Ambalavanan, N., Carlo, W.A., Bobashev, G., et al. (2005). Predication of death for extremely low birth weight neonates. Pediatrics, 116, 1367–1373.
Balaguer, A., Martin-Ancel, A., Ortigoza-Escobar, D., et al. (2012). The model of palliative care in the perinatal setting: A review of the literature. BMC Paediatrics, 12, 1–7.
Burns, J.P., Mitchell, C., Griffith, J.L., et al. (2001). End-of-life care in the pediatric intensive care unit: Attitudes and practices of pediatric critical care physicians and nurses. Critical Care Medicine, 29, 658–664.
Carter, B. (2004). Providing palliative care for newborns. Pediatric Annals, 33, 770–777.
Carter, B. & Levetown, M. (2004). Palliative care for infants, children and adolescents. Baltimore: Johns Hopkins University Press.
Catlin, A. & Carter, B. (2002). State of the art: Creation of a neonatal end-of-life palliative care protocol. Journal of Perinatology, 22, 184–195.
Claxton-Oldfield, S., Claxton-Oldfield, J. & Rishchynski, G. (2004). Understanding of the term “palliative care”: A Canadian survey. The American Journal of Hospice & Palliative Medicine, 21, 105–110.
Cote-Arsenault, D. & Denney-Koelschm, E. (2011). “My baby is a person”: Parents' experiences with life-threatening fetal diagnosis. Journal of Palliative Medicine, 14, 1302–1308.
d'Apolito, K.C. (2006). State of the science: Procedural pain management in the neonate. Journal of Perinatal & Neonatal Nursing, 20, 56–61.
Gilmer, M.J. (2002). Pediatric palliative care: A family-centered model for critical care. Critical Care Nursing Clinics of North America, 14, 207–214.
Institute of Medicine, Committee on Palliative and End-of-Life Care for Children and Their Families (IOM) ( 2003). When children die: Improving palliative and end-of-life care for children and their families. Washington, DC: National Academy Press.
Kain, V.J. (2006). In the NICU: What barriers do neonatal nurses face? Neonatal Network, 25, 387–392.
Kain, V., Gardner, G. & Yates, P. (2009). Neonatal palliative care attitude scale: Development of an instrument to measure the barriers to and facilitators of palliative care in neonatal nursing. Pediatrics, 123, 207–213.
Kobler, K. & Limbo, R. (2011). Making a case: Creating a perinatal palliative care service using a perinatal bereavement program model. Journal of Perinatal & Neonatal Nursing, 25, 32–41.
Liben, S., Papadatou, D. & Wolfe, J. (2008). Pediatric palliative care: Challenges and emerging ideas. Lancet, 371, 852–864.
Mancini, A., Kelly, P. & Bluebond-Langner, M. (2013). Training neonatal staff for the future in neonatal palliative care. Seminars in Fetal and Neonatal Medicine, 18, 111–115.
Manfredi, P.L., Morrison, R.S., Morris, J., et al. (2000). Palliative care consultations: How do they impact the care of hospitalized patients? Journal of Pain and Symptom Management, 20, 166–173.
Meghani, S.H. (2004). A concept analysis of palliative care in the United States. Journal of Advanced Nursing, 46, 152–161.
Miles, M.B. & Huberman, A.M. (1994). Qualitative data analysis: An expanded sourcebook, 3rd ed.Thousand Oaks, CA: Sage.
Moro, T., Kavanaugh, K., Okuno-Jones, S., et al. (2006). Neonatal End-of-Life Care: A Review of the Research Literature. Journal of Perinatal & Neonatal Nursing, 20, 262–273.
Morse, J.M. & Richards, L. (2002). Readme first for a user's guide to qualitative methods. Thousand Oaks, CA: Sage.
Morstad Boldt, A., Yusuf, F. & Himelstein, B.P. (2006). Perceptions of the term palliative care. Journal of Palliative Medicine, 9, 1128–1136.
Muraskas, J. & Parsi, K.P. (2008). The cost of saving the tiniest lives: NICUs versus prevention. Virtual Mentor, 10, 655–658.
NVivo 8 (2008). NVivo Qualitative Data Analysis (Version 8) [Computer software]. Melbourne: QSR International.
Pastrana, T., Jünger, S., Ostgathe, C., et al. (2008). A matter of definition: Key elements identified in a discourse analysis of definitions of palliative care. Journal of Palliative Medicine, 22, 222–232.
Peek, C.J. (2008). Planning care in the clinical, operational, and financial worlds. In Collaborative medicine case studies: Evidence in practice. Kessler, R. & Stafford, D. (eds.), pp. 25–38. New York: Springer.
Romesberg, T. (2004). Understanding grief: A component of neonatal palliative care. Journal of Hospice and Palliative Nursing, 6, 161–170.
Sumner, E., Kavanaugh, K. & Moro, T. (2006). Extending palliative care into pregnancy and the immediate neonatal period: State of the practice of perinatal palliative care. Journal of Perinatal & Neonatal Nursing, 20, 113–116.
Tolle, S., Tilden, V., Rosenfeld, A. & Hickman, S. (2000). Family reports of barriers to optimal care of the dying. Nursing Research, 49, 310–317.
van Zuuren, F.J. & van Manen, E. (2006). Moral dilemmas in neonatology as experienced by health care practitioners: A qualitative approach. Medicine, Health Care, and Philosophy, 9, 339–347.
Widger, K. & Picot, C. (2008). Parents' perceptions of the quality of pediatric and perinatal end-of-life care. Pediatric Nursing, 34, 53–58.
Wright, V., Prasun, M.A. & Hilgenberg, C. (2011). Why is end-of-life care so sporadic: A quantitative look at the barriers to and facilitators of providing end-of-life care in the neonatal intensive care unit. Advances in Neonatal Care, 11, 29–36.