monitoring for psychological injury associated with study participation.

Conclusions:

Details about this successful strategy provide a roadmap that can be applied in other post-disaster research investigations.

Type
Original Research
Copyright
Copyright © World Association for Disaster and Emergency Medicine 2007

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References

1.Drabek, TE: Methodology of studying disasters: Past patterns and future possibilities. Am Behav Sci 1970;13(3):331343.CrossRefGoogle Scholar
2.North, CS, Pfefferbaum, B: Research on the mental health effects of terrorism. JAMA 2002;288:633666.CrossRefGoogle ScholarPubMed
3.Green, BL: Conceptual and Methodological Issues in Assessing the Psychological Impact of Disaster. In: Sowder, BJ (ed), Disasters and Mental Health: Selected Contemporary Perspectives. Rockville: Center for Mental Health Studies of Emergencies, National Institute of Mental Health, 1985, pp 191208.Google Scholar
4.Galea, S, Nandi, A, Vlahov, D: The epidemiology of post-traumatic stress disorder after disasters. Epidemiol Rev 2005;27:7891.CrossRefGoogle ScholarPubMed
5.Norris, FH, Freidman, MJ, Watson, PJ: 60,000 disaster victims speak: Part II. Summary and implications of the disaster mental research. Psychiatry 2002; 65:240260.CrossRefGoogle Scholar
6.North, CS, Nixon, SJ, Shariat, S, Mallonee, S, McMillen, JC, Spitznagel, EL, Smith, EM: Psychiatric disorders among survivors of the Oklahoma City bombing. JAMA 1999;282:755762.CrossRefGoogle ScholarPubMed
7.Canino, C., Bravo, M, Rubio-Stipec, M, Woodbury, M: The impact of disaster on mental health: Prospective and retrospective analyses. Int J Mental Health 1990;19:5169.CrossRefGoogle Scholar
8.Fleischman, AR, Wood, EB. Ethical issues in research involving victims of terror. J Urban Health 2002;79:315321.CrossRefGoogle ScholarPubMed
9.Levine, C: The concept of vulnerability in disaster research. J Trauma Stress 2004;17(5):395402.CrossRefGoogle ScholarPubMed
10.Newman, E, Walker, E, Gefland, A: Assessing the ethical costs and benefits of trauma-focused research. Gen Hosp Psychiatry 1999;21:187196.CrossRefGoogle ScholarPubMed
11.Boothroyd, RA: The impact of research participation on adults with severe mental illness. Mental Health Services Research 2000;2:213221.CrossRefGoogle Scholar
12.Ruzek, JI, Zatzick, DF: Ethical considerations in research participation among acutely injured trauma survivors: An empirical investigation. Gen Hosp Psychiatry 2000;22:2736.CrossRefGoogle ScholarPubMed
13.Walker, EA, Newman, E, Koss, M, Bernstein, D: Does the study of victimization revictimize the victims. Gen Hosp Psychiatry 1997;19:403410.CrossRefGoogle Scholar
14.Richards, HM, Schwartz, LJ: Ethics of qualitative research: are there special issues for health services research. Family Practice 2002;19:135139.CrossRefGoogle ScholarPubMed
15.Marshall, RD, Spitzer, RL, Vaughan, SC, Mellman, LA, MacKinnon, RA, Roose, SP: Assessing the subjective experience of being a participant in psychiatric research. Am J Psychiatry 2001;158:319321.CrossRefGoogle ScholarPubMed
16.Newman, E, Kaloupek, DG: The risks and benefits of participating in trauma-focused research studies. J Trauma Stress 2004;17(5):383–94.CrossRefGoogle ScholarPubMed
17.Quick, G: A paradigm for multidisciplinary disaster research: The Oklahoma City experience. J Emerg Med 1998;16(4):621630.CrossRefGoogle ScholarPubMed
18.Collogan, LK, Tuma, F, Dolan-Sewell, R, Borja, S, Fleischman, AR: Ethical issues pertaining to research in the aftermath of disaster. J Trauma Stress 2004;17:363372.CrossRefGoogle ScholarPubMed
19. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. NIH Office of Human Subjects: The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research. Available at http://www.ohsr.od.nih.gov/guide-lines/belmont.html. Accessed 01 March 2007.Google Scholar
20.Sundnes, KO, Birnbaum, ML (eds) and the Task Force for Quality Control of Disaster Management: Ethical Issues. Health disaster management: Guidelines for evaluation and research in the Utstein style. Prehospital Disast Med 2003;17(Suppl 2):128143.Google Scholar
21.Weathers, FW, Litz, BT, Herman, DS, Huska, JA, Keane, TM: The post-traumatic stress syndrome Checklist: Reliability, validity, and diagnostic utility. Paper presented at the 9th Annual Meeting of the International Society for Traumatic Stress Studies. San Antonio, Texas; 1994.Google Scholar
22.Andrykowski, MA, Cordova, MJ, Studts, JL, Miller, TW: Posttraumatic stress disorder after treatment for breast cancer: Prevalence of diagnosis and use of the post-traumatic stress syndrome checklist-civilian version (PCL-C) as a screening instrument. J Consulting and Clinical Psych 1996;66:586590.CrossRefGoogle Scholar
23.Ruggiero, KJ, Del Ben, K, Scotti, JR, Rabalais, AE: Psychometric properties of the post-traumatic stress syndrome checklist–civilian version. J Trauma Stress 2003;16(5):495502.CrossRefGoogle ScholarPubMed
24.Galea, S, Vlahov, D, Resnick, H, Ahern, J, Susser, E, Gold, J, Bucuvalas, M, Kilpatrick, D:Trends of probable post-traumatic stress disorder in New York City after the September 11 terrorist attacks. Am J Epidemiol 2003;158(6):514524.CrossRefGoogle ScholarPubMed
25.Perrin, M, DiGrande, L, Brackbill, RM, Farfel, M: Impact of the World Trade Center (WTC) attack on the mental health of survivors of collapsed and damaged buildings: Results from the World Trade Center Health Registry (WTCHR). Presentation at the American Public Health Association Conference. Philadelphia, PA, 13 December 2005.Google Scholar
26.Armstrong, JG: Emotional Issues and Ethical Aspects of Trauma Research. In: Carlson, EB, (ed): Trauma Research Methodology. Lutherville MD: Sidran;1996:174187.Google Scholar