Abramson, DH, Fabius, AW, Issa, R, et al. (2015) Advanced unilateral retinoblastoma: The impact of ophthalmic artery chemosurgery on enucleation rate and patient survival at MSKCC. PLoS One 10(12), e0145436.
Aggarwal, H, Singh, K, Kumar, P, et al. (2013) A multidisciplinary approach for management of postnucleation socket syndrome with dermis-fat graft and ocular prosthesis: A clinical report. Journal of Prosthodontics 22, 657–660.
Chauveinc, L, Mosseri, V, Quintana, E, et al. (2001) Osteosarcoma following retinoblastoma: Age at onset and latency period. Ophthalmic Genetics 22(2), 77–88.
Custer, PL, Kennedy, RH, Woog, JJ, et al. (2003) Orbital implants in enucleation surgery: A report by the American academy of ophthalmology. Ophthalmology 110, 2054–2061.
Ek, U, Seregard, S, Jacobson, L, et al. (2002) A prospective study of children treated for retinoblastoma: Cognitive and visual outcomes in relation to treatment. Acta Ophthalmologica Scandinavica 80, 294–299.
Elo, S and Kyngäs, H (2015) The qualitative content analysis process. Journal of Advanced Nursing 62, 107–115.
Fidler, MM, Reulen, RC, Winter, DL, et al. (2018) Risk of subsequent bone cancers among 69 460 five-year survivors of childhood and adolescent cancer in Europe. Journal of the National Cancer Institute 110(2), doi: 10.1093/jnci/djx165.
Fingeret, MC, Teo, I and Epner, DE (2014) Managing body image difficulties of adult cancer patients: Lessons from available research. Cancer 120, 633–641.
Fletcher, O, Easton, D, Anderson, K, et al. (2004) Lifetime risks of common cancers among retinoblastoma survivors. Journal of the National Cancer Institute 96, 357–363.
Ford, JS, Chou, JF, Sklar, CA, et al. (2015) Psychosocial outcomes in adult survivors of retinoblastoma. Journal of Clinical Oncology 33, 3608–3614.
Friedman, DN, Chou, JF, Oeffinger, KC, et al. (2016) Chronic medical conditions in adult survivors of retinoblastoma: Results of the Retinoblastoma Survivor Study. Cancer 122, 773–781.
Glaser, B and Strauss, A (1967) The Discovery of Grounded Theory: Strategies for Qualitative Research. Chicago, IL: Aldine.
Hall, LS, Ceisler, E and Abramson, DH (1999) Visual outcomes in children with bilateral retinoblastoma. Journal of the American Association for Pediatric Ophthalmology and Strabismus 3(3), 138–142.
Hsieh, HF and Shannon, SE (2005) Three approaches to qualitative content analysis. Qualitative Health Research 15, 1277–1288.
Kaste, SC, Chen, G, Fontanesi, J, et al. (1997) Orbital development in long-term survivors of retinoblastoma. Journal of Clinical Oncology 15, 1183–1189.
Kelly, KR, McKetton, L, Schneider, KA, et al. (2013) Altered anterior visual system development following early monocular enucleation. Neuroimage Clinical 4, 72–81.
Kleinerman, RA, Tucker, MA, Tarone, RE, et al. (2005). Risk of new cancers after radiotherapy in long-term survivors of retinoblastoma: an extended follow-up. Journal of Clinical Oncology 23, 2272–2279.
Leventhal, H, Phillips, LA and Burns, E (2016) The Common-Sense Model of Self-Regulation (CSM): A dynamic framework for understanding illness self-management. Journal of Behavioral Medicine 39, 935–946.
Liu, JC, Givi, B, Wolden, S, et al. (2011) Secondary skull base malignancies in survivors of retinoblastoma: The Memorial Sloan Kettering Cancer Center experience. Skull Base 21(2), 103–108.
Lu, JE, Francis, JH, Dunkel, IJ, et al. (2019) Metastases and death rates after primary enucleation of unilateral retinoblastoma in the USA 2007–2017. British Journal of Ophthalmology 103, 1272–1277.
MacCarthy, A, Bayne, AM, Brownbill, PA, et al. (2013) Second and subsequent tumours among 1927 retinoblastoma patients diagnosed in Britain 1951–2004. British Journal of Cancer 108, 2455–2463.
Marees, T, Moll, AC, Imhof, SM, et al. (2008) Risk of second malignancies in survivors of retinoblastoma: More than 40 years of follow-up. Journal of the National Cancer Institute 100, 1771–1779.
Marees, T, van Leeuwen, FE, Schaapveld, M, et al. (2010) Risk of third malignancies and death after a second malignancy in retinoblastoma survivors. European Journal of Cancer 46, 2052–2058.
McAndrew, LM, Musumeci-Szabó, TJ, Mora, PA, et al. (2008) Using the common sense model to design interventions for the prevention and management of chronic illness threats: From description to process. British Journal of Health Psychology 13(Pt 2), 195–204.
Mourits, DL, Hartong, DT, Lissenberg-Witte, BI, et al. (2018) Cosmetic results of enucleation and/or external beam radiation therapy in 195 retinoblastoma survivors. Acta Ophthalmologica 96, 631–640.
Peylan-Ramu, N, Bin-Nun, A, Skleir-Levy, M, et al. (2001) Orbital growth retardation in retinoblastoma survivors: Work in progress. Medical and Pediatric Oncology 37, 465–470.
Popa-Velea, O, Diaconescu, L, Jidveian Popescu, M, et al. (2017) Resilience and active coping style: Effects on the self-reported quality of life in cancer patients. International Journal of Psychiatry in Medicine 52, 124–136.
Tamboli, D, Topham, A, Singh, N, et al. (2015) Retinoblastoma: A SEER dataset evaluation for treatment patterns, survival, and second malignant neoplasms. American Journal of Ophthalmology 160, 953–958.
van Dijk, J, Imhof, SM, Moll, AC, et al. (2007a) Quality of life of adult retinoblastoma survivors in the Netherlands. Health and Quality of Life Outcomes 5, 30.
van Dijk, J, Huisman, J, Moll, AC, et al. (2007b) Health-related quality of life of child and adolescent retinoblastoma survivors in the Netherlands. Health and Quality of Life Outcomes 5, 65.
van Dijk, J, Grootenhuis, MA, Imhof, SM, et al. (2009a) Coping strategies of retinoblastoma survivors in relation to behavioral problems. Psychooncology 18, 1281–1289.
van Dijk, J, Oostrom, KJ, Imhof, SM, et al. (2009b) Behavioral functioning of retinoblastoma survivors. Psychooncology 18, 87–95.
Willard, VW, Qaddoumi, I, Chen, S, et al. (2014) Developmental and adaptive functioning in children with retinoblastoma: A longitudinal investigation. Journal of Clinical Oncology 32, 2788–2793.
Yu, CL, Tucker, MA, Abramson, DH, et al. (2009) Cause-specific mortality in long-term survivors of retinoblastoma. Journal of the National Cancer Institute 101, 581–591.
Zhang, L, Gao, T and Shen, Y (2018) Quality of life in children with retinoblastoma after enucleation in China. Pediatric Blood & Cancer 65(7), e27024.