Agledahl, K.M., Gulbrandsen, P., Forde, R., et al. (2011). Courteous but not curious: How doctors' politeness masks their existential neglect. A qualitative study of video-recorded patient consultations. Journal of Medical Ethics, 37(11), 650–654.
Anonymous (1995). A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT principal investigators. The Journal of the American Medical Association, 274(20), 1591–1598. Erratum in JAMA, 175(16), 1232.
Austrom, M.G., Hartwell, C., Moore, P.S., et al. (2006). A care management model for enhancing physician practice for Alzheimer's disease in primary care. Clinical Gerontologist, 29(2), 35–43.
Bakitas, M., Stevens, M., Ahles, T., et al. (2004). Project ENABLE: A palliative care demonstration project for advanced cancer patients in three settings. Journal of Palliative Medicine, 7(2), 363–372.
Baughman, K.R., Aultman, J., Hazelett, S., et al. (2012). Managing in the trenches of consumer care: The challenges of understanding and initiating the advance care planning process. Journal of Gerontological Social Work, 55(8), 721–737.
Bernard, H.R. (1994). Research methods in anthropology: Qualitative and quantitative approaches. Thousand Oaks, CA: Sage.
Boustani, M.A., Sachs, G.A., Alder, C.A., et al. (2011). Implementing innovative models of dementia care: The Healthy Aging Brain Center. Aging & Mental Health, 15(1), 13–22.
Bransford, J.D., Brown, A.L. & Cocking, R.R. (eds.) (2001). How people learn: Brain, mind, experience, and school. (2001). Washington, DC: The National Academies Press.
Callahan, C.M., Kroenke, K., Counsell, S.R., et al. (2005). Treatment of depression improves physical functioning in older adults. Journal of the American Geriatrics Society, 53(3), 367–373.
Callahan, C.M., Boustani, M.A., Unverzagt, F.W., et al. (2006). Effectiveness of collaborative care for older adults with Alzheimer's disease in primary care: A randomized controlled trial. The Journal of the American Medical Association, 295(18), 2148–2157.
Cottingham, A.H., Alder, C., Austrom, M.G., et al. (2014). New workforce development in dementia care: Screening for “caring.” Preliminary data. Journal of the American Geriatrics Society, 62(7), 1364–1368.
Counsell, S.R., Callahan, C.M., Clark, D.O., et al. (2007). Geriatric care management for low-income seniors: A randomized controlled trial. The Journal of the American Medical Association, 298(22), 2623–2633.
Counsell, S.R., Callahan, C.M., Tu, W., et al. (2009). Cost analysis of the Geriatric Resources for Assessment and Care of Elders care management intervention. Journal of the American Geriatrics Society, 57(8), 1420–1426.
Crabtree, B.F. & Miller, M. (eds.) (1999). Doing qualitative research: Methods for primary care. Thousand Oaks, CA: Sage.
Detering, K.M., Hancock, A.D., Reade, M.C., et al. (2010). The impact of advance care planning on end-of-life care in elderly patients: Randomised controlled trial. British Medical Journal, 340, c1345.
de Vleminck, A., Pardon, K., Beernaert, K., et al. (2014). Barriers to advance care planning in cancer, heart failure and dementia patients: A focus group study on general practitioners' views and experiences. PLoS One, 9(1), e84905.
Earle, C.C., Neville, B.A., Landrum, M.B., et al. (2004). Trends in the aggressiveness of cancer care near the end of life. Journal of Clinical Oncology, 22(2), 315–321.
Glaser, B.G. & Strauss, A.L. (2009). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine Publishing.
Gott, M., Gardiner, C., Small, N., et al. (2009). Barriers to advance care planning in chronic obstructive pulmonary disease. Palliative Medicine, 23(7), 642–648.
Greutmann, M., Tobler, D., Colman, J.M., et al. (2013). Facilitators of and barriers to advance care planning in adult congenital heart disease. Congenital Heart Disease, 8(4), 281–288.
Heyland, D.K., Barwich, D., Pichora, D., et al. (2013). Failure to engage hospitalized elderly patients and their families in advance care planning. JAMA Internal Medicine, 173(9), 778–787.
Horsman, J., Furlong, W., Feeny, D., et al. (2003). The Health Utilities Index (HUI): Concepts, measurement properties and applications. Health and Quality of Life Outcomes, 1, 54.
Institute of Medicine (IOM) (2014). Dying in America: Improving quality and honoring individual preferences near the end of life. Washington, DC: The National Academies Press.
Johnston, S.C., Pfeifer, M.P. & McNutt, R. (1995). The discussion about advance directives: Patient and physician opinions regarding when and how it should be conducted. End-of-Life Study Group. Archives of Internal Medicine, 155(10), 1025–1030.
Katon, W.J., Schoenbaum, M., Fan, M.Y., et al. (2005). Cost-effectiveness of improving primary care treatment of late-life depression. Archives of General Psychiatry, 62(12), 1313–1320.
Keating, N.L., Landrum, M.B., Rogers, S.O., et al. (2010). Physician factors associated with discussions about end-of-life care. Cancer, 116(4), 998–1006.
Kirolos, I., Tamariz, L., Schultz, E.A., et al. (2014). Interventions to improve hospice and palliative care referral: A systematic review. Journal of Palliative Medicine, 17(8), 957–964.
Kroenke, K. & Spitzer, R.L. (2002). The PHQ–9: A new depression diagnostic and severity measure. Psychiatric Annals, 32(9), 1–7.
Morrison, R.S. (2013). Research priorities in geriatric palliative care: An introduction to a new series. Journal of Palliative Medicine, 16(7), 726–729.
Nelson, J.E., Gay, E.B., Berman, A.R., et al. (2011). Patients rate physician communication about lung cancer. Cancer, 117(22), 5212–5220.
Pardon, K., Deschepper, R., Vander Stichele, R., et al. (2012). Preferred and actual involvement of advanced lung cancer patients and their families in end-of-life decision making: A multicenter study in 13 hospitals in Flanders, Belgium. Journal of Pain and Symptom Management, 43(3), 515–526.
Patel, R.V., Sinuff, T. & Cook, D.J. (2004). Influencing advance directive completion rates in non-terminally ill patients: A systematic review. Journal of Critical Care, 19(1), 1–9.
Shalowitz, D.I., Garrett-Mayer, E. & Wendler, D. (2006). The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine, 166(5), 493–497.
Sherbourne, C.D. & Stewart, A.L. (1991). The MOS social support survey. Social Science & Medicine, 32(6), 705–714.
Silveira, M.J., Kim, S.Y. & Langa, K.M. (2010). Advance directives and outcomes of surrogate decision making before death. The New England Journal of Medicine, 362(13), 1211–1218.
Spitzer, R.L., Kroenke, K., Williams, J.B., et al. (2006). A brief measure for assessing generalized anxiety disorder: The GAD–7. Archives of Internal Medicine, 166(10), 1092–1097.
Steinhauser, K.E., Christakis, N.A., Clipp, E.C., et al. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. The Journal of the American Medical Association, 284(19), 2476–2482.
Steinhauser, K.E., Christakis, N.A., Clipp, E.C., et al. (2001). Preparing for the end of life: Preferences of patients, families, physicians, and other care providers. Journal of Pain and Symptom Management, 22(3), 727–737.
Tobler, D., Greutmann, M., Colman, J.M., et al. (2012). Knowledge of and preference for advance care planning by adults with congenital heart disease. The American Journal of Cardiology, 109(12), 1797–1800.
Tulsky, J.A., Fischer, G.S., Rose, M.R., et al. (1998). Opening the black box: How do physicians communicate about advance directives?
Annals of Internal Medicine, 129(6), 441–449.
Unutzer, J., Katon, W., Callahan, C.M., et al. (2002). Collaborative care management of late-life depression in the primary care setting: A randomized controlled trial. The Journal of the American Medical Association, 288(22), 2836–2845.
Working Group on Health Outcomes for Older Persons with Multiple Chronic Conditions (2012). Universal health outcome measures for older persons with multiple chronic conditions. Journal of the American Geriatrics Society, 60(12), 2333.
Wright, A.A., Zhang, B., Keating, N.L., et al. (2014). Associations between palliative chemotherapy and adult cancer patients' end-of-life care and place of death: Prospective cohort study. British Medical Journal, 348, g1219.