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Mass-Gathering Medicine: Creation of an Online Event and Patient Registry

Published online by Cambridge University Press:  03 October 2012

Adam Lund
Affiliation:
Department of Emergency Medicine, University of British Columbia, Vancouver, British Columbia, Canada
Sheila A. Turris
Affiliation:
School of Nursing, University of British Columbia, University of Victoria, British Columbia, Canada
Neda Amiri
Affiliation:
Department of Internal Medicine, University of British Columbia, Vancouver, British Columbia, Canada
Kerrie Lewis
Affiliation:
Mass Gathering Medicine Interest Group, Department of Emergency Medicine, University of British Columbia, Canada
Michael Carson
Affiliation:
Mass Gathering Medicine Interest Group, Department of Emergency Medicine, University of British Columbia, Canada
Corresponding
E-mail address:

Abstract

Introduction/Problem

A review of the mass-gathering medicine literature confirms that the research community currently lacks a standardized approach to data collection and reporting in relation to large-scale community events. This lack of consistency, particularly with regard to event characteristics, patient characteristics, acuity determination, and reporting of illness and injury rates makes comparisons between and across events difficult. In addition, a lack of access to good data across events makes planning medical support on-site, for transport, and at receiving hospitals, challenging. This report describes the development of an Internet-hosted, secure registry for event and patient data in relation to mass gatherings.

Methods

Descriptive; development and pilot testing of a Web-based event and patient registry.

Results

Several iterations of the registry have resulted in a cross-event platform for standardized data collection at a variety of events. Registry and reporting field descriptions, successes, and challenges are discussed based on pilot testing and early implementation over two years of event enrollment.

Conclusion

The Mass-Gathering Medicine Event and Patient Registry provides an effective tool for recording and reporting both event and patient-related variables in the context of mass-gathering events. Standardizing data collection will serve researchers and policy makers well. The structure of the database permits numerous queries to be written to generate standardized reports of similar and dissimilar events, which supports hypothesis generation and the development of theoretical foundations in mass-gathering medicine.

LundA, TurrisSA, AmiriN, LewisK, CarsonM. Mass-Gathering Medicine: Creation of an Online Event and Patient Registry. Prehosp Disaster Med. 2012;27(6):1-11.

Type
Special Report
Copyright
Copyright © World Association for Disaster and Emergency Medicine 2012

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